Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Tammy, as much trouble as most of us have had getting diagnosed and treated, the US far outranks the world in medical discovery and innovation. Survival rates are higher too than either UK or Canada, considerably higher than UK.Val>> i;m starting to think that health care in the us is better than in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 yup your so right , i just heard from the specialist i had the saline test done to it was supposed to be a 3 hour test it started at 7;30 AM they started the iv then and did the first blood test then left me to sit with this needle putting saline in to my body at 11 o'clock they came to me and said that they had the wrong amount of saline going into me so i had to sit until 2;10 in the afternoon with this needle in my friggin are only to hear from the doctor 2 weeks later that the test came out negative and he is now puzzled i am at my friggin witts end , i dont have to pee anymore than twice max 3 times a day my pottisum is dropping on a daily basis and i feel like a rag doll on a good day even the meds they have me on for the blood pressure are not keeping it at a good level any more now i am in danger of not having the adrenal vein test done due to the results of this test, good god From: Valarie <val@...> hyperaldosteronism Sent: Saturday, March 3, 2012 9:40 PM Subject: RE: Re: hello and questions Tammy, as much trouble as most of us have had getting diagnosed and treated, the US far outranks the world in medical discovery and innovation. Survival rates are higher too than either UK or Canada, considerably higher than UK.Val>> i;m starting to think that health care in the us is better than in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 If the test was not done correctly, the result cannot be determined. You're going to have to advocate for yourself. Start by complaining about the errors in the saline suppression test. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Tammy Knox yup your so right , i just heard from the specialist i had the saline test done to it was supposed to be a 3 hour test it started at 7;30 AM they started the iv then and did the first blood test then left me to sit with this needle putting saline in to my body at 11 o'clock they came to me and said that they had the wrong amount of saline going into me so i had to sit until 2;10 in the afternoon with this needle in my friggin are only to hear from the doctor 2 weeks later that the test came out negative and he is now puzzled i am at my friggin witts end , i dont have to pee anymore than twice max 3 times a day my pottisum is dropping on a daily basis and i feel like a rag doll on a good day even the meds they have me on for the blood pressure are not keeping it at a good level any more now i am in danger of not having the adrenal vein test done due to the results of this test, good god From: Valarie <val@...> Tammy, as much trouble as most of us have had getting diagnosed and treated, the US far outranks the world in medical discovery and innovation. Survival rates are higher too than either UK or Canada, considerably higher than UK.Val>> i;m starting to think that health care in the us is better than in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 If the test was not done correctly, the result cannot be determined. You're going to have to advocate for yourself. Start by complaining about the errors in the saline suppression test. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Tammy Knox yup your so right , i just heard from the specialist i had the saline test done to it was supposed to be a 3 hour test it started at 7;30 AM they started the iv then and did the first blood test then left me to sit with this needle putting saline in to my body at 11 o'clock they came to me and said that they had the wrong amount of saline going into me so i had to sit until 2;10 in the afternoon with this needle in my friggin are only to hear from the doctor 2 weeks later that the test came out negative and he is now puzzled i am at my friggin witts end , i dont have to pee anymore than twice max 3 times a day my pottisum is dropping on a daily basis and i feel like a rag doll on a good day even the meds they have me on for the blood pressure are not keeping it at a good level any more now i am in danger of not having the adrenal vein test done due to the results of this test, good god From: Valarie <val@...> Tammy, as much trouble as most of us have had getting diagnosed and treated, the US far outranks the world in medical discovery and innovation. Survival rates are higher too than either UK or Canada, considerably higher than UK.Val>> i;m starting to think that health care in the us is better than in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts. > >> > >> i;m starting to think that health care in the us is better than in canada > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts. > >> > >> i;m starting to think that health care in the us is better than in canada > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 UGH.......I don't think I ever had one test done right for PA. Ever! The instructions are right there but ignored (I have never had the salt test though and am not too anxious to anyway. Even getting potassium done right is a chore, though last week I used my charm (shut up ) and sprinkled alot more honey instead of vinegar and the girl did it perfect...well from the draw end anyway. From: StaceyF <ssminnow@...>Subject: Re: hello and questionshyperaldosteronism Date: Sunday, March 4, 2012, 7:03 PM My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts.> >>> >> i;m starting to think that health care in the us is better than in canada> >> >>H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 UGH.......I don't think I ever had one test done right for PA. Ever! The instructions are right there but ignored (I have never had the salt test though and am not too anxious to anyway. Even getting potassium done right is a chore, though last week I used my charm (shut up ) and sprinkled alot more honey instead of vinegar and the girl did it perfect...well from the draw end anyway. From: StaceyF <ssminnow@...>Subject: Re: hello and questionshyperaldosteronism Date: Sunday, March 4, 2012, 7:03 PM My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts.> >>> >> i;m starting to think that health care in the us is better than in canada> >> >>H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 Just a note that if your team had contacted me (and u had hired me to work with them and u it would been done correctly as I have done more of these than almost anyone in the world. Well if they would have listened to me. Anyway May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 4, 2012, at 15:31, Tammy Knox <knoxtammy@...> wrote: yup your so right , i just heard from the specialist i had the saline test done to it was supposed to be a 3 hour test it started at 7;30 AM they started the iv then and did the first blood test then left me to sit with this needle putting saline in to my body at 11 o'clock they came to me and said that they had the wrong amount of saline going into me so i had to sit until 2;10 in the afternoon with this needle in my friggin are only to hear from the doctor 2 weeks later that the test came out negative and he is now puzzled i am at my friggin witts end , i dont have to pee anymore than twice max 3 times a day my pottisum is dropping on a daily basis and i feel like a rag doll on a good day even the meds they have me on for the blood pressure are not keeping it at a good level any more now i am in danger of not having the adrenal vein test done due to the results of this test, good god From: Valarie <val@...> hyperaldosteronism Sent: Saturday, March 3, 2012 9:40 PM Subject: RE: Re: hello and questions Tammy, as much trouble as most of us have had getting diagnosed and treated, the US far outranks the world in medical discovery and innovation. Survival rates are higher too than either UK or Canada, considerably higher than UK.Val>> i;m starting to think that health care in the us is better than in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 Just a note that if your team had contacted me (and u had hired me to work with them and u it would been done correctly as I have done more of these than almost anyone in the world. Well if they would have listened to me. Anyway May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 4, 2012, at 15:31, Tammy Knox <knoxtammy@...> wrote: yup your so right , i just heard from the specialist i had the saline test done to it was supposed to be a 3 hour test it started at 7;30 AM they started the iv then and did the first blood test then left me to sit with this needle putting saline in to my body at 11 o'clock they came to me and said that they had the wrong amount of saline going into me so i had to sit until 2;10 in the afternoon with this needle in my friggin are only to hear from the doctor 2 weeks later that the test came out negative and he is now puzzled i am at my friggin witts end , i dont have to pee anymore than twice max 3 times a day my pottisum is dropping on a daily basis and i feel like a rag doll on a good day even the meds they have me on for the blood pressure are not keeping it at a good level any more now i am in danger of not having the adrenal vein test done due to the results of this test, good god From: Valarie <val@...> hyperaldosteronism Sent: Saturday, March 3, 2012 9:40 PM Subject: RE: Re: hello and questions Tammy, as much trouble as most of us have had getting diagnosed and treated, the US far outranks the world in medical discovery and innovation. Survival rates are higher too than either UK or Canada, considerably higher than UK.Val>> i;m starting to think that health care in the us is better than in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 the doctor called on friday but i missed the call i swear if i have to have this saline test done again i will scream my arms look like a junkie's arms from all the tests and blood work that has to be done on a weekly basis, i refused to have the blood work done over the last 3 weeks my arms have to heal the veins are not giving blood and i have to be picked 2 sometimes 3 times before the blood will come out and that's if the vein doesn't roll i have had to have the blood work done once a week since november 20 to keep the potissum in check and even with the pills the levels go from 3 to 3,4 but no higher and it has been under 3 4 times i just have to keep uping the dosage of k-dor i hope there is a end in sight. From: Bingham <jlkbbk2003@...> hyperaldosteronism Sent: Sunday, March 4, 2012 9:11 PM Subject: Re: Re: hello and questions UGH.......I don't think I ever had one test done right for PA. Ever! The instructions are right there but ignored (I have never had the salt test though and am not too anxious to anyway. Even getting potassium done right is a chore, though last week I used my charm (shut up ) and sprinkled alot more honey instead of vinegar and the girl did it perfect...well from the draw end anyway. From: StaceyF <ssminnow@...>Subject: Re: hello and questionshyperaldosteronism Date: Sunday, March 4, 2012, 7:03 PM My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts.> >>> >> i;m starting to think that health care in the us is better than in canada> >> >>H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 Send us the results or better yet hire me as your consultant so I can make sure the next one is done correctly. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 4, 2012, at 19:03, StaceyF <ssminnow@...> wrote: My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts. > >> > >> i;m starting to think that health care in the us is better than in canada > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 Send us the results or better yet hire me as your consultant so I can make sure the next one is done correctly. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 4, 2012, at 19:03, StaceyF <ssminnow@...> wrote: My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts. > >> > >> i;m starting to think that health care in the us is better than in canada > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 I would focus on DASHing to improve K and BP and If u were my pt i would Dona trial of. MCB Blocker and DASH May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 4, 2012, at 21:17, Tammy Knox <knoxtammy@...> wrote: the doctor called on friday but i missed the call i swear if i have to have this saline test done again i will scream my arms look like a junkie's arms from all the tests and blood work that has to be done on a weekly basis, i refused to have the blood work done over the last 3 weeks my arms have to heal the veins are not giving blood and i have to be picked 2 sometimes 3 times before the blood will come out and that's if the vein doesn't roll i have had to have the blood work done once a week since november 20 to keep the potissum in check and even with the pills the levels go from 3 to 3,4 but no higher and it has been under 3 4 times i just have to keep uping the dosage of k-dor i hope there is a end in sight. From: Bingham <jlkbbk2003@...> hyperaldosteronism Sent: Sunday, March 4, 2012 9:11 PM Subject: Re: Re: hello and questions UGH.......I don't think I ever had one test done right for PA. Ever! The instructions are right there but ignored (I have never had the salt test though and am not too anxious to anyway. Even getting potassium done right is a chore, though last week I used my charm (shut up ) and sprinkled alot more honey instead of vinegar and the girl did it perfect...well from the draw end anyway. From: StaceyF <ssminnow@...>Subject: Re: hello and questionshyperaldosteronism Date: Sunday, March 4, 2012, 7:03 PM My saline test was done wrong too. It came back negative and now I Have to wait 2 months to see the doctor cause she is so busy to go over my results. Nuts.> >>> >> i;m starting to think that health care in the us is better than in canada> >> >>H Quote Link to comment Share on other sites More sharing options...
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