Re: Cure?

May 9, 2000

In a message dated 5/9/00 7:22:01 PM Pacific Daylight Time,

egroups writes:

<< I'd take " typical DS " any day. >>

Joan:

ME TOO!!!!!! And I never thought I'd admit this.....

June 29, 2000

newjersey,

Had my tonsils out, then got P and then PA......go figure. This stuff seems

to be the classic riddle warped in an enigma. Good that we are all talking

about it, maybe the solution will come from actions like this group.

Bob VA

October 31, 2002

Hi Richie! Geoff here.

You wrote:

" ... the important thing to remember is that they are working in a

whole new direction where the entire immune system isnt targeted

rather only what the researchers feel is the cause of RA... "

The pertinent issue is this:

Is the immune system the " cause " of these diseases?

Or is the immune system " fighting " the cause?

Funding follows scenario number 1 for a very good reason: there are massive,

virtually unlimited amounts of money available under scenario 1. The immune

system will continue to function as long as the patient lives, and as long

as the patient lives an " errant immune system scenario " will continue to

provide a revenue stream. Convincing patients to subscribe to scenario 1 is

a matter of marketing. Forcing scenario 2 into inavailability is a function

of political clout and savvy.

Scenario 2 has a finite life. Once the root " cause " is dealt with, the

revenue stream is terminated.

Take your pick.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

December 21, 2003

Hi Karyn!

From what I've seen personally and in this group, apraxia, like

autism, is multifaceted in most cases...meaning it's not " just " an

impairment of speech. Bilker is one of the only children I

know who has " pure " apraxia of speech and nothing else.

http://www.debtsmart.com/talk/brandon.html

(even though most of us in the early stages also believe it's " only "

a speech delay as you will even read in my first posts 4 years ago.)

's story about 's severe diagnosis upset me for so many

reasons. In addition to being one of the oldest members of

this group -we really don't know all the possible aspects of what

apraxia can mean yet in the long run. So far however all aspects

we've heard about here appear to be benign and something a child can

overcome. Perhaps what has just been diagnosed with doesn't

have any links to the apraxia -perhaps.... thankfully again -

's diagnosis isn't the worst of the two -the fatal one.

Rose colored glasses are at times mainly by new parents needed to

see through the gloom. I don't want to be the one to pop anyone's

bubble. Chances are almost 100% that based on what this person

wrote, his SLP is diagnosing and doing therapy for children with

articulation problems -not apraxia. I'm glad for that parent and

any parent that has a child that has a curable speech delay -and

wish my son Tanner was misdiagnosed too and really had something

that was curable as well.

And we can't jump on ignorant SLPs either -we just know she didn't

read The Late Talker yet. Is apraxia a simple articulation

problem? That's been stated before -well long before:

" The diagnostic label of developmental apraxia of speech derives

from this model. This term has been used to describe the speech

behavior of children with moderate to severe articulation disorders

of nonorganic cause...A large number of these articulation disorders

have no recognizable organic, neurogenic, or physical correlate.

Children with articulation disorders of unknown cause constitute 99

percent of the caseloads of speech-language pathologists working in

the schools. "

February 18, 1994

http://grants1.nih.gov/grants/guide/pa-files/PA-94-039.html

I also pray that one day with research and awareness there will be a

cure, or at least a treatment - for all neurologically based

multifaceted communication impairments like apraxia and autism.

Just like visual and hearing impairments/disabilities -those

children and adults with verbal impairments/disabilities need this

type of research too! (stem cell?)

(they found and are finding treatments for children that are deaf

and blind that can help them to hear and see better.)

" In a world first for China, local scientists said yesterday they

have segregated certain stem cells from mice ears, which could be

utilized to create a new therapy for hearing-impaired patients. "

http://www.deaftoday.com/news/archives/003277.html

" Q. What about cochlear implants? Do they 'cure' deafness?

A. The term `cure' should be avoided, as it is highly misleading.

Cochlear implants are electronic devices that are implanted in the

cochlea (inner ear) of people who are profoundly deaf to give them

some hearing. Their effectiveness will vary between individuals. In

the UK there are 3,300 people with a cochlear implant, of whom

approximately 2,000 are children (source: HM Government Medical

Devices Agency). "

http://www.ndcs.org.uk/news_media/key_information/faqs.html

" A cure for some forms of blindness could be only five years away, a

stem cell conference in Melbourne heard this week. "

http://www.theage.com.au/articles/2003/10/11/1065676206311.html

I believe a main problem is lack of belief in our children's

potential...and as I said I spoke to Dr. Rosenthal about this and

his theory -and he agrees. And his life's work found that to be

true in the positive. http://www.psych.ucr.edu/faculty/rosenthal/

Now if you want to know the negative view our children will face if

we don't change it as a group-then read this link (

http://www.courierpress.com/ecp/gleaner_news/article/0,1626,ECP_4476_2470843,00.\

html ) for the good and the bad:

" These children are going to plateau at a certain level -- that is

the nature of a disability, " said Harper, who teaches students with

autism, learning disabilities, mental retardation, Tourette's

syndrome, vision and hearing deficiencies and brain injuries. " These

kids are not going to grow out of it, not going to grow up and be

OK. It's sad, but that is the way it is. "

" In Nashville, Tenn., schools director Pedro called

it " ludicrous, to give a (special ed) student a test that they

cannot read or understand, much less know the answer. "

And this quote opens a can of worms to me:

" There is no way some of these kids can meet the testing standards, "

she said. " If they could, they wouldn't be with us in the first

place. "

I'd love to ask this person " And if they were not with you in the

first place...could they instead be a straight A student in the

mainstream? " and then tell her about my son Tanner who is one of

many who would be in these classes due to verbal based IQ and

receptive ability tests...but instead is a straight A student in all

subjects in the mainstream

http://www.cherab.org/news/verbaldisabledtest.html

But just like I like to leave out the bad parts most of the time and

focus on the good (like not saying that even though most children

diagnosed with leukemia will be cured...I don't like to talk about

what happens to almost all of those few that are not cured. Because

there is always hope -and you don't want to ever give that up.)

Here is someone to cheer from the same article!

" There have been low expectations for some of these children all

along, " he said. " And that's not because of mental abilities, but

because of poor instruction received in the early grades. We need to

challenge schools that these children can achieve. Sure, they will

need an intensive program, but they can be brought up to grade

level. "

~ Tomalis, acting assistant secretary for elementary and

secondary education

Hurray for ' Tomalis!!

=====

December 21, 2003

that's exactly the point I brought up to the SLP that said Jordan had

phonological disorder. If he truly had phono, he would not have the hypotonia

or fine motor delays. I am one who believes that apraxia is mostly motor

planning......and generally, motor planning in ONE AREA is fairly remote, if non

existent.

In watching Jordan as well as other kids with motor planning stuff, you see so

many similarities. I, too, wish there was a " cure " for this. That my child

says a word one day, clear as a bell, then the next it's unintelligible. Maybe

we should " clone " this SLP?

~K

December 21, 2003

Hi Karyn!

No we don't need a clone of this type of SLP -we need a clone of

Marilyn Agin MD before she's booked up for the rest of her life!

Not to say that apraxia will never be curable. But if a tree falls

in the woods and nobody is around to hear does it make a sound?

What I mean is that if most don't know someone has a speech

impairment -than most will think they are " cured " or won't even know

they have a speech impairment.

Nothing wrong with overcoming something -and there are lots of examples.

As we know from famous movie star stutterers like Earl

and Bruce Willis -verbal impairments don't hold back anything -even

public speaking...and may even help for some reason. (there are

more than you think amount of stutterers in the film industry -which

is why I recommend the local theater clubs to explore too as your

child gets older.)

But cured? Nope not yet. As Earl is quoted to

say " once a stutterer always a stutterer " and " We now know that

stuttering is a neurologically-based condition that does not emerge

from or reflect psychological maladjustment, " added Dr. Ratner.

Concluded Dr. Guitar, " Although evidence clearly shows that

Churchill stuttered, the important point here is that he overcame

the problem to become a stirring and eloquent speaker. He gave us

some of the most memorable words in history. The fact that he

sometimes stuttered when he said them was—and is—nothing to be

ashamed of. "

http://www.stutteringhelp.org/pressrm/chrchill.htm

Unlike apraxia which has zero links for this -there are tons of

links for famous stutterers. Here is just one link I found quick.

http://members.aol.com/cjroach/famousstutterers.html

And the following two quotes I found of interest too.

" Recently Earl acted in a part which did not require him

to develop situational fluency. He portrayed a stutterer in the

movie A Family Thing. The character, Ray Murdoch, was not originally

written as a stutterer, it happened accidentally.

involuntarily stuttered while reading his lines and the director,

Dick Pearce, liked it, feeling it conveyed the character's

vulnerability. agreed to portray Ray Murdoch as a stutterer as

long as it wouldn't be played to make fun of the stutterer. "

" Marilyn Monroe's signature breathy way of speaking may have been

her way of treating her stuttering. She seems to have been taught by

a speech coach to use exaggerated mouth movements and a breathy and

affected speaking style to control her stuttering. "

http://www.d.umn.edu/~cspiller/stutteringpage/famous.htm

A great movie to watch to remind all that we only know a glimpse of

what is possible with the human brain -and that there is always hope

to overcome no matter what the " disability " is A Beautiful Mind

" A Beautiful Mind " won four s, including best picture, at the

74th Academy Awards Sunday night. " 2002

http://www.cnn.com/2002/SHOWBIZ/Movies/03/25/aa.oscar.night/

" A Beautiful Mind " is the true story of Dr. Nash...

http://cepa.newschool.edu/het/profiles/nash.htm

http://www.nobel.se/economics/laureates/1994/nash-autobio.html

who also happened to have paranoid schizophrenia...

http://www.popular-science.net/nobel/nash.html

and rose above it in spite of (or because of) being off drugs...just

with his " beautiful mind " and the love of his wife.

Of course (sigh) there are debates about this too.

" Oaks said: " NAMI refuses to warn their members that taking

neuroleptic psychiatric drugs can cause structural brain changes,

even though this fact is now well-established in the medical

literature. On the contrary, NAMI somehow twists reality to claim

that *not* taking neuroleptics causes permanent brain damage, even

though NAMI has no solid evidence for this claim. "

Why would NAMI omit solid information that neuroleptics can lead to

structural brain damage, but promote undocumented speculation that

refusing neuroleptics can lead to brain damage? Said Oaks: " Once

more, it's highly significant that NAMI receives millions of dollars

from psychiatric drug industry manufacturers, but still refuses to

disclose basic information about the amounts of this money, even to

its own members. "

" Nash confirmed to the audience that he has not taken psychiatric

drugs since he was forced to do so in 1970. said, " One could

hear loud gasps of surprise and shock " from the audience.

applauded loudly, and one another person joined in.

The film " A Beautiful Mind " mysteriously includes a fictional line

that falsely claims Nash was helped later in his life by

taking " newer " types of psychiatric drugs. There is speculation that

this line was injected as a kind of " product placement " to promote

atypical neuroleptic drugs, and to discourage people from quitting

their psychiatric drugs, as Nash did. "

http://www.namiscc.org/newsletters/April02/PBSDocumentary.htm

" mysteriously includes a fictional line that falsely claims " ? Why?

Guess truth is stranger than fiction -and they didn't believe it..or

was it for another reason?

Oh -and Karyn -let us know when you start the oil therapy again

(starting with the one drop a day as we talked about) the symptom

you list of not being able to repeat the same word twice will be one

of the first to fade once on it. That's an earlier sign it's

working and it's not just coincidence.

=====

December 21, 2003

and were both diagnosed with apraxia originally. I

really don't think that had it. I think she had a phonetic

disorder, but I'm not a SLP. I also don't remember what she talked

like at 3. At 7, she talks better than lots of the kids. If she

did have apraxia, then I'd say she's " cured " .

on the other hand, I think she will always struggle with

speech.

> Shilo wrote : " My SLP has cured children with V. Apraxia,

she's very confident that will be cured as well, even when I

brought up the fact that over the internet some people were saying

that it wasn't curable. She disagree's. And she is a very good SLP,

the only one in this town that has helped at all, and been

able to explain and recommend to me anything. "

>

> I've never known CORRECTLY dx'd apraxia to be cured..just like

ADD/ADHD or autism. The symptoms may be alleviated by proper

therapies and the like, but these are neurodevelopmental issues...I

was not aware of a " cure. "

>

> ~K

>

May 23, 2007

Cure found for some hepatitis C patientsBob Lamendola South Florida Sun-sentinel FORT LAUDERDALE, Fla. — Doctors and researchers rarely use the word “cure,” but they came as close as they ever do Monday when describing a combination of two drugs used to treat the liver disease hepatitis C. Among some patients, the drug cocktail of pegylated interferon and ribavirin completely kills the virus that causes hepatitis C and keeps it from coming back, doctors said in reporting their new study in Washington, D.C. The catch is, the drug combo does not work in about half of people with hepatitis C, and researchers are not sure why it works so completely for some but fails in others. “I call it a cure. It doesn’t work for everyone but it has the ability to eradicate this virus, and this study is the best evidence to prove that,” said Dr. Eugene Schiff, director of the center for liver diseases at the University of Miami medical school, who was not involved in the study. The findings of the six-nation study, headed in the U.S. by Virginia Commonwealth University, solidifies the drug combination as the top treatment for the virus, which has infected about 4 million Americans. The virus spreads only via direct contact with infected blood. Most cases stem from blood transfusions before 1992 and intravenous needle use, but the virus also can occasionally be passed through sex. Long-term infection of hepatitis C has caused a leap in the incidence of liver cancer and liver damage, and is the leading cause of people needing liver transplants. The virus kills more people than HIV/AIDS. 997 patients The new study followed 997 patients who had cleared the virus from their systems while taking the drug combo for almost a year. Of those, 99 percent remained virus-free an average of four years after they stopped taking the drugs, and as long as seven years later. That kind of

success is not seen with other viruses, such as hepatitis B and HIV, which hide in the body and come back strong if the patient stops taking the medicine, said Dr. Vierling, a Baylor College professor and past president of the American Association for the Study of Liver Diseases. “This is a virus we can beat,” said Vierling, who was not associated with the study. But the drug combo only defeats the virus in about 40 percent of those infected with the most common strain of hepatitis C, which accounts for two-thirds of cases. Blacks and those with serious cirrhosis of the liver are less likely than average to do well. The drugs succeed about 80 percent of the time against other strains of the virus. The side effects from the drugs can be serious. Most people experience little more than flulike symptoms, but small numbers report hair loss, depression, moodiness, sharp anemia, and in rare cases, heart and kidney failure, suicidal

thoughts and even death. “People don’t like to take it if they don’t have to,” Schiff said. Virus-free Plantation, Fla., patient Andi , who founded the nationwide advocacy group Hep-C Alert, said she has been virus-free since taking the combo in 2004, with only headaches as a side effect. The group is funded in part by Roche Inc., which makes the interferon drug. “I would like to hope I am cured forever and ever,” said. “I would like for them to have better drugs, but right now they don’t. It’s the best tool we have.” Cases in stateHepatitis C has become one of Washington state’s top health concerns, with an estimated 110,000 people infected statewide. About 40,000 cases have been reported, according to the state Health Department, but the disease is estimated to be

significantly under-reported because two out of three people don’t know they’re infected. Join the Reader NetworkDo you want The Olympian to keep you in mind when we canvass the community for opinions?Click here and sign up with our Reader Network to offer your view. Find a Job Keywords: Location: Site Index News South Sound Northwest National News Lacey Today Business Education Elections State Government State Workers Legislature Environment Traffic Weather RSS Feeds Capitol

Chat Corrections Blogs Adam 's Blog Chester 's Blog Hot Flashes Idol Chat Sports Blog Announcements Obituaries Deaths Births Marriages Divorces Occasions Crime Traffic Lottery Reader Network Submission Forms Sports Sports Main Outdoors High School Sports College Sports Motor Sports gail <gaila@...> wrote: All my doctors have said tylenol.Everything hurts the liver but I guess tylenol hurts it less. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of GoolsbySent: May 22, 2007 8:41 AMHepatitis CSupportGroupForDummies Subject: questionHI I know I

haven't been much of a support partner but for some reason reading the mails started getting me down the fact that I didnt clear at the time my Doc thought I should was a bit of a blowbut i went down from 5000+ to 341 lets see what the next weeks bring but what I need to know is what do you folks think the best pain reliever isfor folks trying to protect their liver Thanks Sucker-punch spam with award-winning protection.Try the free Beta. Tim Parsons knoxville,tn 37931 865-588-2465 x107 work

www.knoxville1.com

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

May 23, 2007

Hey Tim! Thanks.. That is probably one of the most accurate and unbiased pieces I've seen. 99% of almost a thousand remained clear for four years and longer? Man that's alot. Are we just the unlucky bunch that can't say the same?? I'm not being negative, though it may sound so. I wonder... is that 99% of a random group, that was on tx for a year, or a select group,? I must be reading the stats wrong, I think. 99% of all patients, that tested HEP C Free, after one year, stayed that that way for four and more years? If that is true, that is (no pun) a real shot in the ARM!!! To know we could just do our best to deal with tx, for 12 months, even though thats a long time to wanna' be miserable... the four years and more at 99% success rate seems like it may be worth a shot! (sorry...) DelHillbilly Tim <knoxweb1@...> wrote: Cure found for some hepatitis C patientsBob Lamendola South Florida Sun-sentinel FORT LAUDERDALE, Fla. — Doctors and researchers rarely use the word “cure,” but they came as close as they ever do Monday when describing a combination of two drugs used to treat the liver disease hepatitis C. Among some patients, the drug cocktail of pegylated interferon and ribavirin completely kills the virus that causes hepatitis C and keeps it from coming back, doctors said in reporting their new study in Washington, D.C. The catch is, the drug combo does not work in about half of people with hepatitis C, and researchers are not sure why it works so completely for some but fails in others. “I call

it a cure. It doesn’t work for everyone but it has the ability to eradicate this virus, and this study is the best evidence to prove that,” said Dr. Eugene Schiff, director of the center for liver diseases at the University of Miami medical school, who was not involved in the study. The findings of the six-nation study, headed in the U.S. by Virginia Commonwealth University, solidifies the drug combination as the top treatment for the virus, which has infected about 4 million Americans. The virus spreads only via direct contact with infected blood. Most cases stem from blood transfusions before 1992 and intravenous needle use, but the virus also can occasionally be passed through sex. Long-term infection of hepatitis C has caused a leap in the incidence of liver cancer and liver damage, and is the leading cause of people needing liver transplants. The virus kills more people than HIV/AIDS. 997 patients The

new study followed 997 patients who had cleared the virus from their systems while taking the drug combo for almost a year. Of those, 99 percent remained virus-free an average of four years after they stopped taking the drugs, and as long as seven years later. That kind of success is not seen with other viruses, such as hepatitis B and HIV, which hide in the body and come back strong if the patient stops taking the medicine, said Dr. Vierling, a Baylor College professor and past president of the American Association for the Study of Liver Diseases. “This is a virus we can beat,” said Vierling, who was not associated with the study. But the drug combo only defeats the virus in about 40 percent of those infected with the most common strain of hepatitis C, which accounts for two-thirds of cases. Blacks and those with serious cirrhosis of the liver are less likely than average to do well. The drugs succeed about 80 percent of the time

against other strains of the virus. The side effects from the drugs can be serious. Most people experience little more than flulike symptoms, but small numbers report hair loss, depression, moodiness, sharp anemia, and in rare cases, heart and kidney failure, suicidal thoughts and even death. “People don’t like to take it if they don’t have to,” Schiff said. Virus-free Plantation, Fla., patient Andi , who founded the nationwide advocacy group Hep-C Alert, said she has been virus-free since taking the combo in 2004, with only headaches as a side effect. The group is funded in part by Roche Inc., which makes the interferon drug. “I would like to hope I am cured forever and ever,” said. “I would like for them to have better drugs, but right now they don’t. It’s the best tool we have.” Cases in stateHepatitis C has become one of Washington state’s top health concerns, with an estimated 110,000 people infected statewide. About 40,000 cases have been reported, according to the state Health Department, but the disease is estimated to be significantly under-reported because two out of three people don’t know they’re infected. Join the Reader NetworkDo you want The Olympian to keep you in mind when we canvass the community for opinions?Click here and sign up with our Reader Network to offer your view. Find a Job Keywords: Location: Site Index News South Sound Northwest National News Lacey Today Business Education Elections State Government State Workers Legislature Environment Traffic Weather RSS Feeds Capitol Chat Corrections Blogs Adam 's Blog Chester 's Blog Hot Flashes Idol Chat Sports Blog Announcements Obituaries Deaths Births Marriages Divorces Occasions Crime Traffic Lottery Reader Network Submission Forms Sports Sports Main Outdoors High School Sports College Sports Motor Sports gail

<gaila@....ca> wrote: All my doctors have said tylenol.Everything hurts the liver but I guess tylenol hurts it less. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of GoolsbySent: May 22, 2007 8:41 AMHepatitis CSupportGroupForDummies Subject:

questionHI I know I haven't been much of a support partner but for some reason reading the mails started getting me down the fact that I didnt clear at the time my Doc thought I should was a bit of a blowbut i went down from 5000+ to 341 lets see what the next weeks bring but what I need to know is what do you folks think the best pain reliever isfor folks trying to protect their liver Thanks Sucker-punch spam with award-winning protection.Try the free Beta. Tim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

Need a vacation? Get great deals to amazing places on Travel.

May 2, 2008

It cures constipation.

[ ] Cure?

Hello i am new to the group and would like to know if anyone has cured any uncureable disease ie: lyme, herpes, hep a,b,c?