Evening Primrose Oil

[Guest guest]

slygreene@... wrote:

> " You can locate Evening Primrose Oil at any Pharmacy or Health shop.

I found it at Wal-Mart!! Seventy-five 500 mg softgels for less than $7.

I started taking 3,000 mgs per day just last week and pray it will help.

Patty Bacon in the Pineywoods of East Texas where winter has arrived. Brrrr

...!!

[Guest guest]

Petra- my ex wife is called Petrie, named after an archaeologist, her

parents are a bit strange......she was born in the UK

david

>From: " Petra Davies " <petra_davies@...>

>Reply- onelist

>< onelist>

>Subject: [ ] Evening Primrose Oil

>Date: Sun, 13 Feb 2000 13:51:57 -0000

>

>From: " Petra Davies " <petra_davies@...>

>

>Gillian - thanks for the info on Evening Primrose Oil - will definitely

>give that a try!! Oh the joy of not being able to recall your last

>swollen joint!!

>

>How bizarre that you used to work with someone in England called Petra -

>there aren't that many of us around - where abouts in England are you

>from??

>

>Keep well & thanks again for the info,

>

>Petra.

>

>

>Please visit our new web page at:

>http://www.wpunj.edu/icip/pa

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[Guest guest]

<< My Dr. said that I could start EPO if I wanted too, but doesn't know how

much I should take--do you or anyone else know the correct doseage? >>

,

I don't know if what I'm taking is the correct dosage, but I take what is

suggested on the bottle: 1 to 3-500 mg tablets daily with meals. I usually

end up taking 1 per day, as my inflammation currently is not severe.

Patty

[Guest guest]

Hi Patty Thanks for your info on EPO. I saw it in the drug store and they

were all 500 mg. capsules. I hear that taking too many supplements that are

in gel form is not really healthy; but I don't see EPO in dry tablets. I am

starting to take Milk Thistle also as it is a natural liver detoxifier.

thanks again!

[Guest guest]

Carlson wrote:

> I started taking evening primrose oil (gamma linoleic acid) about 6 weeks

> ago, 2600 mg/day.

How wonderful you had such great results, and so soon! That's gotta be very

gratifying --

maybe as much as astounding your rheumy! :-)

Question: I recall Gillian saying to take 1000 mg/day for each condition. I'm

guessing you

take 1000 for the P and 1000 for the PA; did you decide to take the extra 600 mg

" just because " ?

thx,

Louise

[Guest guest]

The reason I take 2600 mg/day is that the capsules I buy are 1300 mg. For

whatever reason, 1300 mg and 500 mg are the only dosages I could find in

Portland, OR and on-line. Taking two 1300 mg caps daily is much cheaper on

a monthly basis than taking four 500 mg caps. I started out with one 1300

mg cap a day without any dramatic relief but no side effects, either, which

was my chief concern. I added a second cap in the evening and now I'm just

waiting to see what develops. All joints are greatly improved except my

feet. I did a double shift yesterday, 7 AM until midnight, on my feet.

Ouch, ouch, ouch. Obviously EPO does not help with judgement or insight!

Have any of you with foot problems tried taping your feet? I have

orthotics, sturdy sensible (read ugly) shoes, magnetic insoles and a fistful

of Vioxx, but nothing helps as much as taping my feet with that wide white

athletic tape. Have a podiatrist show you how once and then you can do it

at home. I'm supposed to do this BEFORE a double shift, but oh well. I'm

thinking of moving up to ankles and knees next. I'll look like The Return

of the Mummy by the end of summer!

Chris

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[Guest guest]

it;s considered a food supplement it has shown to have (not in the US)

affects on P and PA among other things it is mega 3 basically same as flax

sseed oil..you can buy it at any health food store, vitamin store even local

pharmacies have it now.

_Adriel

> From: mshield@...

> Reply- egroups

> Date: Mon, 23 Oct 2000 00:02:56 -0000

> egroups

> Subject: [ ] Evening Primrose Oil

>

> Can someone explain what Evening Primrose Oil is? I did a search but

> it only brought up recent brief references to it. Have any MD's

> recommended it, or is it entirely an alternative med type of thing?

> (not writing it off if it is...just asking) Where do you get it? It

> sounds like a fair number of people are using it...are a lot of

> people getting relief from it? Any side effects?

> Thanks,

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> This past year had moderated a chat on arthritis at

> www.about.com on Thursday evenings and hopes to start up doing so again soon-

> we will keep you posted! Meanwhile, if anyone would like to start a weekly

> chat on egroups, please contact or . Thanks

>

>

>

[Guest guest]

Hello ,

I am taking Evening Primrose Oil daily. It has relieved the pain to the point I am anxious to begin my day early. I can get out of bed and start walking without pain...I don't have to stand there 10 minutes to get things working. I have pain, but I feel so much better. The pain can be tolerated now. This past summer my feet,ankles, legs, and hands were all swollen and very painful. Now they are not. It is an herb. You can probably get it at a health food store, Rite Aid Pharmacy, Wal-mart...I don't know where you are so can't be more specific. It is also good for blood pressure and cholesterol.

I haven't heard of any side effects. I certainly do not have any. Gillian was the one that got me started on EPO. And I thank her each chance I get. It is an alternative measure. My naturopathic doctor helped me figure out how much I needed.

Do some more research on it...

Donna from Michigan.

mshield@... wrote:

Can someone explain what Evening Primrose Oil is? I did a search but it only brought up recent brief references to it. Have any MD's recommended it, or is it entirely an alternative med type of thing? (not writing it off if it is...just asking) Where do you get it? It sounds like a fair number of people are using it...are a lot of people getting relief from it? Any side effects?Thanks, Please visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks

[Guest guest]

I got my Evening Primrose Oil at Vitamin World at the mall. My RD gave me

his blessing on taking it with the Arava. I believe it is an essential

fatty acid that affects cartilage and tendon repair.

Rae

[ ] Evening Primrose Oil

> Can someone explain what Evening Primrose Oil is? I did a search but

> it only brought up recent brief references to it. Have any MD's

> recommended it, or is it entirely an alternative med type of thing?

> (not writing it off if it is...just asking) Where do you get it? It

> sounds like a fair number of people are using it...are a lot of

> people getting relief from it? Any side effects?

> Thanks,

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> This past year had moderated a chat on arthritis at

www.about.com on Thursday evenings and hopes to start up doing so again

soon- we will keep you posted! Meanwhile, if anyone would like to start a

weekly chat on egroups, please contact or . Thanks

>

>

>

[Guest guest]

- In the U.S. I guess Evening Primrose Oil is considered a dietary

supplement. You can buy it at most supermarkets and pharmacies over the

counter. I believe it may require prescription in other countries. I've

been taking one tablet a night for the last few months. I also take

prednisone (but I've been weaning off of that) and MTX and Vioxx -

So far so good, haven't had a flare since my last one came on after surgery

about 6 months ago.

[Guest guest]

Hi Donna,

It's so good to hear you feleling a lot better than you did a few months

ago!!! How much EPO do you take? I started taking a 1300 mg capsule/ day

about 3 weeks ago. How long did it it take before you started improving?? I

am waiting patiently, but so far, I have been having 1 good week , then 1

bad one. My back has been giving me fits.

in Wisconsin

[Guest guest]

Hi ,

I don't think mine was that large of mg...mine were 500mg. I started taking 8 a day and now I've tapered off to 4 a day. I still feel great and hardly any pain in a normal day. It is great to be among the living.

I began to feel better almost immediately, but it took two months before the pain let up. My feet, ankles, legs, and hands and fingers are no longer swollen either. I keep holding my breath for fear it will go away. This tolerable pain level is great. I can handle it now and I don't have to use my cane unless I'm standing or going shopping.

I guess each one of us will react differently to EPO...but mine took a good 2 months and I haven't looked back. Hang in there...you will feel better...keep taking it. I think Gillian says take a 1,000mg per disease we are working with...don't quote me...look up in the archives some of her postings...

Donna in Mich.

clonan@... wrote:

Hi Donna,It's so good to hear you feleling a lot better than you did a few months ago!!! How much EPO do you take? I started taking a 1300 mg capsule/ day about 3 weeks ago. How long did it it take before you started improving?? I am waiting patiently, but so far, I have been having 1 good week , then 1 bad one. My back has been giving me fits. in Wisconsin-------------------------- eGroups Sponsor -------------------------~-~>eGroups eLertsIt's Easy. It's Fun. Best of All, it's Free!>Please'>1/9698/4/_/494167/_/972434907/-------------------------------------------------------------------->Please visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks

[Guest guest]

Hi Donna! How much EPO do you take? Gillian had mentioned something

about watching the Vitamin E added to it which is helpful, but I don't

know how to judge how much EPO we will actually get. Thanks for your

help and all others who responded about it.

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[Guest guest]

Hi Pat,

I don't know the answer to that one. Gillian could tell you. She should be off holiday soon...You can go to PA-Socialegroups and ask her. Sorry I can't help you with that one.

Donna

Pat A McCauley <pat.mc@...> wrote:

Hi Donna! How much EPO do you take? Gillian had mentioned somethingabout watching the Vitamin E added to it which is helpful, but I don'tknow how to judge how much EPO we will actually get. Thanks for yourhelp and all others who responded about it.________________________________________________________________YOU'RE PAYING TOO MUCH FOR THE INTERNET!Juno now offers FREE Internet Access!Try it today - there's no risk! For your FREE software, visit:http://dl.www.juno.com/get/tagj.-------------------------- eGroups Sponsor -------------------------~-~>eGroups eLertsIt's Easy. It's Fun. Best of All, it's Free!>Please'>1/9698/4/_/494167/_/972493546/-------------------------------------------------------------------->Please visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks

[Guest guest]

-

Ben had a horrible reaction to Evening Primrose Oil. He would start

shrieking like he was in terrible pain, and then broke out in a mild rash.

It was such a bad experience that we considered not doing the CLO, but so

far he seems to be okay with that. Good luck!

Kris

aka@...

[ ] Evening Primrose Oil

> Has anyone out there had any experiences with EPO? (Good or bad).

> Because it helped my husband so many years ago with MS, and Kelsey is

> so allergic to CLO (actually any fish oil) and the dry winter season

> is upon us, I decided to give her a capsule yesterday. You should

> have seen the regression. Oh my goodness! There were some significant

> gains in that she noticed a man waiting for the bus and she asked why

> he was standing there. I guess she's never noticed the people

> waiting there for the last 5 years.

>

> Would love feedback on this.

>

> Thanks -

>

>

>

>

>

>

[Guest guest]

> Vic,

>

> If you are looking for a UK product in liquid form

> rather than capsules check out

> www.hollandandbarrett.co.uk

> They also sell flaxseed oil in liquid but there is

> some controversy as to whether this is not as good as

> EPA Fish oil.

There is no controversy - fish oil is better if you are a millionaire.

For those of us who have budget limitations, flax oil is enough

cheaper to make up for the fact that it is almost as good.

Andy

>

> Best wishes,

> Terry Fitton, Birmingham.

>

> __________________________________________________

>

[Guest guest]

In a message dated 05/08/2002 15:38:03 GMT Daylight Time, jajgelm@...

writes:

> ....And how do I get this down him??!!

> Thanks,

> Jill

>

My son Sam hates the texture of oils - we mix EPO and Fish Oils in his

yoghurt now - voila! its gone!

HTH

Mandi in UK

[Guest guest]

If your kids will eat them, mashed potatoes are wonderful for hiding things in.

I don't know about saticking fish oils in them, but flax, grapeseed, sunflower,

and sesame,along with coconut milk go pretty well in there. i sneak " healthy "

oils in for the whole family. hey're never around long enough for anyone to ask

what's in them LOL

Re: [ ] Evening Primrose Oil

In a message dated 05/08/2002 15:38:03 GMT Daylight Time, jajgelm@...

writes:

> ....And how do I get this down him??!!

> Thanks,

> Jill

>

My son Sam hates the texture of oils - we mix EPO and Fish Oils in his

yoghurt now - voila! its gone!

HTH

Mandi in UK

[Guest guest]

In a message dated 8/5/2002 9:38:09 AM Central Daylight Time,

jajgelm@... writes:

> ....And how do I get this down him??!!

> Thanks,

> Jill

>

Jill, I sometimes apply EFAs to my son transdermally after he's asleep. I'm

sure this is not as effective as taking them orally, but also suspect it's

far better than not getting them at all. Evening primrose oil leaves a great

smell and stain on bedclothes, far worse than cod liver oil, so if you try

this, be prepared.

Debbie

[Guest guest]

Most oils mix well into nut butters too if you child eats those.

Be sure the child eats at least a little protien when taking nutritional oils

so they are absorbed well.

Gaylen

[Guest guest]

I use liquid EFAs (mixture of Evening Primrose, Flax, and Borage) and drizzle

it over millet or rice and veggies instead of butter or margarine. One could

use it on pocorn or whatever. Add it after any cooking so as to maintain the

nutritional value. S

From: [mailto: Mum231ASD@...] @...: Mon, 5

Aug 2002 11:23:33 EDTSubject: Re: [ ] Evening Primrose OilIn a

message dated 05/08/2002 15:38:03 GMT Daylight Time, jajgelm@...

writes: & gt; ....And how do I get this down him??!! & gt; Thanks, & gt; Jill & gt; My

son Sam hates the texture of oils - we mix EPO and Fish Oils in his yoghurt now

- voila! its gone!HTHMandi in UK[Non-text portions of this message have been

removed]

[Guest guest]

From: " ~CANARY~ " <oldecuriosity@...>

>(also the American diet is missing Omega

>3 fatty acids!) I take evening Primrose oil

>for this but you can take fish oil or flax

>seed oil also.

*****************

Hi again. Yes! Omega-3 fatty acids are low in

most diets. Yes, fish oil or flax seed oil are good

sources. However, the evening primrose oil is

high in the Omega-6, not in the Omega-3...so

whereas there may be good reasons to take

Evening Primrose Oil, boosting Omega-3 is

not one of them...it really means one must

get even more Omega-3 from other sources

to ratio out that hi Omega-6 source.

Katy

[Guest guest]

> Anyone use this for your kids, and if so, please tell

> me what brand to get? I have read that the Evening

> Primrose oil is much safer than borage oil.

I used EPO, Henry's brand. It worked well until my son tolerated flax

oil. However, if your child is low on EFAs, like my son, it will pull

magnesium for absorption, causing a magnesium deficiency, causing

constipation and muscle cramps. So have magnesium on hand in case

your child gets constipated.

Dana

[Guest guest]

I have a friend who's daughter had a BAD reaction to Elidel*, and

she was able to cure her daughter's severe all-over eczema by

squeezing the oil out of the capsules onto her skin. She swears by

it. I believe it's not a quick cure, compared to medication, but

it's safe and ultimately effective.

I just found out I'm pregnant, and I have horrible itchy skin all

over my face and chest. I can't use my normal prescription, so

right after I finish this email I'm going to try some of it myself.

Will let you know if I have any luck!

in NJ

*Apparently, about 5% of people who use Elidel develop compromised

immunity temporarily. My friend's daughter was never sick. Then

she started using pretty large quantities of Elidel, and she had

strep or something non-stop for months. Steroid creams have their

own downside as well.

>

> Did anyone ever use evening primrose oil to rub on their child's

skin?

> I was thinking of trying it to get more oil into her since I'm

only

> able to get about 3 mls of cod liver oil in her per day.

>

>

[Guest guest]

, thank you so much!!!! Have a great day, Kathy

[low dose naltrexone] Evening primrose oil

Kathy, I don't know if this is enough information for you, but... Dr. Lawrence has MS himself and has treated thousands of MS patients with LDN and with supplements. Just as Dr. Bihari monitors his patients' reactions to LDN, Bob Lawrence does the same with LDN and supplements. Some of his information may be anecdotal, but I have a lot of faith in his observations. His recommendations on dosage appear in the welcome package the Aletha sends out.

I've attached his document on Essential Fatty Acids. If it doesn't appear, let me know. I've sometimes had trouble attaching things when responding to the Daily Digest.