My son has been diagnosed with Chronic Lyme

March 30, 2012

Just wanted to share with you that my son has recently been diagnosed with

chronic lyme following a Borrelia-Elispot-LTT blood test! My son is 9 years old

and has never had a tick bite in my knowledge! He has regressive autism and was

not really apparent until over 2 and 3/4! He is non verbal and suffers from many

gut issues! I have bio-meded him for years and has been on diets since

diagnosis.

I posted a while back as he was having these terrible monthly meltdowns that

started in July last year. They last exactly 7 days and happen every 4 and 1/2

weeks! After researching Lymes I realised this seem to be the possible cause of

these meltdowns as it can be very cyclic in its behaviour and the body struggles

to deal with it when it is active and this causes what Lyme sufferers call flare

up's! I think some other bacterial or viral infection may have triggered a big

immune response that caused these new more severe flare ups. I am wondering now

if all his bad times may have been quite cyclic had they been more severe so I

had noticed them more.

I had no idea my son had Lymes but had read a lot about the big link to this and

autism! we have all seen the French antibiotic videos recently too which show

more research being done on this bacterial infection link to autism!

We have started the long haul treatment this week and are using both bio-med and

abx and we are under Breakspear and a great naturopath/herbalist!

I wanted to share this as if anyone has any thoughts about their own child

having Lymes, that they may also go ahead and test! It is possible we pass it on

to our children in the womb, and it lays dormant until a immune type trigger

such as vaccinations. illnesses etc. There is a fairly new very sensitive test

that picks up antibodies. My son tested negative to the standard NHS Lymes test,

and inconclusive to the Western Blot (although leaning towards positive) But the

Borrelia-Elispot-LTT was clearly positive.

Also wondered if anyone else on the group is treating their child for Lymes??

Thanks

Sophie x

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