Re: Normal MRI/MRA....no PA?

[Guest guest]

My CT is supposedly normal too, but at this stage of my life and experience with the healthcare system not sure I am convinced. I too have a 1cm cyst on the kidney - very common. You don't say if your cyst is 2.2 cm or mm

From: maggiekat7 <ljurkovic@...>Subject: Normal MRI/MRA....no PA?hyperaldosteronism Date: Monday, January 23, 2012, 4:48 PM

If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA?Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries.No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality.I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc)I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?

[Guest guest]

2.2 cm...on liver...called Doc 3 today (the one consulting with Dr. W. Young at

Mayo) to let them know that scan results are in...to get them from Neph. since

it might be helpful in the consult. I added that I would like to hear any

updates or info and it would be greatly appreciated, but it's almost 8 hear and

I've not heard a peep. I got my scan result by a fluke. I called the hospital,

left a message that I wanted them, gave them my office confidential fax line,

guess it must be in their system as a provider because they sent it. Then, I

called to get the additional bloodwork faxed as well and was told that even

though am we are a doc's office. Since I am the pt., they would have to mail

them, not fax them. Only fax them to docs. Husband's here...he is a doc?

Nope. No dice. Oh well, got the MRI/MRA...glad about that. Since when? Doc 1

faxes me my labs. So have many others...when did this change? When did I lose

the right to my healthcare records? And if I say it's ok to fax and fax them a

release, what gives? This diagnosis journey is like pulling teeth, I have never

seen anything like it! I suppose I can call the message line tomorrow and get

them, otherwise, I'll have to wait until Friday when I see the neph who ordered

them because her office won't even call if they are not abnormal. If they are

abnormal, they let you know what's abnormal, and what doc says about it, (a

nurse calls, not the doc) and if you ask any questions they say, " you can

discuss this and any other concerns you have at your follow up appointment " .

Well, ok...thank you very much....and how much am I paying for this customer no

service? Y'know, 3 of my patients texted me today and I personally and

promptly responded. 4 people on my caseload called me today and I have

personally called them back.

If I were having this issue with just one office, I simply wouldn't go back,

however, I have this problem with doc 1 (although, after pulling teeth, they

will fax my labs...just takes her a while to sign off on them), and doc 3 (he's

the one who is consulting at Mayo on my behalf, who neglected to let me know he

was doing so, and who hasn't yet let me know what my labs from January 12 reveal

completely. Only that my aldo levels was 4, and that my renin is still

" supressed " . No numbers. Potassium was 3.9 plasma, and meta and cata ruled out

a pheo....no numbers. No results from the 24 hour urine test. None. Haven't seen

labs he called about myself because when I asked, again, I was told they would

mail them and that the doc will let me know anything further. Gee, that would

be nice. I already got an EOB from my insurance, they got paid, but I still

have no evaluation or treatment suggestions or results from of labwork done on

Jan 12, 2 weeks ago! My insurance is quicker to pay than my doc is in letting

me know my lab results. That's a new one and pretty amazing if you ask me. And

now doc 4, the neph....if not for the fluke in getting my scan faxed, I would

have nothing from her until Friday, except nurse calling and saying everything

was fine on the MRI. My goodness, I am beginning to think it's me, but

truthfully, I don't think so. I think it's just these 3 doctors and the way

they choose to practice.

So, I am going Friday to the neph. I will get copies of all labs. If they are

not all there, I will drive to each office and demand them, because i know I

have that right. I will switch to epler tomorrow, and hope to hear from doc 3

about his consult with Mayo doc and his opinion. Then, I will either simply

proceed with cardiologist who is prescribing the epler and diagnosed PA, just

wanted to rule out tumor or hypeplasia. Or, if there is some reason to continue

with an endo or neph, I will look further. And the first question I am going to

ask before I make an appointment is how they deal with lab results. Who calls?

I want docs who call me themselves. My cardiologist does. My ID doc does. My

gyno doesn't but she has a system that works better than this. What's with the

endos and nephs? This is a nightmare!

>

>

> From: maggiekat7 <ljurkovic@...>

> Subject: Normal MRI/MRA....no PA?

> hyperaldosteronism

> Date: Monday, January 23, 2012, 4:48 PM

>

>

>

>  

>

>

>

> If my MRI/MRA came back showing " symetric and unremarkable appearance of the

adrenal glands without enlargement or abnormality of signal " , does that mean I

do not have PA?

>

> Only two things mentioned in the report are a 2.2 somewhat lobulated septated

cyst of the posterior aspect of the right liver, and somewhat early bifurcation

of the left renal artery and widely patent origins of the leftand right renal

arteries.

>

> No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal

glands, and no evidence of periaortic soft tissue abnormality.

>

> I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't

measure 153/110 just a minute ago. (On Norvasc)

>

> I am thinking about switching tomorrow to epler...just for kicks, to see if my

bp goes down?

>

[Guest guest]

2.2 cm...on liver...called Doc 3 today (the one consulting with Dr. W. Young at

Mayo) to let them know that scan results are in...to get them from Neph. since

it might be helpful in the consult. I added that I would like to hear any

updates or info and it would be greatly appreciated, but it's almost 8 hear and

I've not heard a peep. I got my scan result by a fluke. I called the hospital,

left a message that I wanted them, gave them my office confidential fax line,

guess it must be in their system as a provider because they sent it. Then, I

called to get the additional bloodwork faxed as well and was told that even

though am we are a doc's office. Since I am the pt., they would have to mail

them, not fax them. Only fax them to docs. Husband's here...he is a doc?

Nope. No dice. Oh well, got the MRI/MRA...glad about that. Since when? Doc 1

faxes me my labs. So have many others...when did this change? When did I lose

the right to my healthcare records? And if I say it's ok to fax and fax them a

release, what gives? This diagnosis journey is like pulling teeth, I have never

seen anything like it! I suppose I can call the message line tomorrow and get

them, otherwise, I'll have to wait until Friday when I see the neph who ordered

them because her office won't even call if they are not abnormal. If they are

abnormal, they let you know what's abnormal, and what doc says about it, (a

nurse calls, not the doc) and if you ask any questions they say, " you can

discuss this and any other concerns you have at your follow up appointment " .

Well, ok...thank you very much....and how much am I paying for this customer no

service? Y'know, 3 of my patients texted me today and I personally and

promptly responded. 4 people on my caseload called me today and I have

personally called them back.

If I were having this issue with just one office, I simply wouldn't go back,

however, I have this problem with doc 1 (although, after pulling teeth, they

will fax my labs...just takes her a while to sign off on them), and doc 3 (he's

the one who is consulting at Mayo on my behalf, who neglected to let me know he

was doing so, and who hasn't yet let me know what my labs from January 12 reveal

completely. Only that my aldo levels was 4, and that my renin is still

" supressed " . No numbers. Potassium was 3.9 plasma, and meta and cata ruled out

a pheo....no numbers. No results from the 24 hour urine test. None. Haven't seen

labs he called about myself because when I asked, again, I was told they would

mail them and that the doc will let me know anything further. Gee, that would

be nice. I already got an EOB from my insurance, they got paid, but I still

have no evaluation or treatment suggestions or results from of labwork done on

Jan 12, 2 weeks ago! My insurance is quicker to pay than my doc is in letting

me know my lab results. That's a new one and pretty amazing if you ask me. And

now doc 4, the neph....if not for the fluke in getting my scan faxed, I would

have nothing from her until Friday, except nurse calling and saying everything

was fine on the MRI. My goodness, I am beginning to think it's me, but

truthfully, I don't think so. I think it's just these 3 doctors and the way

they choose to practice.

So, I am going Friday to the neph. I will get copies of all labs. If they are

not all there, I will drive to each office and demand them, because i know I

have that right. I will switch to epler tomorrow, and hope to hear from doc 3

about his consult with Mayo doc and his opinion. Then, I will either simply

proceed with cardiologist who is prescribing the epler and diagnosed PA, just

wanted to rule out tumor or hypeplasia. Or, if there is some reason to continue

with an endo or neph, I will look further. And the first question I am going to

ask before I make an appointment is how they deal with lab results. Who calls?

I want docs who call me themselves. My cardiologist does. My ID doc does. My

gyno doesn't but she has a system that works better than this. What's with the

endos and nephs? This is a nightmare!

>

>

> From: maggiekat7 <ljurkovic@...>

> Subject: Normal MRI/MRA....no PA?

> hyperaldosteronism

> Date: Monday, January 23, 2012, 4:48 PM

>

>

>

>  

>

>

>

> If my MRI/MRA came back showing " symetric and unremarkable appearance of the

adrenal glands without enlargement or abnormality of signal " , does that mean I

do not have PA?

>

> Only two things mentioned in the report are a 2.2 somewhat lobulated septated

cyst of the posterior aspect of the right liver, and somewhat early bifurcation

of the left renal artery and widely patent origins of the leftand right renal

arteries.

>

> No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal

glands, and no evidence of periaortic soft tissue abnormality.

>

> I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't

measure 153/110 just a minute ago. (On Norvasc)

>

> I am thinking about switching tomorrow to epler...just for kicks, to see if my

bp goes down?

>

[Guest guest]

2.2 cm as opposed to 2 mm is a decent sized cyst.

Can kidney cysts cause anything similar Dr G?

From: maggiekat7 <ljurkovic@...>Subject: Re: Normal MRI/MRA....no PA?hyperaldosteronism Date: Monday, January 23, 2012, 6:37 PM

2.2 cm...on liver...called Doc 3 today (the one consulting with Dr. W. Young at Mayo) to let them know that scan results are in...to get them from Neph. since it might be helpful in the consult. I added that I would like to hear any updates or info and it would be greatly appreciated, but it's almost 8 hear and I've not heard a peep. I got my scan result by a fluke. I called the hospital, left a message that I wanted them, gave them my office confidential fax line, guess it must be in their system as a provider because they sent it. Then, I called to get the additional bloodwork faxed as well and was told that even though am we are a doc's office. Since I am the pt., they would have to mail them, not fax them. Only fax them to docs. Husband's here...he is a doc? Nope. No dice. Oh well, got the MRI/MRA...glad about that. Since when? Doc 1 faxes me my labs. So have many others...when did this change? When did I lose the right to my healthcare records?

And if I say it's ok to fax and fax them a release, what gives? This diagnosis journey is like pulling teeth, I have never seen anything like it! I suppose I can call the message line tomorrow and get them, otherwise, I'll have to wait until Friday when I see the neph who ordered them because her office won't even call if they are not abnormal. If they are abnormal, they let you know what's abnormal, and what doc says about it, (a nurse calls, not the doc) and if you ask any questions they say, "you can discuss this and any other concerns you have at your follow up appointment". Well, ok...thank you very much....and how much am I paying for this customer no service? Y'know, 3 of my patients texted me today and I personally and promptly responded. 4 people on my caseload called me today and I have personally called them back. If I were having this issue with just one office, I simply wouldn't go back, however, I have this problem with doc 1

(although, after pulling teeth, they will fax my labs...just takes her a while to sign off on them), and doc 3 (he's the one who is consulting at Mayo on my behalf, who neglected to let me know he was doing so, and who hasn't yet let me know what my labs from January 12 reveal completely. Only that my aldo levels was 4, and that my renin is still "supressed". No numbers. Potassium was 3.9 plasma, and meta and cata ruled out a pheo....no numbers. No results from the 24 hour urine test. None. Haven't seen labs he called about myself because when I asked, again, I was told they would mail them and that the doc will let me know anything further. Gee, that would be nice. I already got an EOB from my insurance, they got paid, but I still have no evaluation or treatment suggestions or results from of labwork done on Jan 12, 2 weeks ago! My insurance is quicker to pay than my doc is in letting me know my lab results. That's a new one and pretty amazing if you

ask me. And now doc 4, the neph....if not for the fluke in getting my scan faxed, I would have nothing from her until Friday, except nurse calling and saying everything was fine on the MRI. My goodness, I am beginning to think it's me, but truthfully, I don't think so. I think it's just these 3 doctors and the way they choose to practice. So, I am going Friday to the neph. I will get copies of all labs. If they are not all there, I will drive to each office and demand them, because i know I have that right. I will switch to epler tomorrow, and hope to hear from doc 3 about his consult with Mayo doc and his opinion. Then, I will either simply proceed with cardiologist who is prescribing the epler and diagnosed PA, just wanted to rule out tumor or hypeplasia. Or, if there is some reason to continue with an endo or neph, I will look further. And the first question I am going to ask before I make an appointment is how they deal with lab results. Who

calls? I want docs who call me themselves. My cardiologist does. My ID doc does. My gyno doesn't but she has a system that works better than this. What's with the endos and nephs? This is a nightmare!> > > From: maggiekat7 <ljurkovic@...>> Subject: Normal MRI/MRA....no PA?> hyperaldosteronism > Date: Monday, January 23, 2012, 4:48 PM> > > > Â > > > > If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA?> > Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries.> > No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality.> > I'd think I'm home

free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc)> > I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?>

[Guest guest]

Your scan doesn't rule out PA. Many have tumors to small to see on scan.

>

> If my MRI/MRA came back showing " symetric and unremarkable appearance of the

adrenal glands without enlargement or abnormality of signal " , does that mean I

do not have PA?

>

> Only two things mentioned in the report are a 2.2 somewhat lobulated septated

cyst of the posterior aspect of the right liver, and somewhat early bifurcation

of the left renal artery and widely patent origins of the leftand right renal

arteries.

>

> No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal

adrenal glands, and no evidence of periaortic soft tissue abnormality.

>

> I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't

measure 153/110 just a minute ago. (On Norvasc)

>

> I am thinking about switching tomorrow to epler...just for kicks, to see if my

bp goes down?

>

[Guest guest]

Welcome to the nightmare. I had never realized how beyond difficult it is as a patient. Difficult is actually a very weak word for it.

From: maggiekat7 <ljurkovic@...>Subject: Re: Normal MRI/MRA....no PA?hyperaldosteronism Date: Monday, January 23, 2012, 6:37 PM

2.2 cm...on liver...called Doc 3 today (the one consulting with Dr. W. Young at Mayo) to let them know that scan results are in...to get them from Neph. since it might be helpful in the consult. I added that I would like to hear any updates or info and it would be greatly appreciated, but it's almost 8 hear and I've not heard a peep. I got my scan result by a fluke. I called the hospital, left a message that I wanted them, gave them my office confidential fax line, guess it must be in their system as a provider because they sent it. Then, I called to get the additional bloodwork faxed as well and was told that even though am we are a doc's office. Since I am the pt., they would have to mail them, not fax them. Only fax them to docs. Husband's here...he is a doc? Nope. No dice. Oh well, got the MRI/MRA...glad about that. Since when? Doc 1 faxes me my labs. So have many others...when did this change? When did I lose the right to my healthcare records?

And if I say it's ok to fax and fax them a release, what gives? This diagnosis journey is like pulling teeth, I have never seen anything like it! I suppose I can call the message line tomorrow and get them, otherwise, I'll have to wait until Friday when I see the neph who ordered them because her office won't even call if they are not abnormal. If they are abnormal, they let you know what's abnormal, and what doc says about it, (a nurse calls, not the doc) and if you ask any questions they say, "you can discuss this and any other concerns you have at your follow up appointment". Well, ok...thank you very much....and how much am I paying for this customer no service? Y'know, 3 of my patients texted me today and I personally and promptly responded. 4 people on my caseload called me today and I have personally called them back. If I were having this issue with just one office, I simply wouldn't go back, however, I have this problem with doc 1

(although, after pulling teeth, they will fax my labs...just takes her a while to sign off on them), and doc 3 (he's the one who is consulting at Mayo on my behalf, who neglected to let me know he was doing so, and who hasn't yet let me know what my labs from January 12 reveal completely. Only that my aldo levels was 4, and that my renin is still "supressed". No numbers. Potassium was 3.9 plasma, and meta and cata ruled out a pheo....no numbers. No results from the 24 hour urine test. None. Haven't seen labs he called about myself because when I asked, again, I was told they would mail them and that the doc will let me know anything further. Gee, that would be nice. I already got an EOB from my insurance, they got paid, but I still have no evaluation or treatment suggestions or results from of labwork done on Jan 12, 2 weeks ago! My insurance is quicker to pay than my doc is in letting me know my lab results. That's a new one and pretty amazing if you

ask me. And now doc 4, the neph....if not for the fluke in getting my scan faxed, I would have nothing from her until Friday, except nurse calling and saying everything was fine on the MRI. My goodness, I am beginning to think it's me, but truthfully, I don't think so. I think it's just these 3 doctors and the way they choose to practice. So, I am going Friday to the neph. I will get copies of all labs. If they are not all there, I will drive to each office and demand them, because i know I have that right. I will switch to epler tomorrow, and hope to hear from doc 3 about his consult with Mayo doc and his opinion. Then, I will either simply proceed with cardiologist who is prescribing the epler and diagnosed PA, just wanted to rule out tumor or hypeplasia. Or, if there is some reason to continue with an endo or neph, I will look further. And the first question I am going to ask before I make an appointment is how they deal with lab results. Who

calls? I want docs who call me themselves. My cardiologist does. My ID doc does. My gyno doesn't but she has a system that works better than this. What's with the endos and nephs? This is a nightmare!> > > From: maggiekat7 <ljurkovic@...>> Subject: Normal MRI/MRA....no PA?> hyperaldosteronism > Date: Monday, January 23, 2012, 4:48 PM> > > > Â > > > > If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA?> > Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries.> > No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality.> > I'd think I'm home

free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc)> > I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?>

[Guest guest]

Welcome to the nightmare. I had never realized how beyond difficult it is as a patient. Difficult is actually a very weak word for it.

From: maggiekat7 <ljurkovic@...>Subject: Re: Normal MRI/MRA....no PA?hyperaldosteronism Date: Monday, January 23, 2012, 6:37 PM

2.2 cm...on liver...called Doc 3 today (the one consulting with Dr. W. Young at Mayo) to let them know that scan results are in...to get them from Neph. since it might be helpful in the consult. I added that I would like to hear any updates or info and it would be greatly appreciated, but it's almost 8 hear and I've not heard a peep. I got my scan result by a fluke. I called the hospital, left a message that I wanted them, gave them my office confidential fax line, guess it must be in their system as a provider because they sent it. Then, I called to get the additional bloodwork faxed as well and was told that even though am we are a doc's office. Since I am the pt., they would have to mail them, not fax them. Only fax them to docs. Husband's here...he is a doc? Nope. No dice. Oh well, got the MRI/MRA...glad about that. Since when? Doc 1 faxes me my labs. So have many others...when did this change? When did I lose the right to my healthcare records?

And if I say it's ok to fax and fax them a release, what gives? This diagnosis journey is like pulling teeth, I have never seen anything like it! I suppose I can call the message line tomorrow and get them, otherwise, I'll have to wait until Friday when I see the neph who ordered them because her office won't even call if they are not abnormal. If they are abnormal, they let you know what's abnormal, and what doc says about it, (a nurse calls, not the doc) and if you ask any questions they say, "you can discuss this and any other concerns you have at your follow up appointment". Well, ok...thank you very much....and how much am I paying for this customer no service? Y'know, 3 of my patients texted me today and I personally and promptly responded. 4 people on my caseload called me today and I have personally called them back. If I were having this issue with just one office, I simply wouldn't go back, however, I have this problem with doc 1

(although, after pulling teeth, they will fax my labs...just takes her a while to sign off on them), and doc 3 (he's the one who is consulting at Mayo on my behalf, who neglected to let me know he was doing so, and who hasn't yet let me know what my labs from January 12 reveal completely. Only that my aldo levels was 4, and that my renin is still "supressed". No numbers. Potassium was 3.9 plasma, and meta and cata ruled out a pheo....no numbers. No results from the 24 hour urine test. None. Haven't seen labs he called about myself because when I asked, again, I was told they would mail them and that the doc will let me know anything further. Gee, that would be nice. I already got an EOB from my insurance, they got paid, but I still have no evaluation or treatment suggestions or results from of labwork done on Jan 12, 2 weeks ago! My insurance is quicker to pay than my doc is in letting me know my lab results. That's a new one and pretty amazing if you

ask me. And now doc 4, the neph....if not for the fluke in getting my scan faxed, I would have nothing from her until Friday, except nurse calling and saying everything was fine on the MRI. My goodness, I am beginning to think it's me, but truthfully, I don't think so. I think it's just these 3 doctors and the way they choose to practice. So, I am going Friday to the neph. I will get copies of all labs. If they are not all there, I will drive to each office and demand them, because i know I have that right. I will switch to epler tomorrow, and hope to hear from doc 3 about his consult with Mayo doc and his opinion. Then, I will either simply proceed with cardiologist who is prescribing the epler and diagnosed PA, just wanted to rule out tumor or hypeplasia. Or, if there is some reason to continue with an endo or neph, I will look further. And the first question I am going to ask before I make an appointment is how they deal with lab results. Who

calls? I want docs who call me themselves. My cardiologist does. My ID doc does. My gyno doesn't but she has a system that works better than this. What's with the endos and nephs? This is a nightmare!> > > From: maggiekat7 <ljurkovic@...>> Subject: Normal MRI/MRA....no PA?> hyperaldosteronism > Date: Monday, January 23, 2012, 4:48 PM> > > > Â > > > > If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA?> > Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries.> > No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality.> > I'd think I'm home

free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc)> > I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?>

[Guest guest]

Most with PA have normal scans. AS you will note in my evolution article ones big enough to see are the tip of the iceberg.Clarence E. Grim, BS, MS, MD

Specializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today.On Jan 23, 2012, at 06:39 PM, Francis Bill SUSPECTED PA <georgewbill@...> wrote:

Your scan doesn't rule out PA. Many have tumors to small to see on scan.

>

> If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA?

>

> Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries.

>

> No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality.

>

> I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc)

>

> I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?

>

[Guest guest]

Cysts on the liver and kidneys are very common and small ones like this likely

of no consquence. One of the problems with scans is that they turn these up and

folks get worried.

Clarence E. Grim, BS, MS, MD

Specializing in Primary Aldosteronism, Difficult High Blood Pressure and recent

evolutionary forces on high blood pressure in populations today.

On Jan 23, 2012, at 06:39 PM, Bingham <jlkbbk2003@...> wrote:

>

> 2.2 cm as opposed to 2 mm is a decent sized cyst.

>

> Can kidney cysts cause anything similar Dr G?

>

>

>

>

>

> From: maggiekat7 <ljurkovic@...>

> Subject: Re: Normal MRI/MRA....no PA?

> hyperaldosteronism

> Date: Monday, January 23, 2012, 6:37 PM

>

>

> 2.2 cm...on liver...called Doc 3 today (the one consulting with Dr. W.

Young at Mayo) to let them know that scan results are in...to get them from

Neph. since it might be helpful in the consult. I added that I would like to

hear any updates or info and it would be greatly appreciated, but it's almost 8

hear and I've not heard a peep. I got my scan result by a fluke. I called the

hospital, left a message that I wanted them, gave them my office confidential

fax line, guess it must be in their system as a provider because they sent it.

Then, I called to get the additional bloodwork faxed as well and was told that

even though am we are a doc's office. Since I am the pt., they would have to

mail them, not fax them. Only fax them to docs. Husband's here...he is a doc?

Nope. No dice. Oh well, got the MRI/MRA...glad about that. Since when? Doc 1

faxes me my labs. So have many others...when did this change? When did I lose

the right to my healthcare records? And if I say it's ok to fax and fax them a

release, what gives? This diagnosis journey is like pulling teeth, I have never

seen anything like it! I suppose I can call the message line tomorrow and get

them, otherwise, I'll have to wait until Friday when I see the neph who ordered

them because her office won't even call if they are not abnormal. If they are

abnormal, they let you know what's abnormal, and what doc says about it, (a

nurse calls, not the doc) and if you ask any questions they say, " you can

discuss this and any other concerns you have at your follow up appointment "

Well, ok...thank you very much....and how much am I paying for this customer no

service? Y'know, 3 of my patients texted me today and I personally and promptly

responded. 4 people on my caseload called me today and I have personally called

them back.

>

> If I were having this issue with just one office, I simply wouldn't go

back, however, I have this problem with doc 1 (although, after pulling teeth,

they will fax my labs...just takes her a while to sign off on them), and doc 3

(he's the one who is consulting at Mayo on my behalf, who neglected to let me

know he was doing so, and who hasn't yet let me know what my labs from January

12 reveal completely. Only that my aldo levels was 4, and that my renin is still

" supressed " . No numbers. Potassium was 3.9 plasma, and meta and cata ruled out a

pheo....no numbers. No results from the 24 hour urine test. None. Haven't seen

labs he called about myself because when I asked, again, I was told they would

mail them and that the doc will let me know anything further. Gee, that would be

nice. I already got an EOB from my insurance, they got paid, but I still have no

evaluation or treatment suggestions or results from of labwork done on Jan 12, 2

weeks ago! My insurance is quicker to pay than my doc is in letting me know my

lab results. That's a new one and pretty amazing if you ask me. And now doc 4,

the neph....if not for the fluke in getting my scan faxed, I would have nothing

from her until Friday, except nurse calling and saying everything was fine on

the MRI. My goodness, I am beginning to think it's me, but truthfully, I don't

think so. I think it's just these 3 doctors and the way they choose to practice.

>

> So, I am going Friday to the neph. I will get copies of all labs. If they

are not all there, I will drive to each office and demand them, because i know I

have that right. I will switch to epler tomorrow, and hope to hear from doc 3

about his consult with Mayo doc and his opinion. Then, I will either simply

proceed with cardiologist who is prescribing the epler and diagnosed PA, just

wanted to rule out tumor or hypeplasia. Or, if there is some reason to continue

with an endo or neph, I will look further. And the first question I am going to

ask before I make an appointment is how they deal with lab results. Who calls? I

want docs who call me themselves My cardiologist does. My ID doc does. My gyno

doesn't but she has a system that works better than this. What's with the endos

and nephs? This is a nightmare!

>

>

> >

> >

> > From: maggiekat7 <ljurkovic@...>

> > Subject: Normal MRI/MRA....no PA?

> > hyperaldosteronism

> > Date: Monday, January 23, 2012, 4:48 PM

> >

> >

> >

> > Â

> >

> >

> >

> > If my MRI/MRA came back showing " symetric and unremarkable appearance of

the adrenal glands without enlargement or abnormality of signal " , does that mean

I do not have PA?

> >

> > Only two things mentioned in the report are a 2.2 somewhat lobulated

septated cyst of the posterior aspect of the right liver, and somewhat early

bifurcation of the left renal artery and widely patent origins of the leftand

right renal arteries.

> >

> > No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal

adrenal glands, and no evidence of periaortic soft tissue abnormality

[Guest guest]

Dr Grim,

Your words, " very common and small ones like this likely of no consequence " is

the nearly verbatim reply I received from my internist and the head cardiac

surgeon where I worked when the internist viewed the written report and the

surgeon looked at my CT I brought to him for his opinion. They are the very

words from the mouths of respected colleagues that kept me from researching

further. Just saying...

Barbara

Cysts on the liver and kidneys are very common and small ones like this likely

of no consquence. One of the problems with scans is that they turn these up and

folks get worried.

Clarence E. Grim, BS, MS, MD

[Guest guest]

No a normal CT or MRI does not mean you do not have PA or variant.If you have biochemical PA then the x-ray does not matter.Did you read my evolution of PA article yet. It will become more clear after you have done that.CE Grim MDOn Jan 23, 2012, at 2:48 PM, maggiekat7 wrote: If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA? Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries. No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality. I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc) I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?

[Guest guest]

Forget about the cysts. CE Grim MDOn Jan 23, 2012, at 3:35 PM, Bingham wrote: My CT is supposedly normal too, but at this stage of my life and experience with the healthcare system not sure I am convinced. I too have a 1cm cyst on the kidney - very common. You don't say if your cyst is 2.2 cm or mm From: maggiekat7 <ljurkovic@...>Subject: Normal MRI/MRA....no PA?hyperaldosteronism Date: Monday, January 23, 2012, 4:48 PM If my MRI/MRA came back showing "symetric and unremarkable appearance of the adrenal glands without enlargement or abnormality of signal", does that mean I do not have PA?Only two things mentioned in the report are a 2.2 somewhat lobulated septated cyst of the posterior aspect of the right liver, and somewhat early bifurcation of the left renal artery and widely patent origins of the leftand right renal arteries.No finding of irregularity, stenosis, or occlusion. Normal MRA. Normal adrenal glands, and no evidence of periaortic soft tissue abnormality.I'd think I'm home free if the liver cyst wasn't mentioned and my BP didn't measure 153/110 just a minute ago. (On Norvasc)I am thinking about switching tomorrow to epler...just for kicks, to see if my bp goes down?

[Guest guest]

An old message. Yes but the statement applies to kidney and liver based on long experience. I does not apply to adrenal based on my personal long experience which must be different from your team's. CE Grim MDOn Jan 24, 2012, at 3:50 PM, amazingkeltic wrote: Dr Grim, Your words, "very common and small ones like this likely of no consequence" is the nearly verbatim reply I received from my internist and the head cardiac surgeon where I worked when the internist viewed the written report and the surgeon looked at my CT I brought to him for his opinion. They are the very words from the mouths of respected colleagues that kept me from researching further. Just saying... Barbara Cysts on the liver and kidneys are very common and small ones like this likely of no consquence. One of the problems with scans is that they turn these up and folks get worried. Clarence E. Grim, BS, MS, MD