Re: Is A NIH Protocol Right for You?

[Guest guest]

When I read this would seem they must DX as it states

..

A discussion of treatment options will be based on the results of tests. If

surgery to remove the tumor is recommended, the procedure can be done at NIH

under this study protocol.

Study of Adrenal Gland Tumors

This study is currently recruiting participants.

Verified September 2011 by National Institutes of Health Clinical Center (CC)

First Received on June 28, 2000. Last Updated on April 14, 2012 History of

Changes

Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human

Development (NICHD)

Information provided by: National Institutes of Health Clinical Center (CC)

ClinicalTrials.gov Identifier: NCT00005927

Purpose

The adrenal glands, located atop the kidneys, normally produce several types of

hormones. Tumors of these glands may or may not secrete hormones. It is not

known what causes these tumors or why some secrete hormones and others do not.

Some of the tumors are benign and confined to the adrenal gland, and others are

malignant (cancerous), and can spread to other parts of the body. This study

will investigate how adrenal gland tumors develop, why some secrete steroid

hormones and others do not, and why some are benign and others malignant.

Patients between 3 and 70 years old with a known or suspected adrenal gland

tumor may be eligible for this study. Participants will be hospitalized for 7 to

10 days for various tests and procedures that may include the following:

1.Medical history and physical examination, including body measurements, as

appropriate. Children and adolescents will have Tanner staging, including

examination of the genitals, to determine the extent of sexual maturity.

2.24-hour urine collection to measure hormones in the urine.

3.Imaging studies, including magnetic resonance imaging (MRI) of the brain,

computed tomography (CT) and other X-ray studies.

4.Blood tests to see if the tumor secretes hormones in response to specific

stimuli, including exercise, food, and various hormones. The hormones are given

through an intravenous catheter, or IV-a thin plastic tube inserted into an arm

vein. After the stimulus, blood is drawn through the same IV every 30 minutes

for up to 3 hours to measure hormone levels. Based on the results of these

tests, some patients may have additional blood tests to check hormone response

to special foods, an IV salt solution, or other hormones or drugs given either

IV or by mouth (in pill form).

5.Photographs to document the effects on the body of abnormal hormone secretion

from the adrenal tumor.

6.Small samples of blood and tumor tissue for research and DNA (genetic)

analysis.

A discussion of treatment options will be based on the results of tests. If

surgery to remove the tumor is recommended, the procedure can be done at NIH

under this study protocol. If a malignant tumor is found that cannot be treated

surgically, chemotherapy or radiation therapy may be recommended. These options

are not offered under this protocol, but may be available under a different NIH

study (for example, at the National Cancer Institute). Referrals will be made at

the patient's request.

Patients who had surgery may be followed at the NIH outpatient clinic for 1 year

after surgery. Patients with certain types of tumors may continue to be followed

at NIH once a year for up to 5 years.

A registry of study participants will be created to keep records and correlate

medical histories with tissues kept at NIH. The registry will also be used to

inform participants of research studies they may be interested in. No

individuals or organizations outside of NIH will have access to the registry.

>

> I have spent some time this morning trying to learn more about NIH, the

protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly

reminded of suggestions that NIH be used as a resource to DX PA. As you

investigate this you need to consider this statement that appears on many of

their pages.

>

> " NICHD does not provide specific medical advice, but rather provides users

with information to better understand their health and their diagnosed

disorders. The staff of the NICHD cannot give medical advice or diagnoses; the

Institute urges you to consult with a qualified physician for diagnosis and for

answers to your personal health questions. "

>

> If you think you have something they want and are ready to commit by all means

apply. If you are simply looking for a DX there are doctors that can do that,

you need to keep them focused and listen when they rule something out or suggest

something. Am I perfect? A long way from it but I have learned a lot in the

last 18 days! (And a DX of PA is a small part of my concerns/questions today.)

>

> Hope this helps, keep them honest and good luck. (I used to think luck didn't

enter into it but now I think I " lucked " into the wrong protocol and got the

right answer - What a RUSH!)

>

[Guest guest]

Francis, I m not sure if you have a point or what it might be! Is this protocol

00-CH-0160? I don't see any promise of a DX - treatment options are not a DX in

my book.

It probably says you can self-refer but you will need someone to refer you

because they need someone for them to return you to! (they frown on

self-medicating!)

Item #1 jumped out at me and I am happy to report I am a 65 y/o adolescent based

on that statement!

I encourage you to apply if you think you qualify. I plan to be there again in

the fall, who knows maybe we will meet up and I'll buy you dinner oops, free -

buy you coffee, nope free, shake your hand and congratulate you now I can do

that and maybe even give you hint on how to be a good " Lab Rat " !

Oh yea, I see it is for " 7 - 10 days " . Any idea why they called and

specifically asked if I could possibly stay for 12? (Answer: something they saw

on a 2005 ct-scan I sent them.)

Go for it - it just may be your chance of a lifetime!

> >

> > I have spent some time this morning trying to learn more about NIH, the

protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly

reminded of suggestions that NIH be used as a resource to DX PA. As you

investigate this you need to consider this statement that appears on many of

their pages.

> >

> > " NICHD does not provide specific medical advice, but rather provides users

with information to better understand their health and their diagnosed

disorders. The staff of the NICHD cannot give medical advice or diagnoses; the

Institute urges you to consult with a qualified physician for diagnosis and for

answers to your personal health questions. "

> >

> > If you think you have something they want and are ready to commit by all

means apply. If you are simply looking for a DX there are doctors that can do

that, you need to keep them focused and listen when they rule something out or

suggest something. Am I perfect? A long way from it but I have learned a lot

in the last 18 days! (And a DX of PA is a small part of my concerns/questions

today.)

> >

> > Hope this helps, keep them honest and good luck. (I used to think luck

didn't enter into it but now I think I " lucked " into the wrong protocol and got

the right answer - What a RUSH!)

> >

>

[Guest guest]

,

You are now negating what you just said on Fri Apr 13, 2012 6:14 am, Message

#42381 (you wrote):

" If I didn't say it, they did say I have a mild case of hyperaldosterone. "

Here: hyperaldosteronism/message/42381

So they DID diagnose/confirm your diagnosis but they are looking into

getting more out of your case for the research they are doing.

To me, it looks like this is in your own benefit since your PA can be secondary

to something else (genes?) and they are trying to find out.

And yes, you are correct, to enroll in this protocol you need to be diagnosed PA

or suspected PA w/wo adrenal growth.

Good luck!

Leo

>

> Francis, I m not sure if you have a point or what it might be! Is this

protocol 00-CH-0160? I don't see any promise of a DX - treatment options are

not a DX in my book.

>

> It probably says you can self-refer but you will need someone to refer you

because they need someone for them to return you to! (they frown on

self-medicating!)

>

> Item #1 jumped out at me and I am happy to report I am a 65 y/o adolescent

based on that statement!

>

> I encourage you to apply if you think you qualify. I plan to be there again

in the fall, who knows maybe we will meet up and I'll buy you dinner oops, free

- buy you coffee, nope free, shake your hand and congratulate you now I can do

that and maybe even give you hint on how to be a good " Lab Rat " !

>

> Oh yea, I see it is for " 7 - 10 days " . Any idea why they called and

specifically asked if I could possibly stay for 12? (Answer: something they saw

on a 2005 ct-scan I sent them.)

>

> Go for it - it just may be your chance of a lifetime!

[Guest guest]

It is the same protocol 00-CH-0160.

http://clinicaltrials.gov/show/NCT00005927

Can see changes they made here.

http://clinicaltrials.gov/archive/NCT00005927

Guess since The VA is very good at treating SX without DX leads us to believe

this is the norm.

> > >

> > > I have spent some time this morning trying to learn more about NIH, the

protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly

reminded of suggestions that NIH be used as a resource to DX PA. As you

investigate this you need to consider this statement that appears on many of

their pages.

> > >

> > > " NICHD does not provide specific medical advice, but rather provides users

with information to better understand their health and their diagnosed

disorders. The staff of the NICHD cannot give medical advice or diagnoses; the

Institute urges you to consult with a qualified physician for diagnosis and for

answers to your personal health questions. "

> > >

> > > If you think you have something they want and are ready to commit by all

means apply. If you are simply looking for a DX there are doctors that can do

that, you need to keep them focused and listen when they rule something out or

suggest something. Am I perfect? A long way from it but I have learned a lot

in the last 18 days! (And a DX of PA is a small part of my concerns/questions

today.)

> > >

> > > Hope this helps, keep them honest and good luck. (I used to think luck

didn't enter into it but now I think I " lucked " into the wrong protocol and got

the right answer - What a RUSH!)

> > >

> >

>

[Guest guest]

Francis, I can't remember, do you have an adrenal gland tumor?

Lucy Sage

Please forgive brevity & typos

Sent from my droid

Francis Bill SUSPECTED PA <georgewbill@...> wrote:

>When I read this would seem they must DX as it states

>.

> A discussion of treatment options will be based on the results of tests. If

surgery to remove the tumor is recommended, the procedure can be done at NIH

under this study protocol.

>

>Study of Adrenal Gland Tumors

>This study is currently recruiting participants.

>Verified September 2011 by National Institutes of Health Clinical Center (CC)

>

>

>First Received on June 28, 2000. Last Updated on April 14, 2012 History of

Changes

>Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human

Development (NICHD)

>Information provided by: National Institutes of Health Clinical Center (CC)

>ClinicalTrials.gov Identifier: NCT00005927

>

> Purpose

>The adrenal glands, located atop the kidneys, normally produce several types of

hormones. Tumors of these glands may or may not secrete hormones. It is not

known what causes these tumors or why some secrete hormones and others do not.

Some of the tumors are benign and confined to the adrenal gland, and others are

malignant (cancerous), and can spread to other parts of the body. This study

will investigate how adrenal gland tumors develop, why some secrete steroid

hormones and others do not, and why some are benign and others malignant.

>

>Patients between 3 and 70 years old with a known or suspected adrenal gland

tumor may be eligible for this study. Participants will be hospitalized for 7 to

10 days for various tests and procedures that may include the following:

>

>1.Medical history and physical examination, including body measurements, as

appropriate. Children and adolescents will have Tanner staging, including

examination of the genitals, to determine the extent of sexual maturity.

>2.24-hour urine collection to measure hormones in the urine.

>3.Imaging studies, including magnetic resonance imaging (MRI) of the brain,

computed tomography (CT) and other X-ray studies.

>4.Blood tests to see if the tumor secretes hormones in response to specific

stimuli, including exercise, food, and various hormones. The hormones are given

through an intravenous catheter, or IV-a thin plastic tube inserted into an arm

vein. After the stimulus, blood is drawn through the same IV every 30 minutes

for up to 3 hours to measure hormone levels. Based on the results of these

tests, some patients may have additional blood tests to check hormone response

to special foods, an IV salt solution, or other hormones or drugs given either

IV or by mouth (in pill form).

>5.Photographs to document the effects on the body of abnormal hormone secretion

from the adrenal tumor.

>6.Small samples of blood and tumor tissue for research and DNA (genetic)

analysis.

>A discussion of treatment options will be based on the results of tests. If

surgery to remove the tumor is recommended, the procedure can be done at NIH

under this study protocol. If a malignant tumor is found that cannot be treated

surgically, chemotherapy or radiation therapy may be recommended. These options

are not offered under this protocol, but may be available under a different NIH

study (for example, at the National Cancer Institute). Referrals will be made at

the patient's request.

>

>Patients who had surgery may be followed at the NIH outpatient clinic for 1

year after surgery. Patients with certain types of tumors may continue to be

followed at NIH once a year for up to 5 years.

>

>A registry of study participants will be created to keep records and correlate

medical histories with tissues kept at NIH. The registry will also be used to

inform participants of research studies they may be interested in. No

individuals or organizations outside of NIH will have access to the registry.

>

>

>

>

>

>>

>> I have spent some time this morning trying to learn more about NIH, the

protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly

reminded of suggestions that NIH be used as a resource to DX PA. As you

investigate this you need to consider this statement that appears on many of

their pages.

>>

>> " NICHD does not provide specific medical advice, but rather provides users

with information to better understand their health and their diagnosed

disorders. The staff of the NICHD cannot give medical advice or diagnoses; the

Institute urges you to consult with a qualified physician for diagnosis and for

answers to your personal health questions. "

>>

>> If you think you have something they want and are ready to commit by all

means apply. If you are simply looking for a DX there are doctors that can do

that, you need to keep them focused and listen when they rule something out or

suggest something. Am I perfect? A long way from it but I have learned a lot

in the last 18 days! (And a DX of PA is a small part of my concerns/questions

today.)

>>

>> Hope this helps, keep them honest and good luck. (I used to think luck

didn't enter into it but now I think I " lucked " into the wrong protocol and got

the right answer - What a RUSH!)

>>

>

>

[Guest guest]

Yes It is about 2 CM left side.

> >>

> >> I have spent some time this morning trying to learn more about NIH, the

protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly

reminded of suggestions that NIH be used as a resource to DX PA. As you

investigate this you need to consider this statement that appears on many of

their pages.

> >>

> >> " NICHD does not provide specific medical advice, but rather provides users

with information to better understand their health and their diagnosed

disorders. The staff of the NICHD cannot give medical advice or diagnoses; the

Institute urges you to consult with a qualified physician for diagnosis and for

answers to your personal health questions. "

> >>

> >> If you think you have something they want and are ready to commit by all

means apply. If you are simply looking for a DX there are doctors that can do

that, you need to keep them focused and listen when they rule something out or

suggest something. Am I perfect? A long way from it but I have learned a lot

in the last 18 days! (And a DX of PA is a small part of my concerns/questions

today.)

> >>

> >> Hope this helps, keep them honest and good luck. (I used to think luck

didn't enter into it but now I think I " lucked " into the wrong protocol and got

the right answer - What a RUSH!)

> >>

> >

> >

>

[Guest guest]

Thanks for the good wishes Leo. You my need to reread my response, they don't

gurantee a DX, if one is apparent they will ofcourse give it. In my case they

confirmed PA on day one although they didn't like the testing process and

thought spironolactone was absolutely the worse medication for me to be on!

You have the right idea but maybe backwards. I believe the term is

" hyperaldosteronism masking another condition " . Who cares which is " on top " and

mild or severe, wouldn't it be nice to narrow the ones that need to be checked

with the swipe of a swab? The family is prepared to further this process

if we can! (How can we go wrong, we get tested for free!)

> >

> > Francis, I m not sure if you have a point or what it might be! Is this

protocol 00-CH-0160? I don't see any promise of a DX - treatment options are

not a DX in my book.

> >

> > It probably says you can self-refer but you will need someone to refer you

because they need someone for them to return you to! (they frown on

self-medicating!)

> >

> > Item #1 jumped out at me and I am happy to report I am a 65 y/o adolescent

based on that statement!

> >

> > I encourage you to apply if you think you qualify. I plan to be there again

in the fall, who knows maybe we will meet up and I'll buy you dinner oops, free

- buy you coffee, nope free, shake your hand and congratulate you now I can do

that and maybe even give you hint on how to be a good " Lab Rat " !

> >

> > Oh yea, I see it is for " 7 - 10 days " . Any idea why they called and

specifically asked if I could possibly stay for 12? (Answer: something they saw

on a 2005 ct-scan I sent them.)

> >

> > Go for it - it just may be your chance of a lifetime!

>

[Guest guest]

Sorry, I don't look back, too busy looking forward! Might be interesting to see

what they added after I joined the protocol but I have my seat at the table!

I wouldn't be too quick to blame the VA, I believe others here have been tested

while on inapproprite meds and didn't I hear a recommendtion of " a trial of

spiro " for you?

> > > >

> > > > I have spent some time this morning trying to learn more about NIH, the

protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly

reminded of suggestions that NIH be used as a resource to DX PA. As you

investigate this you need to consider this statement that appears on many of

their pages.

> > > >

> > > > " NICHD does not provide specific medical advice, but rather provides

users with information to better understand their health and their diagnosed

disorders. The staff of the NICHD cannot give medical advice or diagnoses; the

Institute urges you to consult with a qualified physician for diagnosis and for

answers to your personal health questions. "

> > > >

> > > > If you think you have something they want and are ready to commit by all

means apply. If you are simply looking for a DX there are doctors that can do

that, you need to keep them focused and listen when they rule something out or

suggest something. Am I perfect? A long way from it but I have learned a lot

in the last 18 days! (And a DX of PA is a small part of my concerns/questions

today.)

> > > >

> > > > Hope this helps, keep them honest and good luck. (I used to think luck

didn't enter into it but now I think I " lucked " into the wrong protocol and got

the right answer - What a RUSH!)

> > > >

> > >

> >

>

[Guest guest]

Please add this to our NIH file if we dont have one then we need to make one.CE Grim MDOn Apr 18, 2012, at 11:28 AM, Francis Bill SUSPECTED PA wrote: When I read this would seem they must DX as it states . A discussion of treatment options will be based on the results of tests. If surgery to remove the tumor is recommended, the procedure can be done at NIH under this study protocol. Study of Adrenal Gland Tumors This study is currently recruiting participants. Verified September 2011 by National Institutes of Health Clinical Center (CC) First Received on June 28, 2000. Last Updated on April 14, 2012 History of Changes Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Information provided by: National Institutes of Health Clinical Center (CC) ClinicalTrials.gov Identifier: NCT00005927 Purpose The adrenal glands, located atop the kidneys, normally produce several types of hormones. Tumors of these glands may or may not secrete hormones. It is not known what causes these tumors or why some secrete hormones and others do not. Some of the tumors are benign and confined to the adrenal gland, and others are malignant (cancerous), and can spread to other parts of the body. This study will investigate how adrenal gland tumors develop, why some secrete steroid hormones and others do not, and why some are benign and others malignant. Patients between 3 and 70 years old with a known or suspected adrenal gland tumor may be eligible for this study. Participants will be hospitalized for 7 to 10 days for various tests and procedures that may include the following: 1.Medical history and physical examination, including body measurements, as appropriate. Children and adolescents will have Tanner staging, including examination of the genitals, to determine the extent of sexual maturity. 2.24-hour urine collection to measure hormones in the urine. 3.Imaging studies, including magnetic resonance imaging (MRI) of the brain, computed tomography (CT) and other X-ray studies. 4.Blood tests to see if the tumor secretes hormones in response to specific stimuli, including exercise, food, and various hormones. The hormones are given through an intravenous catheter, or IV-a thin plastic tube inserted into an arm vein. After the stimulus, blood is drawn through the same IV every 30 minutes for up to 3 hours to measure hormone levels. Based on the results of these tests, some patients may have additional blood tests to check hormone response to special foods, an IV salt solution, or other hormones or drugs given either IV or by mouth (in pill form). 5.Photographs to document the effects on the body of abnormal hormone secretion from the adrenal tumor. 6.Small samples of blood and tumor tissue for research and DNA (genetic) analysis. A discussion of treatment options will be based on the results of tests. If surgery to remove the tumor is recommended, the procedure can be done at NIH under this study protocol. If a malignant tumor is found that cannot be treated surgically, chemotherapy or radiation therapy may be recommended. These options are not offered under this protocol, but may be available under a different NIH study (for example, at the National Cancer Institute). Referrals will be made at the patient's request. Patients who had surgery may be followed at the NIH outpatient clinic for 1 year after surgery. Patients with certain types of tumors may continue to be followed at NIH once a year for up to 5 years. A registry of study participants will be created to keep records and correlate medical histories with tissues kept at NIH. The registry will also be used to inform participants of research studies they may be interested in. No individuals or organizations outside of NIH will have access to the registry. > > I have spent some time this morning trying to learn more about NIH, the protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly reminded of suggestions that NIH be used as a resource to DX PA. As you investigate this you need to consider this statement that appears on many of their pages. > > "NICHD does not provide specific medical advice, but rather provides users with information to better understand their health and their diagnosed disorders. The staff of the NICHD cannot give medical advice or diagnoses; the Institute urges you to consult with a qualified physician for diagnosis and for answers to your personal health questions." > > If you think you have something they want and are ready to commit by all means apply. If you are simply looking for a DX there are doctors that can do that, you need to keep them focused and listen when they rule something out or suggest something. Am I perfect? A long way from it but I have learned a lot in the last 18 days! (And a DX of PA is a small part of my concerns/questions today.) > > Hope this helps, keep them honest and good luck. (I used to think luck didn't enter into it but now I think I "lucked" into the wrong protocol and got the right answer - What a RUSH!) >

[Guest guest]

Dr. Grim, I'm not sure what you want added. This is one specific protocol out

of thousands in NIH files. Each are set up individually. You are better off

looking at their site and finding one you want nd seeing if there is a fit. (I

believe the info is in our files.)

> > >

> > > I have spent some time this morning trying to learn more about

> > NIH, the protocol I am enrolled in and what makes Dr. Stratakis

> > tick. I was constantly reminded of suggestions that NIH be used as a

> > resource to DX PA. As you investigate this you need to consider this

> > statement that appears on many of their pages.

> > >

> > > " NICHD does not provide specific medical advice, but rather

> > provides users with information to better understand their health

> > and their diagnosed disorders. The staff of the NICHD cannot give

> > medical advice or diagnoses; the Institute urges you to consult with

> > a qualified physician for diagnosis and for answers to your personal

> > health questions. "

> > >

> > > If you think you have something they want and are ready to commit

> > by all means apply. If you are simply looking for a DX there are

> > doctors that can do that, you need to keep them focused and listen

> > when they rule something out or suggest something. Am I perfect? A

> > long way from it but I have learned a lot in the last 18 days! (And

> > a DX of PA is a small part of my concerns/questions today.)

> > >

> > > Hope this helps, keep them honest and good luck. (I used to think

> > luck didn't enter into it but now I think I " lucked " into the wrong

> > protocol and got the right answer - What a RUSH!)

> > >

> >

> >

>

[Guest guest]

Dr. Grim, I'm not sure what you want added. This is one specific protocol out

of thousands in NIH files. Each are set up individually. You are better off

looking at their site and finding one you want nd seeing if there is a fit. (I

believe the info is in our files.)

> > >

> > > I have spent some time this morning trying to learn more about

> > NIH, the protocol I am enrolled in and what makes Dr. Stratakis

> > tick. I was constantly reminded of suggestions that NIH be used as a

> > resource to DX PA. As you investigate this you need to consider this

> > statement that appears on many of their pages.

> > >

> > > " NICHD does not provide specific medical advice, but rather

> > provides users with information to better understand their health

> > and their diagnosed disorders. The staff of the NICHD cannot give

> > medical advice or diagnoses; the Institute urges you to consult with

> > a qualified physician for diagnosis and for answers to your personal

> > health questions. "

> > >

> > > If you think you have something they want and are ready to commit

> > by all means apply. If you are simply looking for a DX there are

> > doctors that can do that, you need to keep them focused and listen

> > when they rule something out or suggest something. Am I perfect? A

> > long way from it but I have learned a lot in the last 18 days! (And

> > a DX of PA is a small part of my concerns/questions today.)

> > >

> > > Hope this helps, keep them honest and good luck. (I used to think

> > luck didn't enter into it but now I think I " lucked " into the wrong

> > protocol and got the right answer - What a RUSH!)

> > >

> >

> >

>

[Guest guest]

Sorry add the article they published.CE Grim MDOn Apr 21, 2012, at 4:55 PM, wrote: Dr. Grim, I'm not sure what you want added. This is one specific protocol out of thousands in NIH files. Each are set up individually. You are better off looking at their site and finding one you want nd seeing if there is a fit. (I believe the info is in our files.) > > > > > > I have spent some time this morning trying to learn more about > > NIH, the protocol I am enrolled in and what makes Dr. Stratakis > > tick. I was constantly reminded of suggestions that NIH be used as a > > resource to DX PA. As you investigate this you need to consider this > > statement that appears on many of their pages. > > > > > > "NICHD does not provide specific medical advice, but rather > > provides users with information to better understand their health > > and their diagnosed disorders. The staff of the NICHD cannot give > > medical advice or diagnoses; the Institute urges you to consult with > > a qualified physician for diagnosis and for answers to your personal > > health questions." > > > > > > If you think you have something they want and are ready to commit > > by all means apply. If you are simply looking for a DX there are > > doctors that can do that, you need to keep them focused and listen > > when they rule something out or suggest something. Am I perfect? A > > long way from it but I have learned a lot in the last 18 days! (And > > a DX of PA is a small part of my concerns/questions today.) > > > > > > Hope this helps, keep them honest and good luck. (I used to think > > luck didn't enter into it but now I think I "lucked" into the wrong > > protocol and got the right answer - What a RUSH!) > > > > > > > >

[Guest guest]

Sorry add the article they published.CE Grim MDOn Apr 21, 2012, at 4:55 PM, wrote: Dr. Grim, I'm not sure what you want added. This is one specific protocol out of thousands in NIH files. Each are set up individually. You are better off looking at their site and finding one you want nd seeing if there is a fit. (I believe the info is in our files.) > > > > > > I have spent some time this morning trying to learn more about > > NIH, the protocol I am enrolled in and what makes Dr. Stratakis > > tick. I was constantly reminded of suggestions that NIH be used as a > > resource to DX PA. As you investigate this you need to consider this > > statement that appears on many of their pages. > > > > > > "NICHD does not provide specific medical advice, but rather > > provides users with information to better understand their health > > and their diagnosed disorders. The staff of the NICHD cannot give > > medical advice or diagnoses; the Institute urges you to consult with > > a qualified physician for diagnosis and for answers to your personal > > health questions." > > > > > > If you think you have something they want and are ready to commit > > by all means apply. If you are simply looking for a DX there are > > doctors that can do that, you need to keep them focused and listen > > when they rule something out or suggest something. Am I perfect? A > > long way from it but I have learned a lot in the last 18 days! (And > > a DX of PA is a small part of my concerns/questions today.) > > > > > > Hope this helps, keep them honest and good luck. (I used to think > > luck didn't enter into it but now I think I "lucked" into the wrong > > protocol and got the right answer - What a RUSH!) > > > > > > > >