Re: Question about Saline Infusion Test

[Guest guest]

Stac nice thumbnail. Your saline story is typical. I have done over 1000 I would guess. Most have never done one. I think we need to get some instructions to take in so it is done correctly. Based on your thumbnail and pee during saline u have PA.I trust they have their own normals as we use ~ 2 L over 4 hours or 500 per hour. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Feb 17, 2012, at 11:26, StaceyF <ssminnow@...> wrote:

I went ahead and had the saline infusion test done but wondered if Dr. Grim could answer a question about it for me. I know you do not do it anymore, but I thought that since I do not intake much salt it would ensure I got enough to make the test more reliable. However, after taking 4 weeks to get the test done and today the infusion center had never done one. I brought up the protocol I got online for it and this helped them know what tubes to use for the lab draw and the positioning issues.

I slept for the first 2 hours then had to go to the bathroom. I did convince them to let me check my total urine eliminated. I saw that the iv had it at a rate of 250ml/hr at that time. I questioned the nurse and she looked back and said oh i thought it was only 1 liter not 2. 2 hours already into the test and i have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to get the 2 liters in 2 hours.

My question, 1. will that mess up effect the lab results and 2. will it effect the urine excretion amount since it was so slow at first, then really fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

It will take a week for the labs, but I just wanted to know your thoughts so I can be prepared should the results be indeterminate.

Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with supplementation (feel better, but not myself). sx started 3 years ago: brain fog, fatigue, pain in joints and muscles, exercise intolerence, light headed, palpitations and above mentioned.

[Guest guest]

Thank you. The nurse was supposed to do 2 L over 4 hours, but read it wrong

until I caught it half way through. Do you think this could make the blood

results skewed by getting it in so fast for the last 2 hours or because I got 2

liters in 2 hours anyway, it should not effect it?

I am just having such a hard time convincing anyone that PA is a possibility and

wondered what you thought before I had my follow up appt.

Stacey

Not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low

Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3

meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and

Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with

supplementation (feel better, but not myself). sx started 3 years ago: brain

fog, fatigue, pain in joints and muscles, exercise intolerence, light headed,

palpitations and above mentioned.

>

> > I went ahead and had the saline infusion test done but wondered if Dr. Grim

could answer a question about it for me. I know you do not do it anymore, but I

thought that since I do not intake much salt it would ensure I got enough to

make the test more reliable. However, after taking 4 weeks to get the test done

and today the infusion center had never done one. I brought up the protocol I

got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > I slept for the first 2 hours then had to go to the bathroom. I did convince

them to let me check my total urine eliminated. I saw that the iv had it at a

rate of 250ml/hr at that time. I questioned the nurse and she looked back and

said oh i thought it was only 1 liter not 2. 2 hours already into the test and i

have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to

get the 2 liters in 2 hours.

> > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> >

> > It will take a week for the labs, but I just wanted to know your thoughts so

I can be prepared should the results be indeterminate.

> >

> > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> >

> >

>

[Guest guest]

Thank you. The nurse was supposed to do 2 L over 4 hours, but read it wrong

until I caught it half way through. Do you think this could make the blood

results skewed by getting it in so fast for the last 2 hours or because I got 2

liters in 2 hours anyway, it should not effect it?

I am just having such a hard time convincing anyone that PA is a possibility and

wondered what you thought before I had my follow up appt.

Stacey

Not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low

Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3

meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and

Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with

supplementation (feel better, but not myself). sx started 3 years ago: brain

fog, fatigue, pain in joints and muscles, exercise intolerence, light headed,

palpitations and above mentioned.

>

> > I went ahead and had the saline infusion test done but wondered if Dr. Grim

could answer a question about it for me. I know you do not do it anymore, but I

thought that since I do not intake much salt it would ensure I got enough to

make the test more reliable. However, after taking 4 weeks to get the test done

and today the infusion center had never done one. I brought up the protocol I

got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > I slept for the first 2 hours then had to go to the bathroom. I did convince

them to let me check my total urine eliminated. I saw that the iv had it at a

rate of 250ml/hr at that time. I questioned the nurse and she looked back and

said oh i thought it was only 1 liter not 2. 2 hours already into the test and i

have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to

get the 2 liters in 2 hours.

> > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> >

> > It will take a week for the labs, but I just wanted to know your thoughts so

I can be prepared should the results be indeterminate.

> >

> > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> >

> >

>

[Guest guest]

Oops, I meant I got a total of 2 liter in 4 hours but at varying rate, 250ml/hr

for the first 2 hours, then 810ml/hr for the remaining 2 hours. Will this

effect the lab results?

Stacey

>

> > I went ahead and had the saline infusion test done but wondered if Dr. Grim

could answer a question about it for me. I know you do not do it anymore, but I

thought that since I do not intake much salt it would ensure I got enough to

make the test more reliable. However, after taking 4 weeks to get the test done

and today the infusion center had never done one. I brought up the protocol I

got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > I slept for the first 2 hours then had to go to the bathroom. I did convince

them to let me check my total urine eliminated. I saw that the iv had it at a

rate of 250ml/hr at that time. I questioned the nurse and she looked back and

said oh i thought it was only 1 liter not 2. 2 hours already into the test and i

have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to

get the 2 liters in 2 hours.

> > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> >

> > It will take a week for the labs, but I just wanted to know your thoughts so

I can be prepared should the results be indeterminate.

> >

> > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> >

> >

>

[Guest guest]

Oops, I meant I got a total of 2 liter in 4 hours but at varying rate, 250ml/hr

for the first 2 hours, then 810ml/hr for the remaining 2 hours. Will this

effect the lab results?

Stacey

>

> > I went ahead and had the saline infusion test done but wondered if Dr. Grim

could answer a question about it for me. I know you do not do it anymore, but I

thought that since I do not intake much salt it would ensure I got enough to

make the test more reliable. However, after taking 4 weeks to get the test done

and today the infusion center had never done one. I brought up the protocol I

got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > I slept for the first 2 hours then had to go to the bathroom. I did convince

them to let me check my total urine eliminated. I saw that the iv had it at a

rate of 250ml/hr at that time. I questioned the nurse and she looked back and

said oh i thought it was only 1 liter not 2. 2 hours already into the test and i

have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to

get the 2 liters in 2 hours.

> > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> >

> > It will take a week for the labs, but I just wanted to know your thoughts so

I can be prepared should the results be indeterminate.

> >

> > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> >

> >

>

[Guest guest]

Is high bone ALK phos the same as high blood phosphate?

> >

> > > I went ahead and had the saline infusion test done but wondered if Dr.

Grim could answer a question about it for me. I know you do not do it anymore,

but I thought that since I do not intake much salt it would ensure I got enough

to make the test more reliable. However, after taking 4 weeks to get the test

done and today the infusion center had never done one. I brought up the protocol

I got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > > I slept for the first 2 hours then had to go to the bathroom. I did

convince them to let me check my total urine eliminated. I saw that the iv had

it at a rate of 250ml/hr at that time. I questioned the nurse and she looked

back and said oh i thought it was only 1 liter not 2. 2 hours already into the

test and i have only gotten in 500ml. She then raised the rate to 810ml/hr and

was able to get the 2 liters in 2 hours.

> > > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> > >

> > > It will take a week for the labs, but I just wanted to know your thoughts

so I can be prepared should the results be indeterminate.

> > >

> > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > >

> > >

> >

>

[Guest guest]

Is high bone ALK phos the same as high blood phosphate?

> >

> > > I went ahead and had the saline infusion test done but wondered if Dr.

Grim could answer a question about it for me. I know you do not do it anymore,

but I thought that since I do not intake much salt it would ensure I got enough

to make the test more reliable. However, after taking 4 weeks to get the test

done and today the infusion center had never done one. I brought up the protocol

I got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > > I slept for the first 2 hours then had to go to the bathroom. I did

convince them to let me check my total urine eliminated. I saw that the iv had

it at a rate of 250ml/hr at that time. I questioned the nurse and she looked

back and said oh i thought it was only 1 liter not 2. 2 hours already into the

test and i have only gotten in 500ml. She then raised the rate to 810ml/hr and

was able to get the 2 liters in 2 hours.

> > > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> > >

> > > It will take a week for the labs, but I just wanted to know your thoughts

so I can be prepared should the results be indeterminate.

> > >

> > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > >

> > >

> >

>

[Guest guest]

High alk phos is high level of bone and liver combined. Mine is normal but my

bone specific alkaline phos is high showing that it is an abnormality of bone

and not liver. I read an article that PA can cause secondary

hyperparathyroidism. This is a test for that diagnosis. Calcium is leaching

out of my bones. I am also getting decreases in calcium. A year ago it was 9.7

now 8.8 in the blood. Not sure what that means.

> > >

> > > > I went ahead and had the saline infusion test done but wondered if Dr.

Grim could answer a question about it for me. I know you do not do it anymore,

but I thought that since I do not intake much salt it would ensure I got enough

to make the test more reliable. However, after taking 4 weeks to get the test

done and today the infusion center had never done one. I brought up the protocol

I got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > > > I slept for the first 2 hours then had to go to the bathroom. I did

convince them to let me check my total urine eliminated. I saw that the iv had

it at a rate of 250ml/hr at that time. I questioned the nurse and she looked

back and said oh i thought it was only 1 liter not 2. 2 hours already into the

test and i have only gotten in 500ml. She then raised the rate to 810ml/hr and

was able to get the 2 liters in 2 hours.

> > > > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> > > >

> > > > It will take a week for the labs, but I just wanted to know your

thoughts so I can be prepared should the results be indeterminate.

> > > >

> > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal.

Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset

HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit

d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > > >

> > > >

> > >

> >

>

[Guest guest]

Got my results back. Will not convince anyone that I have it now. My Renin was

..23ng/ml/hr at 8 am and leads than .15 after the infusion. My aldosterone was

11.8 ng//dl and 3.1 after the infusion. Cortisol is 10.6 ug/dl at 8 am and 6.3

at 12:45 pm.

My potassium was 3.7 before and 3.6 after. I was doubling my k supp so 40 meq

and drinking coconut water to get more k and still has such a low norm level.

My sodium blood test was 138 before and 140 meq/ l. My chloride was borderline

high at 109 meq/l. Co2 was low at 22 before and borderline low at 24 meq/l

after. From what I read, these results exclude me from PA.

Any other suggestions. The doc who ordered the test can not see me for 2

months. Still off all BP meds and having trouble keeping my k up.

>

> > I went ahead and had the saline infusion test done but wondered if Dr. Grim

could answer a question about it for me. I know you do not do it anymore, but I

thought that since I do not intake much salt it would ensure I got enough to

make the test more reliable. However, after taking 4 weeks to get the test done

and today the infusion center had never done one. I brought up the protocol I

got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > I slept for the first 2 hours then had to go to the bathroom. I did convince

them to let me check my total urine eliminated. I saw that the iv had it at a

rate of 250ml/hr at that time. I questioned the nurse and she looked back and

said oh i thought it was only 1 liter not 2. 2 hours already into the test and i

have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to

get the 2 liters in 2 hours.

> > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> >

> > It will take a week for the labs, but I just wanted to know your thoughts so

I can be prepared should the results be indeterminate.

> >

> > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> >

> >

>

[Guest guest]

Got my results back. Will not convince anyone that I have it now. My Renin was

..23ng/ml/hr at 8 am and leads than .15 after the infusion. My aldosterone was

11.8 ng//dl and 3.1 after the infusion. Cortisol is 10.6 ug/dl at 8 am and 6.3

at 12:45 pm.

My potassium was 3.7 before and 3.6 after. I was doubling my k supp so 40 meq

and drinking coconut water to get more k and still has such a low norm level.

My sodium blood test was 138 before and 140 meq/ l. My chloride was borderline

high at 109 meq/l. Co2 was low at 22 before and borderline low at 24 meq/l

after. From what I read, these results exclude me from PA.

Any other suggestions. The doc who ordered the test can not see me for 2

months. Still off all BP meds and having trouble keeping my k up.

>

> > I went ahead and had the saline infusion test done but wondered if Dr. Grim

could answer a question about it for me. I know you do not do it anymore, but I

thought that since I do not intake much salt it would ensure I got enough to

make the test more reliable. However, after taking 4 weeks to get the test done

and today the infusion center had never done one. I brought up the protocol I

got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > I slept for the first 2 hours then had to go to the bathroom. I did convince

them to let me check my total urine eliminated. I saw that the iv had it at a

rate of 250ml/hr at that time. I questioned the nurse and she looked back and

said oh i thought it was only 1 liter not 2. 2 hours already into the test and i

have only gotten in 500ml. She then raised the rate to 810ml/hr and was able to

get the 2 liters in 2 hours.

> > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> >

> > It will take a week for the labs, but I just wanted to know your thoughts so

I can be prepared should the results be indeterminate.

> >

> > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> >

> >

>

[Guest guest]

They did not do a 24 hour urine before the test. Had it checked in December. My

K urine in Dec was 30mM/24 hour, aldo was 8.4 ug/24 and na was 168 when forcing

myself to intake lots of sodium. Normally a 24 hour urine when I am not on a

special diet na would be around 80, but K was not checked at that time.

The volume of pee was 1.1L but they also messed up the test and ran .5 L the

first 3 hours and then 1.5 L the last 2 hours. This was a mess up by the nurse

and my vein blew and not sure how much went in. Arm swollen but not real bad.

Would I have filtered more urine if It had not went in so fast the last 2 hours?

I was on Spiro for a couple months when my cardio put me on it but was only on

25mg daily and my bp was still a bit high. He did not want me to go higher. My

k was only 3.8 and I still felt terrible. What do you suggest for a starting

level of spiro to treat PA?

So far my doc does not explain my labs and can not see me for 2 months, so I am

either stuck to wait or get my PCP to treat me for the HTN and I know he has no

experience with this. Go to him today.

I did take the Evolution article to my endo and I will bring it to my PCP today.

I get it, but it seems so far no docs I have dealt with do. I have been dash

dieting but not following the sample diet exactly as much of what is there is

not good to me. I do try and get the 1500 na and 4700 k in each day. Use

coconut water to get the extra K.

Thanks,

Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > >

> > > > I went ahead and had the saline infusion test done but wondered if Dr.

Grim could answer a question about it for me. I know you do not do it anymore,

but I thought that since I do not intake much salt it would ensure I got enough

to make the test more reliable. However, after taking 4 weeks to get the test

done and today the infusion center had never done one. I brought up the protocol

I got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > > > I slept for the first 2 hours then had to go to the bathroom. I did

convince them to let me check my total urine eliminated. I saw that the iv had

it at a rate of 250ml/hr at that time. I questioned the nurse and she looked

back and said oh i thought it was only 1 liter not 2. 2 hours already into the

test and i have only gotten in 500ml. She then raised the rate to 810ml/hr and

was able to get the 2 liters in 2 hours.

> > > > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> > > >

> > > > It will take a week for the labs, but I just wanted to know your

thoughts so I can be prepared should the results be indeterminate.

> > > >

> > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal.

Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset

HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit

d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

They did not do a 24 hour urine before the test. Had it checked in December. My

K urine in Dec was 30mM/24 hour, aldo was 8.4 ug/24 and na was 168 when forcing

myself to intake lots of sodium. Normally a 24 hour urine when I am not on a

special diet na would be around 80, but K was not checked at that time.

The volume of pee was 1.1L but they also messed up the test and ran .5 L the

first 3 hours and then 1.5 L the last 2 hours. This was a mess up by the nurse

and my vein blew and not sure how much went in. Arm swollen but not real bad.

Would I have filtered more urine if It had not went in so fast the last 2 hours?

I was on Spiro for a couple months when my cardio put me on it but was only on

25mg daily and my bp was still a bit high. He did not want me to go higher. My

k was only 3.8 and I still felt terrible. What do you suggest for a starting

level of spiro to treat PA?

So far my doc does not explain my labs and can not see me for 2 months, so I am

either stuck to wait or get my PCP to treat me for the HTN and I know he has no

experience with this. Go to him today.

I did take the Evolution article to my endo and I will bring it to my PCP today.

I get it, but it seems so far no docs I have dealt with do. I have been dash

dieting but not following the sample diet exactly as much of what is there is

not good to me. I do try and get the 1500 na and 4700 k in each day. Use

coconut water to get the extra K.

Thanks,

Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very

Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP,

3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d

and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > >

> > > > I went ahead and had the saline infusion test done but wondered if Dr.

Grim could answer a question about it for me. I know you do not do it anymore,

but I thought that since I do not intake much salt it would ensure I got enough

to make the test more reliable. However, after taking 4 weeks to get the test

done and today the infusion center had never done one. I brought up the protocol

I got online for it and this helped them know what tubes to use for the lab draw

and the positioning issues.

> > > > I slept for the first 2 hours then had to go to the bathroom. I did

convince them to let me check my total urine eliminated. I saw that the iv had

it at a rate of 250ml/hr at that time. I questioned the nurse and she looked

back and said oh i thought it was only 1 liter not 2. 2 hours already into the

test and i have only gotten in 500ml. She then raised the rate to 810ml/hr and

was able to get the 2 liters in 2 hours.

> > > > My question, 1. will that mess up effect the lab results and 2. will it

effect the urine excretion amount since it was so slow at first, then really

fast for the last 2 hours. My urine was 1.1L in the 4 hours of testing.

> > > >

> > > > It will take a week for the labs, but I just wanted to know your

thoughts so I can be prepared should the results be indeterminate.

> > > >

> > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal.

Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset

HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit

d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700

with supplementation (feel better, but not myself). sx started 3 years ago:

brain fog, fatigue, pain in joints and muscles, exercise intolerence, light

headed, palpitations and above mentioned.

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons of

blankets and my feet and hands are cold. Was not on diuretics at the time

either. My serum K was 3.5. I am having trouble keeping K up even with diet

and pill form. It's never gone past 3.8. Just started aldactone so I hope it

brings it up. My aldactone dose before was only 25 mg and it did not really

increase K to much. Now on 100 mg.

Stacey

> > > > >

> > > > > > I went ahead and had the saline infusion test done but

> > wondered if Dr. Grim could answer a question about it for me. I know

> > you do not do it anymore, but I thought that since I do not intake

> > much salt it would ensure I got enough to make the test more

> > reliable. However, after taking 4 weeks to get the test done and

> > today the infusion center had never done one. I brought up the

> > protocol I got online for it and this helped them know what tubes to

> > use for the lab draw and the positioning issues.

> > > > > > I slept for the first 2 hours then had to go to the

> > bathroom. I did convince them to let me check my total urine

> > eliminated. I saw that the iv had it at a rate of 250ml/hr at that

> > time. I questioned the nurse and she looked back and said oh i

> > thought it was only 1 liter not 2. 2 hours already into the test and

> > i have only gotten in 500ml. She then raised the rate to 810ml/hr

> > and was able to get the 2 liters in 2 hours.

> > > > > > My question, 1. will that mess up effect the lab results and

> > 2. will it effect the urine excretion amount since it was so slow at

> > first, then really fast for the last 2 hours. My urine was 1.1L in

> > the 4 hours of testing.

> > > > > >

> > > > > > It will take a week for the labs, but I just wanted to know

> > your thoughts so I can be prepared should the results be

> > indeterminate.

> > > > > >

> > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years

> > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH,

> > high bone ALK phos, need high doses of vit d and Magnesium to stay

> > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > supplementation (feel better, but not myself). sx started 3 years

> > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > intolerence, light headed, palpitations and above mentioned.

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Ok, I will try to do that. I will have to see how you estimate that. When I go

back for my check up with PCP, I will ask for this.

I use a program on my iphone to calculate my k intake with food and then watch

to see that I do not go over my na for the day. THen as I need more K, I use

coconut water every day to give me more with very little sodium. More tasty than

v8. Is it ok to stay on K and aldactone, pharmacy said I should not and

cardiologist before told me I could not take both as they worry K could get

high, just don't see that happening.

Stacey

> > > > > > >

> > > > > > > > I went ahead and had the saline infusion test done but

> > > > wondered if Dr. Grim could answer a question about it for me. I know

> > > > you do not do it anymore, but I thought that since I do not intake

> > > > much salt it would ensure I got enough to make the test more

> > > > reliable. However, after taking 4 weeks to get the test done and

> > > > today the infusion center had never done one. I brought up the

> > > > protocol I got online for it and this helped them know what tubes to

> > > > use for the lab draw and the positioning issues.

> > > > > > > > I slept for the first 2 hours then had to go to the

> > > > bathroom. I did convince them to let me check my total urine

> > > > eliminated. I saw that the iv had it at a rate of 250ml/hr at that

> > > > time. I questioned the nurse and she looked back and said oh i

> > > > thought it was only 1 liter not 2. 2 hours already into the test and

> > > > i have only gotten in 500ml. She then raised the rate to 810ml/hr

> > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > My question, 1. will that mess up effect the lab results and

> > > > 2. will it effect the urine excretion amount since it was so slow at

> > > > first, then really fast for the last 2 hours. My urine was 1.1L in

> > > > the 4 hours of testing.

> > > > > > > >

> > > > > > > > It will take a week for the labs, but I just wanted to know

> > > > your thoughts so I can be prepared should the results be

> > > > indeterminate.

> > > > > > > >

> > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years

> > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH,

> > > > high bone ALK phos, need high doses of vit d and Magnesium to stay

> > > > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > > > supplementation (feel better, but not myself). sx started 3 years

> > > > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > > > intolerence, light headed, palpitations and above mentioned.

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I have as of yet untreated PA, hypothyroidism that is medicated and managed ok,

and have been freezing, cold feet, etc. of late. Found out that I had a

systemic staph infection, running a low grade fever...after massive amounts of

antibiotics, I am no longer cold.

>

> Cold all the time. Under tons of blankets with feet and hands cold. Have

> you been properly tested for hypothyroidism? That would be FREE T3, FREE T4

> and TSH.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> of blankets and my feet and hands are cold. Was not on diuretics at the time

> either. My serum K was 3.5. I am having trouble keeping K up even with diet

> and pill form. It's never gone past 3.8. Just started aldactone so I hope it

> brings it up. My aldactone dose before was only 25 mg and it did not really

> increase K to much. Now on 100 mg.

>

[Guest guest]

I have as of yet untreated PA, hypothyroidism that is medicated and managed ok,

and have been freezing, cold feet, etc. of late. Found out that I had a

systemic staph infection, running a low grade fever...after massive amounts of

antibiotics, I am no longer cold.

>

> Cold all the time. Under tons of blankets with feet and hands cold. Have

> you been properly tested for hypothyroidism? That would be FREE T3, FREE T4

> and TSH.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> of blankets and my feet and hands are cold. Was not on diuretics at the time

> either. My serum K was 3.5. I am having trouble keeping K up even with diet

> and pill form. It's never gone past 3.8. Just started aldactone so I hope it

> brings it up. My aldactone dose before was only 25 mg and it did not really

> increase K to much. Now on 100 mg.

>

[Guest guest]

I have as of yet untreated PA, hypothyroidism that is medicated and managed ok,

and have been freezing, cold feet, etc. of late. Found out that I had a

systemic staph infection, running a low grade fever...after massive amounts of

antibiotics, I am no longer cold.

>

> Cold all the time. Under tons of blankets with feet and hands cold. Have

> you been properly tested for hypothyroidism? That would be FREE T3, FREE T4

> and TSH.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> of blankets and my feet and hands are cold. Was not on diuretics at the time

> either. My serum K was 3.5. I am having trouble keeping K up even with diet

> and pill form. It's never gone past 3.8. Just started aldactone so I hope it

> brings it up. My aldactone dose before was only 25 mg and it did not really

> increase K to much. Now on 100 mg.

>

[Guest guest]

I was not only cold, with freezing cold feet, but would sweat (break fever) now

and then, and was dragging, fatigued, etc. I am still dragging and fatiqued,

probably due to fighting infection, all the antibiotics and dr. visits, but not

everything can be blamed on PA. I was assuming all my symptoms were this since

it's untreated and have read such wonderful stories of post treatment. I was at

routine dermatology appt when they took my temperature, etc. Nobody else was

checking my temp or WBC count, just my BP and K, etc. BP is still up and k is

still down, renin still down, so all of that can be blamed on PA, but the rest,

I won't know until I am fully recovered from the infection...which I had no idea

I was dealing with...just thought I was cold and night sweating, dragging,

etc....frustrated about all of this, finally relieved to be going to NIH and

then nearly septic! Oh well, on the mend now and knock on wood, I hope that's

it for a while!

> >

> > Cold all the time. Under tons of blankets with feet and hands cold. Have

> > you been properly tested for hypothyroidism? That would be FREE T3, FREE T4

> > and TSH.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> >

> > No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> > of blankets and my feet and hands are cold. Was not on diuretics at the time

> > either. My serum K was 3.5. I am having trouble keeping K up even with diet

> > and pill form. It's never gone past 3.8. Just started aldactone so I hope it

> > brings it up. My aldactone dose before was only 25 mg and it did not really

> > increase K to much. Now on 100 mg.

> >

>

[Guest guest]

I am on 100 mg spiro and 20 meq K. I use my net diary. You can put in your own

foods

You usually eat and can include K amounts.

Stacey

> > > > > > > > >

> > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > wondered if Dr. Grim could answer a question about it for

> > me. I know

> > > > > > you do not do it anymore, but I thought that since I do not

> > intake

> > > > > > much salt it would ensure I got enough to make the test more

> > > > > > reliable. However, after taking 4 weeks to get the test done

> > and

> > > > > > today the infusion center had never done one. I brought up the

> > > > > > protocol I got online for it and this helped them know what

> > tubes to

> > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > I slept for the first 2 hours then had to go to the

> > > > > > bathroom. I did convince them to let me check my total urine

> > > > > > eliminated. I saw that the iv had it at a rate of 250ml/hr

> > at that

> > > > > > time. I questioned the nurse and she looked back and said oh i

> > > > > > thought it was only 1 liter not 2. 2 hours already into the

> > test and

> > > > > > i have only gotten in 500ml. She then raised the rate to

> > 810ml/hr

> > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > My question, 1. will that mess up effect the lab

> > results and

> > > > > > 2. will it effect the urine excretion amount since it was so

> > slow at

> > > > > > first, then really fast for the last 2 hours. My urine was

> > 1.1L in

> > > > > > the 4 hours of testing.

> > > > > > > > > >

> > > > > > > > > > It will take a week for the labs, but I just wanted

> > to know

> > > > > > your thoughts so I can be prepared should the results be

> > > > > > indeterminate.

> > > > > > > > > >

> > > > > > > > > > Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5

> > years

> > > > > > ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+

> > > > > > 2.8-3.7, headache, new onset HBP, 3 meds with labile BP.

> > High PTH,

> > > > > > high bone ALK phos, need high doses of vit d and Magnesium

> > to stay

> > > > > > in normal range, Diet: salt under 1500 and K+ near 4700 with

> > > > > > supplementation (feel better, but not myself). sx started 3

> > years

> > > > > > ago: brain fog, fatigue, pain in joints and muscles, exercise

> > > > > > intolerence, light headed, palpitations and above mentioned.

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I have hypothyroid and had my dose adjusted months ago. Last labs were good

with Tsh 1.7. So it is not that. Last year at this time in the cold spring I

was dripping in sweat in 40 degree weather. I think it was one of the meds I

was on though.

>

> Cold all the time. Under tons of blankets with feet and hands cold. Have

> you been properly tested for hypothyroidism? That would be FREE T3, FREE T4

> and TSH.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> of blankets and my feet and hands are cold. Was not on diuretics at the time

> either. My serum K was 3.5. I am having trouble keeping K up even with diet

> and pill form. It's never gone past 3.8. Just started aldactone so I hope it

> brings it up. My aldactone dose before was only 25 mg and it did not really

> increase K to much. Now on 100 mg.

>

[Guest guest]

I have hypothyroid and had my dose adjusted months ago. Last labs were good

with Tsh 1.7. So it is not that. Last year at this time in the cold spring I

was dripping in sweat in 40 degree weather. I think it was one of the meds I

was on though.

>

> Cold all the time. Under tons of blankets with feet and hands cold. Have

> you been properly tested for hypothyroidism? That would be FREE T3, FREE T4

> and TSH.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under tons

> of blankets and my feet and hands are cold. Was not on diuretics at the time

> either. My serum K was 3.5. I am having trouble keeping K up even with diet

> and pill form. It's never gone past 3.8. Just started aldactone so I hope it

> brings it up. My aldactone dose before was only 25 mg and it did not really

> increase K to much. Now on 100 mg.

>

[Guest guest]

blood, sinus and skin cultures after elevatated WBC and fever and swollen lymph

glands along spine/neck. Staph aureus. Cleocin, gentimycin. Now clear.

> > > >

> > > > Cold all the time. Under tons of blankets with feet and hands cold. Have

> > > > you been properly tested for hypothyroidism? That would be FREE T3, FREE

T4

> > > > and TSH.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> > > >

> > > > No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under

tons

> > > > of blankets and my feet and hands are cold. Was not on diuretics at the

time

> > > > either. My serum K was 3.5. I am having trouble keeping K up even with

diet

> > > > and pill form. It's never gone past 3.8. Just started aldactone so I

hope it

> > > > brings it up. My aldactone dose before was only 25 mg and it did not

really

> > > > increase K to much. Now on 100 mg.

> > > >

> > >

> >

> >

>

[Guest guest]

blood, sinus and skin cultures after elevatated WBC and fever and swollen lymph

glands along spine/neck. Staph aureus. Cleocin, gentimycin. Now clear.

> > > >

> > > > Cold all the time. Under tons of blankets with feet and hands cold. Have

> > > > you been properly tested for hypothyroidism? That would be FREE T3, FREE

T4

> > > > and TSH.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> > > >

> > > > No vomit, diarrhea, or excess sweat. Ism cold all the time now. Under

tons

> > > > of blankets and my feet and hands are cold. Was not on diuretics at the

time

> > > > either. My serum K was 3.5. I am having trouble keeping K up even with

diet

> > > > and pill form. It's never gone past 3.8. Just started aldactone so I

hope it

> > > > brings it up. My aldactone dose before was only 25 mg and it did not

really

> > > > increase K to much. Now on 100 mg.

> > > >

> > >

> >

> >

>

[Guest guest]

Don't know about that...no more blood tests of late other than the cultures, but

I passed out cold...put that into the mix. Had just finished the antibiotics

(21 days, 1600mg cleocin/day). Got a headache while asleep, got up to go get

water or possibly tylenol, and passed out cold on a hardwood floor. Ouch! That

have anything to do with creatnine or aldo and infections and antibiotics?

Can't find anything on the web on this, just curious. Didn't have a

stroke/event and my BP was 124/84 when I took it the next morning.

> > > > > >

> > > > > > Cold all the time. Under tons of blankets with feet and hands cold.

Have

> > > > > > you been properly tested for hypothyroidism? That would be FREE T3,

FREE T4

> > > > > > and TSH.

> > > > > >

> > > > > > Val

> > > > > >

> > > > > > From: hyperaldosteronism

> > > > > > [mailto:hyperaldosteronism ] On Behalf Of StaceyF

> > > > > >

> > > > > > No vomit, diarrhea, or excess sweat. Ism cold all the time now.

Under tons

> > > > > > of blankets and my feet and hands are cold. Was not on diuretics at

the time

> > > > > > either. My serum K was 3.5. I am having trouble keeping K up even

with diet

> > > > > > and pill form. It's never gone past 3.8. Just started aldactone so I

hope it

> > > > > > brings it up. My aldactone dose before was only 25 mg and it did not

really

> > > > > > increase K to much. Now on 100 mg.

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Yes for ones that are not already contributed in the data base. Can also scan

the bar code and if it has K as part of the nutrition info. There is a lot in

the data base already.

> > > > > > > > > > >

> > > > > > > > > > > > I went ahead and had the saline infusion test done but

> > > > > > > > wondered if Dr. Grim could answer a question about it for

> > > > me. I know

> > > > > > > > you do not do it anymore, but I thought that since I do not

> > > > intake

> > > > > > > > much salt it would ensure I got enough to make the test more

> > > > > > > > reliable. However, after taking 4 weeks to get the test done

> > > > and

> > > > > > > > today the infusion center had never done one. I brought up the

> > > > > > > > protocol I got online for it and this helped them know what

> > > > tubes to

> > > > > > > > use for the lab draw and the positioning issues.

> > > > > > > > > > > > I slept for the first 2 hours then had to go to the

> > > > > > > > bathroom. I did convince them to let me check my total urine

> > > > > > > > eliminated. I saw that the iv had it at a rate of 250ml/hr

> > > > at that

> > > > > > > > time. I questioned the nurse and she looked back and said oh i

> > > > > > > > thought it was only 1 liter not 2. 2 hours already into the

> > > > test and

> > > > > > > > i have only gotten in 500ml. She then raised the rate to

> > > > 810ml/hr

> > > > > > > > and was able to get the 2 liters in 2 hours.

> > > > > > > > > > > > My question, 1. will that mess up effect the lab

> > > > results and

> > > > > > > > 2. will it effect the urine excretion amount since it was so

> > > > slow at

> > > > > > > > first, then really fast for the last 2 hours. My urine was

> > > > 1.1L in

> > > > > > > > the 4 hours of testing.

> > > > > > > > > > > >

> > > > > > > > >

>