Re: Regression from probiotics?

[Guest guest]

This is exactly the same experience that we have had. I'm interested though in

why it is he doesn't seem =1qto react to yoghurt etc, only to probiotics in

supplement form. is it the concentration?

> >

> > Hi all,

> >

> > My son (4) has an autism diagnosis and I suspect he also has

> PANDAS/PANS. He's been on Acyclovir and fluconazol since December. We

> had a good couple of months after starting the antivirals with progress

> especially with gross motor and awareness. He also started using some

> more speech (he's

> > only had little speech since his regression 1,5 years back). Then

> something happened and he started drooling, having more OCD, temper

> tantrums and was even limping at times. The speech regressed and became

> really grunting. He was put on two short courses of antibiotics, and the

> limping went away but the other symptoms mainly remained.

> >

> > I went through my notes and noticed that I'd put my son on Custom

> probiotics (D-lactate free) shortly before the regression. I started the

> probiotics with only half a baby spoon (maybe 10 B CFU) a day and built

> it up to 25 and then 50 a day. The regression started one-two weeks

> after starting the probiotics. When there seemed to be no change for the

> better (regression had lasted over 6 weeks) I dropped the probiotics.

> This was a few days ago now, and he stopped the drooling a couple of

> days ago now. He's also talking a little more again. So... I've heard

> that probiotics with a strep strain can have a negative effect on PANDAS

> kids, but what about other probiotics? If they can cause a regression,

> then WHY does it happen? Surely die off should not last this long?

> >

> > We've seen drooling and limping once before, and that was at the time

> our son regressed in the first place. He was on no

> supplements/medications then. Right now he's GF/CF and on a few

> supplements.

> >

> > I would appreciate any help with figuring out what's going on. Should

> I stay away from all probiotics in the future? I'm really scared to

> start any for the time being...

> >

> > Thanks for any help!

> >

> > N

> >

>