just feel bad.what can I do to feel better

[Guest guest]

Hi. I'm Pam and have RA now for 3yrs, so far the only meds that work

for me are pred and vioxx. I have tried methotrexate but after 4weeks

I end up with some infection some where so that is out. My doctor

can't get beyond that drug she said if I can't take it I won't be

able to take the others. Anybody have any ideas. I'm 42 and live in

south Texas and don't have anyone to talk to that can understand what

I'm living with.

[Guest guest]

Hi Pam,

I'm Barbara. I'm 40 and have had RA for over 28 years. The only med that has ever done anything for me has been methotrexate. I was on it for over a year when I came down with a bacterial infection that only appears on my thighs! This has been going on since January. They have since taken me off the methotrexate, saying that it has suppressed my immune system to much so now I'm sussecpible(sp?) to infections. I have since been to the rheumatologist 2x a month, the dermatologist & a hematologist and none of them can figure out whats going on. The last time I was at the rheumies they suggested that I go on plaquenil when I go back - tonight as a matter of fact - because its a much milder med. I have severe RA, I was supposed to start Kineret! I have already failed so many meds Enbrel included. When I see the rheumy tonight I hope to get some answers. Have you tried plaquenil? Maybe you can ask your dr about it. Let me know how it turs out.

Good Luck & God Bless, Barbara

mapgarland <mapgarland@...> wrote: Hi. I'm Pam and have RA now for 3yrs, so far the only meds that work for me are pred and vioxx. I have tried methotrexate but after 4weeks I end up with some infection some where so that is out. My doctor can't get beyond that drug she said if I can't take it I won't be able to take the others. Anybody have any ideas. I'm 42 and live in south Texas and don't have anyone to talk to that can understand what I'm living with.

[Guest guest]

Hi Pam

have you considered the infection

connection treatment to your ra…the book is fascinating…

http://www.ra-infection-connection.com/

http://roadback.org/ is the website of the

doctor who pioneered this approach

I hope these two sites can offer you some

invaluable information as those who have taken this approach have historically

gotten ill on some of the traditional therapies…

there is a lot of information at the sites…

I am sorry that the meds are not working

for you…

I was offered plaquenil or doxycyline….i

chose the antibiotic protocol after tonnnnnnnnnns of research

Hope this helps if only for the

information aspect historically of how RA has been treated over the years..

Regards

sam

-----Original Message-----

From: Barbara Kinney

[mailto:bjjt_us@...]

Sent: Monday, April 15, 2002 11:03

AM

To:

Rheumatoid Arthritis

Subject: Re:

just feel bad.what can I do to feel better

Hi

Pam,

I'm

Barbara. I'm 40 and have had RA for over 28 years. The only med that has ever

done anything for me has been methotrexate. I was on it for over a year when I

came down with a bacterial infection that only appears on my thighs! This has

been going on since January. They have since taken me off the methotrexate,

saying that it has suppressed my immune system to much so now I'm

sussecpible(sp?) to infections. I have since been to the rheumatologist 2x a

month, the dermatologist & a hematologist and none of them can figure out

whats going on. The last time I was at the rheumies they suggested that I go on

plaquenil when I go back - tonight as a matter of fact - because its a much

milder med. I have severe RA, I was supposed to start Kineret! I have already

failed so many meds Enbrel included. When I see the rheumy tonight I hope to

get some answers. Have you tried plaquenil? Maybe you can ask your dr about it.

Let me know how it turs out.

Good

Luck & God Bless, Barbara

mapgarland <mapgarland@...> wrote:

Hi. I'm Pam and have RA now for 3yrs, so far the only

meds that work

for me are pred and vioxx. I have tried

methotrexate but after 4weeks

I end up with some infection some where so that is

out. My doctor

can't get beyond that drug she said if I can't

take it I won't be

able to take the others. Anybody have any ideas.

I'm 42 and live in

south Texas and don't have anyone to talk to that

can understand what

I'm living with.

Your use of

is subject to the

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Tax Center -

online filing with TurboTax

[Guest guest]

--- Barbara Kinney <bjjt_us@...> wrote:

>

> Hi Pam,

> I'm Barbara. I'm 40 and have had RA for over 28

> years. The only med that has ever done anything for

> me has been methotrexate. I was on it for over a

> year when I came down with a bacterial infection

> that only appears on my thighs! This has been going

> on since January. They have since taken me off the

> methotrexate, saying that it has suppressed my

> immune system to much so now I'm sussecpible(sp?) to

> infections. I have since been to the rheumatologist

> 2x a month, the dermatologist & a hematologist and

> none of them can figure out whats going on. The last

> time I was at the rheumies they suggested that I go

> on plaquenil when I go back - tonight as a matter of

> fact - because its a much milder med. I have severe

> RA, I was supposed to start Kineret! I have already

> failed so many meds Enbrel included. When I see the

> rheumy tonight I hope to get some answers. Have you

> tried plaquenil? Maybe you can ask your dr about it.

> Let me know how it turs out.

> Good Luck & God Bless, Barbara

> mapgarland <mapgarland@...> wrote: Hi. I'm

> Pam and have RA now for 3yrs, so far the only meds

> that work

> for me are pred and vioxx. I have tried methotrexate

> but after 4weeks

> I end up with some infection some where so that is

> out. My doctor

> can't get beyond that drug she said if I can't take

> it I won't be

> able to take the others. Anybody have any ideas. I'm

> 42 and live in

> south Texas and don't have anyone to talk to that

> can understand what

> I'm living with.

>

> Barbara,Thanks for your reply, so for you are the

only person to respond, I guess I was hoping for more

of surport group than this is turning out to be.But

just knowing you are out there with me helps. I copied

the info on Kineret to take with me on my next DOC

vist HA! HA!. I don't mean to sound like a dummy,but

how do you use this chat room.

Thanks Pam.

>

>

[Guest guest]

Hi Pam,

I hope this finds you feeling better! I'm sorry I'm the only one that responded to you, maybe its just that the weather has been so great that everyone is out enjoying it! Have you seen the dr yet? Well as it goes for me the heomatologist didn't find out the cause of the infection either. I did see my rheumy again & he didn't give me Kineret yet but he did say it wasn't because of the meds. so he let me have the methotrexate again, yippee! I go back in a month. He did mention that it could be hormonal & that I should have it checked out. So now I have to see the gyn for hormonal blood workup. Thank God I waited to see her, I was supposed to go in Jan. but since I was seeing a different dr each week I put it off, now I'm glad I did. So I go to the gyn next month also, she already sent me a prescription for the blood work so she'll have it when I get there. At least someone is thinking.

Now about the chats. I don't think your a dummy at all. I also have no clue how to use them so I tend to stay away & just use the email system.

Good Luck & God Bless, Barbara

pamela garland <mapgarland@...> wrote: --- Barbara Kinney wrote:> > Hi Pam,> I'm Barbara. I'm 40 and have had RA for over 28> years. The only med that has ever done anything for> me has been methotrexate. I was on it for over a> year when I came down with a bacterial infection> that only appears on my thighs! This has been going> on since January. They have since taken me off the> methotrexate, saying that it has suppressed my> immune system to much so now I'm sussecpible(sp?) to> infections. I have since been to the rheumatologist> 2x a month, the dermatologist & a hematologist and> none of them can figure out whats going on. The last> time I was at the rheumies they suggested that I go> on plaquenil when I go back - tonight as a matter of> fact - because its a much milder med. I have severe> RA, I was supposed to start Kineret! I have already> failed so many meds Enbrel included. When I see the> rheumy tonight I hope to get some answers. Have you> tried plaquenil? Maybe you can ask your dr about it.> Let me know how it turs out.> Good Luck & God Bless, Barbara > mapgarland wrote: Hi. I'm> Pam and have RA now for 3yrs, so far the only meds> that work > for me are pred and vioxx. I have tried methotrexate> but after 4weeks > I end up with some infection some where so that is> out. My doctor > can't get beyond that drug she said if I can't take> it I won't be > able to take the others. Anybody have any ideas. I'm> 42 and live in > south Texas and don't have anyone to talk to that> can understand what > I'm living with. > > Barbara,Thanks for your reply, so for you are theonly person to respond, I guess I was hoping for moreof surport group than this is turning out to be.Butjust knowing you are out there with me helps. I copiedthe info on Kineret to take with me on my next DOCvist HA! HA!. I don't mean to sound like a dummy,buthow do you use this chat room.Thanks Pam. > >

[Guest guest]

Hi Pam,

I was unexpectedly out of town due to a funeral. My email was full so I

believe the message you sent may not have gotten to me. Could you send it

again? (you can send it to my personal address if you don't want to send it

to the list again).

Take care,

Barbara,Thanks for your reply, so for you are the

>only person to respond, I guess I was hoping for more

>of surport group than this is turning out to be.But

>just knowing you are out there with me helps. I copied

>the info on Kineret to take with me on my next DOC

>vist HA! HA!. I don't mean to sound like a dummy,but

>how do you use this chat room.

>Thanks Pam.

> >

> >