First post

[Guest guest]

Howdy Bill and Welcome. This is the place to ask your questions. If these people don't have answers, they will burn the web up finding them. My name is Steve and I only have 6 more weeks of treatment and I'm through my 48. I waited a whole year after my HCV returned before I began treatment. I treated first in the mid '90s and it nearly wrecked my life and my family. I didn't want to do that again. But my family gathered around me and convinced me to start treatment. I have been SVR (no detectable virus) since June 6, 07. All I can really say is that beginning treatment as early as possible will increase your chances of trashing the dragon. I've been on no pain medication at all during the treatment time. I use tylenol very sparingly and mostly only on shot night. Be sure and talk to your dr and get some information on the pros and cons of treatment. No one can make you treat. It's a decision you have to

make. You may be able to work, you may not on tx. Everyone is different. If I can help or if anyone here can help with problems you run into or jargin you don't understand, let us know. We are here for you and we have your back. But whatever you decide, keep your attitude up and live each day one at a time. KTF (Keep the Faith) Steve... __________________________________________________

[Guest guest]

Thanks you guys you are good people. I do have a couple more

questions. Can a person getting treatment get disability if they can't

work and right now I don't have insurance so I've been told I should go

to a teaching hospital and can get tx for free. Have any of you heard

of this before? This whole thing is scary. I had a guy tell me oh man

you'll be dead within 8 years that nobody ever lives beyond that but

now reading the posts here I know that's not true which is a big

relief. How big is the needle they use to do a biopsy and does it hurt

alot? Geez, I'll stop for now. Thanks again for being here.

[Guest guest]

Yes some can get disability while on treatment . And if you need treatment and have no insurance the pharmaceutical companies have patient assistance programs to cover the costs . Things like lab work you can get cheaply done if you shop around for a cheap lab . The needle they use for the biopsy isn't to big , the worse thing about the biopsy is the fear of it itself . It is a simple procedure they do and can give you sedation for . Going to a teaching hospital can help cut down the cost most definately , and 8yrs is a drop in da bucket . Allot of people have the disease for 30yrs before they even know they have it , so don't listen to crap like that . I mysel was diagnosed 23yrs ago and I am still alive and kicken .

Re:first post

Thanks you guys you are good people. I do have a couple more questions. Can a person getting treatment get disability if they can't work and right now I don't have insurance so I've been told I should go to a teaching hospital and can get tx for free. Have any of you heard of this before? This whole thing is scary. I had a guy tell me oh man you'll be dead within 8 years that nobody ever lives beyond that but now reading the posts here I know that's not true which is a big relief. How big is the needle they use to do a biopsy and does it hurt alot? Geez, I'll stop for now. Thanks again for being here.

[Guest guest]

Hi Bill , Welcome to the group.. I am Jackie or jax or redjax, Im an old retired paramedic who got hcv from a blood transfusion when I had my first child who turned 29 yesterday on Halloween.. I didnt know I had it for 23 years.. Well, in order to get disability, you have to have been unable to work for 1 year before you can qualify for SSDI AND you have to have enough credits of work over the past 10 years. If you have a job that offers short and long term disability, then you 'might' be able to take off work while on tx if you needed to. But every job has to offer the FMLA so that would give you up to 12 weeks off, but that is with no pay. IF you have absolutely NO insurance, the drug companies have programs to give the meds to those who need to treat. But you have to have a biopsy to know that for sure.. What you should do is to ask for "Conscious Sedation" when you have the biopsy. That was standard proceedure in Oregon

where I had my first biopsy and I honestly dont remember a thing.. My husband was present and he watched the entire biopsy process,, he said I was able to follow the command to hold my breath when they actually clicked the sample thing but I do not remember any part of it except the first shot of sedation going in my IV. I had my biopsy done on Fri and was back on the ambulance on Sun.. I asked my fireboys and my parter if they would do all the lifting and carry the kits etc and they agree'd so I was able to go back to work quickly but I was not allowed to lift anything for 2 weeks. But I would NEVER allow any doc to do a biopsy on me without the Conscious Sedation,, its so easy that way.. the needle IS very long but its fairly thin from what my husband said,, I didnt see it.. Please ask any questions you have and we will really try to help you answer it.. Please remember to ask for copies OF EVERYTHING your doc does so you can keep a file at home,, We

suggest this to everyone,, I myself have copies of every lab , every ultrasound, every doc appt etc, it just makes it easy to have them at home in a file if you want to refer to something.. once again, Welcome jaxBill <falsarge@...> wrote: Thanks you guys you are good people. I do have a couple more questions. Can a person getting treatment get disability if they can't work and right now I don't have insurance so I've been told I should go to a teaching hospital and can get tx for free. Have

any of you heard of this before? This whole thing is scary. I had a guy tell me oh man you'll be dead within 8 years that nobody ever lives beyond that but now reading the posts here I know that's not true which is a big relief. How big is the needle they use to do a biopsy and does it hurt alot? Geez, I'll stop for now. Thanks again for being here.Jackie

[Guest guest]

What city are you in? There should be help available, some cities/states offering more than others.. Have to keep on it, it's not always an easy process, but worth the red tape in the end.. Bill <falsarge@...> wrote: Thanks you guys you are good people. I do have a couple more questions. Can a person

getting treatment get disability if they can't work and right now I don't have insurance so I've been told I should go to a teaching hospital and can get tx for free. Have any of you heard of this before? This whole thing is scary. I had a guy tell me oh man you'll be dead within 8 years that nobody ever lives beyond that but now reading the posts here I know that's not true which is a big relief. How big is the needle they use to do a biopsy and does it hurt alot? Geez, I'll stop for now. Thanks again for being here. __________________________________________________

[Guest guest]

Welcome to the Board, !

From: cerulean1974 <no_reply >

Subject: First post

To: Autism_in_Girls_and_Women

Date: Monday, April 20, 2009, 5:44 AM

Hi all,

I joined this group a few weeks ago, and I have been diligently reading the

posts, and learning a lot about autism, and how it affects everyone in all

stages. Thanks for that.

I have three daughters, 8, 5, and 3 years old. My 3 year old is the one on the

autism spectrum. She hasn't been actually " diagnosed " yet, but we are going to

ARD next Monday to get that underway. She is currently enrolled in a program

called PPCD at the public school where my two older daughters attend. PPCD

stands for Pre-School Program for Children with Disabilities, and they let

children in starting at age three if they meet the appropriate criteria. My

daughter turned three in December, and has been attending the class since

January. She was allowed in because of " speech-impairment " at the time, they

said she had basically 1% of language for a child her age. I was shocked. I knew

she didn't talk much, but that really shocked me. I don't know if your

cities/states have something called ECI (Early Childhood Intervention) but I did

that with her for six months starting at 18 months. She had no words at that

time. I am a certified teacher, and I really

was already doing everything they had been advising me to do with her, but

nothing was bringing about language.

I just wanted to introduce myself and my family. Thank you for all the insight.

[Guest guest]

Welcome to the Board, !

From: cerulean1974 <no_reply >

Subject: First post

To: Autism_in_Girls_and_Women

Date: Monday, April 20, 2009, 5:44 AM

Hi all,

I joined this group a few weeks ago, and I have been diligently reading the

posts, and learning a lot about autism, and how it affects everyone in all

stages. Thanks for that.

I have three daughters, 8, 5, and 3 years old. My 3 year old is the one on the

autism spectrum. She hasn't been actually " diagnosed " yet, but we are going to

ARD next Monday to get that underway. She is currently enrolled in a program

called PPCD at the public school where my two older daughters attend. PPCD

stands for Pre-School Program for Children with Disabilities, and they let

children in starting at age three if they meet the appropriate criteria. My

daughter turned three in December, and has been attending the class since

January. She was allowed in because of " speech-impairment " at the time, they

said she had basically 1% of language for a child her age. I was shocked. I knew

she didn't talk much, but that really shocked me. I don't know if your

cities/states have something called ECI (Early Childhood Intervention) but I did

that with her for six months starting at 18 months. She had no words at that

time. I am a certified teacher, and I really

was already doing everything they had been advising me to do with her, but

nothing was bringing about language.

I just wanted to introduce myself and my family. Thank you for all the insight.

[Guest guest]

Welcome to the Board, !

From: cerulean1974 <no_reply >

Subject: First post

To: Autism_in_Girls_and_Women

Date: Monday, April 20, 2009, 5:44 AM

Hi all,

I joined this group a few weeks ago, and I have been diligently reading the

posts, and learning a lot about autism, and how it affects everyone in all

stages. Thanks for that.

I have three daughters, 8, 5, and 3 years old. My 3 year old is the one on the

autism spectrum. She hasn't been actually " diagnosed " yet, but we are going to

ARD next Monday to get that underway. She is currently enrolled in a program

called PPCD at the public school where my two older daughters attend. PPCD

stands for Pre-School Program for Children with Disabilities, and they let

children in starting at age three if they meet the appropriate criteria. My

daughter turned three in December, and has been attending the class since

January. She was allowed in because of " speech-impairment " at the time, they

said she had basically 1% of language for a child her age. I was shocked. I knew

she didn't talk much, but that really shocked me. I don't know if your

cities/states have something called ECI (Early Childhood Intervention) but I did

that with her for six months starting at 18 months. She had no words at that

time. I am a certified teacher, and I really

was already doing everything they had been advising me to do with her, but

nothing was bringing about language.

I just wanted to introduce myself and my family. Thank you for all the insight.

[Guest guest]

Hi .  Welcome!  You'll find this group helpful in many ways.  Where do you

live.?  I live in Texas, and my autistic daughter received services through ECI

and a PPCD.  She also attended a ABA program for several years, but is in a

structured autism classroom in the public schools at this time.  Good luck on

your ARD.  I hope your ECI coordinator can attend the ARD to help guide you in

what services to request for your daughter.   

 

From: cerulean1974 <no_reply >

Subject: First post

To: Autism_in_Girls_and_Women

Date: Monday, April 20, 2009, 7:44 AM

Hi all,

I joined this group a few weeks ago, and I have been diligently reading the

posts, and learning a lot about autism, and how it affects everyone in all

stages. Thanks for that.

I have three daughters, 8, 5, and 3 years old. My 3 year old is the one on the

autism spectrum. She hasn't been actually " diagnosed " yet, but we are going to

ARD next Monday to get that underway. She is currently enrolled in a program

called PPCD at the public school where my two older daughters attend. PPCD

stands for Pre-School Program for Children with Disabilities, and they let

children in starting at age three if they meet the appropriate criteria. My

daughter turned three in December, and has been attending the class since

January. She was allowed in because of " speech-impairment " at the time, they

said she had basically 1% of language for a child her age. I was shocked. I knew

she didn't talk much, but that really shocked me. I don't know if your

cities/states have something called ECI (Early Childhood Intervention) but I did

that with her for six months starting at 18 months. She had no words at that

time. I am a certified teacher, and I really

was already doing everything they had been advising me to do with her, but

nothing was bringing about language.

I just wanted to introduce myself and my family. Thank you for all the insight.

[Guest guest]

Hi ,

Thanks for your reply. I also live in Texas, just outside of Houston, in an

area called Cypress. I guess it is considered a suburb. My children attend

school in the Cypress-Fairbanks School District. I do not communicate with my

ECI person anymore, but the diagnostician and the speech pathologist at my

daughters' school are both very knowledgeable and helpful.

I have two friends with sons with autism, and there symptoms are very different

from my daughters, and from what I have read in books about autism, most people

do have varying degrees of ability and disability.

My daughter uses mostly delayed echolalia as speech. It is very difficult for

her to initiate and sort of communication. She generally pulls my hand to where

she wants me to be.

Another thing my daughter does is talk to her hands and feet as if they are not

a part of her body. She will say, " good job hand " or " good job foot " sometimes.

Does anyone else have this issue? She has also said no to my hand before, when

I indicated for her to sit by me by patting the couch next to me, and she didn't

want to, she said, " No, hand. "

Zoe's mom (age 3)

>

>

> From: cerulean1974 <no_reply >

> Subject: First post

> To: Autism_in_Girls_and_Women

> Date: Monday, April 20, 2009, 7:44 AM

>

>

>

>

>

>

>

>

> Hi all,

>

> I joined this group a few weeks ago, and I have been diligently reading the

posts, and learning a lot about autism, and how it affects everyone in all

stages. Thanks for that.

>

> I have three daughters, 8, 5, and 3 years old. My 3 year old is the one on the

autism spectrum. She hasn't been actually " diagnosed " yet, but we are going to

ARD next Monday to get that underway. She is currently enrolled in a program

called PPCD at the public school where my two older daughters attend. PPCD

stands for Pre-School Program for Children with Disabilities, and they let

children in starting at age three if they meet the appropriate criteria. My

daughter turned three in December, and has been attending the class since

January. She was allowed in because of " speech-impairment " at the time, they

said she had basically 1% of language for a child her age. I was shocked. I knew

she didn't talk much, but that really shocked me. I don't know if your

cities/states have something called ECI (Early Childhood Intervention) but I did

that with her for six months starting at 18 months. She had no words at that

time. I am a certified teacher, and I really

> was already doing everything they had been advising me to do with her, but

nothing was bringing about language.

>

> I just wanted to introduce myself and my family. Thank you for all the

insight.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Thanks for your reply. I also live in Texas, just outside of Houston, in an

area called Cypress. I guess it is considered a suburb. My children attend

school in the Cypress-Fairbanks School District. I do not communicate with my

ECI person anymore, but the diagnostician and the speech pathologist at my

daughters' school are both very knowledgeable and helpful.

I have two friends with sons with autism, and there symptoms are very different

from my daughters, and from what I have read in books about autism, most people

do have varying degrees of ability and disability.

My daughter uses mostly delayed echolalia as speech. It is very difficult for

her to initiate and sort of communication. She generally pulls my hand to where

she wants me to be.

Another thing my daughter does is talk to her hands and feet as if they are not

a part of her body. She will say, " good job hand " or " good job foot " sometimes.

Does anyone else have this issue? She has also said no to my hand before, when

I indicated for her to sit by me by patting the couch next to me, and she didn't

want to, she said, " No, hand. "

Zoe's mom (age 3)

>

>

> From: cerulean1974 <no_reply >

> Subject: First post

> To: Autism_in_Girls_and_Women

> Date: Monday, April 20, 2009, 7:44 AM

>

>

>

>

>

>

>

>

> Hi all,

>

> I joined this group a few weeks ago, and I have been diligently reading the

posts, and learning a lot about autism, and how it affects everyone in all

stages. Thanks for that.

>

> I have three daughters, 8, 5, and 3 years old. My 3 year old is the one on the

autism spectrum. She hasn't been actually " diagnosed " yet, but we are going to

ARD next Monday to get that underway. She is currently enrolled in a program

called PPCD at the public school where my two older daughters attend. PPCD

stands for Pre-School Program for Children with Disabilities, and they let

children in starting at age three if they meet the appropriate criteria. My

daughter turned three in December, and has been attending the class since

January. She was allowed in because of " speech-impairment " at the time, they

said she had basically 1% of language for a child her age. I was shocked. I knew

she didn't talk much, but that really shocked me. I don't know if your

cities/states have something called ECI (Early Childhood Intervention) but I did

that with her for six months starting at 18 months. She had no words at that

time. I am a certified teacher, and I really

> was already doing everything they had been advising me to do with her, but

nothing was bringing about language.

>

> I just wanted to introduce myself and my family. Thank you for all the

insight.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Welcome to the group. Your Zoe sounds like a real cutie. Sorry to

respond to you so late. I own a small business that keeps me very busy, but I

check in here as often as I can, sometimes catching up days later.

I am just down the road from you, off Barker-Cypress in Copperfield, but

used to live off Rd above Cypress - N. Houston. The PPCD program at

Adam Elementary helped my daughter make huge strides. She came in under the

same diagnosis as your daughter, but added PDD-NOS and OCD after we moved

down here during her Kindergarten year.

I do love Cy-Fair schools. Not to say that they can't make mistakes - but

they try hard to put the child first. The Speech Paths and Diagnosticians

we've worked with have been so helpful. I hope you have a good experience

with PPCD too.

Sandi

Mom to Allie, 13

In a message dated 4/20/2009 10:54:33 A.M. Central Daylight Time,

no_reply writes:

Hi ,

Thanks for your reply. I also live in Texas, just outside of Houston, in

an area called Cypress. I guess it is considered a suburb. My children

attend school in the Cypress-Fairbanks School District. I do not communicate

with my ECI person anymore, but the diagnostician and the speech pathologist

at my daughters' school are both very knowledgeable and helpful.

I have two friends with sons with autism, and there symptoms are very

different from my daughters, and from what I have read in books about autism,

most people do have varying degrees of ability and disability.

My daughter uses mostly delayed echolalia as speech. It is very difficult

for her to initiate and sort of communication. She generally pulls my hand

to where she wants me to be.

Another thing my daughter does is talk to her hands and feet as if they

are not a part of her body. She will say, " good job hand " or " good job foot "

sometimes. Does anyone else have this issue? She has also said no to my

hand before, when I indicated for her to sit by me by patting the couch next

to me, and she didn't want to, she said, " No, hand. "

Zoe's mom (age 3)

**************Access 350+ FREE radio stations anytime from anywhere on the

web. Get the Radio Toolbar!

(http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003)

[Guest guest]

Hi ,

Welcome to the group. Your Zoe sounds like a real cutie. Sorry to

respond to you so late. I own a small business that keeps me very busy, but I

check in here as often as I can, sometimes catching up days later.

I am just down the road from you, off Barker-Cypress in Copperfield, but

used to live off Rd above Cypress - N. Houston. The PPCD program at

Adam Elementary helped my daughter make huge strides. She came in under the

same diagnosis as your daughter, but added PDD-NOS and OCD after we moved

down here during her Kindergarten year.

I do love Cy-Fair schools. Not to say that they can't make mistakes - but

they try hard to put the child first. The Speech Paths and Diagnosticians

we've worked with have been so helpful. I hope you have a good experience

with PPCD too.

Sandi

Mom to Allie, 13

In a message dated 4/20/2009 10:54:33 A.M. Central Daylight Time,

no_reply writes:

Hi ,

Thanks for your reply. I also live in Texas, just outside of Houston, in

an area called Cypress. I guess it is considered a suburb. My children

attend school in the Cypress-Fairbanks School District. I do not communicate

with my ECI person anymore, but the diagnostician and the speech pathologist

at my daughters' school are both very knowledgeable and helpful.

I have two friends with sons with autism, and there symptoms are very

different from my daughters, and from what I have read in books about autism,

most people do have varying degrees of ability and disability.

My daughter uses mostly delayed echolalia as speech. It is very difficult

for her to initiate and sort of communication. She generally pulls my hand

to where she wants me to be.

Another thing my daughter does is talk to her hands and feet as if they

are not a part of her body. She will say, " good job hand " or " good job foot "

sometimes. Does anyone else have this issue? She has also said no to my

hand before, when I indicated for her to sit by me by patting the couch next

to me, and she didn't want to, she said, " No, hand. "

Zoe's mom (age 3)

**************Access 350+ FREE radio stations anytime from anywhere on the

web. Get the Radio Toolbar!

(http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003)

[Guest guest]

Hi ,

Welcome to the group. Your Zoe sounds like a real cutie. Sorry to

respond to you so late. I own a small business that keeps me very busy, but I

check in here as often as I can, sometimes catching up days later.

I am just down the road from you, off Barker-Cypress in Copperfield, but

used to live off Rd above Cypress - N. Houston. The PPCD program at

Adam Elementary helped my daughter make huge strides. She came in under the

same diagnosis as your daughter, but added PDD-NOS and OCD after we moved

down here during her Kindergarten year.

I do love Cy-Fair schools. Not to say that they can't make mistakes - but

they try hard to put the child first. The Speech Paths and Diagnosticians

we've worked with have been so helpful. I hope you have a good experience

with PPCD too.

Sandi

Mom to Allie, 13

In a message dated 4/20/2009 10:54:33 A.M. Central Daylight Time,

no_reply writes:

Hi ,

Thanks for your reply. I also live in Texas, just outside of Houston, in

an area called Cypress. I guess it is considered a suburb. My children

attend school in the Cypress-Fairbanks School District. I do not communicate

with my ECI person anymore, but the diagnostician and the speech pathologist

at my daughters' school are both very knowledgeable and helpful.

I have two friends with sons with autism, and there symptoms are very

different from my daughters, and from what I have read in books about autism,

most people do have varying degrees of ability and disability.

My daughter uses mostly delayed echolalia as speech. It is very difficult

for her to initiate and sort of communication. She generally pulls my hand

to where she wants me to be.

Another thing my daughter does is talk to her hands and feet as if they

are not a part of her body. She will say, " good job hand " or " good job foot "

sometimes. Does anyone else have this issue? She has also said no to my

hand before, when I indicated for her to sit by me by patting the couch next

to me, and she didn't want to, she said, " No, hand. "

Zoe's mom (age 3)

**************Access 350+ FREE radio stations anytime from anywhere on the

web. Get the Radio Toolbar!

(http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003)

[Guest guest]

Hi Sandi!

How exciting that we live so close! I hope we can meet in person. I am sure

there is much I can learn from your experiences.

Zoe is a cutie, thank you. She is currently attending Copeland Elementary. I

have her ARD this afternoon. We are going to discuss further evaluation of Zoe.

I may have mentioned before that she hasn't officially been diagnosed with

autism, but from everything I have been reading on the topic, I know she is on

the spectrum. I have the same concerns as many of you have voiced, how do I

know if she is mild, moderate, severe? I feel that Zoe is really smart, but she

does not talk very much at all. She is talking more since she started PPCD, but

there are some days when she reverts to whining, just grunting, and I think

perhaps her words aren't coming to her. For a long time, she was pretty

compliant in her wants and needs, she basically would just go along with

whatever we were doing. Just recently, she has started to have her own opinion

about what she wants to do. She did not have the words for yes or no, so I

taught them to her. She uses " no " a lot easier than " yes. " It is really cute

when I ask her if she wants to play play-doh, and she says, " no thank you. " For

some reason, she started out saying, " no way " so I prompted her to say " no thank

you " and now she pretty much says that for no. I prompted her to say " yes " when

she did want something, before she would just repeat the last words of the

question, and I have noticed that sometimes she will say " okay, " which either

she picked up at school or has heard her sisters say. I feel that is a huge

accomplishment because she came up with that answer all by herself. It is hard

to explain to other parents how excited I am because my daughter is saying yes,

no, or okay, but I feel that I can share those emotions to this group without

getting the funny looks I get from others.

Thanks for letting me share,

, Zoe's mom (3)

>

> Hi ,

>

> Welcome to the group. Your Zoe sounds like a real cutie. Sorry to

> respond to you so late. I own a small business that keeps me very busy, but

I

> check in here as often as I can, sometimes catching up days later.

>

> I am just down the road from you, off Barker-Cypress in Copperfield, but

> used to live off Rd above Cypress - N. Houston. The PPCD program at

> Adam Elementary helped my daughter make huge strides. She came in under the

> same diagnosis as your daughter, but added PDD-NOS and OCD after we moved

> down here during her Kindergarten year.

>

> I do love Cy-Fair schools. Not to say that they can't make mistakes - but

> they try hard to put the child first. The Speech Paths and Diagnosticians

> we've worked with have been so helpful. I hope you have a good experience

> with PPCD too.

>

> Sandi

> Mom to Allie, 13

>

>

> In a message dated 4/20/2009 10:54:33 A.M. Central Daylight Time,

> no_reply writes:

>

> Hi ,

>

> Thanks for your reply. I also live in Texas, just outside of Houston, in

> an area called Cypress. I guess it is considered a suburb. My children

> attend school in the Cypress-Fairbanks School District. I do not communicate

> with my ECI person anymore, but the diagnostician and the speech pathologist

> at my daughters' school are both very knowledgeable and helpful.

>

> I have two friends with sons with autism, and there symptoms are very

> different from my daughters, and from what I have read in books about autism,

> most people do have varying degrees of ability and disability.

>

> My daughter uses mostly delayed echolalia as speech. It is very difficult

> for her to initiate and sort of communication. She generally pulls my hand

> to where she wants me to be.

>

> Another thing my daughter does is talk to her hands and feet as if they

> are not a part of her body. She will say, " good job hand " or " good job foot "

> sometimes. Does anyone else have this issue? She has also said no to my

> hand before, when I indicated for her to sit by me by patting the couch next

> to me, and she didn't want to, she said, " No, hand. "

>

>

> Zoe's mom (age 3)

>

>

> **************Access 350+ FREE radio stations anytime from anywhere on the

> web. Get the Radio Toolbar!

> (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003)

>

>

>

[Guest guest]

Hello, I've just joined and thought I'd introduce myself. I'm Ian, 52 and live

in Edinburgh, Scotland. We're pretty sure that I have hyperaldosteronism - I

have a saline suppression test lined up for next week as final confirmation by

which time some DNA checks on my bloods will also be completed.

I was diagnosed with High BP shortly after I ran a half marathon in 2009 and

fainted a couple of hours afterwards. I had low potassium and it was assumed

that I had got my nutrition wrong for the run. Last year my doctor referred me

to the metabolic unit at our local Hospital and the specialist there noticed

persistent low potassium and had a hunch which seems to be proved correct.

More as we get it!