RE: Virginia's AVS

[Guest guest]

Thanks!!! I am going to try that. I'll let you know if it works or at least helps.

I learned that nasal inflammation occurs due to too much salt as well as it makes my nasal fluid as hard as concrete that no amount of hot water can below it out J and consequently it was impossible for me to sleep at night until I discovered this…prior to my discovery, my doc prescribed Vaseline rubbing into my nose and also a stupid medical spray that caused headaches and after a while both did not do any good…until I found out salt/K ratio has been high and now with a glass of 25mEq K-citrate my nasal fluid comes back to normal fluidity and inflammation gradually disappears and I can sleep normally J of course all my

findings are from you Dr. Grim in discussions of this Group and I am very much grateful to you for all your efforts and comment.

Max.

62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand}

[Guest guest]

Thanks!!! I am going to try that. I'll let you know if it works or at least helps.

I learned that nasal inflammation occurs due to too much salt as well as it makes my nasal fluid as hard as concrete that no amount of hot water can below it out J and consequently it was impossible for me to sleep at night until I discovered this…prior to my discovery, my doc prescribed Vaseline rubbing into my nose and also a stupid medical spray that caused headaches and after a while both did not do any good…until I found out salt/K ratio has been high and now with a glass of 25mEq K-citrate my nasal fluid comes back to normal fluidity and inflammation gradually disappears and I can sleep normally J of course all my

findings are from you Dr. Grim in discussions of this Group and I am very much grateful to you for all your efforts and comment.

Max.

62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand}

[Guest guest]

Would suggest he and you consider tapering it. Some cough on it as well. Another good reason to try and see what happens. No other meds I assume as none in the thumbnail.CE Grim MDOn Jun 27, 2012, at 5:52 PM, Study Circle wrote: Ramipril was one of the original meds prior to PA dx and after PA dx doc continued it L I guess in order to keep me on daily doses of dry cough so that I don’t feel too good J Max, 62M How clear is it you need ramipril? May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 16:11, Study Circle <studycircle@...> wrote: I am too on daily dose of 120 mEq K.Cl but my serum K=4.5…of course I also take Spironolactone=100mg/d, and Ramipril=5mg/d …both help keep K J Max, 62M

[Guest guest]

Did you increase K in diet as well?CE Grim MDOn Jun 27, 2012, at 5:55 PM, Study Circle wrote: DASH I can say yes but only simplified it to mean reduce salt in food…as explained below: Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} And did you also work on DASH at all? May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 16:51, Study Circle <studycircle@...> wrote: What do you mean off? With Spirono=25mg/d + K.Cl=180mEq/d still I had trouble reaching K=4.5But when doc increased Spirono=100mg/d + K.Cl=180 mEq/d then K>4.6 and he reduced K.Cl to 120 mEq/d …then after K=~4.5 is steady for several years now J And I learned that Spironolactone was far more effective in normalizing my K than K.Cl J….damn aldosterone L Max, 62M

[Guest guest]

We do have rattlers in New Hampshire and I belive there are some in Vermont.

They are called timber rattlers. They are an endangered species. Most likey will

never see one unless you go looking for them.

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> > > > So what did radiologist think was causing low K? Please send results

whenu get them.

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[Guest guest]

I am not checking K in diet…however, I am noticing that food producers are decreasing salt in their food and many beverages have include K in their list of ingredients…but yet in most cases I wish to see a daily K%/Na% >=4…but because many of these beverages and food are packages in China their daily value% are not reliable L Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg,  Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} Did you increase K in diet as well? CE Grim MDOn Jun 27, 2012, at 5:55 PM, Study Circle wrote: DASH I can say yes but only simplified it to mean reduce salt in food…as explained below:

[Guest guest]

Sorry Francis, I forgot to google it! Let me rephrase it to say I've been

hunting for 57 years, worked on farms for ~7, cut power lines for a couple of

years camped for many years, etc and never saw or heard one! I do know what

they look and sound like because I went camping ONE time when I was stationed in

Texas!

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> > > > > So what did radiologist think was causing low K? Please send results

whenu get them.

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[Guest guest]

Still a pot full of K. Must be eating a lot of salt. Has team checked your urine Na and K?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 16:11, Study Circle <studycircle@...> wrote:

I am too on daily dose of 120 mEq K.Cl but my serum K=4.5…of course I also take Spironolactone=100mg/d, and Ramipril=5mg/d …both help keep K J Max, 62M No adrenalectomy yet. I was just surprised that the radiologist said bigger adenomas usually don't secrete hormones. I hadn't heard that before. Virginia Wall31 year old femaleCurrent K 3.2DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MO3 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismMeds: K Cl 20 meq 2 tabs tidPrenatal vitaminBreastfeeding; 5 month old with G6PDD._,___

[Guest guest]

The albatross has a nasal salt gland that excretes salt. Maybe u ate part albatross?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 18:21, Bingham <jlkbbk2003@...> wrote:

So how did you solve the nasal issue exactly? Are you saying that the liquid K has helped you the most? I have had nasal congestion for years and once the night hits I can't breath at all, all night. I'd love to and give anything to solve that one, but my salt is low so it's not too much salt causing it. I thought maybe it had something to do with my teeth being bad since I can't do anything about them until I get back to work as a PA ($ issues). But I hve no idea why and it drives me crazy. I have tried everything.

I am too on daily dose of 120 mEq K.Cl but my serum K=4.5…of course I also take Spironolactone=100mg/d, and Ramipril=5mg/d …both help keep K J

Max, 62M

[Guest guest]

Worth trying to see of it is the Ram I would think. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 18:19, Study Circle <studycircle@...> wrote:

Fortunately, my dry cough appears and disappears quickly J I hate it in public places because I have to use the cough to scratch my itching throat and sounds like I am a very sick person spreading viruses L Max, 62M Isn't the ACE cough fun?......not. kept me up many a night in my past. Ramipril was one of the original meds prior to PA dx and after PA dx doc continued it L I guess in order to keep me on daily doses of dry cough so that I don’t feel too good J Max, 62M

[Guest guest]

Can't find out what Motilium is? May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 18:03, Study Circle <studycircle@...> wrote:

I learned that nasal inflammation occurs due to too much salt as well as it makes my nasal fluid as hard as concrete that no amount of hot water can below it out J and consequently it was impossible for me to sleep at night until I discovered this…prior to my discovery, my doc prescribed Vaseline rubbing into my nose and also a stupid medical spray that caused headaches and after a while both did not do any good…until I found out salt/K ratio has been high and now with a glass of 25mEq K-citrate my nasal fluid comes back to normal fluidity and inflammation gradually disappears and I can sleep normally J of course all my findings are from you Dr. Grim in discussions of this Group and I am very much grateful to you for all your efforts and comment. Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} That is a lot of K and some get GI UPSET from it. Never heard the nasal stuffiness story but maybe pts never told me. May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 16:11, Study Circle <studycircle@...> wrote: I am too on daily dose of 120 mEq K.Cl but my serum K=4.5…of course I also take Spironolactone=100mg/d, and Ramipril=5mg/d …both help keep K J Max, 62M

[Guest guest]

Remember that it is not liquid K, but rather K-citrate is a tablet that you dissolve in a glass of water…and I need doc prescription for it J Max. On Jun 27, 2012, at 18:21, Bingham <jlkbbk2003@...> wrote: So how did you solve the nasal issue exactly? Are you saying that the liquid K has helped you the most? I have had nasal congestion for years and once the night hits I can't breath at all, all night. I'd love to and give anything to solve that one, but my salt is low so it's not too much salt causing it. I thought maybe it had something to do with my teeth being bad since I can't do anything about them until I get back to work as a PA ($ issues). But I hve no idea why and it drives me crazy. I have tried everything.

[Guest guest]

Motilium is not available in US.Why are u on it? You are also on a potful of other meds. In folks like u one of my goals is to see of all I these are really needed and cross check interactions. Of course in Canada cost is no problem May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 18:03, Study Circle <studycircle@...> wrote:

I learned that nasal inflammation occurs due to too much salt as well as it makes my nasal fluid as hard as concrete that no amount of hot water can below it out J and consequently it was impossible for me to sleep at night until I discovered this…prior to my discovery, my doc prescribed Vaseline rubbing into my nose and also a stupid medical spray that caused headaches and after a while both did not do any good…until I found out salt/K ratio has been high and now with a glass of 25mEq K-citrate my nasal fluid comes back to normal fluidity and inflammation gradually disappears and I can sleep normally J of course all my findings are from you Dr. Grim in discussions of this Group and I am very much grateful to you for all your efforts and comment. Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} That is a lot of K and some get GI UPSET from it. Never heard the nasal stuffiness story but maybe pts never told me. May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 16:11, Study Circle <studycircle@...> wrote: I am too on daily dose of 120 mEq K.Cl but my serum K=4.5…of course I also take Spironolactone=100mg/d, and Ramipril=5mg/d …both help keep K J Max, 62M

[Guest guest]

In 1997 I started med by single dose of ACEI and immediately dry cough started…so dry cough was always attributed to ACEI due to bradykinin L Max, 62M Worth trying to see of it is the Ram I would think. May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 18:19, Study Circle <studycircle@...> wrote: Fortunately, my dry cough appears and disappears quickly J I hate it in public places because I have to use the cough to scratch my itching throat and sounds like I am a very sick person spreading viruses L Max, 62M ,_._,___

[Guest guest]

Motilium = Domperidone: for eliminating upset stomach due to K.Cl Doc placed me on 4 tab/day one tab half hr before meals…but then 6 months ago Health authorities issued warning that 3 or more tablet per day is cause of severe heart failure …so I cut mine to one 10mg tab at bedtime but hardly notice any effect on upset stomach when I take 20mEq K.Cl one hour before bedtime…so I take bedtime meds 2 hrs before going to be with a small snack and it works better this way J Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} Can't find out what Motilium is? May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertension_._,___

[Guest guest]

And ram is an ACE May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 21:06, Study Circle <studycircle@...> wrote:

In 1997 I started med by single dose of ACEI and immediately dry cough started…so dry cough was always attributed to ACEI due to bradykinin L Max, 62M Worth trying to see of it is the Ram I would think. May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 18:19, Study Circle <studycircle@...> wrote: Fortunately, my dry cough appears and disappears quickly J I hate it in public places because I have to use the cough to scratch my itching throat and sounds like I am a very sick person spreading viruses L Max, 62M ,_._,___

[Guest guest]

Or you could DASH. MAYBE hold your nose and gulp V-8. Have u tried the spicy low Na one?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 21:12, Study Circle <studycircle@...> wrote:

Motilium = Domperidone: for eliminating upset stomach due to K.Cl Doc placed me on 4 tab/day one tab half hr before meals…but then 6 months ago Health authorities issued warning that 3 or more tablet per day is cause of severe heart failure …so I cut mine to one 10mg tab at bedtime but hardly notice any effect on upset stomach when I take 20mEq K.Cl one hour before bedtime…so I take bedtime meds 2 hrs before going to be with a small snack and it works better this way J Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} Can't find out what Motilium is? May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertension_._,___

[Guest guest]

My doc from 1997 to 2009 could not dx me with PA and tried some 50 different med combos to no avail L combos used to grow in number of meds…until finally he started to increase Spiro from 25mg to 50mg to 75mg to 100mg when finally bp came under control and medical tests by specialist confirmed high aldos/renin and NP59 finalized the PA dx….but doc never accepted to cut me off other meds like ACEI, Norvasc, Indapamide,…I guess he did not wish to consider that Spiro perhaps alone can control my bp and my requests also did not change his mind so I am stuck with all these meds L Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} Motilium is not available in US.Why are u on it? You are also on a potful of other meds. In folks like u one of my goals is to see of all I these are really needed and cross check interactions. Of course in Canada cost is no problem May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertension

[Guest guest]

Excellent thumbnail BTW. Time for u to take control I would think. I suspect most except Spiro can be stopped. ESP if u DASH to the max Max. Never been able to say that before. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 21:20, Study Circle <studycircle@...> wrote:

My doc from 1997 to 2009 could not dx me with PA and tried some 50 different med combos to no avail L combos used to grow in number of meds…until finally he started to increase Spiro from 25mg to 50mg to 75mg to 100mg when finally bp came under control and medical tests by specialist confirmed high aldos/renin and NP59 finalized the PA dx….but doc never accepted to cut me off other meds like ACEI, Norvasc, Indapamide,…I guess he did not wish to consider that Spiro perhaps alone can control my bp and my requests also did not change his mind so I am stuck with all these meds L Max.62M HTN (since 1995) L adenoma by NP59 scan. Aldos=1065…2056 [28-860] pmol/L, Renin=6 [<30] ng/L (DX 2009). med combo #79={Spiro=100, Amlo=2x5mg, Indap=2.5mg, Ramip=2x2.5mg, Metf=2x500mg, Crestor=20mg, Feno=67mg, K.Cl=6x20mEq, Motilium=10mg, B12=1000µg/m}{K=4.5}{not DASHing but low-salt diet just slightly above craving while keeping K/Na ratio constant, heat intolerance, insulin resistance, tingling right leg & hand} Motilium is not available in US.Why are u on it? You are also on a potful of other meds. In folks like u one of my goals is to see of all I these are really needed and cross check interactions. Of course in Canada cost is no problem May your pressure be low! CE Grim MS, MDSpecializing in DifficultHypertension

[Guest guest]

Your radiologist most likely is right. I am the case. My AVS showed that my right adrenal produces more hormones than left one with 2.5 cm adenoma. All my doctors, including Dr. Grim :-) insist that it's very often the case. Surgeon-onkologist said there were many people with big fat adenomas not producing hormones. Natalia Kamneva 68 Russian F with 2.5 cm left adrenal adenoma, recently diagnosed with PA; diabetic; on 100 mg eplerenone, 80 mg Micardis, 2000 mg metformin, 60 mg Dexilant and 2 mg Lorazepam; Dashing; still have some occasional problems with BP, K and Na; on private consultation with Dr Grim.

From: Virginia Wall <virgwall@...> "hyperaldosteronism " <hyperaldosteronism > Sent: Wednesday, June 27, 2012 5:15 PM Subject: Re: Virginia's AVS

I will definitely include results. The radiologist is inclined to believe I have many small adenomas on one or both sides that are not visible on the CT scan. Of course he realizes this is a theory. VirginiaOn Jun 27, 2012, at 5:04 PM, Clarence Grim <lowerbp2@...> wrote:

So what did radiologist think was causing low K? Please send results whenu get them. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 27, 2012, at 14:03, Virginia Wall <virgwall@...> wrote:

Hello group! I had my AVS done at 8 am this morning. They worked for a few extra minutes on the right side but got it no problem. ACTH was used and the samples are being sent to mayo clinic. I should know by Monday they said. One interesting thing the radiologist told me. I told him how the endocrinologist offered to let me do surgery removing the right adrenal without AVS because it was so obvious on the CT scan that my right adrenal had a 3 cm adenoma that was causing the problem. The radiologist said in his experience it's the small adenomas that secrete excess hormones, not the big ones. He said he would be surprised if that adenoma is even secreting hormones. Thoughts? Obviously I will know about myself specifically soon enough but I was just wondering if this was true. I don't remember seeing any research on size of adenomas and hormone secretion. Virginia Wall31 year old femaleCurrent K 3.2DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MO3 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismMeds: K Cl 20 meq 2 tabs tidPrenatal vitaminBreastfeeding; 5 month old with G6PDD

[Guest guest]

True, true, true. That's why we didn't recommend you to do adrenalectomy without AVS. B-t! Natalia From: Virginia Wall <virgwall@...> "hyperaldosteronism " <hyperaldosteronism > Sent: Wednesday, June 27, 2012 5:44 PM Subject: Re: Virginia's AVS

No adrenalectomy yet. I was just surprised that the radiologist said bigger adenomas usually don't secrete hormones. I hadn't heard that before. Virginia Wall31 year old femaleCurrent K 3.2DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MO3 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismMeds: K Cl 20 meq 2 tabs tidPrenatal vitaminBreastfeeding; 5 month old with G6PDDOn Jun 27, 2012, at 5:32 PM, "Study Circle" <studycircle@...> wrote:

Alternatively, it is also possible that the adrenalectomy on 30mm adenoma did not remove it completely L…is it? Max. I will definitely include results. The radiologist is inclined to believe I have many small adenomas on one or both sides that are not visible on the CT scan. Of course he realizes this is a

theory. VirginiaOn Jun 27, 2012, at 5:04 PM, Clarence Grim <lowerbp2@...> wrote: So what did radiologist think was causing low K? Please send results whenu get them.

[Guest guest]

Thanks Natalia! This is definitely good affirmation that AVS was a good idea. I appreciate the feedback. VirginiaSent from my iPhone On Jun 29, 2012, at 7:29 PM, Natalia Kamneva <natalia_kamneva@...> wrote:

True, true, true. That's why we didn't recommend you to do adrenalectomy without AVS. B-t! Natalia From: Virginia Wall <virgwall@...> "hyperaldosteronism " <hyperaldosteronism > Sent: Wednesday, June 27, 2012 5:44 PM Subject: Re: Virginia's AVS

No adrenalectomy yet. I was just surprised that the radiologist said bigger adenomas usually don't secrete hormones. I hadn't heard that before. Virginia Wall31 year old femaleCurrent K 3.2DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MO3 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismMeds: K Cl 20 meq 2 tabs tidPrenatal vitaminBreastfeeding; 5 month old with G6PDDOn Jun 27, 2012, at 5:32 PM, "Study Circle" <studycircle@...> wrote:

Alternatively, it is also possible that the adrenalectomy on 30mm adenoma did not remove it completely L…is it? Max. I will definitely include results. The radiologist is inclined to believe I have many small adenomas on one or both sides that are not visible on the CT scan. Of course he realizes this is a

theory. VirginiaOn Jun 27, 2012, at 5:04 PM, Clarence Grim <lowerbp2@...> wrote: So what did radiologist think was causing low K? Please send results whenu get them.

[Guest guest]

Maybe it's different " across the pond " ! Here is the view from Germany: The

presence of an aldosterone- and cortisol-co-secreting adrenocortical tumor

should be considered if a patient has i) PA and an adenoma that is larger than

2.5 & #8202;cm, ii) cortisol that is non-suppressible with overnight low-dose

dexamethasone, or iii) grossly elevated serum levels of hybrid steroids, such as

18-OH-F.

Source: http://www.ncbi.nlm.nih.gov/pubmed/21270113

Aldosterone- and cortisol-co-secreting adrenal tumors: the lost subtype of

primary aldosteronism.

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> >>Hello group! I had my AVS done at 8 am this morning. They worked for a few

extra minutes on the right side but got it no problem. ACTH was used and the

samples are being sent to mayo clinic. I should know by Monday they said. 

> >>

> >>

> >>One interesting thing the radiologist told me. I told him how the

endocrinologist offered to let me do surgery removing the right adrenal without

AVS because it was so obvious on the CT scan that my right adrenal had a 3 cm

adenoma that was causing the problem. The radiologist said in his experience

it's the small adenomas that secrete excess hormones, not the big ones. He said

he would be surprised if that adenoma is even secreting hormones. Thoughts?

Obviously I will know about myself specifically soon enough but I was just

wondering if this was true. I don't remember seeing any research on size of

adenomas and hormone secretion. 

> >>

> >>

> >>

> >>Virginia Wall

> >>31 year old female

> >>Current K 3.2

> >>DASHing

> >>AVS completed June 27, 2012 at BJC Hospital St. Louis, MO

> >>3 cm adenoma in right adrenal

> >>Diagnosed February 2012

> >>Low K & High BP since appx. 2007

> >>Possible family history of hyperaldosteronism

> >>Meds: K Cl 20 meq 2 tabs tid

> >>Prenatal vitamin

> >>Breastfeeding; 5 month old with G6PDD

>

[Guest guest]

Thanks for the article, very interesting. I definitely wonder if cortisol secreting adenomas are more common than we realize. I asked the radiologist if there was any way to check cortisol while we're at it and he said no! LolVirginia Wall31 year old femaleCurrent K 3.2DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MO3 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismMeds: K Cl 20 meq 2 tabs tidPrenatal vitaminBreastfeeding; 5 month old with G6PDDOn Jun 29, 2012, at 10:22 PM, " " <jclark24p@...> wrote:

Maybe it's different "across the pond"! Here is the view from Germany: The presence of an aldosterone- and cortisol-co-secreting adrenocortical tumor should be considered if a patient has i) PA and an adenoma that is larger than 2.5 & #8202;cm, ii) cortisol that is non-suppressible with overnight low-dose dexamethasone, or iii) grossly elevated serum levels of hybrid steroids, such as 18-OH-F.

Source: http://www.ncbi.nlm.nih.gov/pubmed/21270113

Aldosterone- and cortisol-co-secreting adrenal tumors: the lost subtype of primary aldosteronism.

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> >>Hello group! I had my AVS done at 8 am this morning. They worked for a few extra minutes on the right side but got it no problem. ACTH was used and the samples are being sent to mayo clinic. I should know by Monday they said.Â

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> >>One interesting thing the radiologist told me. I told him how the endocrinologist offered to let me do surgery removing the right adrenal without AVS because it was so obvious on the CT scan that my right adrenal had a 3 cm adenoma that was causing the problem. The radiologist said in his experience it's the small adenomas that secrete excess hormones, not the big ones. He said he would be surprised if that adenoma is even secreting hormones. Thoughts? Obviously I will know about myself specifically soon enough but I was just wondering if this was true. I don't remember seeing any research on size of adenomas and hormone secretion.Â

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> >>Virginia Wall

> >>31 year old female

> >>Current K 3.2

> >>DASHing

> >>AVS completed June 27, 2012 at BJC Hospital St. Louis, MO

> >>3 cm adenoma in right adrenal

> >>Diagnosed February 2012

> >>Low K & High BP since appx. 2007

> >>Possible family history of hyperaldosteronism

> >>Meds:Â K Cl 20 meq 2 tabs tid

> >>Prenatal vitamin

> >>Breastfeeding; 5 month old with G6PDD

>

[Guest guest]

Thanks for the article, very interesting. I definitely wonder if cortisol secreting adenomas are more common than we realize. I asked the radiologist if there was any way to check cortisol while we're at it and he said no! LolVirginia Wall31 year old femaleCurrent K 3.2DASHingAVS completed June 27, 2012 at BJC Hospital St. Louis, MO3 cm adenoma in right adrenalDiagnosed February 2012Low K & High BP since appx. 2007Possible family history of hyperaldosteronismMeds: K Cl 20 meq 2 tabs tidPrenatal vitaminBreastfeeding; 5 month old with G6PDDOn Jun 29, 2012, at 10:22 PM, " " <jclark24p@...> wrote:

Maybe it's different "across the pond"! Here is the view from Germany: The presence of an aldosterone- and cortisol-co-secreting adrenocortical tumor should be considered if a patient has i) PA and an adenoma that is larger than 2.5 & #8202;cm, ii) cortisol that is non-suppressible with overnight low-dose dexamethasone, or iii) grossly elevated serum levels of hybrid steroids, such as 18-OH-F.

Source: http://www.ncbi.nlm.nih.gov/pubmed/21270113

Aldosterone- and cortisol-co-secreting adrenal tumors: the lost subtype of primary aldosteronism.

> >

> >

> >Â

> >>Hello group! I had my AVS done at 8 am this morning. They worked for a few extra minutes on the right side but got it no problem. ACTH was used and the samples are being sent to mayo clinic. I should know by Monday they said.Â

> >>

> >>

> >>One interesting thing the radiologist told me. I told him how the endocrinologist offered to let me do surgery removing the right adrenal without AVS because it was so obvious on the CT scan that my right adrenal had a 3 cm adenoma that was causing the problem. The radiologist said in his experience it's the small adenomas that secrete excess hormones, not the big ones. He said he would be surprised if that adenoma is even secreting hormones. Thoughts? Obviously I will know about myself specifically soon enough but I was just wondering if this was true. I don't remember seeing any research on size of adenomas and hormone secretion.Â

> >>

> >>

> >>

> >>Virginia Wall

> >>31 year old female

> >>Current K 3.2

> >>DASHing

> >>AVS completed June 27, 2012 at BJC Hospital St. Louis, MO

> >>3 cm adenoma in right adrenal

> >>Diagnosed February 2012

> >>Low K & High BP since appx. 2007

> >>Possible family history of hyperaldosteronism

> >>Meds:Â K Cl 20 meq 2 tabs tid

> >>Prenatal vitamin

> >>Breastfeeding; 5 month old with G6PDD

>