Re: Hi Everyone -I'm a new Conn's Patient and have a few questions

[Guest guest]

Hi le - sounds familiar! Rapid weight gain was one of my first symptoms, 50 pounds in less than a year (eith no dietary or exercise changes) after a lifetime of always being underweight. The HTN and low K didn't start until several years later. My hands and feet were always swollen too. Until my adrenalectomy, the only way I was able to manage my weight was really strict low-carb (which gets ZERO support on this board, but hey, I know what worked for me!) - the tumor made me insulin-resistant, and the only thing that kept me from packing on the pounds was avoiding foods that triggered an insulin surge. I was always fatigued during those years, particularly after eating due to really severe reactive hypoglycemia.My adrenalectomy was in October, and in addition to the HTN and low K resolving, the metabolic issues that were affecting my weight have resolved as well. I'm able to pretty much eat what I want and not gain weight. The fatigue and reactive hypoglycemia are gone. And my feet are no longer swollen - I've gone down 1/2 shoe size since the surgery.My whole story can be found in Files > Conn's Stories >

msmith1928 PA story final 11-4-11.pdf. Not sure if the link will work; sometimes it does; sometimes it doesn't -msmith1928Successful left laparoscopic adrenalectomy 10/13/11I originally went to the Dr. for severe fatigue and rapid weight gain (25 lbs in 6 months). My hands and feet are swollen too (I've had to take my wedding rings off. I am glad they were able to diagnose me but I am wondering if the fatigue, weight gain, and swelling will resolve after surgery. Has anyone had similar symptoms? Did they resolve after adrenalectomy?

[Guest guest]

Do you know which adrenal is producing lots of aldosterone?  Without AVS, the overproducer is unknown.Val Hi There,

I am a 33 year old female who was diagnosed with an adrenal adenoma 5 years ago that has now been determined to be an aldosteronoma that is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going to be seeing my endo soon to discuss surgery etc. but she is running a few additional tests first (my Cortisol levels are just above the reference range). Interestingly, I have normal to low BP and normal potassium and electrolyte levels. I originally went to the Dr. for severe fatigue and rapid weight gain (25 lbs in 6 months). My hands and feet are swollen too (I've had to take my wedding rings off. I am glad they were able to diagnose me but I am wondering if the fatigue, weight gain, and swelling will resolve after surgery. Has anyone had similar symptoms? Did they resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

le

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[Guest guest]

Hi,

Thanks for writing. The tumor is on the my right adrenal - what is AVS? Sorry, I

am new

>

> Do you know which adrenal is producing lots of aldosterone?  Without

> AVS, the overproducer is unknown.

> Val 

>

> Hi There,

>

> I am a 33 year old female who was diagnosed with an adrenal adenoma

> 5 years ago that has now been determined to be an aldosteronoma that

> is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going

> to be seeing my endo soon to discuss surgery etc. but she is running a

> few additional tests first (my Cortisol levels are just above the

> reference range). Interestingly, I have normal to low BP and normal

> potassium and electrolyte levels. I originally went to the Dr. for

> severe fatigue and rapid weight gain (25 lbs in 6 months). My hands

> and feet are swollen too (I've had to take my wedding rings off. I am

> glad they were able to diagnose me but I am wondering if the fatigue,

> weight gain, and swelling will resolve after surgery. Has anyone had

> similar symptoms? Did they resolve after adrenalectomy? Please let me

> know - THANKS SO MUCH!

>

> le

>

> [1] Switch to: Text-Only [2], Daily Digest [3] • Unsubscribe [4]

> • Terms of Use [5] .

>

>

>

[Guest guest]

Never be sorry for asking, we've all been there and it lets us show how much

we've learned!

AVS = Adrenal Vein Sampling

They go in thru your groin to the veins coming from the adrenls to take samples

to determine which, if either, is overproducing. The fact that you have a tumor

does not mean it is overproducing. The problem could be a small tumor that

can't be seen by ct-scan or MRI.

Now there are some variables. Some places skip the AVS if you are under 40

assuming young people don't grow nonfunctioning tumors like us old people do!

(Many of us think while this may be true, it's primarily a $$$ issue.) The test

is ~$25,000 and insurance doesn't like to pay if the odds are not in their

favor! (They aren't the ones that have to live with it if they are wrong!)

There are many other issues to consider and I would recommend you give us your

complete story so we can help you. (You may have done this and I missed it and

if so I appologize, I am preparing to go to NIH next week for testing to see if

I am a candidate for surgery.)

Your doctor should have discussed your options with you. Besides surgery many

treat with meds (MCBs) and a low sodium diet. (The DASH eating plan (diet) is

highly recommended!) Fill us in and we can help!

- 65 yo super ob., fastidious male - 12mm X 13mm rt. a.adnoma with

previous rt. flank pain. Treating with DASH. Stats w/o meds = BP 175/90 HR 59

BS 135. D/C Spironolactone 12/20/2011 due to adverse SX.

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, Gynecomastia, MDD

and PTSD.

Meds: Duloxetine hcl 80 MG, Verapamil HCL 240mg, Hydralazine 20mg. 81mg aspirin

and Metformin 2000MG. Scheduled for AVS at NIH 4/1/2012.

> >

> > Do you know which adrenal is producing lots of aldosterone?  Without

> > AVS, the overproducer is unknown.

> > Val 

> >

> > Hi There,

> >

> > I am a 33 year old female who was diagnosed with an adrenal adenoma

> > 5 years ago that has now been determined to be an aldosteronoma that

> > is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going

> > to be seeing my endo soon to discuss surgery etc. but she is running a

> > few additional tests first (my Cortisol levels are just above the

> > reference range). Interestingly, I have normal to low BP and normal

> > potassium and electrolyte levels. I originally went to the Dr. for

> > severe fatigue and rapid weight gain (25 lbs in 6 months). My hands

> > and feet are swollen too (I've had to take my wedding rings off. I am

> > glad they were able to diagnose me but I am wondering if the fatigue,

> > weight gain, and swelling will resolve after surgery. Has anyone had

> > similar symptoms? Did they resolve after adrenalectomy? Please let me

> > know - THANKS SO MUCH!

> >

> > le

> >

> > [1] Switch to: Text-Only [2], Daily Digest [3] • Unsubscribe [4]

> > • Terms of Use [5] .

> >

> >

> >

[Guest guest]

Wow! It sounds like we could be twins! I read my husband your response and he

said that is you in a nutshell! I have always had pretty good weight control and

was slim at 5'1 with a petite frame. I forgot to mention it, but one of my

presenting symptoms was erratic blood sugars and m fatigue was BAD after meals.

I had already been diagnosed with hypoglycecmia but it was reconfirmed and I was

told to avoid carb loading.Your message has given me hope that things can return

to normal and I won't always feel this way - Thanks you. I will keep you and the

group posted as things progress!

-le

> I originally went to the Dr. for severe fatigue and rapid weight gain

> (25 lbs in 6 months). My hands and feet are swollen too (I've had to

> take my wedding rings off. I am glad they were able to diagnose me but

> I am wondering if the fatigue, weight gain, and swelling will resolve

> after surgery. Has anyone had similar symptoms? Did they resolve after

> adrenalectomy?

>

[Guest guest]

Thanks for the info - I will definitely bring this up with my doctor when I go

to my next appt. I did give some details of my story in my initial message (for

example I don't have hypertension or abnormal pottasium levels). I am hoping

that this board can be a source of info and support as I continue through the

diagnostic and treatment process. Thanks for your help! -D

> > >

> > > Do you know which adrenal is producing lots of aldosterone?  Without

> > > AVS, the overproducer is unknown.

> > > Val 

> > >

> > > Hi There,

> > >

> > > I am a 33 year old female who was diagnosed with an adrenal adenoma

> > > 5 years ago that has now been determined to be an aldosteronoma that

> > > is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going

> > > to be seeing my endo soon to discuss surgery etc. but she is running a

> > > few additional tests first (my Cortisol levels are just above the

> > > reference range). Interestingly, I have normal to low BP and normal

> > > potassium and electrolyte levels. I originally went to the Dr. for

> > > severe fatigue and rapid weight gain (25 lbs in 6 months). My hands

> > > and feet are swollen too (I've had to take my wedding rings off. I am

> > > glad they were able to diagnose me but I am wondering if the fatigue,

> > > weight gain, and swelling will resolve after surgery. Has anyone had

> > > similar symptoms? Did they resolve after adrenalectomy? Please let me

> > > know - THANKS SO MUCH!

> > >

> > > le

> > >

> > > [1] Switch to: Text-Only [2], Daily Digest [3] • Unsubscribe [4]

> > > • Terms of Use [5] .

> > >

> > >

> > >

[Guest guest]

Please do keep us posted. I think there is a lot of overlap between metabolic

issues and Conn's, and it rarely is addressed - it seems the primary focus is on

the HTN and potassium. Obviously those are important but in my experience with

the disease, it sure impacted many more aspects of my health.

And in case you haven't already seen it - please read my reply to your other

post re: Yasmin. You need to be off of it for some time (2-6 weeks?) for your

test results to be accurate.

> > I originally went to the Dr. for severe fatigue and rapid weight gain

> > (25 lbs in 6 months). My hands and feet are swollen too (I've had to

> > take my wedding rings off. I am glad they were able to diagnose me but

> > I am wondering if the fatigue, weight gain, and swelling will resolve

> > after surgery. Has anyone had similar symptoms? Did they resolve after

> > adrenalectomy?

> >

>

[Guest guest]

If u have Conn's they will resolve. How do u know if you have Conn's for sure? Proper testing then trial of DASH and MCBs. If that fails then do AVS and if localizes. If that side is taken out a d u are cured of HTN AND low K after 1,3, 5 years then u have Conn's. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 25, 2012, at 12:06, danielle_cairns <danielle_cairns@...> wrote:

Hi There,

I am a 33 year old female who was diagnosed with an adrenal adenoma 5 years ago that has now been determined to be an aldosteronoma that is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going to be seeing my endo soon to discuss surgery etc. but she is running a few additional tests first (my Cortisol levels are just above the reference range). Interestingly, I have normal to low BP and normal potassium and electrolyte levels. I originally went to the Dr. for severe fatigue and rapid weight gain (25 lbs in 6 months). My hands and feet are swollen too (I've had to take my wedding rings off. I am glad they were able to diagnose me but I am wondering if the fatigue, weight gain, and swelling will resolve after surgery. Has anyone had similar symptoms? Did they resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

le

[Guest guest]

Do you have HTN for you is the question. So I you BP HAS WAYS BEEN say 101 systolic then 135 now is likely HTN for u. Be certain u are measuring BP CORRECTLY with an accurate device. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 25, 2012, at 20:01, danielle_cairns <danielle_cairns@...> wrote:

Thanks for the info - I will definitely bring this up with my doctor when I go to my next appt. I did give some details of my story in my initial message (for example I don't have hypertension or abnormal pottasium levels). I am hoping that this board can be a source of info and support as I continue through the diagnostic and treatment process. Thanks for your help! -D

> > >

> > > Do you know which adrenal is producing lots of aldosterone? Â Without

> > > AVS, the overproducer is unknown.

> > > ValÂ

> > >

> > > Hi There,

> > >

> > > I am a 33 year old female who was diagnosed with an adrenal adenoma

> > > 5 years ago that has now been determined to be an aldosteronoma that

> > > is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going

> > > to be seeing my endo soon to discuss surgery etc. but she is running a

> > > few additional tests first (my Cortisol levels are just above the

> > > reference range). Interestingly, I have normal to low BP and normal

> > > potassium and electrolyte levels. I originally went to the Dr. for

> > > severe fatigue and rapid weight gain (25 lbs in 6 months). My hands

> > > and feet are swollen too (I've had to take my wedding rings off. I am

> > > glad they were able to diagnose me but I am wondering if the fatigue,

> > > weight gain, and swelling will resolve after surgery. Has anyone had

> > > similar symptoms? Did they resolve after adrenalectomy? Please let me

> > > know - THANKS SO MUCH!

> > >

> > > le

> > >

> > > [1] Switch to: Text-Only [2], Daily Digest [3] • Unsubscribe [4]

> > > • Terms of Use [5] .

> > >

> > >

> > >

[Guest guest]

I am surprised you advocate MCBs prior to AVS unless you assume that at 33yo

that will be her choice of treatment. If her first choice is surgery IMHO she

should do the AVS first so she doesn't have to go through the 6-week MCB washout

period. Some have written about the process, some have read about it and some

have lived it - as one of the latter, I recommend avoiding it if at all

possible! Going through the progression of the disease is bad enough when you

don't know what is coming next. Knowing what is coming next adds psychological

issues that do NOT enhance the process!

- 65 yo super ob., fastidious male - 12mm X 13mm rt. a.adnoma with

previous rt. flank pain. Treating with DASH. Stats w/o meds = BP 175/90 HR 69

BS 135. D/C Spironolactone 12/20/2011 due to adverse SX.

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, Gynecomastia, MDD

and PTSD.

Meds: Duloxetine hcl 80 MG, Verapamil HCL 240mg, Hydralazine 20mg. 81mg aspirin

and Metformin 2000MG. Scheduled for AVS at NIH 4/1/2012.

>

> > Hi There,

> >

> > I am a 33 year old female who was diagnosed with an adrenal adenoma 5 years

ago that has now been determined to be an aldosteronoma that is producing lots

of aldosterone (e.g., Conn's Syndrome)! I am going to be seeing my endo soon to

discuss surgery etc. but she is running a few additional tests first (my

Cortisol levels are just above the reference range). Interestingly, I have

normal to low BP and normal potassium and electrolyte levels. I originally went

to the Dr. for severe fatigue and rapid weight gain (25 lbs in 6 months). My

hands and feet are swollen too (I've had to take my wedding rings off. I am glad

they were able to diagnose me but I am wondering if the fatigue, weight gain,

and swelling will resolve after surgery. Has anyone had similar symptoms? Did

they resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

> >

> > le

> >

> >

>

[Guest guest]

Hypoglycemia isn't typically a final diagnosis so what do they think is the cause of your hypoglycemia. I am assuming it is hyperinsulinemia, or reactive hyperinsulinemia after meals? Did they measure insulin levels too.

I have found many can change this pattern when their diet changes. As a youngster and young man my diet was always a super high carb diet. I also suffered from the after lunch blahs and back in Tulsa had a good doc back in the day who had me come in again and again and checked it (among other things in a standard blood draw to rule anything out) But I started taking a mutivitamin a day, cut out sweets (and lowered my carb diet) and doggone if he wasn't on the money about it going away. No more issues. Took the body a while to adjust to it.

From: danielle_cairns <danielle_cairns@...>Subject: Re: Hi Everyone -I'm a new Conn's Patient and have a few questionshyperaldosteronism Date: Sunday, March 25, 2012, 9:57 PM

Wow! It sounds like we could be twins! I read my husband your response and he said that is you in a nutshell! I have always had pretty good weight control and was slim at 5'1 with a petite frame. I forgot to mention it, but one of my presenting symptoms was erratic blood sugars and m fatigue was BAD after meals. I had already been diagnosed with hypoglycecmia but it was reconfirmed and I was told to avoid carb loading.Your message has given me hope that things can return to normal and I won't always feel this way - Thanks you. I will keep you and the group posted as things progress!-le > I originally went to the Dr. for severe fatigue and rapid weight gain> (25 lbs in 6 months). My hands and feet are swollen too (I've had to> take my wedding rings off. I am glad they were able to diagnose me but> I am wondering if the fatigue, weight gain, and swelling will resolve> after surgery. Has anyone had similar symptoms? Did they resolve after> adrenalectomy?>

[Guest guest]

le, I'm behind on email so I don't know if anyone answered you.  AVS is adrenal vein sampling.  It cannot be assumed that a visible adenoma is the culprit unless you have AVS done.  The other adrenal could very well have an adenoma the size of a grain of sand and not visible on CT.  It could be the culprit.Val----- Original Message -----From: hyperaldosteronism Thanks for writing. The tumor is on the my right adrenal - what is AVS? Sorry, I am new

>

> Do you know which adrenal is producing lots of aldosterone?  Without

> AVS, the overproducer is unknown.

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[Guest guest]

Thanks Val! I will make sure to discuss this with my doc!

> >

> > Do you know which adrenal is producing lots of aldosterone?

>  Without

> > AVS, the overproducer is unknown.

>

> [2] Switch to: Text-Only [3], Daily Digest [4] • Unsubscribe [5]

> • Terms of Use [6] .

>

>

>

[Guest guest]

Thanks Dr!

> > > > >

> > > > > Do you know which adrenal is producing lots of aldosterone? Â Without

> > > > > AVS, the overproducer is unknown.

> > > > > ValÂ

> > > > >

> > > > > Hi There,

> > > > >

> > > > > I am a 33 year old female who was diagnosed with an adrenal adenoma

> > > > > 5 years ago that has now been determined to be an aldosteronoma that

> > > > > is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going

> > > > > to be seeing my endo soon to discuss surgery etc. but she is running a

> > > > > few additional tests first (my Cortisol levels are just above the

> > > > > reference range). Interestingly, I have normal to low BP and normal

> > > > > potassium and electrolyte levels. I originally went to the Dr. for

> > > > > severe fatigue and rapid weight gain (25 lbs in 6 months). My hands

> > > > > and feet are swollen too (I've had to take my wedding rings off. I am

> > > > > glad they were able to diagnose me but I am wondering if the fatigue,

> > > > > weight gain, and swelling will resolve after surgery. Has anyone had

> > > > > similar symptoms? Did they resolve after adrenalectomy? Please let me

> > > > > know - THANKS SO MUCH!

> > > > >

> > > > > le

> > > > >

> > > > > [1] Switch to: Text-Only [2], Daily Digest [3] • Unsubscribe [4]

> > > > > • Terms of Use [5] .

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi,

I had been diagnosed with the hypoglycemia as a late teen but it was getting to

where I was going very low then shooting up high. The erratic nature of the

fluctuations had me worried but the diabetes tests were negative (including

insulin). They never named a reason for the hypoglycemia. It's true though, diet

control can help a lot. Thanks for responding! -D

> > I originally went to the Dr. for severe fatigue and rapid weight gain

> > (25 lbs in 6 months). My hands and feet are swollen too (I've had to

> > take my wedding rings off. I am glad they were able to diagnose me but

> > I am wondering if the fatigue, weight gain, and swelling will resolve

> > after surgery. Has anyone had similar symptoms? Did they resolve after

> > adrenalectomy?

> >

>

[Guest guest]

Again if all returns to normal on DASH and MCBs I favor no further testing. CE Grim MDOn Mar 26, 2012, at 4:47 AM, wrote: I am surprised you advocate MCBs prior to AVS unless you assume that at 33yo that will be her choice of treatment. If her first choice is surgery IMHO she should do the AVS first so she doesn't have to go through the 6-week MCB washout period. Some have written about the process, some have read about it and some have lived it - as one of the latter, I recommend avoiding it if at all possible! Going through the progression of the disease is bad enough when you don't know what is coming next. Knowing what is coming next adds psychological issues that do NOT enhance the process! - 65 yo super ob., fastidious male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with DASH. Stats w/o meds = BP 175/90 HR 69 BS 135. D/C Spironolactone 12/20/2011 due to adverse SX. Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, Gynecomastia, MDD and PTSD. Meds: Duloxetine hcl 80 MG, Verapamil HCL 240mg, Hydralazine 20mg. 81mg aspirin and Metformin 2000MG. Scheduled for AVS at NIH 4/1/2012. > > > Hi There, > > > > I am a 33 year old female who was diagnosed with an adrenal adenoma 5 years ago that has now been determined to be an aldosteronoma that is producing lots of aldosterone (e.g., Conn's Syndrome)! I am going to be seeing my endo soon to discuss surgery etc. but she is running a few additional tests first (my Cortisol levels are just above the reference range). Interestingly, I have normal to low BP and normal potassium and electrolyte levels. I originally went to the Dr. for severe fatigue and rapid weight gain (25 lbs in 6 months). My hands and feet are swollen too (I've had to take my wedding rings off. I am glad they were able to diagnose me but I am wondering if the fatigue, weight gain, and swelling will resolve after surgery. Has anyone had similar symptoms? Did they resolve after adrenalectomy? Please let me know - THANKS SO MUCH! > > > > le > > > > >

[Guest guest]

I know your preference but each PTN should be aware of the option and decide

which would be best for them. At 33 this is a long term decision for her!

There are long term issues no matter what you decide. I can tell the experience

of one going thru the MCB wash process and do not recommend it to anyone! I was

on MCBs and growing a pretty good set of boobs before I really understood the

options. That's why I always try to make sure they understand all the options

without introducing my biases.

Now with that said, I don't know if you do an AVS today, how long it is good

for? (If it proves to be unilateral, would it be safe to remove that adrenal

2-5 years later when you found MCBs and DASH no longer worked for whatever

reason or would you need to redo the AVS) If I remember to ask, I might have

different opinions next week!

> > >

> > > > Hi There,

> > > >

> > > > I am a 33 year old female who was diagnosed with an adrenal

> > adenoma 5 years ago that has now been determined to be an

> > aldosteronoma that is producing lots of aldosterone (e.g., Conn's

> > Syndrome)! I am going to be seeing my endo soon to discuss surgery

> > etc. but she is running a few additional tests first (my Cortisol

> > levels are just above the reference range). Interestingly, I have

> > normal to low BP and normal potassium and electrolyte levels. I

> > originally went to the Dr. for severe fatigue and rapid weight gain

> > (25 lbs in 6 months). My hands and feet are swollen too (I've had to

> > take my wedding rings off. I am glad they were able to diagnose me

> > but I am wondering if the fatigue, weight gain, and swelling will

> > resolve after surgery. Has anyone had similar symptoms? Did they

> > resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

> > > >

> > > > le

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Of course the ideal way to do it is to measure renin and aldo before starting BP meds or even DASH. Once BP is clearly elevated. Another good reason to wait till other options have not worked. On Mar 28, 2012, at 5:59 PM, wrote: I know your preference but each PTN should be aware of the option and decide which would be best for them. At 33 this is a long term decision for her! There are long term issues no matter what you decide. I can tell the experience of one going thru the MCB wash process and do not recommend it to anyone! I was on MCBs and growing a pretty good set of boobs before I really understood the options. That's why I always try to make sure they understand all the options without introducing my biases. Now with that said, I don't know if you do an AVS today, how long it is good for? (If it proves to be unilateral, would it be safe to remove that adrenal 2-5 years later when you found MCBs and DASH no longer worked for whatever reason or would you need to redo the AVS) If I remember to ask, I might have different opinions next week! > > > > > > > Hi There, > > > > > > > > I am a 33 year old female who was diagnosed with an adrenal > > adenoma 5 years ago that has now been determined to be an > > aldosteronoma that is producing lots of aldosterone (e.g., Conn's > > Syndrome)! I am going to be seeing my endo soon to discuss surgery > > etc. but she is running a few additional tests first (my Cortisol > > levels are just above the reference range). Interestingly, I have > > normal to low BP and normal potassium and electrolyte levels. I > > originally went to the Dr. for severe fatigue and rapid weight gain > > (25 lbs in 6 months). My hands and feet are swollen too (I've had to > > take my wedding rings off. I am glad they were able to diagnose me > > but I am wondering if the fatigue, weight gain, and swelling will > > resolve after surgery. Has anyone had similar symptoms? Did they > > resolve after adrenalectomy? Please let me know - THANKS SO MUCH! > > > > > > > > le > > > > > > > > > > > > > > > >

[Guest guest]

If my bp went back to normal with mcbs and I followed your advise and had no

further testing, I would not have found that I have concurrent issues and

nodules that produce both aldo and excess cortisol; an issue that has even more

deliterious impact on the cardiovascular system, hyperlipidemia, and

osteoperosis. I already have osteopenia, that could have progressed silently

had I not had additonal testing.

And Dr. Grim, dashing would not have helped.

Further, there are many studies that clearly state that an MCB trial should NOT

be a means for diagnosis since the etiology of the disease can also be

malignancy, among other issues, such as mine.

> > > > >

> > > > > > Hi There,

> > > > > >

> > > > > > I am a 33 year old female who was diagnosed with an adrenal

> > > > adenoma 5 years ago that has now been determined to be an

> > > > aldosteronoma that is producing lots of aldosterone (e.g., Conn's

> > > > Syndrome)! I am going to be seeing my endo soon to discuss surgery

> > > > etc. but she is running a few additional tests first (my Cortisol

> > > > levels are just above the reference range). Interestingly, I have

> > > > normal to low BP and normal potassium and electrolyte levels. I

> > > > originally went to the Dr. for severe fatigue and rapid weight

> > gain

> > > > (25 lbs in 6 months). My hands and feet are swollen too (I've

> > had to

> > > > take my wedding rings off. I am glad they were able to diagnose me

> > > > but I am wondering if the fatigue, weight gain, and swelling will

> > > > resolve after surgery. Has anyone had similar symptoms? Did they

> > > > resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

> > > > > >

> > > > > > le

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hokay just giving you my advice based on 59 years of doing this. Keep us posted.And have seen most surgeries fail over the long haul. Yous pays your money and makes your choices. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 29, 2012, at 18:34, maggiekat7 <ljurkovic@...> wrote:

If my bp went back to normal with mcbs and I followed your advise and had no further testing, I would not have found that I have concurrent issues and nodules that produce both aldo and excess cortisol; an issue that has even more deliterious impact on the cardiovascular system, hyperlipidemia, and osteoperosis.So you have nodules producing both? I already have osteopenia, that could have progressed silently had I not had additonal testing.What are they doing for the cortisol excess? BTW DASH is a very high Ca diet and should be ideal for osteopenia.

And Dr. Grim, dashing would not have helped.

Further, there are many studies that clearly state that an MCB trial should NOT be a means for diagnosis since the etiology of the disease can also be malignancy, among other issues, such as mine.

> > > > >

> > > > > > Hi There,

> > > > > >

> > > > > > I am a 33 year old female who was diagnosed with an adrenal

> > > > adenoma 5 years ago that has now been determined to be an

> > > > aldosteronoma that is producing lots of aldosterone (e.g., Conn's

> > > > Syndrome)! I am going to be seeing my endo soon to discuss surgery

> > > > etc. but she is running a few additional tests first (my Cortisol

> > > > levels are just above the reference range). Interestingly, I have

> > > > normal to low BP and normal potassium and electrolyte levels. I

> > > > originally went to the Dr. for severe fatigue and rapid weight

> > gain

> > > > (25 lbs in 6 months). My hands and feet are swollen too (I've

> > had to

> > > > take my wedding rings off. I am glad they were able to diagnose me

> > > > but I am wondering if the fatigue, weight gain, and swelling will

> > > > resolve after surgery. Has anyone had similar symptoms? Did they

> > > > resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

> > > > > >

> > > > > > le

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

What do you mean when you say most surgeries fail over the long haul? Can you

elaborate?

And I don't know what they are going to recommend as to the cortisol; they are

still evaluating it. Probably trying to lateralize it and maybe recommend

adrenalectomy? So I would be most interested in the long term efficacy of

adrenalectomies. If they fail, I may be up a creek!

> > > > > > >

> > > > > > > > Hi There,

> > > > > > > >

> > > > > > > > I am a 33 year old female who was diagnosed with an adrenal

> > > > > > adenoma 5 years ago that has now been determined to be an

> > > > > > aldosteronoma that is producing lots of aldosterone (e.g., Conn's

> > > > > > Syndrome)! I am going to be seeing my endo soon to discuss surgery

> > > > > > etc. but she is running a few additional tests first (my Cortisol

> > > > > > levels are just above the reference range). Interestingly, I have

> > > > > > normal to low BP and normal potassium and electrolyte levels. I

> > > > > > originally went to the Dr. for severe fatigue and rapid weight

> > > > gain

> > > > > > (25 lbs in 6 months). My hands and feet are swollen too (I've

> > > > had to

> > > > > > take my wedding rings off. I am glad they were able to diagnose me

> > > > > > but I am wondering if the fatigue, weight gain, and swelling will

> > > > > > resolve after surgery. Has anyone had similar symptoms? Did they

> > > > > > resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

> > > > > > > >

> > > > > > > > le

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

At least 50% of those who lateralize ate not cured of their HTN after one or more years. There are all minds of explanations for this. Based on my synthesis of the data this is because most have bilateral disease and the major source is removed reversing the HTN AND LOW K. Until one of many small bumps produces enough excess also againMay your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 29, 2012, at 19:30, maggiekat7 <ljurkovic@...> wrote:

What do you mean when you say most surgeries fail over the long haul? Can you elaborate?

And I don't know what they are going to recommend as to the cortisol; they are still evaluating it. Probably trying to lateralize it and maybe recommend adrenalectomy? So I would be most interested in the long term efficacy of adrenalectomies. If they fail, I may be up a creek!

> > > > > > >

> > > > > > > > Hi There,

> > > > > > > >

> > > > > > > > I am a 33 year old female who was diagnosed with an adrenal

> > > > > > adenoma 5 years ago that has now been determined to be an

> > > > > > aldosteronoma that is producing lots of aldosterone (e.g., Conn's

> > > > > > Syndrome)! I am going to be seeing my endo soon to discuss surgery

> > > > > > etc. but she is running a few additional tests first (my Cortisol

> > > > > > levels are just above the reference range). Interestingly, I have

> > > > > > normal to low BP and normal potassium and electrolyte levels. I

> > > > > > originally went to the Dr. for severe fatigue and rapid weight

> > > > gain

> > > > > > (25 lbs in 6 months). My hands and feet are swollen too (I've

> > > > had to

> > > > > > take my wedding rings off. I am glad they were able to diagnose me

> > > > > > but I am wondering if the fatigue, weight gain, and swelling will

> > > > > > resolve after surgery. Has anyone had similar symptoms? Did they

> > > > > > resolve after adrenalectomy? Please let me know - THANKS SO MUCH!

> > > > > > > >

> > > > > > > > le

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

ok, so basically, if I know I have bilateral aldo issues, lots of nodules on

each, but then they lateralize the cortisol to the left, take the left out, then

after a while, it can be assumed that the right will keep overproducing,

possibly get worse and I'm right back in the same boat? Only with one adrenal

that is now overproducing both? So then what? Increase the mcbs? And out of luck

with the cortisol?

> > > > > > > > >

> > > > > > > > > > Hi There,

> > > > > > > > > >

> > > > > > > > > > I am a 33 year old female who was diagnosed with an adrenal

> > > > > > > > adenoma 5 years ago that has now been determined to be an

> > > > > > > > aldosteronoma that is producing lots of aldosterone (e.g.,

Conn's

> > > > > > > > Syndrome)! I am going to be seeing my endo soon to discuss

surgery

> > > > > > > > etc. but she is running a few additional tests first (my

Cortisol

> > > > > > > > levels are just above the reference range). Interestingly, I

have

> > > > > > > > normal to low BP and normal potassium and electrolyte levels. I

> > > > > > > > originally went to the Dr. for severe fatigue and rapid weight

> > > > > > gain

> > > > > > > > (25 lbs in 6 months). My hands and feet are swollen too (I've

> > > > > > had to

> > > > > > > > take my wedding rings off. I am glad they were able to diagnose

me

> > > > > > > > but I am wondering if the fatigue, weight gain, and swelling

will

> > > > > > > > resolve after surgery. Has anyone had similar symptoms? Did they

> > > > > > > > resolve after adrenalectomy? Please let me know - THANKS SO

MUCH!

> > > > > > > > > >

> > > > > > > > > > le

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>