100 days Fever Free!

[Guest guest]

Just had to write a note that Dani has been fever free for 100 days.

Last fever was 11/16/07 and T & A on 12/11/07. She is now 31 months old

(2.5 years old) and fevering since 7 months.

For those unfamiliar - We used Prednisone, but encountered significant

behavioral changes and shortening of duration between episodes - so we

had to scale way back on the Prednisone. We also tried Cimetidine for 4

months without affect. Given she needed ear tubes placed in for a

second time, we chose to do the T & A. I must say she seems to be a

happier child - even when she has a cough or runny nose. She has only

run one short 3 hour fever of 101 (we think it was related to some

congestion she had -- but it disappeared on its own).

I know it is a difficult decision, but we've noticed wonderful side

benefits - she sleeps harder at night, takes longer naps, and has been

potty trained in 2 weeks (which had been tried once before, but when she

was sick, it was hard to take her to the potty every 30-60 minutes and

that kept setting us back). Not sure which of these can be attributed

to T & A versus simply growing up - but it seems overall she is happier

and healthier.

I do recommend making sure the children are of significant weight prior

to trying this, and planning to be home or have a very diligent

caregiver for 2 weeks. We are fortunate that Dani was about 34 pounds

(tall and stocky, not just heavy), because she lost about 3 pounds in

that first week post-T & A, because she ate NO food for 7 days. She has

bounced back and gained a pound or two on top of where she was.

I pray for all of your children and hope that more is discovered about

this odd disorder and any associated fever disorders.

Ginger

Ginger M. Hackett, PMP, ABCP

Systems Solutions Principal

CAR Financial Services, Inc.

5 Concourse Parkway, Suite 400

Atlanta, GA 30328

New Work Phone: (770) 828-1397

TREO Phone: (404) 915-5035