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Esther,

Thank you for replying! It is good to hear from you! How are ya doing?

Anyway, I thought I had heard something like that about losing your

disability if you get married. Bcs they count the spouses income as yours

even if you don't use any of it. I have a friend in Canada whose husband is

on disability. She went back to work and they deducted money from " his "

disability check. So even though the wife is working, they aren't getting any

more money than they were before with just her husbands disability check. It

really stinks! She works bcs she wants to and loves it, but it isn't to help

add extra money to the household bcs they still get the same before she was

working.

I swear, you can't get ahead no matter how hard you try. They b**** and

complain about people being on welfare, but they don't give them a chance to

get off. It is no wonder some people stay on it rather than work. And if you

are on disability, you are even more screwed (excuse my language there,

couldn't think of another word). Not only do you live a life of pain and

sickness, but you have to live it poor and for a lot of people, you hope and

pray you have enough for a roof over your head and your medications. This

country is really messed up! Maybe this will make me mad enough to start a

campaign and start writing letters to all the congressman. Arg!!!!

I guess that is also a lot of the reason why Ryder and I have just stayed

boyfriend and girlfriend. It's bad enough I have been cheated out of a lot of

things in life. Like having my own children, or just being able to get to the

bathroom on my own, but now I am not even allowed to get married?!?!? I think

I will go grab a pillow and do some screaming!

~ =)

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Hi ,

Yeah......life just isn't fair sometimes! Especially life with a

disability!

I am doing okay I guess. I can sit up practically all day now. My

doctors

still want me to have home therapy. I have a male physical therapist come

here 3 days a week and I also have an occupational therapist who comes

3 times a week. The doctor ordered me a prone-stander. It allows me to

stand.......all strapped in..........this is to help my bones to become

stronger.

When one sits all the time, the bones become very thin. I love standing in

it but can only do it for 15 mins. with the therapist. He won't let Mom put

me in it by herself yet. It has a tray on it so when I can stand for an

hour

or so, I can have my water (a) on it hehehee. I also have a mental

health nurse who comes to the house twice a week to help work with me on

eating " fat " . I still have a hard time eating anything that contains

fat..........Mom

wants you to know that I do not take after her hehehee.......I eat non-fat

yogurt (like

ice cream) but she says she wants the real thing LOL.

I still am not back at work yet but will probably get the " ok " in a week or

so. I

am just going to start working 3 days a week instead of the 5.

My bladder is still paralyzed :( but Mom is doing the straight-cathing like

a pro.

Wish you well........have a great night/day! :)

~ Esther ~

----- Original Message -----

From: <Rysu19@...>

< egroups>

Sent: Wednesday, May 24, 2000 12:02 AM

Subject: Re: [ ] SSI

> Esther,

>

> Thank you for replying! It is good to hear from you! How are ya doing?

> Anyway, I thought I had heard something like that about losing your

> disability if you get married. Bcs they count the spouses income as yours

> even if you don't use any of it. I have a friend in Canada whose husband

is

> on disability. She went back to work and they deducted money from " his "

> disability check. So even though the wife is working, they aren't getting

any

> more money than they were before with just her husbands disability check.

It

> really stinks! She works bcs she wants to and loves it, but it isn't to

help

> add extra money to the household bcs they still get the same before she

was

> working.

>

> I swear, you can't get ahead no matter how hard you try. They b**** and

> complain about people being on welfare, but they don't give them a chance

to

> get off. It is no wonder some people stay on it rather than work. And if

you

> are on disability, you are even more screwed (excuse my language there,

> couldn't think of another word). Not only do you live a life of pain and

> sickness, but you have to live it poor and for a lot of people, you hope

and

> pray you have enough for a roof over your head and your medications. This

> country is really messed up! Maybe this will make me mad enough to start a

> campaign and start writing letters to all the congressman. Arg!!!!

>

> I guess that is also a lot of the reason why Ryder and I have just stayed

> boyfriend and girlfriend. It's bad enough I have been cheated out of a lot

of

> things in life. Like having my own children, or just being able to get to

the

> bathroom on my own, but now I am not even allowed to get married?!?!? I

think

> I will go grab a pillow and do some screaming!

>

> ~ =)

>

> ------------------------------------------------------------------------

> Failed tests, classes skipped, forgotten locker combinations.

> Remember the good 'ol days

> 1/4053/6/_/478567/_/959140931/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

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Guest guest

There is no way you can loose your SS or SSDI check if you marry, I was on

SSDI before I married and I didn't loose mine, only SSI counts when you

marry. Please call your SS office in your State to find out. I live in

Massachusetts and the laws are tough here.

Verna

----- Original Message -----

From: Esther & Carol <cheerios@...>

< egroups>

Sent: Tuesday, May 23, 2000 11:47 PM

Subject: [ ] SSI

> I receive SSI and they will only allow me to earn $85.00 a month......yep,

a

> meesley

> $85.00 per month. After I make the $85.00 they take half of my pay and

> reduce

> my SSI payments. I cannot afford to lose SSI because I need the Medicaid

> which

> goes along with it. Each month I have to send in a copy of my paystubs

to

> SS

> and each month, according to how much I earn in a month, my SSI check is

> different. Talk about not giving a person an incentive to work!!! I love

> my job

> and working with the kids but I know that I would never be able to work

full

> time

> anywhere..........actually, I physically couldn't do it anyway. Medicaid

is

> great

> and I can't afford to lose it!

>

> About the marriage thing........my cousin's grandmother called SS and was

> told

> that if she married her boyfriend she would lose her disability check.

So,

> they

> are just going to remain boyfriend/girlfriend.

>

> ~Esther~

>

>

> ------------------------------------------------------------------------

> Sign up for the free zZounds.com newsletter for the latest and

> greatest music gear savings, musician tips and hot contests.

> 1/3738/6/_/478567/_/959140187/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

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Guest guest

Yes, I think my cousin's grandmother would have lost her widow's

benefits

if she were to marry........anyway, she is forced to remain single :(

----- Original Message -----

From: Verna <vabparrots@...>

< egroups>

Sent: Wednesday, May 24, 2000 10:02 AM

Subject: Re: [ ] SSI

> There is no way you can loose your SS or SSDI check if you marry, I was on

> SSDI before I married and I didn't loose mine, only SSI counts when you

> marry. Please call your SS office in your State to find out. I live in

> Massachusetts and the laws are tough here.

> Verna

>

>

>

> ----- Original Message -----

> From: Esther & Carol <cheerios@...>

> < egroups>

> Sent: Tuesday, May 23, 2000 11:47 PM

> Subject: [ ] SSI

>

>

> > I receive SSI and they will only allow me to earn $85.00 a

month......yep,

> a

> > meesley

> > $85.00 per month. After I make the $85.00 they take half of my pay and

> > reduce

> > my SSI payments. I cannot afford to lose SSI because I need the

Medicaid

> > which

> > goes along with it. Each month I have to send in a copy of my

paystubs

> to

> > SS

> > and each month, according to how much I earn in a month, my SSI check is

> > different. Talk about not giving a person an incentive to work!!! I

love

> > my job

> > and working with the kids but I know that I would never be able to work

> full

> > time

> > anywhere..........actually, I physically couldn't do it anyway.

Medicaid

> is

> > great

> > and I can't afford to lose it!

> >

> > About the marriage thing........my cousin's grandmother called SS and

was

> > told

> > that if she married her boyfriend she would lose her disability check.

> So,

> > they

> > are just going to remain boyfriend/girlfriend.

> >

> > ~Esther~

> >

> >

> > ------------------------------------------------------------------------

> > Sign up for the free zZounds.com newsletter for the latest and

> > greatest music gear savings, musician tips and hot contests.

> > 1/3738/6/_/478567/_/959140187/

> > ------------------------------------------------------------------------

> >

> > URL to change your membership options:

> /group/

> > RA-support website: http://www.rasupport.webprovider.com/

> > Our chat room: www.delphi.com/RheumatoidArth1/start

>

>

> ------------------------------------------------------------------------

> Failed tests, classes skipped, forgotten locker combinations.

> Remember the good 'ol days

> 1/4053/6/_/478567/_/959176331/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

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  • 2 years later...

i was speaking to a woman the other night that also has RA and her DR

said not to work or she will be in a whell chair sooner.. so she

applied for SSI and was unable to get it..

my mother who has lupus also applied years ago, got a lawyer, and got

her dr. to right a letter saying its in her best interets not to

work.. but they refused her too..

anyone else have this problem?

these are chronic illnesses why can we not obtain this?

why can an alcoholic get money for their " illness " but we all have to

jump threw hoops?

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GET A LAWYER WHO DEALS ONLY WITH SSI CASES.....

NORMA

----- Original Message -----

From: Lollipop girl

Rheumatoid Arthritis

Sent: Sunday, November 17, 2002 11:56 AM

Subject: SSI

i was speaking to a woman the other night that also has RA and her DR said not to work or she will be in a whell chair sooner.. so she applied for SSI and was unable to get it.. my mother who has lupus also applied years ago, got a lawyer, and got her dr. to right a letter saying its in her best interets not to work.. but they refused her too..anyone else have this problem? these are chronic illnesses why can we not obtain this?why can an alcoholic get money for their "illness" but we all have to jump threw hoops?

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