Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 My name is . My 4 1/2 yr old daughter, Gracie, was just diagnosed yesterday with . I can say that I am relieved to finally have some answers to her symptoms. She has had the reoccuring fevers, sore throat, mouth sores, and stomach pain since she was about 6 months old. Every doctor she has seen has always said the same thing, " It's just a virus " . I wondered why she would be getting the same virus almost every month. The doctor she saw yesterday, knew right away what was wrong with her. As I was listing her symptoms to him, he just said " Yes, that sounds like . " I thought he made up a word to get me to be quiet and stop brining my child to the doctor every month. So I called him back later and asked more questions and found out he wasn't making up a word. I am so glad this dotor has been educated in this disorder. I spent the rest of the evening researching and came across this group. I am looking forward to learning all that I can about my daughter's illness. Quote Link to comment Share on other sites More sharing options...
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