Re: Re: Draft abstract still updating information.

[Guest guest]

These would be HTN specialists from around the world. Next group will be more practitioners.If we could get everyone to contribute their data and got up to say 100 folks we can put together a paper I think for wide distribution. The more we have data on the more likely it is to get accepted. With 500 here should have more than 86 I would hope but we have what we have.Maybe even JAMA.CE Grim MDOn Mar 31, 2012, at 8:39 AM, Francis Bill SUSPECTED PA wrote: Is this something most PCP are going to see? What is going to in it about K blood draw? Missed DX because improper testing due to meds time of day other factors? > > we are limited to 250 words in the abstract itself. Going to bed. > Draft: Delayed Diagnosis of Primary Aldosteronism-help from the Web: > a support group for patients struggling with diagnosis and long- > term management. > > > > Grim CE, Hall S, V and the 500+ members of hyperaldosteronism > at > > > > Background: Primary aldosteronism (PA) presents as drug resistant > hypertension (DRHTN) and a diffuse/confusing symptom complex as > hypokalemia(LoK) evolves. Laboratory testing(DX) has revolutionized > the practitioner's ability to Dx/treat/refer/improve lives in PA but > many are missed as PA is thought to be rare. > > > > Methods: An online support group was organized in 2002 by a patient > with the myriad problems associated with PA(soon joined by Dr. Grim > who serves as the medical consultant). Over 500+ PAs contribute > support/education to new suspected/DXed patients (most with advanced > PA). Detailed information was contributed by 88 (48% men) from 11 > nations. > > > > Results: Age XX, adenoma(s):unilateral(XX)/bilateral(XX), > hyperplasia(21). Drs seen before Dx=5±X(range1-15), uncontrolled > HTN=10 yrs(1-40), LoK=5(0-58)yrs. BP decreased from 208±35/122±24 mmHg > before DX to 128±15/78±15 after surgical(XX) or medical Rx(XX). > Spironolactone Rx=xx, eplerenone xx mg/d). > > Symptoms: DRHTN(93%), fatigue=75%, nocturia=75%), muscle cramps(XX%), > multiple ER visits for complex of headaches, chest pains, muscle > cramps, and anxiety (including what many refer to as "mental fog") and > finding of severe HTN and LoK (90%). RX: A LoNa/HiK(DASH) diet is a > powerful adjunct to Rx in PA but only 14% was this recommended. > Stressing DASH has led to dramatic improvement in HTN, Sx, and need > for BP Rx. > > > > Conclusions: Dx of PA is often missed as documented in this web > support group. We invite all who care for difficult HTN to > Groups to read the files on "Conn's Stories" as we are certain they > will recognize some of their own patients and be spurred to Dx and Rx > PA. >