Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Dearest Melt, thank you so much for the hug it really needed that. I go back to my Dr on the 6th for updates and see how the MXT is going. I have been on it a month, I just had my last work done. That was fun, lol. I'm going to talk to him about the physical therapy. It was very akward using the blow dryer this morning, and I have very short hair, lol. Thanks for listening. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. " Melt " <newme@...> " Melt " <newme@...> 04/29/2003 01:07 PM Please respond to Stillsdisease <Stillsdisease > cc: Subject: Re: Update Dear Kelley; I used to have that pain and it was inflammation of the nerve linings my doctor told me. What they told me many years ago was this is not just a disease of the joints. Still's can affect linings of the nerves, heart, lungs etc. and muscles can also become painful too. Lynn is correct in that physical therapy can help a lot by keeping our supportive tissues healthy and strong to support weekend joints and also full range of motion to reduce the loss of motion in joints that are affected. I was always told to make water my best friend. I am sorry to hear of you loss of your partner and hope that thru the group we can help support you during your times of pain and sadness. We will be here and do all we can, I hope your day is brighter than the weekend, Sending biggest hugs, Melt Update > > > > Hi all. I wanted to let everyone know that I got a computer at home this > > weekend. Yeah... lol my new address at home is > > Kelleyak32@.... Had a pretty bad weekend with pain. Still trying to > > > hang in there though. I feel that I am loosing a lot of strenght in my > > right arm and shoulder. Has anyone else felt this? It felts kind of > > tight, almost numb but it's not numb, does this make any sense. I had a > > hard time drying my hair this morning. I wanted to be able to come to > > work to see my emails from the group, sad huh, lol.. Kelley in Colorado > > > > > > Kelley Knight > > 1400 E Boulder St > > Colo Spgs, CO 80909 > > 719-365-1154 > > 719-365-6834 fax > > > > The mission of Memorial Hospital is to optimize the health and comfort of > > our patients, their families and the community we serve by providing the > > best and most sensitive professional care and service. > > > > www.memorialhospital.com > > > > The information contained in or attached to this electronic message is > > privileged and confidential, intended only for the use of the > > individual(s) named above. If the reader of this message is not the > > intended recipient, or the employee or agent responsible to deliver it to > > the intended recipient, you are hereby notified that any dissemination, > > distribution, or copying of this communication is strictly prohibited. If > > you have received this communication in error, please inform the sender > > immediately and remove any record of this message. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Kelley, sorry if my number was busy last night, everyone I know called me last night. Please try again. I am really low on funds right now or I would call you. We can also set up a chat session if you would like. Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Update Thanks Lynn. I will give you a call tonight when I get home from work. My number is also 719-391-0017 at home. I'll talk to you then. Thank you again. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Lynn, that is okay. Everyone I know called me also last night, then the lightening was around. I'm kind of a baby with that going on, I won't talk on the phone, don't want anyone getting shocked. Have seen it here at the hospital, so I stay clear of phones in lightening storms now, lol. I will try again tonight or we can email each other. I got my computer set up at home last night. Kelleyak32@.... Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. " Lynn Dudenhoefer " <lynndude@...> " Lynn Dudenhoefer " <lynndude@...> 04/30/2003 10:47 AM Please respond to Stillsdisease <Stillsdisease > cc: Subject: Re: Update Kelley, sorry if my number was busy last night, everyone I know called me last night. Please try again. I am really low on funds right now or I would call you. We can also set up a chat session if you would like. Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Update Thanks Lynn. I will give you a call tonight when I get home from work. My number is also 719-391-0017 at home. I'll talk to you then. Thank you again. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Lynn thats 1 tuffest things i dealt with too the muscle weakness was bad but phisio has helped me grealy.When i first went they have these elastic bands my arms would just shake when i pulled it,was very depressing because ive always been really strong christ im cement finisher lol.Well i was able to gain alot back and its much better i expect to return to work again next week,but ill take it real easy.I acually had a phisio assesment yesterday my doctor suggested it because i was sure my migraines which are gone now were caused from stiff neck and upper back.The phisotherapist said she had never seen someone so tensed up as i am,well she worked me over a little lol but told me to tell her when it hurt to much cause she said if it hurts then its not helping.Anyways i geuss she said i qualify for 6 sessions and gave me couple streches to do,not sure if it will help but im willing to try.Take care lynn and good luck in gettin some of that lost muscle back i remember in the hospital my arms were like a little old ladys with no tone that scared me. d.Canada Update Hi all. I wanted to let everyone know that I got a computer at home this weekend. Yeah... lol my new address at home is Kelleyak32@.... Had a pretty bad weekend with pain. Still trying to hang in there though. I feel that I am loosing a lot of strenght in my right arm and shoulder. Has anyone else felt this? It felts kind of tight, almost numb but it's not numb, does this make any sense. I had a hard time drying my hair this morning. I wanted to be able to come to work to see my emails from the group, sad huh, lol.. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Thanks , I used to weight lift a few years back and could leg press over 200 lbs. Now I feel like a rolly polly jelly roll. Some mornings just holding my coffee cup seems hard. I have not been as good about my physical therapy as I should but when you feel like crap all the time who wants to go exercise! Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Update Lynn thats 1 tuffest things i dealt with too the muscle weakness was bad but phisio has helped me grealy.When i first went they have these elastic bands my arms would just shake when i pulled it,was very depressing because ive always been really strong christ im cement finisher lol.Well i was able to gain alot back and its much better i expect to return to work again next week,but ill take it real easy.I acually had a phisio assesment yesterday my doctor suggested it because i was sure my migraines which are gone now were caused from stiff neck and upper back.The phisotherapist said she had never seen someone so tensed up as i am,well she worked me over a little lol but told me to tell her when it hurt to much cause she said if it hurts then its not helping.Anyways i geuss she said i qualify for 6 sessions and gave me couple streches to do,not sure if it will help but im willing to try.Take care lynn and good luck in gettin some of that lost muscle back i remember in the hospital my arms were like a little old ladys with no tone that scared me. d.Canada Update Hi all. I wanted to let everyone know that I got a computer at home this weekend. Yeah... lol my new address at home is Kelleyak32@.... Had a pretty bad weekend with pain. Still trying to hang in there though. I feel that I am loosing a lot of strenght in my right arm and shoulder. Has anyone else felt this? It felts kind of tight, almost numb but it's not numb, does this make any sense. I had a hard time drying my hair this morning. I wanted to be able to come to work to see my emails from the group, sad huh, lol.. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Wow! Lynn you were strong. Well your legs anyways. I used to weight lift like in competitions too, but now I can only leg press 130 and I was sad, but anyways I also feel like Jelly. Patti >From: " Lynn Dudenhoefer " <lynndude@...> >Reply-Stillsdisease ><Stillsdisease > >Subject: Re: Update >Date: Wed, 30 Apr 2003 18:06:13 -0500 (Central Daylight Time) > >Thanks , >I used to weight lift a few years back and could leg press over 200 lbs. >Now I feel like a rolly polly jelly roll. Some mornings just holding my >coffee cup seems hard. I have not been as good about my physical therapy >as >I should but when you feel like crap all the time who wants to go exercise! > >Lynn Renae Dudenhoefer >lynndude@... >-On any path that you may stroll, >-keep your angel in your soul! > >-- Re: Update > >Lynn thats 1 tuffest things i dealt with too the muscle weakness was bad >but >phisio has helped me grealy.When i first went they have these elastic bands >my arms would just shake when i pulled it,was very depressing because ive >always been really strong christ im cement finisher lol.Well i was able to >gain alot back and its much better i expect to return to work again next >week,but ill take it real easy.I acually had a phisio assesment yesterday >my >doctor suggested it because i was sure my migraines which are gone now were >caused from stiff neck and upper back.The phisotherapist said she had never >seen someone so tensed up as i am,well she worked me over a little lol but >told me to tell her when it hurt to much cause she said if it hurts then >its >not helping.Anyways i geuss she said i qualify for 6 sessions and gave me >couple streches to do,not sure if it will help but im willing to try.Take >care lynn and good luck in gettin some of that lost muscle back i remember >in the hospital my arms were like a little old ladys with no tone that >scared me. d.Canada > Update > > Hi all. I wanted to let everyone know that I got a computer at home >this > weekend. Yeah... lol my new address at home is > Kelleyak32@.... Had a pretty bad weekend with pain. Still trying >to > > hang in there though. I feel that I am loosing a lot of strenght in my > right arm and shoulder. Has anyone else felt this? It felts kind of > tight, almost numb but it's not numb, does this make any sense. I had a > hard time drying my hair this morning. I wanted to be able to come to > work to see my emails from the group, sad huh, lol.. Kelley in Colorado > > > Kelley Knight > 1400 E Boulder St > Colo Spgs, CO 80909 > 719-365-1154 > 719-365-6834 fax > > The mission of Memorial Hospital is to optimize the health and comfort >of > our patients, their families and the community we serve by providing the > best and most sensitive professional care and service. > > www.memorialhospital.com > > The information contained in or attached to this electronic message is > privileged and confidential, intended only for the use of the > individual(s) named above. If the reader of this message is not the > intended recipient, or the employee or agent responsible to deliver it >to > the intended recipient, you are hereby notified that any dissemination, > distribution, or copying of this communication is strictly prohibited. >If > you have received this communication in error, please inform the sender > immediately and remove any record of this message. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 talk to you soon Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Update Thanks Lynn. I will give you a call tonight when I get home from work. My number is also 719-391-0017 at home. I'll talk to you then. Thank you again. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Thanks Melt. If I am unable to work tomorrow, due to pain. Then I am going to call the Dr in Denver and see if we can make the appt for then. My mom will drive me there. I will let you know what happens. The vicoden doesn't really help all that much, but it does help a little. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Kelley, I know it's a long ride but I'm glad you are going because we could use all the help in research. Am glad he told you to take the Vicodin as needed because quite frankly I don't even have any relief with one and my years are many. Good to hear you are progressing along and I sincerely hope the upped medications help you feel even better. Till soon dear friend, Melt ----- Original Message ----- From: <Kelleyak32@...> > Went to the Dr's and he said that my labs looked good. We are going to increase > the MTX to 15mgx, go off the Vioxx as I am on the Voltran, and tapper off the > Prednisone to see what that does. I am still to take the Vicoden for the > pain, when needed now, lol. Talked to him about the Dr at Univ of Colo, as > he called me last week and wants me to go back to Denver to a study that is > going on in California. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 its hard when your in pain anything like you said the drive wore you out i can understand that completly.Was commenting this morn how the worst test i had in hospital was the MRI if you can beleive that i was in the throngs of a majour fever at time.Hope this test you done can help in sum way sounds interesting take care,i found that article last nite i wish i coulda posted it for you then but it was late. d.Canada Update Well, we went to Denver today. The drive just about did me in. 1 1/2 there and back and it was a pretty high pain day today again. I guess this study is part of a DNA study with protein in the blood. There is pretty much a 1 to 2 chance that you either have it or don't. With this protein, they are looking for the fevers, joint pain, rash. They have never tested a patient that has been Diagnosed with Stills. The dr doing the research is from Univ of Ca in San Diego, I guess he was here doing a speech at the Univ of Co. The Dr there that diagnosed me talked to this dr/professor about me and asked if they had ever tested a stills patient and he said no, but that he would like to test me. So I filled out all the paperwork and we did the blood and it is being Fed ex'd today to San Diego. He said that we probably won't hear anything for 2 to 3 months. I kind of hope that they can find something, that will help us all out. I wish that I would have been on this morning to have read 's email, so I could have brought that up with him then. I will let you all know about this when I hear something back. So I guess now everyone can call me Research Kelley, lol. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Thanks Melt... It is very important.. I do belive in research as that is really the only way we ever really find anything out about disorders.. My grandmother pasted away in January and she donated her brain to the study and research of Alzheimer's, of course was consented before she got Alzheimers.. It is really the only way we can find out about disease's I believe... I would do it all over again.. I am going to send 's email to the Dr/professor at univ of Colo and see if he knows about that also instead of waiting for him to call me back.. So when I hear about either of these studies I will let everyone know.. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Kelley my granddaughter was born almost 2 years ago with a genetic disorder. My point is she was treated in Denver Children's Hospital and they were wonderful!! She went through surgeries and testing and she is doing well. I believe that the answers we seek lay in genetics and I cannot say enough how much it means to me personally that you have volunteered for this testing. Thanks is not enough. With much love and hope, Melt ----- Original Message ----- From: <Kelleyak32@...> > Well, we went to Denver today. The drive just about did me in. 1 1/2 there > and back and it was a pretty high pain day today again. I guess this study > is part of a DNA study with protein in the blood. There is pretty much a 1 > to 2 chance that you either have it or don't. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Thanks Melt.. I hope the Dragon is gone to rest also. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Thanks Melt.. I hope the Dragon is gone to rest also. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Kelley that is wonderful. I know it is hard but maybe the dragon will let you work into it. And yea for no more Prednisone. Sending a smile back, Melt ----- Original Message ----- From: <Kelleyak31@...> Update > Just wanted to tell everyone Hi. I went back to work today, first day in > over two weeks. I did pretty good. I am just tired and very sore now, but I > feel good that I was able to go back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Kelley, just a quick little note here, for my rash when it gets itchy and burny I find a cold cloth or aI also use a cream called Stop Itch. It is made by Solarcaine and can be bought in Walmart, well up here in Canada anyways. But yea! Hope that helps. Best of luck hun and everyone have an awesome weekend! Update Hi again.. Well here's a new update.. With my working on Tuesday and Wednesday,I think I over did it.. I had a lot of pain and swelling on Thursday, called the dr and they called me back today, as he was out of the office.. I don't get to get off the prednisone (.. I have to stay on the 5mgs until I see him again next month on the 17th.. I was so looking forward to tomorrow being my last day on it.. I wasn't able to go into work yesterday or today, they told me to be patient as the MTX takes time to work.. I have been on the increased dosage I think 2 weeks today.. We will see if I need to increase again next time I go.. My rash has really flared up on my back the last two days and is driving my insane.. it is itching and burning like crazy...... any suggestions on how to make it stop would greatly be appreciated.. it is on my chest also, but it is not bothering me there... thanks in advance.. :-) Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Dear Kelley, I am sorry to hear you have to wait a bit to be off the Prednisone but it is probably for the best right now with your going back to work and all. I think there will be the day you get to stop it, so although very very hard, just hang in there. I hope the weekend off helps you feel better dear. Warm thoughts and a big smile, Melt ----- Original Message ----- From: <Kelleyak31@...> > Hi again.. Well here's a new update.. With my working on Tuesday and > Wednesday,I think I over did it.. I had a lot of pain and swelling on Thursday, called > the dr and they called me back today, as he was out of the office.. I don't > get to get off the prednisone (.. I have to stay on the 5mgs until I see him > again next month on the 17th.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Maureen, Our hearts and prayers continue to go out for you and your family. Thank you for the update on your precious . Thank goodness that she is showing some improvement. When you have a chance, keep us informed. Either way, we will continue to pray for her. {{{{{{{{{{{HUGS}}}}}}}}}}} Lynn & the Zoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 HAPPY BIRTHDAY, AMANDA!!!! {{{{{{{HUGS}}}}}}} The Geddie Zoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Hi, Wishing Birthday happiness to someone special. Have a Blessed 12th Birthday! Wishing ........All the special joys that life can bring, And always......the best of everything! HAPPY BIRTHDAY AMANDA! " The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you; the Lord turn His face toward you and give you peace. " (Numbers 6:24-26 NIV) Hugs & prayers! Irma,14,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hey there miss Elly!! I'm sure sorry to hear your still with such pain. Dang it anyway. I hope you had a nice holiday and it's not worse. Did you ever get those curtains up? I do hope the kids find some better luck too. We will wish them our best also. Good to hear from you these days, sending a smile and a laugh with love, Melt Update > Hey everyone,once again I've been gone for a little while.Kinda sick! > I don't think the bone at the base of my neck hasn't stopped hurting > for about a week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Oh Tonnie! I am so sorry to hear there has been no end to your trials and tribulations. My prayers and thoughts are with you and with your family. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 In a message dated 6/9/2003 9:48:57 PM Central Daylight Time, TiaNeeNee@... writes: > I try to stay positive, however, at times it does get difficult. I have > many > people praying for me. I think the most difficult things I have > experienced > has to do with my 10 yr. old son. As you all know I had to stop > homeschooling > him and put him back in school due to the medical problems. I have always > been active whenever he was in school before I started homeschooling. Now, > though, I can't even go on field trips with him...this hurts the most. He > wants > me to do things with him that I could do before the surgery, now I can't do > them. He wants to go to Disneyland, we use to have yearly tickets, I use to > be > able to walk all over Disneyland with no problem, now I tell him I can't go > because I probably wouldn't be able to make it past the entrance. > Hey girl, Glad to see you posting! Missed Ya! Anyway, about the son thing. You sound like me before I stopped working due to the fibro. I was trying and trying to do it all. Working over time while sick, trying to take kids to ball games, band practice and all the many things they did. I was frequently having to leave and find a ride home for the kids if they weren't through. When I had to quit after the car wreck, things went from bad to worse as I had to miss stuff. It took a long time to figure out I wasn't super Mom...LOL. I learned I had to rest and plan for stuff. If I had a lot to do at night I rested during the day. If it was a day thing, I might have to take it easy the day before. All this to say....Take it easy, let your family help, explain to the kid, he's a smart one and will understand more than you think. Maybe tell him you can do more with him if he helps you more in the house. You will get better, and things will improve. If you need someone to talk to....e-mail me. in Bama http://hometown.aol.com/mdl1031/myhomepage/profile.html Surgery- RNY to DS revision on12/6 -377.5 12/17 - 346.5 ( minus 31lbs) 01/15- 338.1 (minus 39.1lbs) 02/12-330.0 (minus 47.5 lbs) 04/06- 324.3 (minus 53.2 lbs) 05/02- 311 (minus 66.5 lbs) 05/12- 304.8 (minus 72.7 lbs)-BMI now 48 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 In a message dated 6/9/2003 9:48:57 PM Central Daylight Time, TiaNeeNee@... writes: > I try to stay positive, however, at times it does get difficult. I have > many > people praying for me. I think the most difficult things I have > experienced > has to do with my 10 yr. old son. As you all know I had to stop > homeschooling > him and put him back in school due to the medical problems. I have always > been active whenever he was in school before I started homeschooling. Now, > though, I can't even go on field trips with him...this hurts the most. He > wants > me to do things with him that I could do before the surgery, now I can't do > them. He wants to go to Disneyland, we use to have yearly tickets, I use to > be > able to walk all over Disneyland with no problem, now I tell him I can't go > because I probably wouldn't be able to make it past the entrance. > Ps If you rent for Wheelchair at Disney....You can bypass the linesAND those with you. Sounds like a plan to me!! in Bama http://hometown.aol.com/mdl1031/myhomepage/profile.html Surgery- RNY to DS revision on12/6 -377.5 12/17 - 346.5 ( minus 31lbs) 01/15- 338.1 (minus 39.1lbs) 02/12-330.0 (minus 47.5 lbs) 04/06- 324.3 (minus 53.2 lbs) 05/02- 311 (minus 66.5 lbs) 05/12- 304.8 (minus 72.7 lbs)-BMI now 48 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 > God Bless > Tonnie Hi Tonnie It isso good to hear from you. Thank you for the phone call. I am so glad that your breathing is better, that is a relief. I know you have been thru hell this year, and I am still praying for you and your family. I know that you will get thru this, I just hope it is soon. Take good care my friend. Are you going to Martas pool party? love you, Sharon in Onyx Quote Link to comment Share on other sites More sharing options...
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