Re: Hyperaldosteronism - Do they have it right?

[Guest guest]

Wow all them letters behind the name don't mean too much do they in some people?

Thanks for finding that. Sadly though, low K, even dangerously low K, abnormally low K, whatever one wants to call it K, still doesn't seem to be the "clue" in far too many with hypertension. My body and labs couldn't have painted a clearer picture of PA over the years, as was nearly everyone else who posts on this list, and yet they ignored it and PA, Conn's, aldosterone, never came up as to why I had low K and not mild HTN, but severe HTN unresponsive to at times, 5 other meds at once..

If only they'd practice what they preach!

From: <jclark24p@...>Subject: Hyperaldosteronism - Do they have it right?hyperaldosteronism Date: Tuesday, March 20, 2012, 11:30 AM

I was investigating my new phone and happened on this site: http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying to change the description of hyperaldosteronism at the National Adrenal Disease Foundation and didn't feel completely successful! Check it out. (IMHO, we have a long way to go if this what "the guy in charge" knows about it!) If you agree you might want to contact him at:Dr. Margulies, MD, FACP, FACE, NADF Medical DirectorClinical Associate Professor of Medicine, New York University Medical SchoolSource: http://www.nadf.us/diseases/hyperaldosteronism.htmAdrenal Diseases - HyperaldosteronismThe Facts You Need To KnowOn This Page:What is Hyperaldosteronism?What causes Hyperaldosteronism?How is

Hyperaldosteronism diagnosed?How is Hyperaldosteronism treated?Hyperaldosteronism Fact Sheet (pdf) "This is a rare disease and is an unusual cause of hypertension. It is usually considered by physicians if they find an unexpectedly low potassium in a person being treated for hypertension. While most individuals have no specific symptoms, some may have fatigue, headaches, muscle weakness and numbness. The physical examination is normal except for the elevated blood pressure."

[Guest guest]

This is flowerspy's Bog she was in this group and has checked at times.

>

> I was investigating my new phone and happened on this site:

http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying

to change the description of hyperaldosteronism at the National Adrenal Disease

Foundation and didn't feel completely successful! Check it out. (IMHO, we have

a long way to go if this what " the guy in charge " knows about it!) If you agree

you might want to contact him at:

>

> Dr. Margulies, MD, FACP, FACE, NADF Medical Director

> Clinical Associate Professor of Medicine, New York University Medical School

>

>

> Source: http://www.nadf.us/diseases/hyperaldosteronism.htm

>

> Adrenal Diseases - Hyperaldosteronism

> The Facts You Need To Know

> On This Page:

> What is Hyperaldosteronism?

> What causes Hyperaldosteronism?

> How is Hyperaldosteronism diagnosed?

> How is Hyperaldosteronism treated?

> Hyperaldosteronism Fact Sheet (pdf)

>

>

> " This is a rare disease and is an unusual cause of hypertension. It is usually

considered by physicians if they find an unexpectedly low potassium in a person

being treated for hypertension. While most individuals have no specific

symptoms, some may have fatigue, headaches, muscle weakness and numbness. The

physical examination is normal except for the elevated blood pressure. "

>

[Guest guest]

Flowerspy's blog helped me immensely. Her blog led meto this forum, among other

things!

Lucy Sage

Please forgive brevity & typos

Sent from my droid

Francis Bill SUSPECTED PA <georgewbill@...> wrote:

>This is flowerspy's Bog she was in this group and has checked at times.

>

>

>>

>> I was investigating my new phone and happened on this site:

http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying

to change the description of hyperaldosteronism at the National Adrenal Disease

Foundation and didn't feel completely successful! Check it out. (IMHO, we have

a long way to go if this what " the guy in charge " knows about it!) If you agree

you might want to contact him at:

>>

>> Dr. Margulies, MD, FACP, FACE, NADF Medical Director

>> Clinical Associate Professor of Medicine, New York University Medical School

>>

>>

>> Source: http://www.nadf.us/diseases/hyperaldosteronism.htm

>>

>> Adrenal Diseases - Hyperaldosteronism

>> The Facts You Need To Know

>> On This Page:

>> What is Hyperaldosteronism?

>> What causes Hyperaldosteronism?

>> How is Hyperaldosteronism diagnosed?

>> How is Hyperaldosteronism treated?

>> Hyperaldosteronism Fact Sheet (pdf)

>>

>>

>> " This is a rare disease and is an unusual cause of hypertension. It is

usually considered by physicians if they find an unexpectedly low potassium in a

person being treated for hypertension. While most individuals have no specific

symptoms, some may have fatigue, headaches, muscle weakness and numbness. The

physical examination is normal except for the elevated blood pressure. "

>>

>

>

[Guest guest]

Francis and Lucy, I too had seen her blog at one time. I thought it interesting

that she was trying to get SXs added and the consulting doctor lessened the

impact so drastically. (looks like he is happy finding ~1/3 of the cases!)

Thought some might like to support her effort and let others that read her blog

know we disagree with the good doctor! Also thought Dr. Grim might like to take

Dr.Margulies' blinders off!

> >>

> >> I was investigating my new phone and happened on this site:

http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying

to change the description of hyperaldosteronism at the National Adrenal Disease

Foundation and didn't feel completely successful! Check it out. (IMHO, we have

a long way to go if this what " the guy in charge " knows about it!) If you agree

you might want to contact him at:

> >>

> >> Dr. Margulies, MD, FACP, FACE, NADF Medical Director

> >> Clinical Associate Professor of Medicine, New York University Medical

School

> >>

> >>

> >> Source: http://www.nadf.us/diseases/hyperaldosteronism.htm

> >>

> >> Adrenal Diseases - Hyperaldosteronism

> >> The Facts You Need To Know

> >> On This Page:

> >> What is Hyperaldosteronism?

> >> What causes Hyperaldosteronism?

> >> How is Hyperaldosteronism diagnosed?

> >> How is Hyperaldosteronism treated?

> >> Hyperaldosteronism Fact Sheet (pdf)

> >>

> >>

> >> " This is a rare disease and is an unusual cause of hypertension. It is

usually considered by physicians if they find an unexpectedly low potassium in a

person being treated for hypertension. While most individuals have no specific

symptoms, some may have fatigue, headaches, muscle weakness and numbness. The

physical examination is normal except for the elevated blood pressure. "

> >>

> >

> >

>

[Guest guest]

As Dr. G. often says, " Maybe he skipped or slept through the session on Conn's! "

(Maybe he should hire Dr. G. as a consultant - $500 to not look like an idiot is

cheap!)

You know, I was thinking the other day and I reliazed that I was wrong when I

said I had never had low K. I remembered that I had a talk with my PCP before

going to the VA and he suggested " eating a bannana! " That was 2005 or earlier.

He is personal friend, I graduated from H.S. with his wife, and he is still my

wife's doctor. When he asked how I was doing and she told him I had PA he felt

bad enough that he called to appologize for missing it! Wonder if low K and HTN

means more to him now!

>

>

> From: <jclark24p@...>

> Subject: Hyperaldosteronism - Do they have it right?

> hyperaldosteronism

> Date: Tuesday, March 20, 2012, 11:30 AM

>

>

>

>  

>

>

>

> I was investigating my new phone and happened on this site:

http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying to

change the description of hyperaldosteronism at the National Adrenal Disease

Foundation and didn't feel completely successful! Check it out. (IMHO, we have a

long way to go if this what " the guy in charge " knows about it!) If you agree

you might want to contact him at:

>

> Dr. Margulies, MD, FACP, FACE, NADF Medical Director

> Clinical Associate Professor of Medicine, New York University Medical School

>

> Source: http://www.nadf.us/diseases/hyperaldosteronism.htm

>

> Adrenal Diseases - Hyperaldosteronism

> The Facts You Need To Know

> On This Page:

> What is Hyperaldosteronism?

> What causes Hyperaldosteronism?

> How is Hyperaldosteronism diagnosed?

> How is Hyperaldosteronism treated?

> Hyperaldosteronism Fact Sheet (pdf)

>

> " This is a rare disease and is an unusual cause of hypertension. It is usually

considered by physicians if they find an unexpectedly low potassium in a person

being treated for hypertension. While most individuals have no specific

symptoms, some may have fatigue, headaches, muscle weakness and numbness. The

physical examination is normal except for the elevated blood pressure. "

>

[Guest guest]

K must have been low at one time as you say you were taking K replacment Meds.

> >

> >

> > From: <jclark24p@>

> > Subject: Hyperaldosteronism - Do they have it right?

> > hyperaldosteronism

> > Date: Tuesday, March 20, 2012, 11:30 AM

> >

> >

> >

> >  

> >

> >

> >

> > I was investigating my new phone and happened on this site:

http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying to

change the description of hyperaldosteronism at the National Adrenal Disease

Foundation and didn't feel completely successful! Check it out. (IMHO, we have a

long way to go if this what " the guy in charge " knows about it!) If you agree

you might want to contact him at:

> >

> > Dr. Margulies, MD, FACP, FACE, NADF Medical Director

> > Clinical Associate Professor of Medicine, New York University Medical School

> >

> > Source: http://www.nadf.us/diseases/hyperaldosteronism.htm

> >

> > Adrenal Diseases - Hyperaldosteronism

> > The Facts You Need To Know

> > On This Page:

> > What is Hyperaldosteronism?

> > What causes Hyperaldosteronism?

> > How is Hyperaldosteronism diagnosed?

> > How is Hyperaldosteronism treated?

> > Hyperaldosteronism Fact Sheet (pdf)

> >

> > " This is a rare disease and is an unusual cause of hypertension. It is

usually considered by physicians if they find an unexpectedly low potassium in a

person being treated for hypertension. While most individuals have no specific

symptoms, some may have fatigue, headaches, muscle weakness and numbness. The

physical examination is normal except for the elevated blood pressure. "

> >

>

[Guest guest]

you can go back to when the VA started doing blood work. You do need to

select the date you want to start with best to look at it in PDF format. You can

do search for low or high test results. In my case there are some adnormal

results that have never raised any red flags.

> > >

> > >

> > > From: <jclark24p@>

> > > Subject: Hyperaldosteronism - Do they have it right?

> > > hyperaldosteronism

> > > Date: Tuesday, March 20, 2012, 11:30 AM

> > >

> > >

> > >

> > >  

> > >

> > >

> > >

> > > I was investigating my new phone and happened on this site:

http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying to

change the description of hyperaldosteronism at the National Adrenal Disease

Foundation and didn't feel completely successful! Check it out. (IMHO, we have a

long way to go if this what " the guy in charge " knows about it!) If you agree

you might want to contact him at:

> > >

> > > Dr. Margulies, MD, FACP, FACE, NADF Medical Director

> > > Clinical Associate Professor of Medicine, New York University Medical

School

> > >

> > > Source: http://www.nadf.us/diseases/hyperaldosteronism.htm

> > >

> > > Adrenal Diseases - Hyperaldosteronism

> > > The Facts You Need To Know

> > > On This Page:

> > > What is Hyperaldosteronism?

> > > What causes Hyperaldosteronism?

> > > How is Hyperaldosteronism diagnosed?

> > > How is Hyperaldosteronism treated?

> > > Hyperaldosteronism Fact Sheet (pdf)

> > >

> > > " This is a rare disease and is an unusual cause of hypertension. It is

usually considered by physicians if they find an unexpectedly low potassium in a

person being treated for hypertension. While most individuals have no specific

symptoms, some may have fatigue, headaches, muscle weakness and numbness. The

physical examination is normal except for the elevated blood pressure. "

> > >

> >

>

[Guest guest]

You have to raise your own flags, Francis. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill SUSPECTED PA you can go back to when the VA started doing blood work. You do need to select the date you want to start with best to look at it in PDF format. You can do search for low or high test results. In my case there are some adnormal results that have never raised any red flags.

[Guest guest]

I have asked about some of the adnormal tests but an giver reasons other then

there could be something wrong. Like my urine specific gravity that is low is

due to good hydration. Never have been asked how much I drink?

>

> You have to raise your own flags, Francis.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Francis Bill

> SUSPECTED PA

> you can go back to when the VA started doing blood work. You do need to

> select the date you want to start with best to look at it in PDF format. You

> can do search for low or high test results. In my case there are some

> adnormal results that have never raised any red flags.

>

[Guest guest]

Urine SG is useful only when you know fluid intake for several days unless doing an overnight or longer water deprivation test. So I would ignore urine SG. ALso remember that for every test that is done at least 5% chance that 1 will be high and 5% low so 1 in 10 is likely to de not normal. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Mar 22, 2012, at 7:02, Francis Bill SUSPECTED PA <georgewbill@...> wrote:

I have asked about some of the adnormal tests but an giver reasons other then there could be something wrong. Like my urine specific gravity that is low is due to good hydration. Never have been asked how much I drink?

>

> You have to raise your own flags, Francis.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Francis Bill

> SUSPECTED PA

> you can go back to when the VA started doing blood work. You do need to

> select the date you want to start with best to look at it in PDF format. You

> can do search for low or high test results. In my case there are some

> adnormal results that have never raised any red flags.

>

[Guest guest]

source: http://www.nlm.nih.gov/medlineplus/ency/article/003587.htm

Decreased urine specific gravity may be due to:

•Aldosteronism (very rare)

•Excessive fluid intake

•Diabetes insipidus - central

•Diabetes insipidus - nephrogenic

•Kidney failure

•Renal tubular necrosis

•Severe kidney infection (pyelonephritis)

Oh, I never even asked about mine, its always been low - 1.015 Aug 05 1.009 Feb

07 etc. (range 1.016-1.022). I always figured it was Diabetes, Do you think

they would have picked Aldosteronism, after all it is " very rare " and they had a

ready-made answer!

> >

> > You have to raise your own flags, Francis.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism ] On Behalf Of Francis Bill

> > SUSPECTED PA

> > you can go back to when the VA started doing blood work. You do need to

> > select the date you want to start with best to look at it in PDF format. You

> > can do search for low or high test results. In my case there are some

> > adnormal results that have never raised any red flags.

> >

>

[Guest guest]

I am not talking about something ramdom Out of SG 15 tests nine are below

normal 5 have been normal with 2 being low normal and one was high due to fever.

One at high normal but had UNT at the time.

> > >

> > > You have to raise your own flags, Francis.

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of Francis Bill

> > > SUSPECTED PA

> > > you can go back to when the VA started doing blood work. You do need

to

> > > select the date you want to start with best to look at it in PDF format.

You

> > > can do search for low or high test results. In my case there are some

> > > adnormal results that have never raised any red flags.

> > >

> >

> >

>

[Guest guest]

Depends on how much you drank before the urine was collected, time of day, when you ate, if you had alcohol the day before when you took your diuretics how much salt you were eating. To mention a few. Only way to test is to do a controlled fast with water deprivation. You can measure this yourself with a home, bobbing specific gravity glass bulb like they use to measure wine specific gravity. CE Grim MD On Mar 22, 2012, at 11:44 AM, wrote: source: http://www.nlm.nih.gov/medlineplus/ency/article/003587.htm Decreased urine specific gravity may be due to: •Aldosteronism (very rare) •Excessive fluid intake •Diabetes insipidus - central •Diabetes insipidus - nephrogenic •Kidney failure •Renal tubular necrosis •Severe kidney infection (pyelonephritis) Oh, I never even asked about mine, its always been low - 1.015 Aug 05 1.009 Feb 07 etc. (range 1.016-1.022). I always figured it was Diabetes, Do you think they would have picked Aldosteronism, after all it is "very rare" and they had a ready-made answer! > > > > You have to raise your own flags, Francis. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldosteronism ] On Behalf Of Francis Bill > > SUSPECTED PA > > you can go back to when the VA started doing blood work. You do need to > > select the date you want to start with best to look at it in PDF format. You > > can do search for low or high test results. In my case there are some > > adnormal results that have never raised any red flags. > > >

[Guest guest]

I don't make wine but is that like what we use to test if Maple Syrup is ready?

(Don't tell anyone, it might ruin the flavor!) I actually never gave it a

second thought until Francis brought it up, I wrote it off tp DM.

> > > >

> > > > You have to raise your own flags, Francis.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldosteronism ] On Behalf Of Francis

> > Bill

> > > > SUSPECTED PA

> > > > you can go back to when the VA started doing blood work.

> > You do need to

> > > > select the date you want to start with best to look at it in PDF

> > format. You

> > > > can do search for low or high test results. In my case there are

> > some

> > > > adnormal results that have never raised any red flags.

> > > >

> > >

> >

> >

>

[Guest guest]

I do not drink alcohol. SG was low before starting diuretics. Does salt increase

or decrease it.

Why even do SG it you don't question the results?

> > > >

> > > > You have to raise your own flags, Francis.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldosteronism ] On Behalf Of Francis

> > Bill

> > > > SUSPECTED PA

> > > > you can go back to when the VA started doing blood work.

> > You do need to

> > > > select the date you want to start with best to look at it in PDF

> > format. You

> > > > can do search for low or high test results. In my case there are

> > some

> > > > adnormal results that have never raised any red flags.

> > > >

> > >

> >

> >

>

[Guest guest]

I look at it from time to time but the two keep me busy.CE Grim MDOn Mar 20, 2012, at 4:23 PM, wrote: Francis and Lucy, I too had seen her blog at one time. I thought it interesting that she was trying to get SXs added and the consulting doctor lessened the impact so drastically. (looks like he is happy finding ~1/3 of the cases!) Thought some might like to support her effort and let others that read her blog know we disagree with the good doctor! Also thought Dr. Grim might like to take Dr.Margulies' blinders off! > >> > >> I was investigating my new phone and happened on this site: http://hyperaldosteronism.blogspot.com/ She was explaining how she was trying to change the description of hyperaldosteronism at the National Adrenal Disease Foundation and didn't feel completely successful! Check it out. (IMHO, we have a long way to go if this what "the guy in charge" knows about it!) If you agree you might want to contact him at: > >> > >> Dr. Margulies, MD, FACP, FACE, NADF Medical Director > >> Clinical Associate Professor of Medicine, New York University Medical School > >> > >> > >> Source: http://www.nadf.us/diseases/hyperaldosteronism.htm > >> > >> Adrenal Diseases - Hyperaldosteronism > >> The Facts You Need To Know > >> On This Page: > >> What is Hyperaldosteronism? > >> What causes Hyperaldosteronism? > >> How is Hyperaldosteronism diagnosed? > >> How is Hyperaldosteronism treated? > >> Hyperaldosteronism Fact Sheet (pdf) > >> > >> > >> "This is a rare disease and is an unusual cause of hypertension. It is usually considered by physicians if they find an unexpectedly low potassium in a person being treated for hypertension. While most individuals have no specific symptoms, some may have fatigue, headaches, muscle weakness and numbness. The physical examination is normal except for the elevated blood pressure." > >> > > > > >