RE: A Quick Comment/Question

[Guest guest]

Confused about what?

This is like a nice piece of painting claims that there was no painter butrather paintings sometime in the history made up the notion that a paintercreated them!Max.

[Guest guest]

The belief in God and thoughts of maybe going to hell can be as bad as believing

that all life ends at death.

If you felt that your fear was due to mental health problems then it is possible

that is why you had this fear for as long as you can remember. Since you

indicate you due not have this problem that something else is the cause. Mental

health problems run in my family So I have some idea as to what it does. So far

I don't see where you might have a problem.

> > > >

> > > > Funny how after 5000 years a simple sentence of Buddha is distorted to

such extent…He simply said: “Investigate the truth independently.â€

> > > >

> > > >

> > > >

> > > > No wonder it is said: truth is one word but ignorance multiplied

it!...or something like that J

> > > >

> > > >

> > > >

> > > > Max.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Do you remember that:

> > > >

> > > >

> > > >

> > > > Believe nothing just because a so-called wise person said it. Believe

nothing just because it is said to be of divine origin. Believe nothing just

because a belief is generally held. Believe nothing just because it is said in

ancient books. Believe nothing just because it is said to be of divine origin.

Believe nothing just because someone else believes it. Believe nothing just

because it is said to be of divine origin. Believe only what you, yourself,

test and judge to be true.

> > > >

> > > >

> > > >

> > > > Buddha

> > > >

> > >

> >

>

[Guest guest]

Sorry for this comment. Now I understood your and Max's positions. It's philosophical argument and I think we have to stop it for now. Natalia From: Bingham <jlkbbk2003@...> hyperaldosteronism Sent: Wednesday, January 25, 2012 11:49 PM Subject: Re: Re: A Quick

Comment/Question

Confused about what?

This is like a nice piece of painting claims that there was no painter butrather paintings sometime in the history made up the notion that a paintercreated them!Max.

[Guest guest]

I vividly remember that I had this fear at the time when I first understood the concept of death. Nobody in my family had any mental diseases and I am pretty sure that it will be last disease on my plate :-) I never believed in God, but I would prefer to be in hell, than to be nothing :-) Natalia From: Francis Bill SUSPECTED PA <georgewbill@...> hyperaldosteronism Sent: Thursday, January 26, 2012 9:17 AM Subject: Re: A Quick Comment/Question

The belief in God and thoughts of maybe going to hell can be as bad as believing that all life ends at death.

If you felt that your fear was due to mental health problems then it is possible that is why you had this fear for as long as you can remember. Since you indicate you due not have this problem that something else is the cause. Mental health problems run in my family So I have some idea as to what it does. So far I don't see where you might have a problem.

> > > >

> > > > Funny how after 5000 years a simple sentence of Buddha is distorted to such extent…He simply said: “Investigate the truth independently.â€

> > > >

> > > >

> > > >

> > > > No wonder it is said: truth is one word but ignorance multiplied it!...or something like that J

> > > >

> > > >

> > > >

> > > > Max.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Do you remember that:

> > > >

> > > >

> > > >

> > > > Believe nothing just because a so-called wise person said it. Believe nothing just because it is said to be of divine origin. Believe nothing just because a belief is generally held. Believe nothing just because it is said in ancient books. Believe nothing just because it is said to be of divine origin. Believe nothing just because someone else believes it. Believe nothing just because it is said to be of divine origin. Believe only what you, yourself, test and judge to be true.

> > > >

> > > >

> > > >

> > > > Buddha

> > > >

> > >

> >

>

[Guest guest]

I think you have part of your answer. At least for now I think I have gone as

far as I want to in the group. If there is any thing more that you want to talk

about email me at frankbill@....

> > > > >

> > > > > Funny how after 5000 years a simple sentence of Buddha is distorted to

such extent…He simply said: “Investigate the truth independently.â€

> > > > >

> > > > >

> > > > >

> > > > > No wonder it is said: truth is one word but ignorance multiplied

it!...or something like that J

> > > > >

> > > > >

> > > > >

> > > > > Max.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Do you remember that:

> > > > >

> > > > >

> > > > >

> > > > > Believe nothing just because a so-called wise person said it. Believe

nothing just because it is said to be of divine origin. Believe nothing just

because a belief is generally held. Believe nothing just because it is said in

ancient books. Believe nothing just because it is said to be of divine origin.

Believe nothing just because someone else believes it. Believe nothing just

because it is said to be of divine origin. Believe only what you, yourself,

test and judge to be true.

> > > > >

> > > > >

> > > > >

> > > > > Buddha

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hmmmm. As far as I know we are all mortalAll we see, feel and do is related to hormones/genes and their control systems.So if you are not having fun doing what you are doing you need to be doing something else.IMHOHang in there. On Jan 24, 2012, at 5:44 PM, Bingham wrote: i From: Natalia Kamneva <natalia_kamneva@...>Subject: Re: Re: A Quick Comment/Question"hyperaldosteronism " <hyperaldosteronism >Date: Tuesday, January 24, 2012, 1:57 PM BTW, about the fear of death. I experience it from very early childhood. It's a terrible, terrible horror, that appeared on the edge of sleep and awake, always about 40 minutes after getting asleep. It occurred periodically during my whole long life. I asked many people about this feeling and just two of them knew what I am talking about. It's not logical understanding the fact that all of us are mortal, it's more like animal's feeling. It's most horrible terror that I ever experienced in my life. I don't have this feeling anymore. Might it be related to aldosteron's or cortisol spikes? Or I just don't have it anymore because I am old now? Are anybody in this group know what I am talking about? Natalia From: amazingkeltic <rainbowdayz@...>hyperaldosteronism Sent: Friday, January 20, 2012 6:47 PMSubject: Re: A Quick Comment/Question Val,I agree with what you are saying... support groups are so important when one feels isolated and alone, particularly when it comes to health issues. And, yes, it is maddening to go for help and get nothing more than a pat on the head as the providers roll their eyes when your back is turned. At this point, the doctor hopping begins as we look for answers. Our medical record follows us and within that record is a label... hypochondriac, malingerer, seeker, psychotic, you name it... it follows. As an afflicted critical care nurse, I've seen it from both sides.And within this steeping pot of insanity is an idividual who feels sick, is symptomatic and who is afraid... and the fear is death. Will we get help before time runs out. The panic and anxiety naturally follows. However, we never focus on the fact that we make it to the other side of yet another 'episode', 'attack', or 'happening' time and time again. And the focus becomes, 'I am dying and it is up to me to stop it'.It wasn't until it dawned on me that I kept surviving episode after episode and that my fear of death was only worsening the adrenal related symptoms I had. Part of this becomes a mind over matter situation and once we have regained a measure of control over our sanity, a more lucid journey to answers begins. And so, the burden is on each one of us to do the research, to ask the correct questions, and to keep a handle on the emotions that drives the labeling again and again and again. That can only happen when we acknowledge that we are stubborn enough to live into the answers.In no way was I implying that this site and interaction is counterproductive. It was the fear of death behaviors to which I was referring. We are clearly all survivors and we are intelligent enough to use knowledge and insight to regain control of our runaway lives.Barbara I say, Barbara, that we all have our ways of dealing. Most of us here are majorly pissed at the ineptocracy that has taken much of our lives. How better to help new people here than to tell them what is?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of amazingkelticIn reflection, it is highly likely that I've had PA since I was 19 (the time of my first 'nervous breakdown'). Anxiety, panic, agoraphobia, etc., ruled my life off and on for the next 20 years. Even with an adenoma finally revealed, no one ever considered PA. Given my background, all the psych issues made sense and I assigned the HTN, etc., to that stress. So I had normal times and abdormal times... feeling okay times, and feeling like shit times. But in the whole big middle of all of it, I raised 4 kids, graduated magna cum-laude, worked 2-3 jobs until graduation, etc. Translated: I fought feeling the way I did and just bulled my way to the other side.So here's the question: It seems like many here have taken on the identity of victimized PA patient and have imbedded themselves in this singular identity. Why is that? Everyone here is much more than a diagnosis. Sure... many have had no answers. For me, it's been 45 years in the making. But, if all I have left is this tag, I might as well dig a hole and jump in. What I have learned over the years is that my response to what befalls me can make things a whole lot worse. When panic and anxiety settle in, I observe it and let it run its course. Then I go back to the 'real' things that define me.I suppose what I'm saying is that I am much more than this diagnosis and investing at this level is counterproductive as I see it. Your thoughts?Regards,Barbara

[Guest guest]

High plasma aldo in animals makes them seek salt. Man too. The brain thinks the salt in the body is too low and drives the seeking of salt. Perhaps this increases the sense of smell. Can you put together a mini questionaire that we might publish on our site. Never really asked about this in patients say they have a metallic taste in their mouths. Thought to be due to high salivary K.CE Grim MD Maybe this increases the sense of smell tho we usually On Jan 24, 2012, at 5:43 PM, Bingham wrote: It's difficult to know if it's bad habits. Hard exercise and I do seem to sleep better, and without a doubt since PA has been treated it's nothing like it was, but making the time for exercise is tough to do as I teach night classes and get home late. But I was also a paramedic with one eye open for many years so I wonder if did I just pick up bad tendencies I will always live with. I do hear EVERYTHING at night (and when my PA was at it's peak I SMELLED everything to,) so I sleep with a fan next to me for the din. Not sure if this was an acquired trait listening for an alarm all those years. Then I came out and worked the ER for years as a PA and once again I would mainly work 6p to 6a sleeping between patients and so I was restless. I'd sure love to solve it. I am sure there's some explanation for it, but when my PA was out-of-control my sense of smell was so powerful - like a superpower if I had known what to use it for. But resolved when the PA was treated. I have a strong sniffer still, but not like before. Weird uh? From: Natalia Kamneva <natalia_kamneva@...>Subject: Re: Re: A Quick Comment/Question"hyperaldosteronism " <hyperaldosteronism >Date: Tuesday, January 24, 2012, 1:57 PM BTW, about the fear of death. I experience it from very early childhood. It's a terrible, terrible horror, that appeared on the edge of sleep and awake, always about 40 minutes after getting asleep. It occurred periodically during my whole long life. I asked many people about this feeling and just two of them knew what I am talking about. It's not logical understanding the fact that all of us are mortal, it's more like animal's feeling. It's most horrible terror that I ever experienced in my life. I don't have this feeling anymore. Might it be related to aldosteron's or cortisol spikes? Or I just don't have it anymore because I am old now? Are anybody in this group know what I am talking about? Natalia From: amazingkeltic <rainbowdayz@...>hyperaldosteronism Sent: Friday, January 20, 2012 6:47 PMSubject: Re: A Quick Comment/Question Val,I agree with what you are saying... support groups are so important when one feels isolated and alone, particularly when it comes to health issues. And, yes, it is maddening to go for help and get nothing more than a pat on the head as the providers roll their eyes when your back is turned. At this point, the doctor hopping begins as we look for answers. Our medical record follows us and within that record is a label... hypochondriac, malingerer, seeker, psychotic, you name it... it follows. As an afflicted critical care nurse, I've seen it from both sides.And within this steeping pot of insanity is an idividual who feels sick, is symptomatic and who is afraid... and the fear is death. Will we get help before time runs out. The panic and anxiety naturally follows. However, we never focus on the fact that we make it to the other side of yet another 'episode', 'attack', or 'happening' time and time again. And the focus becomes, 'I am dying and it is up to me to stop it'.It wasn't until it dawned on me that I kept surviving episode after episode and that my fear of death was only worsening the adrenal related symptoms I had. Part of this becomes a mind over matter situation and once we have regained a measure of control over our sanity, a more lucid journey to answers begins. And so, the burden is on each one of us to do the research, to ask the correct questions, and to keep a handle on the emotions that drives the labeling again and again and again. That can only happen when we acknowledge that we are stubborn enough to live into the answers.In no way was I implying that this site and interaction is counterproductive. It was the fear of death behaviors to which I was referring. We are clearly all survivors and we are intelligent enough to use knowledge and insight to regain control of our runaway lives.Barbara I say, Barbara, that we all have our ways of dealing. Most of us here are majorly pissed at the ineptocracy that has taken much of our lives. How better to help new people here than to tell them what is?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of amazingkelticIn reflection, it is highly likely that I've had PA since I was 19 (the time of my first 'nervous breakdown'). Anxiety, panic, agoraphobia, etc., ruled my life off and on for the next 20 years. Even with an adenoma finally revealed, no one ever considered PA. Given my background, all the psych issues made sense and I assigned the HTN, etc., to that stress. So I had normal times and abdormal times... feeling okay times, and feeling like shit times. But in the whole big middle of all of it, I raised 4 kids, graduated magna cum-laude, worked 2-3 jobs until graduation, etc. Translated: I fought feeling the way I did and just bulled my way to the other side.So here's the question: It seems like many here have taken on the identity of victimized PA patient and have imbedded themselves in this singular identity. Why is that? Everyone here is much more than a diagnosis. Sure... many have had no answers. For me, it's been 45 years in the making. But, if all I have left is this tag, I might as well dig a hole and jump in. What I have learned over the years is that my response to what befalls me can make things a whole lot worse. When panic and anxiety settle in, I observe it and let it run its course. Then I go back to the 'real' things that define me.I suppose what I'm saying is that I am much more than this diagnosis and investing at this level is counterproductive as I see it. Your thoughts?Regards,Barbara

[Guest guest]

Had a sleep study?CE Grim MDOn Jan 24, 2012, at 1:13 PM, Bingham wrote: I certainly had this odd sense of impending doom with the hyperthyroidism - which is a common concern with that, but I have fought insomnia issues for years and years beyond that. I do fall asleep, but within minutes I often wake, breathless, my heart racing and pounding, and I am very startled, and panicked - seems it occurs just as I doze off and cross the sleep threshhold. Often I get the impression or shadow from some object in the room like someone is standing there, when no one is there, and I bound up from the bed. It never happened young only during all these PA years. It is annoying to say the least.. Sometimes I repeat that a few times and then I am up for hours, never really getting to sleep. From: Natalia Kamneva <natalia_kamneva@...>Subject: Re: Re: A Quick Comment/Question"hyperaldosteronism " <hyperaldosteronism >Date: Tuesday, January 24, 2012, 1:57 PM BTW, about the fear of death. I experience it from very early childhood. It's a terrible, terrible horror, that appeared on the edge of sleep and awake, always about 40 minutes after getting asleep. It occurred periodically during my whole long life. I asked many people about this feeling and just two of them knew what I am talking about. It's not logical understanding the fact that all of us are mortal, it's more like animal's feeling. It's most horrible terror that I ever experienced in my life. I don't have this feeling anymore. Might it be related to aldosteron's or cortisol spikes? Or I just don't have it anymore because I am old now? Are anybody in this group know what I am talking about? Natalia From: amazingkeltic <rainbowdayz@...>hyperaldosteronism Sent: Friday, January 20, 2012 6:47 PMSubject: Re: A Quick Comment/Question Val,I agree with what you are saying... support groups are so important when one feels isolated and alone, particularly when it comes to health issues. And, yes, it is maddening to go for help and get nothing more than a pat on the head as the providers roll their eyes when your back is turned. At this point, the doctor hopping begins as we look for answers. Our medical record follows us and within that record is a label... hypochondriac, malingerer, seeker, psychotic, you name it... it follows. As an afflicted critical care nurse, I've seen it from both sides.And within this steeping pot of insanity is an idividual who feels sick, is symptomatic and who is afraid... and the fear is death. Will we get help before time runs out. The panic and anxiety naturally follows. However, we never focus on the fact that we make it to the other side of yet another 'episode', 'attack', or 'happening' time and time again. And the focus becomes, 'I am dying and it is up to me to stop it'.It wasn't until it dawned on me that I kept surviving episode after episode and that my fear of death was only worsening the adrenal related symptoms I had. Part of this becomes a mind over matter situation and once we have regained a measure of control over our sanity, a more lucid journey to answers begins. And so, the burden is on each one of us to do the research, to ask the correct questions, and to keep a handle on the emotions that drives the labeling again and again and again. That can only happen when we acknowledge that we are stubborn enough to live into the answers.In no way was I implying that this site and interaction is counterproductive. It was the fear of death behaviors to which I was referring. We are clearly all survivors and we are intelligent enough to use knowledge and insight to regain control of our runaway lives.Barbara I say, Barbara, that we all have our ways of dealing. Most of us here are majorly pissed at the ineptocracy that has taken much of our lives. How better to help new people here than to tell them what is?ValFrom: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of amazingkelticIn reflection, it is highly likely that I've had PA since I was 19 (the time of my first 'nervous breakdown'). Anxiety, panic, agoraphobia, etc., ruled my life off and on for the next 20 years. Even with an adenoma finally revealed, no one ever considered PA. Given my background, all the psych issues made sense and I assigned the HTN, etc., to that stress. So I had normal times and abdormal times... feeling okay times, and feeling like shit times. But in the whole big middle of all of it, I raised 4 kids, graduated magna cum-laude, worked 2-3 jobs until graduation, etc. Translated: I fought feeling the way I did and just bulled my way to the other side.So here's the question: It seems like many here have taken on the identity of victimized PA patient and have imbedded themselves in this singular identity. Why is that? Everyone here is much more than a diagnosis. Sure... many have had no answers. For me, it's been 45 years in the making. But, if all I have left is this tag, I might as well dig a hole and jump in. What I have learned over the years is that my response to what befalls me can make things a whole lot worse. When panic and anxiety settle in, I observe it and let it run its course. Then I go back to the 'real' things that define me.I suppose what I'm saying is that I am much more than this diagnosis and investing at this level is counterproductive as I see it. Your thoughts?Regards,Barbara