Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Interesting about the hemangiomas - I have one as well, which I'm told is not causing any problems, but I have to wonder. I was diagnosed with a condition called hereditary fructose intolerance some years back. As dietary fructose is processed in the liver, I have to wonder if the hemangioma is the cause. Prior to my HFI diagnosis, I also had nonalcoholic fatty liver and jaundice at one point. Vicki (or anyone else here with hepatic hemangiomas), if you don't mind talking about indelicate stuff - do you have a lot of digestive problems? -msmith1928 Successful left laparoscopic adrenalectomy 10/13/11 > > > > > > > > > > > > > > > > > > > > > Hello everyone! I am looking for some guidance here...or > > > > > maybe > > > > > > > > > some answers. I have hyperaldosteronism but was not a > > > > > candidate for > > > > > > > > > surgery since both my adrenals produce too much aldosterone. > > > > > I was > > > > > > > > > taking 100mg Spiro twice a day...morning and evening. > > > > > > > > > > > My 7 year old daughter was diagnosed with Celiac Disease > > > > > in June > > > > > > > > > and I follow the gluten free diet to support her. We have been > > > > > > > > > gluten free since June 9th. During the past 6 weeks or so I > > > > > noticed > > > > > > > > > that I was getting dizzy and lightheadedness so I started > > > > > checking > > > > > > > > > my bp more often. It was lower than normal so I cut back on my > > > > > > > > > evening spiro. I was still getting the same type of feelings > > > > > and my > > > > > > > > > Bp was still on the lower end of normal so I stopped spiro > > > > > > > > > completely. My last dose was Aug. 31st. My bp has been great > > > > > since > > > > > > > > > then. Is it possible to recover from hyperaldosteronism? > > > > > Could the > > > > > > > > > GF diet be helping my bp stay down? My endocrinologist wants > > > > > me to > > > > > > > > > have my renin Aldo blood work and 24 hour urine retested in > > > > > 4 weeks > > > > > > > > > which I will do providing my bp doesn't go back up in the > > > > > meantime. > > > > > > > > > Does anyoe have any thoughts on this? > > > > > > > > > > > BTW ~ my arthritis pain in my back and hips has been non > > > > > > > > > existent since starting the GF diet as well. I was tested > > > > > for Celiac > > > > > > > > > Disease and I do not have it. > > > > > > > > > > > Could it be that the Spiro is still working? It's been 2 > > > > > weeks.... > > > > > > > > > > > > > > > > > > > > > > Thanks for any input you can give, > > > > > > > > > > > Vicki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 I have 2 hemangiomas. I found out when I had my adrenal scan. They don't really cause any problems anymore. I use to feel a fullness under my ribcage. I had another scan a year later and they remained the same size. > > > > > > > > > > > > > > > > > > > > > > > Hello everyone! I am looking for some guidance here...or > > > > > > maybe > > > > > > > > > > some answers. I have hyperaldosteronism but was not a > > > > > > candidate for > > > > > > > > > > surgery since both my adrenals produce too much aldosterone. > > > > > > I was > > > > > > > > > > taking 100mg Spiro twice a day...morning and evening. > > > > > > > > > > > > My 7 year old daughter was diagnosed with Celiac Disease > > > > > > in June > > > > > > > > > > and I follow the gluten free diet to support her. We have been > > > > > > > > > > gluten free since June 9th. During the past 6 weeks or so I > > > > > > noticed > > > > > > > > > > that I was getting dizzy and lightheadedness so I started > > > > > > checking > > > > > > > > > > my bp more often. It was lower than normal so I cut back on my > > > > > > > > > > evening spiro. I was still getting the same type of feelings > > > > > > and my > > > > > > > > > > Bp was still on the lower end of normal so I stopped spiro > > > > > > > > > > completely. My last dose was Aug. 31st. My bp has been great > > > > > > since > > > > > > > > > > then. Is it possible to recover from hyperaldosteronism? > > > > > > Could the > > > > > > > > > > GF diet be helping my bp stay down? My endocrinologist wants > > > > > > me to > > > > > > > > > > have my renin Aldo blood work and 24 hour urine retested in > > > > > > 4 weeks > > > > > > > > > > which I will do providing my bp doesn't go back up in the > > > > > > meantime. > > > > > > > > > > Does anyoe have any thoughts on this? > > > > > > > > > > > > BTW ~ my arthritis pain in my back and hips has been non > > > > > > > > > > existent since starting the GF diet as well. I was tested > > > > > > for Celiac > > > > > > > > > > Disease and I do not have it. > > > > > > > > > > > > Could it be that the Spiro is still working? It's been 2 > > > > > > weeks.... > > > > > > > > > > > > > > > > > > > > > > > > Thanks for any input you can give, > > > > > > > > > > > > Vicki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 I have a hemangioma too. Been told not to worry about it.Anyone else?Sent from my iPadOn Feb 16, 2012, at 7:16 AM, "msmith_1928" <janeray1940@...> wrote: Interesting about the hemangiomas - I have one as well, which I'm told is not causing any problems, but I have to wonder. I was diagnosed with a condition called hereditary fructose intolerance some years back. As dietary fructose is processed in the liver, I have to wonder if the hemangioma is the cause. Prior to my HFI diagnosis, I also had nonalcoholic fatty liver and jaundice at one point. Vicki (or anyone else here with hepatic hemangiomas), if you don't mind talking about indelicate stuff - do you have a lot of digestive problems? -msmith1928 Successful left laparoscopic adrenalectomy 10/13/11 > > > > > > > > > > > > > > > > > > > > > Hello everyone! I am looking for some guidance here...or > > > > > maybe > > > > > > > > > some answers. I have hyperaldosteronism but was not a > > > > > candidate for > > > > > > > > > surgery since both my adrenals produce too much aldosterone. > > > > > I was > > > > > > > > > taking 100mg Spiro twice a day...morning and evening. > > > > > > > > > > > My 7 year old daughter was diagnosed with Celiac Disease > > > > > in June > > > > > > > > > and I follow the gluten free diet to support her. We have been > > > > > > > > > gluten free since June 9th. During the past 6 weeks or so I > > > > > noticed > > > > > > > > > that I was getting dizzy and lightheadedness so I started > > > > > checking > > > > > > > > > my bp more often. It was lower than normal so I cut back on my > > > > > > > > > evening spiro. I was still getting the same type of feelings > > > > > and my > > > > > > > > > Bp was still on the lower end of normal so I stopped spiro > > > > > > > > > completely. My last dose was Aug. 31st. My bp has been great > > > > > since > > > > > > > > > then. Is it possible to recover from hyperaldosteronism? > > > > > Could the > > > > > > > > > GF diet be helping my bp stay down? My endocrinologist wants > > > > > me to > > > > > > > > > have my renin Aldo blood work and 24 hour urine retested in > > > > > 4 weeks > > > > > > > > > which I will do providing my bp doesn't go back up in the > > > > > meantime. > > > > > > > > > Does anyoe have any thoughts on this? > > > > > > > > > > > BTW ~ my arthritis pain in my back and hips has been non > > > > > > > > > existent since starting the GF diet as well. I was tested > > > > > for Celiac > > > > > > > > > Disease and I do not have it. > > > > > > > > > > > Could it be that the Spiro is still working? It's been 2 > > > > > weeks.... > > > > > > > > > > > > > > > > > > > > > > Thanks for any input you can give, > > > > > > > > > > > Vicki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > = Quote Link to comment Share on other sites More sharing options...
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