Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Welcome aboard. You have found the grail. You have seen the secret. Like a lightning flash illuminating a landscape in darkness, when you have seen the terrain the world is never again the place it was before. These are rare moments in life. This is what it means to chance to live in the time of this insight, and after not forseeing the find in all our lives before it, to look back to that time from the safety of the time of knowing. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Hi , Welcome to the group and welcome to AS. We have a database in the Database section that will give you the Titles of many different books about Autism and AS. Enjoy! In the meantime, feel free to settle in and associate with the rest of us. You will find that topics run the gamut from AS related things to things having absolutely nothing with AS. But first and foremost, we are an Aspie group, so anytime you want to bring up an AS topic, feel free. Tom Administrator This is my first post. I currently live in the Los Angeles area, work as a Physical Therapist at a large hospital, and discovered Asperger's syndrom purely by chance a year ago. Who me!! I have had a life long fascination with autism, and always thought in my heart that I had, somehow find a solution. Well, this fascination, more journey, lead me to a greater knowledge of myself and the wonder that a person can during their live-time unfold into self knowledge as one would read a new chapter in a novel. I am still learning about Asperger's syndrom and it has been a revalation to me that my extreme difficuty with social interactions, making and keeping friends and my narrowly focused obsessions and feeling like an alien is actually shared by more than me!! I'm hoping to learn more about my " good fortune " and finding resources and social contacts locally. I'm also looking forward to my books from Amazon.com and glad to have made the transition from umm >> naw not me >> I wonder? >> maybe so >> that explains a lot! Hope to hear from others, peace. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 When I tried to post a welcome last night, that is the exact moment that ! decided to inform me they were doing an update and I could not access the forums for approximately four hours, . My apologies for posting a welcome so late. So ... WELCOME! :-D Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Hi , I'm from the Chicagoland area and am learning too although not diagnosed. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Welcome to the group . > > This is my first post. I currently live in the Los Angeles area, work > as a Physical Therapist at a large hospital, and discovered Asperger's > syndrom purely by chance a year ago. Who me!! I have had a life long > fascination with autism, and always thought in my heart that I had, > somehow find a solution. Well, this fascination, more journey, lead me > to a greater knowledge of myself and the wonder that a person can > during their live-time unfold into self knowledge as one would read a > new chapter in a novel. I am still learning about Asperger's syndrom > and it has been a revalation to me that my extreme difficuty with > social interactions, making and keeping friends and my narrowly focused > obsessions and feeling like an alien is actually shared by more than > me!! > I'm hoping to learn more about my " good fortune " and finding resources > and social contacts locally. I'm also looking forward to my books from > Amazon.com and glad to have made the transition from umm >> naw not me > >> I > wonder? >> maybe so >> that explains a lot! Hope to hear from others, > peace. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Robin and Welcome, You have come to the right place. This site is wonderful and so are the many parents who post here. We have all been where you are at some point in our kid's experiences with OCD. You are on the right track by getting her in to see someone. It is a scary time when you first discover your child has this disorder but there is a lot of things mentioned on this board that can help. You are not alone in this. Ask any question here and I am sure someone will be able to relate and reply. Take care, Kim M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Welcome and like the others have said - this is a great place to learn and if you have any questions there is always someone who can answer. Cheers Jaxx (New Zealand) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 In a message dated 1/14/2007 3:18:30 P.M. Eastern Standard Time, RLthomas2@... writes: I did not mean to say that treating OCD was like treating allergies. That is just the way I explained it to my daughter since she is only 9 years old. Robin - I understand. I just wanted to mention that in case you thought perhaps there was some 'magic pill' that can make it all go away. Don't laugh..... I actually thought that's what we would find when my daughter was first diagnosed & I was told there was medication she could be put on. It's hard to accept when there is no easy solution for things that affect our children like this. There have been several posts kicked around on this board on ways to try & explain it to kids of different ages..... it's important for your daughter to know that she's not crazy or nuts or insane. There IS a chemical explanation for OCD. It's much like being lactose intolerant - when your body simply doesn't produce the enzyme you need to digest dairy products...... her body (brain) isn't producing enough serotonin & the levels it is producing aren't 'staying' long enough to do their job. That's where medication can help. Some folks do well with just therapy - retraining your brain to deal with certain thoughts in a different way. We have had it very easy with OCD.... I have to pinch myself when I say that because I remember how horrible it was for months. It was tearing our family apart. It was horrible. But there are folks on this board who have it so much worse & are still trying to find what works for their kids. I'll be anxious to hear how your first doc's appt goes! LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Robin and welcome to the group. You are in a good place for support and we all definately need it from time to time. The more you learn about ocd and with time it does get a little easier! My dd, Bre(15), was diagnosed at 12. She came to me with thoughts of killing herself and thinking she was crazy. (She also had to even things up, had to be perfect all the time and would pray compulsively, which I found out later.) I took her right in and she was then referred to a psychiatrist. After she went on meds for awhile she saw a therapist (ocd specialist) who treated her with CBT and ERP. She went to therapy for a year. Now she is doing great and I am so glad we sought help and that I found this online group! If you ever have any questions, feel free to ask anyone here. Just remember to also take care of yourself. I even saw her therapist in the beginning for a while to help me cope with all my feelings! Sandy -- In , " notforsaken1 " <RLthomas2@...> wrote: > > > > > > > > In a message dated 1/14/2007 1:47:51 P.M. Eastern Standard Time, > > RLthomas2@ writes: > > > > I am trying to > > reassure her that the doctors will be able to help and that this > is > > just like her allergies etc... but I am the one that really needs > > reassuring! > > > > > > > > Robin - > > > > Welcome to the group! Have you been reading posts prior to > posting > > yourself? One thing you need to understand is that, if treating > OCD were as simple > > as treating allergies, most of us (if not all) wouldn't be > here.... sorry to > > say. > > > > Rest assured you're doing the right thing though. Getting your > daughter the > > professional help she needs & finding a support group are an > excellent > > start! Does the psychiatrist you've found have experience > treating OCD in > > children? Have you been on the _www.OCFoundation.org_ > (http://www.OCFoundation.org) > > website? If not, go there & click around. There is sometime > great > > information there. You can sign up to receive their newsletter > and also get a list > > of psychologists, therapists, etc., for different areas. > > > > Is she having trouble at school with the OCD? Many times you'll > find that > > kids do fine outside the home - to the point that you may question > whether or > > not she's pretending to have these symptoms because they only come > out at > > home. There are lots of good books on OCD - if you don't already > have one, you > > should look into it. > > > > It's important to find a psychologist to work with your daughter. > The > > Psychiatrist will be able to prescribe medication - if you feel > it's needed. The > > Psychologist will work with her behavior & teach her ways to fight > back the > > OCD. Two basic therapies you must have to treat OCD are CBT and > ERP > > (Cognitive Behavioral therapy and Exposure Response Prevention) - > that is the type of > > treatment you want for your daughter. Be sure to ask about this > when you > > start checking into therapists. Your psychiatrist might be able > to recommend > > someone. > > > > My daughter (15yrs now) was diagnosed, quite suddenly, in December > 2005. > > Her issues are with germs. 3+ hour long showers, can't stop > scrubbing herself, > > ridiculously long hand washing, wouldn't wear ANY article of > clothing more > > than once without having to wash it (even jackets). She's been on > Prozac > > since January 2006. She started at 10mg per day.... worked her > way up 50mg per > > day & that's when we noticed a HUGE change & improvement. She > could again > > shower by herself in less than 30mins - she could again go to the > bathroom by > > herself (another issue she had - she couldn't stop wiping herself > after going > > to the bathroom. I had to actually go in with her & make her > stop.) > > > > Long story short.... she's doing GREAT now. We've actually started > to > > decrease the Prozac & she's back down to on 30mg per day now. > Next month we hope > > to go down again to 20mg per day...etc, until she's completely > off. So far > > she hasn't had any symptoms resurface. > > > > It's a life changing experience - that's for sure. For some, it's > a much > > easier journey than it is for others. > > > > The tightening of the butt muscles & clicking noise in the throat > sound like > > possible tics - something we haven't had to experience, but others > on the > > board will have input for you on that. > > > > In any case - welcome! You will get the support you need here. > > LT > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Robin, welcome! I have a son, almost 18, whose OCD began around age 11.5, right after he began 6th grade. He was (is again) also an A student. When 's OCD popped up (suddenly it seemed) he also had all these compulsions/rituals he was doing. Same as your daughter, it seemed new stuff was showing up almost daily! Over the following weeks, some things stayed, some went away, new ones popped up.... We dealt with OCD all through the middle school grades. Had our ups & downs. It can wax & wane, as you'll read about. The psychiatrist will probably suggest medication. Or he/she might suggest she try therapy first (Cognitive Behavioral Therapy or CBT and Exposure & Response/ritual Prevention or ERP). However many times the person is soooo troubled with OCD they need medication first to help relieve the anxiety, lessen the behaviors, stress some before they can benefit from therapy. You may want to read up on medication for children at the OCD Foundation website to familiarize yourself with them. also used to trace over his letters. He was doing that before 6th grade. I said to myself then that he had a little OCD! You can assure your daughter she is NOT going crazy! There are some great books for children that can help explain OCD. Look on the Foundatin website for those too. Also you can look here: http://www.lighthouse-press.com/ there's some free info/sheets you can print out here too. The clicking noise and the eyes...that can be OCD but made me wonder: tics?? did a few things at first too that had me asking myself were they tics, but those things stopped luckily. Here is an excellent site for information on OCD (look under the " Conditions " page) and also on tourette syndrome which can tell you about tics. http://www.tourettesyndrome.net/ OCD can be such a nightmare in the beginning when things are so out of control and it's all new! This group helped me keep my sanity. It was so good to have a place to come to, even just to read posts to know that you're not the only family going through this. Even when others are dealing with different behaviors, it's still " OCD. " Some of 's compulsions and behaviors were even " weird " for OCD! Let us know what happens at the psychiatrist appointment. Your daughter might feel a lot better if she can learn a bit about OCD and the treatment/therapy for it, learning to boss back OCD, etc. Advice for you: find some time for *you* to relax, even a few minutes here & there during the day. Of course if you're like most of it, these first weeks you will be spending an " obsessive " amount of time reading & learning about OCD! single mom, 3 sons , almost 18, with OCD, dysgraphia and Aspergers > > Hello Everyone... This is my first post to any sort of online group > and I hate to say that I am sorry that it has to be this one. I have > recently found out that my 9 year old daughter has OCD. She goes on > Thursday for her first apt. with a phyciatrist (this is so new I > don't even know how to spell it!) > She has never had outburst or anything of that nature. She is a > straight A student in a christian school and until this year has Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Robin, welcome! I have a son, almost 18, whose OCD began around age 11.5, right after he began 6th grade. He was (is again) also an A student. When 's OCD popped up (suddenly it seemed) he also had all these compulsions/rituals he was doing. Same as your daughter, it seemed new stuff was showing up almost daily! Over the following weeks, some things stayed, some went away, new ones popped up.... We dealt with OCD all through the middle school grades. Had our ups & downs. It can wax & wane, as you'll read about. The psychiatrist will probably suggest medication. Or he/she might suggest she try therapy first (Cognitive Behavioral Therapy or CBT and Exposure & Response/ritual Prevention or ERP). However many times the person is soooo troubled with OCD they need medication first to help relieve the anxiety, lessen the behaviors, stress some before they can benefit from therapy. You may want to read up on medication for children at the OCD Foundation website to familiarize yourself with them. also used to trace over his letters. He was doing that before 6th grade. I said to myself then that he had a little OCD! You can assure your daughter she is NOT going crazy! There are some great books for children that can help explain OCD. Look on the Foundatin website for those too. Also you can look here: http://www.lighthouse-press.com/ there's some free info/sheets you can print out here too. The clicking noise and the eyes...that can be OCD but made me wonder: tics?? did a few things at first too that had me asking myself were they tics, but those things stopped luckily. Here is an excellent site for information on OCD (look under the " Conditions " page) and also on tourette syndrome which can tell you about tics. http://www.tourettesyndrome.net/ OCD can be such a nightmare in the beginning when things are so out of control and it's all new! This group helped me keep my sanity. It was so good to have a place to come to, even just to read posts to know that you're not the only family going through this. Even when others are dealing with different behaviors, it's still " OCD. " Some of 's compulsions and behaviors were even " weird " for OCD! Let us know what happens at the psychiatrist appointment. Your daughter might feel a lot better if she can learn a bit about OCD and the treatment/therapy for it, learning to boss back OCD, etc. Advice for you: find some time for *you* to relax, even a few minutes here & there during the day. Of course if you're like most of it, these first weeks you will be spending an " obsessive " amount of time reading & learning about OCD! single mom, 3 sons , almost 18, with OCD, dysgraphia and Aspergers > > Hello Everyone... This is my first post to any sort of online group > and I hate to say that I am sorry that it has to be this one. I have > recently found out that my 9 year old daughter has OCD. She goes on > Thursday for her first apt. with a phyciatrist (this is so new I > don't even know how to spell it!) > She has never had outburst or anything of that nature. She is a > straight A student in a christian school and until this year has Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 > > > > Hello Everyone... This is my first post to any sort of online group > > and I hate to say that I am sorry that it has to be this one. I > have > > recently found out that my 9 year old daughter has OCD. She goes on > > Thursday for her first apt. with a phyciatrist (this is so new I > > don't even know how to spell it!) > > She has never had outburst or anything of that nature. She is a > > straight A student in a christian school and until this year has > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Robin, I'm sorry to hear about your daughter. My son was diagnosed last year when he was 10. His OCD became debilitating and eventually had to be hospitalized for 3 days. My greatest advice to you is to find a therapist who is an expert in ERP, which is exposure therapy. My son saw two psychotherapists for 3 months who would not/could not do exposure therapy, even though I had read that ERP and/or medication was the best way to treat OCD and asked them to use it. Had they done it or referred me to someone who could, I believe he never would have been hospitalized or had to suffer as long as he did. Once he went to an OCD clinic at UCLA where they specialize in ERP, he improved dramatically in a few weeks. He is probably 80% better, which is a gift. I suspect he'll alway have to deal with it, but life is so much easier now. Psychotherapy, I'm sure, is effective for other issues, but not for OCD. There are books available that explain ERP and how you can do it at home, although it might be easier to start with a therapist. Good luck to you, your daughter and your family. This is a great board of parents with a lot of great advice. Don't give up hope. Judi > > Hello Everyone... This is my first post to any sort of online group > and I hate to say that I am sorry that it has to be this one. I have > recently found out that my 9 year old daughter has OCD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Robin, I'm sorry to hear about your daughter. My son was diagnosed last year when he was 10. His OCD became debilitating and eventually had to be hospitalized for 3 days. My greatest advice to you is to find a therapist who is an expert in ERP, which is exposure therapy. My son saw two psychotherapists for 3 months who would not/could not do exposure therapy, even though I had read that ERP and/or medication was the best way to treat OCD and asked them to use it. Had they done it or referred me to someone who could, I believe he never would have been hospitalized or had to suffer as long as he did. Once he went to an OCD clinic at UCLA where they specialize in ERP, he improved dramatically in a few weeks. He is probably 80% better, which is a gift. I suspect he'll alway have to deal with it, but life is so much easier now. Psychotherapy, I'm sure, is effective for other issues, but not for OCD. There are books available that explain ERP and how you can do it at home, although it might be easier to start with a therapist. Good luck to you, your daughter and your family. This is a great board of parents with a lot of great advice. Don't give up hope. Judi > > Hello Everyone... This is my first post to any sort of online group > and I hate to say that I am sorry that it has to be this one. I have > recently found out that my 9 year old daughter has OCD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Robin, Welcome to the group. I have 3 kids ages 11,10 and 5 with ocd as well as myself. You have definitely come to the right place. This group is excellent! I could never make it without the people on here! Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Welcome Robin, My daughter was diagnosed with OCD last February, right before her 9th birthday. This group is a great resource as you begin to help your daughter through this. I wish you luck this Thursday. _____ From: [mailto: ] On Behalf Of notforsaken1 Sent: Sunday, January 14, 2007 1:37 PM Subject: First Post Hello Everyone... This is my first post to any sort of online group and I hate to say that I am sorry that it has to be this one. I have recently found out that my 9 year old daughter has OCD. She goes on Thursday for her first apt. with a phyciatrist (this is so new I don't even know how to spell it!) She has never had outburst or anything of that nature. She is a straight A student in a christian school and until this year has been leading a normal childhood. Well all of that changed... Now is seems like everyday she has another ritual or compulsion. These are but a few tracing over letters and numbers, clicking noise in throat, certain amount of steps, tightening butt muscles until they hurt, even numbers, tapping, turning pictures around to face the wall, sticking things under her fingernails, picking her nose, rapid blinking of her eyes, rashes from anxiety on her elbows and legs. It seems like since we noticed the even number thing a few months ago that we have opened a pandora's box and everyday she will exhibit another compulsion. She thinks she is going crazy! I am trying to reassure her that the doctors will be able to help and that this is just like her allergies etc... but I am the one that really needs reassuring! Any words of wisdom or advice from those that have been in the trenches I would greatly appreciate! This group is an answer to prayer for me. Sorry to ramble on so long I am just overwhelmed right now and this is the only place I have turned. Thanks so much, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 welcome Robin - you've found a great place with so much knowledge - it can be overwhelming - you're headed in the right direction and I have heard it said to compare it to asthma etc - I read up and down the worry hill and mr worry to my 7 y.o. - and she was so happy to relate -and Tamar Chansky's book was great for me- they started a group here for the kids to talk so they can connect - my dd is 7 and a bit young I think but that may help too - good luck and we're here eileen Quoting bjccjohnson2004 <jjohnson@...>: > Robin, > > I'm sorry to hear about your daughter. My son was diagnosed last > year when he was 10. > > His OCD became debilitating and eventually had to be hospitalized for 3 days. > > My greatest advice to you is to find a therapist who is an expert in > ERP, which is exposure > therapy. > > My son saw two psychotherapists for 3 months who would not/could not > do exposure > therapy, even though I had read that ERP and/or medication was the > best way to treat OCD > and asked them to use it. > > Had they done it or referred me to someone who could, I believe he > never would have > been hospitalized or had to suffer as long as he did. > > Once he went to an OCD clinic at UCLA where they specialize in ERP, > he improved > dramatically in a few weeks. He is probably 80% better, which is a > gift. I suspect he'll > alway have to deal with it, but life is so much easier now. > > Psychotherapy, I'm sure, is effective for other issues, but not for OCD. > > There are books available that explain ERP and how you can do it at > home, although it > might be easier to start with a therapist. > > Good luck to you, your daughter and your family. This is a great > board of parents with a > lot of great advice. Don't give up hope. > > Judi > > > >> >> Hello Everyone... This is my first post to any sort of online group >> and I hate to say that I am sorry that it has to be this one. I have >> recently found out that my 9 year old daughter has OCD. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Robin, I know it is so overwhelming to suddenly walk into the middle of this. It can come on so quickly and strong it feels like it is taking over your life. There are so many treatment options available, that things will certainly get better for your daughter. Last year at this time, my 11 yr old son was so bad they wanted to hospitalize him. Now he has been symptom free for 9 months. Please know how many here understand and will go through this with you. You are certainly now alone and if you want a group of people who understand, you've found it here. Keep us posted and do all the reading you can. I recommend any books on OCD by Tamar Chansky and/or Aureen Wagner. They are excellent!!! Aureen Wagner has an excellent book " up and down the worry hill " that explains things very well for children. I would recommend getting it and reading it to your daughter. It will help her to see she is not alone. They are all available on amazon.com Educating yourself is very empowering. Kind Regards, notforsaken1 <RLthomas2@...> wrote: Hello Everyone... This is my first post to any sort of online group and I hate to say that I am sorry that it has to be this one. I have recently found out that my 9 year old daughter has OCD. She goes on Thursday for her first apt. with a phyciatrist (this is so new I don't even know how to spell it!) She has never had outburst or anything of that nature. She is a straight A student in a christian school and until this year has been leading a normal childhood. Well all of that changed... Now is seems like everyday she has another ritual or compulsion. These are but a few tracing over letters and numbers, clicking noise in throat, certain amount of steps, tightening butt muscles until they hurt, even numbers, tapping, turning pictures around to face the wall, sticking things under her fingernails, picking her nose, rapid blinking of her eyes, rashes from anxiety on her elbows and legs. It seems like since we noticed the even number thing a few months ago that we have opened a pandora's box and everyday she will exhibit another compulsion. She thinks she is going crazy! I am trying to reassure her that the doctors will be able to help and that this is just like her allergies etc... but I am the one that really needs reassuring! Any words of wisdom or advice from those that have been in the trenches I would greatly appreciate! This group is an answer to prayer for me. Sorry to ramble on so long I am just overwhelmed right now and this is the only place I have turned. Thanks so much, Robin --------------------------------- 8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 I also think there is such strong value in the power of a hug for our children, and letting them know they are not alone either. How alone we can feel, and overwhelmed, is only the tip of what they are probably going through. c ward <cward_ri@...> wrote: Hi Robin, I know it is so overwhelming to suddenly walk into the middle of this. It can come on so quickly and strong it feels like it is taking over your life. There are so many treatment options available, that things will certainly get better for your daughter. Last year at this time, my 11 yr old son was so bad they wanted to hospitalize him. Now he has been symptom free for 9 months. Please know how many here understand and will go through this with you. You are certainly now alone and if you want a group of people who understand, you've found it here. Keep us posted and do all the reading you can. I recommend any books on OCD by Tamar Chansky and/or Aureen Wagner. They are excellent!!! Aureen Wagner has an excellent book " up and down the worry hill " that explains things very well for children. I would recommend getting it and reading it to your daughter. It will help her to see she is not alone. They are all available on amazon.com Educating yourself is very empowering. Kind Regards, notforsaken1 <RLthomas2@...> wrote: Hello Everyone... This is my first post to any sort of online group and I hate to say that I am sorry that it has to be this one. I have recently found out that my 9 year old daughter has OCD. She goes on Thursday for her first apt. with a phyciatrist (this is so new I don't even know how to spell it!) She has never had outburst or anything of that nature. She is a straight A student in a christian school and until this year has been leading a normal childhood. Well all of that changed... Now is seems like everyday she has another ritual or compulsion. These are but a few tracing over letters and numbers, clicking noise in throat, certain amount of steps, tightening butt muscles until they hurt, even numbers, tapping, turning pictures around to face the wall, sticking things under her fingernails, picking her nose, rapid blinking of her eyes, rashes from anxiety on her elbows and legs. It seems like since we noticed the even number thing a few months ago that we have opened a pandora's box and everyday she will exhibit another compulsion. She thinks she is going crazy! I am trying to reassure her that the doctors will be able to help and that this is just like her allergies etc... but I am the one that really needs reassuring! Any words of wisdom or advice from those that have been in the trenches I would greatly appreciate! This group is an answer to prayer for me. Sorry to ramble on so long I am just overwhelmed right now and this is the only place I have turned. Thanks so much, Robin --------------------------------- 8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 > > > > Hello Everyone... This is my first post to any sort of online group > > and I hate to say that I am sorry that it has to be this one. I > have > > recently found out that my 9 year old daughter has OCD. She goes on > > Thursday for her first apt. with a phyciatrist (this is so new I > > don't even know how to spell it!) > > She has never had outburst or anything of that nature. She is a > > straight A student in a christian school and until this year has > Hi Robin, Welcome. This is a wonderful place to get advice and real compassion. We all understand what each of us is going through. It is a real comfort. My daugher was diagnosed four years ago at nine years old. She has bad thought ocd with some compulsions. You and your daughter will be in my prayers. God bless, Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Welcome Robin. You and your dd will do fine. :0) My dd is 5 1/2 and was dx a little over a year ago. Her 2 biggest compulsions had to do with germs and needing reassurnace from me. Yes, I said WERE. She started therapy a little over a year ago and made HUGE strides and improved so much, right from the beginning. She is doing great now and we only go as needed. Some issues are still there, and probably always will be some there, but they are not disruptive like they used to be. SInce her dx, I realize that I have OCD, as well. My dh and I used to joke about it, but now I know I do have it and the things I do, everyone does NOT do - as I always thought. Mine are not disruptive, and, for the most part, they are thing no one would ever see or notice and they only effect me. Anyways, good luck on Thurs. Keep reassuring your dd it isnt her fault, she is NOT going crazy, and, as you said, it is something like allergies - she has no control over the fact she has them, but can use things to help control them. Sharon First Post Hello Everyone... This is my first post to any sort of online group and I hate to say that I am sorry that it has to be this one. I have recently found out that my 9 year old daughter has OCD. She goes on Thursday for her first apt. with a phyciatrist (this is so new I don't even know how to spell it!) She has never had outburst or anything of that nature. She is a straight A student in a christian school and until this year has been leading a normal childhood. Well all of that changed... Now is seems like everyday she has another ritual or compulsion. These are but a few tracing over letters and numbers, clicking noise in throat, certain amount of steps, tightening butt muscles until they hurt, even numbers, tapping, turning pictures around to face the wall, sticking things under her fingernails, picking her nose, rapid blinking of her eyes, rashes from anxiety on her elbows and legs. It seems like since we noticed the even number thing a few months ago that we have opened a pandora's box and everyday she will exhibit another compulsion. She thinks she is going crazy! I am trying to reassure her that the doctors will be able to help and that this is just like her allergies etc... but I am the one that really needs reassuring! Any words of wisdom or advice from those that have been in the trenches I would greatly appreciate! This group is an answer to prayer for me. Sorry to ramble on so long I am just overwhelmed right now and this is the only place I have turned. Thanks so much, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Hi Robin, I have an almost 7 years old daughter with OCD. The noise and eye blinking sound more like tics to me but the psychiatrist will check that out as well. You did the right to get her help and if the psychiatrist thinks that she has tics she might refer your daughter to see a neurologist as well . Your daughter is not crazy. sabine > > Hello Everyone... This is my first post to any sort of online group > and I hate to say that I am sorry that it has to be this one. I have > recently found out that my 9 year old daughter has OCD. She goes on > Thursday for her first apt. with a phyciatrist (this is so new I > don't even know how to spell it!) > She has never had outburst or anything of that nature. She is a > straight A student in a christian school and until this year has been > leading a normal childhood. > Well all of that changed... Now is seems like everyday she has > another ritual or compulsion. These are but a few tracing over > letters and numbers, clicking noise in throat, certain amount of > steps, tightening butt muscles until they hurt, even numbers, > tapping, turning pictures around to face the wall, sticking things > under her fingernails, picking her nose, rapid blinking of her eyes, > rashes from anxiety on her elbows and legs. > It seems like since we noticed the even number thing a few months ago > that we have opened a pandora's box and everyday she will exhibit > another compulsion. She thinks she is going crazy! I am trying to > reassure her that the doctors will be able to help and that this is > just like her allergies etc... but I am the one that really needs > reassuring! > Any words of wisdom or advice from those that have been in the > trenches I would greatly appreciate! This group is an answer to > prayer for me. Sorry to ramble on so long I am just overwhelmed right > now and this is the only place I have turned. Thanks so much, Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Most doc's go by biopsy results and not the viral load . But you do have a good viral load so treatment is not out of the question right now and is something you should talk to your doc about . I take Roxicodone for pain it has no tylenol in it and is easy on the liver . Now weather or not you can work on tx will depend on how you feel , there is no way of knowing who is going to have severe side effects or not . But lots do tx and work with no problems . first post Hello people, I've been reading some posts since I've joined but have some questions. I was dxed with a vl of 700,000 about a year ago and haven't been to a doctor since. At what vl# do the doctors start treatments and will I be able to work during treatment? The other thing is I have to go on some kind of pain meds for my chronic pain - what will be the least destructive to my liver? It's nice to have a site to ask these questions and I thank you in advance for your answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Hi Bill, Glad you decided to join and asking questions always helps sort things out. I would have been lost.. Woud agree with Liz, a liver biopsy will tell you how much damage you might have and give you an idea of where to go from there.... Hoping you have Medical Insurance and can get the ball rolling.. Take care.. Sheena Bill <falsarge@...> wrote: Hello people, I've been reading some posts since I've joined but have some questions. I was dxed with a vl of 700,000 about a year ago and haven't been to a doctor since. At what vl# do the doctors start treatments and will I be able to work during treatment? The other thing is I have to go on some kind of pain meds for my chronic pain - what will be the least destructive to my liver? It's nice to have a site to ask these questions and I thank you in advance for your answers. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Welcome to the group Bill! Viral load really has nothing to do with anything except to be able to tell if treatment is working or not. Treatment is not based upon viral load but upon damage and that can only be revealed by biopsy... have you had one yet? I took Norco for my pain because it has a lower dose of tylenol in each pill,, but after almost 3 years, my doc switched me to Timed released morphine (oromorph) that I take every 12 hours and that has been the best,, jaxBill <falsarge@...> wrote: Hello people, I've been reading some posts since I've joined but have some questions. I was dxed with a vl of 700,000 about a year ago and haven't been to a doctor since. At what vl# do the doctors start treatments and will I be able to work during treatment? The other thing is I have to go on some kind of pain meds for my chronic pain - what will be the least destructive to my liver? It's nice to have a site to ask these questions and I thank you in advance for your answers.Jackie Quote Link to comment Share on other sites More sharing options...
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