update

[Guest guest]

d

Were you going to Tishomingo or Ada to the Indian Clinic? I was just wondering what part of OK. I'm glad you're getting away from the Indian Clinic - I have no faith in them. Good luck.

SuSie

-- Update

Hey hope everyone is well. I have been doing some thinking.So I guess I wanted to use you all as a sounding board for my plans. As most of you may know I dont have any insurance. That tends to make it a lil bit diffucult to find a Dr that wants to give his services away free of charge. Cant even say I blame them. I was sopposed to go see my dr tomorrow for my every three month check up. My dr is at an Indian clinic in okla. Because I live in Texas there are a lot of things they dont do. So I am changing Drs. I spoke to the University of Tex at Tyler, they have programs that will allow me to be seen. I am having alot more problems and there is nothing my current dr can really do until he runs some tests. The tests happen to be in the group of things they cant do do unless Im an Okla resident. I am not very fond of the limbo game..lol. At least not when my health is involved. Well I guess that is the general idea of my plans. Im tired of being sick. As Im sure many of you can understand.

love hugs and prayers

d

[Guest guest]

awww Danne girl, im so sorry youre having all these problems. i am clueless as to what to advise, and usually my advice isnt so sound anyway. i wish i could do more i sincerely do. conniegail <gaila@...> wrote:

I don't know what to say other then they make it so difficult in the States to get proper health care.I'm Canadian so I don't really know what you can do.The rest of the group will jump in.

Gail

Update

Hey hope everyone is well. I have been doing some thinking.So I guess I wanted to use you all as a sounding board for my plans. As most of you may know I dont have any insurance. That tends to make it a lil bit diffucult to find a Dr that wants to give his services away free of charge. Cant even say I blame them. I was sopposed to go see my dr tomorrow for my every three month check up. My dr is at an Indian clinic in okla. Because I live in Texas there are a lot of things they dont do. So I am changing Drs. I spoke to the University of Tex at Tyler, they have programs that will allow me to be seen. I am having alot more problems and there is nothing my current dr can really do until he runs some tests. The tests happen to be in the group of things they cant do do unless Im an Okla resident. I am not very fond of the limbo game..lol. At least not when my health is involved. Well I guess that is the general idea of my plans. Im tired of being

sick. As Im sure many of you can understand.

love hugs and prayers

d

for GoodClick here to donate to the Hurricane Katrina relief effort. The light at the end of the tunnel may be you

[Guest guest]

I don't know what to say other then they make it so difficult in the States to get proper health care.I'm Canadian so I don't really know what you can do.The rest of the group will jump in.

Gail

Update

Hey hope everyone is well. I have been doing some thinking.So I guess I wanted to use you all as a sounding board for my plans. As most of you may know I dont have any insurance. That tends to make it a lil bit diffucult to find a Dr that wants to give his services away free of charge. Cant even say I blame them. I was sopposed to go see my dr tomorrow for my every three month check up. My dr is at an Indian clinic in okla. Because I live in Texas there are a lot of things they dont do. So I am changing Drs. I spoke to the University of Tex at Tyler, they have programs that will allow me to be seen. I am having alot more problems and there is nothing my current dr can really do until he runs some tests. The tests happen to be in the group of things they cant do do unless Im an Okla resident. I am not very fond of the limbo game..lol. At least not when my health is involved. Well I guess that is the general idea of my plans. Im tired of being sick. As Im sure many of you can understand.

love hugs and prayers

d

for GoodClick here to donate to the Hurricane Katrina relief effort.

[Guest guest]

Susie I started out going to Talahina Clinic. My dr there is the one that fired me as his patient when I reschedualed an appt to attend a funeral.. I was 3 months into 52 weeks of tx. And I WAS RESPONDING. So I had to find a new dr. In Talahina is where the Chotaw Nation has their hep specialist.. So I ended up going to Cherokee Nation. My family lives in North East Oklahoma in cherokee nation. I ended up seeing adr in Salina okla. The first dr I had didnt fax in the rx for my treatment.. So my coverage period expired. I was on tx at the time. Another tx interuption. Then I got this dr.. He could learn ALOT just reading here. I was his first hep patient.

I dont know yet if I will be able to see anyone at Tyler but Im tryin. Because the kids that live with us are not our biological children they didnt put them on the application for financial screening. If not oh well. then I will move to the next plan. Dallas is 80 miles away.

De thanks I guess I just wanted someone to say good idea. Im still so foggy I dont trust my judgement.

Ok

love hugs and prayers

d

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

I mainly just wanted someone to listen. I know you all will tell me if I am making a bad turn. hehe I am so glad I have you ALL.connie mcclain <crochetlady1001@...> wrote:

awww Danne girl, im so sorry youre having all these problems. i am clueless as to what to advise, and usually my advice isnt so sound anyway. i wish i could do more i sincerely do. conniegail <gaila@...> wrote:

I don't know what to say other then they make it so difficult in the States to get proper health care.I'm Canadian so I don't really know what you can do.The rest of the group will jump in.

Gail

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

d

What is in Dallas that can help?

SuSie

-- RE: Update

Susie I started out going to Talahina Clinic. My dr there is the one that fired me as his patient when I reschedualed an appt to attend a funeral.. I was 3 months into 52 weeks of tx. And I WAS RESPONDING. So I had to find a new dr. In Talahina is where the Chotaw Nation has their hep specialist.. So I ended up going to Cherokee Nation. My family lives in North East Oklahoma in cherokee nation. I ended up seeing adr in Salina okla. The first dr I had didnt fax in the rx for my treatment.. So my coverage period expired. I was on tx at the time. Another tx interuption. Then I got this dr.. He could learn ALOT just reading here. I was his first hep patient.

I dont know yet if I will be able to see anyone at Tyler but Im tryin. Because the kids that live with us are not our biological children they didnt put them on the application for financial screening. If not oh well. then I will move to the next plan. Dallas is 80 miles away.

De thanks I guess I just wanted someone to say good idea. Im still so foggy I dont trust my judgement.

Ok

love hugs and prayers

d

[Guest guest]

well ONE of us will give you good advise, but its not likely me. Connie Coneheaddannegrl <dannegrl2003@...> wrote:

I mainly just wanted someone to listen. I know you all will tell me if I am making a bad turn. hehe I am so glad I have you ALL.connie mcclain <crochetlady1001@...> wrote:

awww Danne girl, im so sorry youre having all these problems. i am clueless as to what to advise, and usually my advice isnt so sound anyway. i wish i could do more i sincerely do. conniegail <gaila@...> wrote:

I don't know what to say other then they make it so difficult in the States to get proper health care.I'm Canadian so I don't really know what you can do.The rest of the group will jump in.

Gail

for GoodClick here to donate to the Hurricane Katrina relief effort. The light at the end of the tunnel may be you

[Guest guest]

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

Thank you for the information, d.

SuSie

-- Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

[Guest guest]

d, Thanks for being helpful for Susie, ya'll are in the same area..Right?..Pat

Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

[Guest guest]

no problem.. that is wat im here for . lol at least for this second..

SuSie how are you???

dSusie <cabin_97@...> wrote:

Thank you for the information, d.

SuSie

-- Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi Pat yea pretty much. She is north of Dallas and I am east of Dallas but yea same general area.. plus im really an Okie... lol OU oh sorry.

love

dPat McBride <pmcbride1@...> wrote:

d, Thanks for being helpful for Susie, ya'll are in the same area..Right?..Pat

Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Ive met a few Okies in my lifetime,..I had a next door neighbor that was even part indian from Ok and knew some of the reservation folks, from yrs ago...He was a wonderful friend...He died at the age of 90...He had the prettiest blue eyes that sparkled & use to tell us great stories...The weather has finally cooled down..about time!...Pat

Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

I'm at the bottom of Oklahoma on Lake Texoma and the Red River. North of Dallas, about an hour.

SuSie

-- Re: RE: Update

d, Thanks for being helpful for Susie, ya'll are in the same area..Right?..Pat

Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

[Guest guest]

Thank's for asking. I'm doing mostly alright. Finally got my deductible taken care of and now can't get an appointment until Jan and March. Deductible will be due again. Sometime's a person just can't win for losing. But, at least I have insurance - not the greatest, but it help's. By the way, who did win that last year on the dead husband's and boyfriend's?

SuSie

-- Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

[Guest guest]

Noon today - OU and Texas. OU is gonna whup butt !!!!

-- Re: RE: Update

Hi Pat yea pretty much. She is north of Dallas and I am east of Dallas but yea same general area.. plus im really an Okie... lol OU oh sorry.

love

dPat McBride <pmcbride1@...> wrote:

d, Thanks for being helpful for Susie, ya'll are in the same area..Right?..Pat

Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Boomer Sooners All The Way LOL

d

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

lol Im not sure who won lol..Susie <cabin_97@...> wrote:

Thank's for asking. I'm doing mostly alright. Finally got my deductible taken care of and now can't get an appointment until Jan and March. Deductible will be due again. Sometime's a person just can't win for losing. But, at least I have insurance - not the greatest, but it help's. By the way, who did win that last year on the dead husband's and boyfriend's?

SuSie

-- Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

lol Im not sure who won lol..Susie <cabin_97@...> wrote:

Thank's for asking. I'm doing mostly alright. Finally got my deductible taken care of and now can't get an appointment until Jan and March. Deductible will be due again. Sometime's a person just can't win for losing. But, at least I have insurance - not the greatest, but it help's. By the way, who did win that last year on the dead husband's and boyfriend's?

SuSie

-- Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Texas is Winning right now! 24 to 6..looks like Texas is whoopin the Big O..heehee

Re: RE: Update

Susie Dallas has Baylor and Methodist and University of Tex. They have programs that are good if you have no insurance. Methodist has Its Liver Institute.214-947-4400

dSusie <cabin_97@...> wrote:

d

What is in Dallas that can help?

SuSie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Ursula,

I am sorry to hear of your health issues. I have to say it is really

strange...not even a half hour ago I thought...where is Ursula??? ...she

hasn't posted in a while and was wondering if everything was okay. Strange

how that happens sometimes.

I hope your surgery goes well and wish you a quick recovery!!! Best of

luck!

Kim, Mom to 9 - CVID

update

>I apologize for not being the welcoming moderator that I should be. I will

>be less involved the rest of the year due to some health concerns. A month

>ago I was diagnosed with a kidney problem that I was told was congenital

>but tended to become aggravated with stones. When stones were found one

>was rather large and obstructing the left kidney. A cystoscope failed and

>so lithotripsy was scheduled. The litho was successful and a stent was

>placed to help the fragments pass. It was to be removed in a couple of

>days past postop as an outpatient. A day after the litho I was at home

>when I spike a fever, started to have a migraine and became dehydrated due

>to not being able to stand from the migraine (and too pigheaded to ask for

>help from hubby). I thought the fever would subside but 12 hrs later it

>hadn't so I called the Urologist and was told to go to the ER. 3 liters of

>fluid later I still had the migraine but finally could be cathed for labs

>and blood was drawn and my first IV

> of the visit placed.

>

> Admitted to surgical floor and started on 2 IV abx and fluids. A day

> later I was still spiking and unable again to go potty so another straight

> cath was done. IV #1 blew and after 7 attempts by 3 different nurses the

> urologist came in and placed an IV in my right foot. Right kidney was

> deemed in failure and a catheter was placed and new meds were ordered.

> THankfully a PCA of Demerol was among them.

>

> That night the foot IV looked iffy so the surgeon was paged and I was

> taken to the surgical ICU for sedation and a subclavian central line.

> After starting Gentamycin my fevers subsided and I stayed 4 more days and

> finally was able to lose my foley and started going on my own.

>

> Follow up with the urologist this week was good, stent was removed and

> another follow up scheduled for right before thanksgiving. He'll either

> send me to Atlanta (Emory) for a special procedure to correct the kidney

> or try a more radical surgery here. (I vote for the Emory trial first).

>

> My strength seems to be the worst at returning but he says that's mostly

> from the fevers. The kidney twinges now and then but nothing awful.

>

> Welcome to all the new members and please keep writing in. I've seen the

> roll call and look forward to reading through it.

>

> Ursula

>

>

>

[Guest guest]

Ursula:

I'm sorry you have had such a rough month! I hope you're feeling better and

that the correction is successful. We'll all be thinking of you!

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

Ursula,

Good luck with the health issues. We wish you a speedy recovery and

hope the procedure goes well and you can avoid the more difficult

surgery.

update

I apologize for not being the welcoming moderator that I should be. I

will be less involved the rest of the year due to some health concerns.

A month ago I was diagnosed with a kidney problem that I was told was

congenital but tended to become aggravated with stones. When stones

were found one was rather large and obstructing the left kidney. A

cystoscope failed and so lithotripsy was scheduled. The litho was

successful and a stent was placed to help the fragments pass. It was to

be removed in a couple of days past postop as an outpatient. A day

after the litho I was at home when I spike a fever, started to have a

migraine and became dehydrated due to not being able to stand from the

migraine (and too pigheaded to ask for help from hubby). I thought the

fever would subside but 12 hrs later it hadn't so I called the Urologist

and was told to go to the ER. 3 liters of fluid later I still had the

migraine but finally could be cathed for labs and blood was drawn and my

first IV of the visit placed.

Admitted to surgical floor and started on 2 IV abx and fluids. A day

later I was still spiking and unable again to go potty so another

straight cath was done. IV #1 blew and after 7 attempts by 3 different

nurses the urologist came in and placed an IV in my right foot. Right

kidney was deemed in failure and a catheter was placed and new meds were

ordered. THankfully a PCA of Demerol was among them.

That night the foot IV looked iffy so the surgeon was paged and I was

taken to the surgical ICU for sedation and a subclavian central line.

After starting Gentamycin my fevers subsided and I stayed 4 more days

and finally was able to lose my foley and started going on my own.

Follow up with the urologist this week was good, stent was removed and

another follow up scheduled for right before thanksgiving. He'll either

send me to Atlanta (Emory) for a special procedure to correct the kidney

or try a more radical surgery here. (I vote for the Emory trial first).

My strength seems to be the worst at returning but he says that's mostly

from the fevers. The kidney twinges now and then but nothing awful.

Welcome to all the new members and please keep writing in. I've seen

the roll call and look forward to reading through it.

Ursula

[Guest guest]

Hope you are feeling better. You will be in my prayers.

Amy (mom to Bradley 3 IGA Def)

update

I apologize for not being the welcoming moderator that I should be. I will be

less involved the rest of the year due to some health concerns. A month ago I

was diagnosed with a kidney problem that I was told was congenital but tended to

become aggravated with stones. When stones were found one was rather large and

obstructing the left kidney. A cystoscope failed and so lithotripsy was

scheduled. The litho was successful and a stent was placed to help the

fragments pass. It was to be removed in a couple of days past postop as an

outpatient. A day after the litho I was at home when I spike a fever, started

to have a migraine and became dehydrated due to not being able to stand from the

migraine (and too pigheaded to ask for help from hubby). I thought the fever

would subside but 12 hrs later it hadn't so I called the Urologist and was told

to go to the ER. 3 liters of fluid later I still had the migraine but finally

could be cathed for labs and blood was drawn and my first IV of the visit

placed.

Admitted to surgical floor and started on 2 IV abx and fluids. A day later I

was still spiking and unable again to go potty so another straight cath was

done. IV #1 blew and after 7 attempts by 3 different nurses the urologist came

in and placed an IV in my right foot. Right kidney was deemed in failure and a

catheter was placed and new meds were ordered. THankfully a PCA of Demerol was

among them.

That night the foot IV looked iffy so the surgeon was paged and I was taken to

the surgical ICU for sedation and a subclavian central line. After starting

Gentamycin my fevers subsided and I stayed 4 more days and finally was able to

lose my foley and started going on my own.

Follow up with the urologist this week was good, stent was removed and another

follow up scheduled for right before thanksgiving. He'll either send me to

Atlanta (Emory) for a special procedure to correct the kidney or try a more

radical surgery here. (I vote for the Emory trial first).

My strength seems to be the worst at returning but he says that's mostly from

the fevers. The kidney twinges now and then but nothing awful.

Welcome to all the new members and please keep writing in. I've seen the roll

call and look forward to reading through it.

Ursula

[Guest guest]

" My strength seems to be the worst at returning but he says that's

mostly from the fevers. The kidney twinges now and then but nothing

awful.

Welcome to all the new members and please keep writing in. I've

seen the roll call and look forward to reading through it.

Ursula "

Ursula,

Good luck with recovering your strength. It's amazing how illness

can wipe out the body!

Hang in there.

Sandy

(mom to Riley, age 14, antibody deficiency, asthma)