Goodbye

[Guest guest]

Jen, I'm sad to see you go, but I can understand since is a grad

and all....lol!! Thanks for all your help during the begining of our

treatment! You were a big supporter for me! I'm so glad that 's

results are great and she's a grad!! I can't wait for that day! Then

we'll have a round head just like your !! ;o)

I wish you all the best as you watch grow. I'm sure she'll look

back at her pictures in her band and giggle!!

Thanks for everything! You're a wonderful Plagio support mommy and

always will be!!

Lacy

Waydon's mom 8.5 months

3 weeks DOCband

>

> I just wanted to post to wish everyone the very best and Thank

everyone who helped me (and ) through everything.

>

> wore her Hanger Band for 11 weeks and saw great correction.

You can see her before and after pics under Before and After/Hanger

Band/ V. We loved our Orthotist and had a wonderful experience.

Yes, it was difficult at times... people staring, learning to

adjust, waiting (impatiently) to see the improvemnt, etc. But, it was

well worth it and we couldn't be happier with our decision.

>

> For those of you who are just starting out.... I wish you luck in

attaining a diagnosis, prescriptions, and insurance coverage. Fight

for you little ones! You will be so happy you did.

>

> For those doing repo, I wish you luck and will keep my fingers

crossed for you as you battle with those squirmy little ones. LOL.

Keep up the great work!

>

> For those who will be banding, or whose babies are already banded,

you are doing a wonderful thing for your baby, remember that! Be

PROUD of that! Kiss those sweet little heads... they will be round

before you know it!

>

> For those who have band or repo graduates, congrats! You are great

parents for being proactive, even when peds and sometimes even

specialists are NOT! Hopefully things will get easier in that respect

in the future.

>

> Thank you so much for all those people who helped us through

everything. Keep getting the word out about plagio as much as possible!

>

> I am leaving the board but would be more than happy to share my

experience and any info if anyone would to email me personally at

ronandjenvelez@p...

>

> Jen

> (11 mo), tort resolved, Hanger Band Grad

> (3.5 years)

[Guest guest]

Jen, I'm sad to see you go, but I can understand since is a grad

and all....lol!! Thanks for all your help during the begining of our

treatment! You were a big supporter for me! I'm so glad that 's

results are great and she's a grad!! I can't wait for that day! Then

we'll have a round head just like your !! ;o)

I wish you all the best as you watch grow. I'm sure she'll look

back at her pictures in her band and giggle!!

Thanks for everything! You're a wonderful Plagio support mommy and

always will be!!

Lacy

Waydon's mom 8.5 months

3 weeks DOCband

>

> I just wanted to post to wish everyone the very best and Thank

everyone who helped me (and ) through everything.

>

> wore her Hanger Band for 11 weeks and saw great correction.

You can see her before and after pics under Before and After/Hanger

Band/ V. We loved our Orthotist and had a wonderful experience.

Yes, it was difficult at times... people staring, learning to

adjust, waiting (impatiently) to see the improvemnt, etc. But, it was

well worth it and we couldn't be happier with our decision.

>

> For those of you who are just starting out.... I wish you luck in

attaining a diagnosis, prescriptions, and insurance coverage. Fight

for you little ones! You will be so happy you did.

>

> For those doing repo, I wish you luck and will keep my fingers

crossed for you as you battle with those squirmy little ones. LOL.

Keep up the great work!

>

> For those who will be banding, or whose babies are already banded,

you are doing a wonderful thing for your baby, remember that! Be

PROUD of that! Kiss those sweet little heads... they will be round

before you know it!

>

> For those who have band or repo graduates, congrats! You are great

parents for being proactive, even when peds and sometimes even

specialists are NOT! Hopefully things will get easier in that respect

in the future.

>

> Thank you so much for all those people who helped us through

everything. Keep getting the word out about plagio as much as possible!

>

> I am leaving the board but would be more than happy to share my

experience and any info if anyone would to email me personally at

ronandjenvelez@p...

>

> Jen

> (11 mo), tort resolved, Hanger Band Grad

> (3.5 years)

[Guest guest]

Hi there

I've enjoyed hearing about 's progress and really glad that you

have had the results you have wanted. Enjoy that lovely round

head!!!!

Hannah (mum to Lucia, London, UK)

Cranio grad

> Jen, I'm sad to see you go, but I can understand since is a

grad

> and all....lol!! Thanks for all your help during the begining of

our

> treatment! You were a big supporter for me! I'm so glad that

's

> results are great and she's a grad!! I can't wait for that day!

Then

> we'll have a round head just like your !! ;o)

> I wish you all the best as you watch grow. I'm sure she'll

look

> back at her pictures in her band and giggle!!

> Thanks for everything! You're a wonderful Plagio support mommy and

> always will be!!

>

> Lacy

> Waydon's mom 8.5 months

> 3 weeks DOCband

>

> --- In Plagiocephaly , " Jen " <ronandjenvelez@p...>

wrote:

> >

> > I just wanted to post to wish everyone the very best and Thank

> everyone who helped me (and ) through everything.

> >

> > wore her Hanger Band for 11 weeks and saw great

correction.

> You can see her before and after pics under Before and After/Hanger

> Band/ V. We loved our Orthotist and had a wonderful

experience.

> Yes, it was difficult at times... people staring, learning

to

> adjust, waiting (impatiently) to see the improvemnt, etc. But, it

was

> well worth it and we couldn't be happier with our decision.

> >

> > For those of you who are just starting out.... I wish you luck in

> attaining a diagnosis, prescriptions, and insurance coverage.

Fight

> for you little ones! You will be so happy you did.

> >

> > For those doing repo, I wish you luck and will keep my fingers

> crossed for you as you battle with those squirmy little ones.

LOL.

> Keep up the great work!

> >

> > For those who will be banding, or whose babies are already

banded,

> you are doing a wonderful thing for your baby, remember that! Be

> PROUD of that! Kiss those sweet little heads... they will be round

> before you know it!

> >

> > For those who have band or repo graduates, congrats! You are

great

> parents for being proactive, even when peds and sometimes even

> specialists are NOT! Hopefully things will get easier in that

respect

> in the future.

> >

> > Thank you so much for all those people who helped us through

> everything. Keep getting the word out about plagio as much as

possible!

> >

> > I am leaving the board but would be more than happy to share my

> experience and any info if anyone would to email me personally at

> ronandjenvelez@p...

> >

> > Jen

> > (11 mo), tort resolved, Hanger Band Grad

> > (3.5 years)

[Guest guest]

Hi there

I've enjoyed hearing about 's progress and really glad that you

have had the results you have wanted. Enjoy that lovely round

head!!!!

Hannah (mum to Lucia, London, UK)

Cranio grad

> Jen, I'm sad to see you go, but I can understand since is a

grad

> and all....lol!! Thanks for all your help during the begining of

our

> treatment! You were a big supporter for me! I'm so glad that

's

> results are great and she's a grad!! I can't wait for that day!

Then

> we'll have a round head just like your !! ;o)

> I wish you all the best as you watch grow. I'm sure she'll

look

> back at her pictures in her band and giggle!!

> Thanks for everything! You're a wonderful Plagio support mommy and

> always will be!!

>

> Lacy

> Waydon's mom 8.5 months

> 3 weeks DOCband

>

> --- In Plagiocephaly , " Jen " <ronandjenvelez@p...>

wrote:

> >

> > I just wanted to post to wish everyone the very best and Thank

> everyone who helped me (and ) through everything.

> >

> > wore her Hanger Band for 11 weeks and saw great

correction.

> You can see her before and after pics under Before and After/Hanger

> Band/ V. We loved our Orthotist and had a wonderful

experience.

> Yes, it was difficult at times... people staring, learning

to

> adjust, waiting (impatiently) to see the improvemnt, etc. But, it

was

> well worth it and we couldn't be happier with our decision.

> >

> > For those of you who are just starting out.... I wish you luck in

> attaining a diagnosis, prescriptions, and insurance coverage.

Fight

> for you little ones! You will be so happy you did.

> >

> > For those doing repo, I wish you luck and will keep my fingers

> crossed for you as you battle with those squirmy little ones.

LOL.

> Keep up the great work!

> >

> > For those who will be banding, or whose babies are already

banded,

> you are doing a wonderful thing for your baby, remember that! Be

> PROUD of that! Kiss those sweet little heads... they will be round

> before you know it!

> >

> > For those who have band or repo graduates, congrats! You are

great

> parents for being proactive, even when peds and sometimes even

> specialists are NOT! Hopefully things will get easier in that

respect

> in the future.

> >

> > Thank you so much for all those people who helped us through

> everything. Keep getting the word out about plagio as much as

possible!

> >

> > I am leaving the board but would be more than happy to share my

> experience and any info if anyone would to email me personally at

> ronandjenvelez@p...

> >

> > Jen

> > (11 mo), tort resolved, Hanger Band Grad

> > (3.5 years)

[Guest guest]

I am leaving! I have had enough. Good luck and good health to all!

[Guest guest]

Me Too_judy@..._ (mailto:Toojudy@...)

In a message dated 8/4/2009 10:16:33 P.M. Central Daylight Time,

zoeyar8@... writes:

I am so sorry I really never post on her more just read everyonce in aw

hile. I have been in your shoes please email me off group and you and me can

support eachother, it is hard for me too respond to post off this group but

we can be email buddys _zoeyar8@..._ (mailto:zoeyar8@...)

(((Hug))))

Sent on the Now Network from my Sprint® BlackBerry

-----Original Message-----

From: " khaoskat " <_khaoskat@..._ (mailto:khaoskat@...) >

Date: Sun, 02 Aug 2009 16:06:18

<_ childrensaprachi_

(mailto: ) >

Subject: [childrensapraxianeSubject: [c

I have posted twice on this group asking for assistance or advice and no

one has bothered to respond.

I am a frustrated parent with a child who has severe issues with

communicating and has started agressive behavior to defend himself. But I have

no

support and it looks like other parents in similar situations are unwilling

to assist or offer advice.

[Non-text portions of this message have been removed]

[Guest guest]

HI I hopeyou gethelp as I to have questions I need help with good luck to you

From: khaoskat <khaoskat@...>

Subject: [ ] Goodbye

Date: Sunday, August 2, 2009, 12:06 PM

 

I have posted twice on this group asking for assistance or advice and no one has

bothered to respond.

I am a frustrated parent with a child who has severe issues with communicating

and has started agressive behavior to defend himself. But I have no support and

it looks like other parents in similar situations are unwilling to assist or

offer advice.

[Guest guest]

Hi. I'm so sorry you want to leave. I wish I could help. I, too, have a young

child with severe communication problems and am here to learn and hopefully gain

support from the other parents. I believe if someone can help, they will.

Also, I find that I can search the messages and sometimes find an answer to one

of my questions. I hope you change your mind. God bless. Debbie

[Guest guest]

You know, I'm not sure what your post was, but often times we all have our

favorite topics to respond to because we're more knowledgeable in those areas

and we don't want to answer somethign we may not know about. Some are there to

cheerlead just about anything. I tend to stick with my areas of expertese as

well, and ignore much of the rest or the touchy feely stff as I do not ahve time

and others are better at it.

So what can i tell you, we all do our best.  Other times we may just be real

busy with our special needs children therapies and researcha nd doctors

appointments so weeks may go by and we don't ahve time to read the list or read

only the topics we've posted on to see if there are any replies. Lidsats have

different fucntions at different times and we're all here to learn and help each

other. if you do not believe this, it is you and your child who will not stand

to benefit from any list.

And some may  even be on vacation as it's summer. I would not have this attitude

if I were you because it is in your child's best interest for you to be to be

open minded and give other parents the benefit of the doubt if you want to

receive advise, suggestions etc.  So given that we're all here for the same

reasons, if some posts fall through the cracks, just re post--two or 3 different

times--different ways, maybe it will help others notice it and see what

suggestions they might have.

As I said we are all very busy and many are on several different lists trying to

help our children and the " poor me " attitude is not helpful anywhere, not with

the doctors, not with the therapists, not with the insurance and not with the

school districts and certainly not when you're new on a list.  Later you might

be able to get away with it as people get to know you and offer a shoulder to

cry on once they recognize your posts, but in the beginning you need to be more

patient.

 We do the best we can to help each other, but many times are overwhelmed or

just don't get to do it for what ever reason.  Life is hard and you do not need

to make it any harder on your self by excluding yourself from a list you could

potentially learn from. Every resource is helpful when dealing with a disabled

child or any really importnat issue for that matter.

And if after being here for a while and trying to request help in a few ways and

you still can't get any advise--for waht ever reason--try a " PLEASE HELP " in the

subject line  --and that usually does it--there are always a few of us who no

matter how busy will take the time for something like that. 

So anyway, having been on many lists and sometimes feeling like I too was

ignored as a new commer and my question was either briefly answered or just not

really answered at all by any body, I realized that any list is a community and

some people know each other and are very active, newcommers have to be a little

more patient and not take things personally or they will never really get

anywhere.  You are here for your child, as we all are.

Good luck and you may want to try the approach I suggested if you really want

some suggestions from members of this list or any other for that matter..

really, being hypersensitive will not help at all and your child needs your help

very much...

All the best,

Elena

From: khaoskat <khaoskat@...>

Subject: [ ] Goodbye

Date: Sunday, August 2, 2009, 12:06 PM

I have posted twice on this group asking for assistance or advice and no one has

bothered to respond.

I am a frustrated parent with a child who has severe issues with communicating

and has started agressive behavior to defend himself.  But I have no support and

it looks like other parents in similar situations are unwilling to assist or

offer advice.

------------------------------------

[Guest guest]

What was your questions??

From: khaoskat <khaoskathotmail (DOT) com>

Subject: [childrensapraxiane t] Goodbye

@groups. com

Date: Sunday, August 2, 2009, 12:06 PM

I have posted twice on this group asking for assistance or advice and no one has

bothered to respond.

I am a frustrated parent with a child who has severe issues with communicating

and has started agressive behavior to defend himself.  But I have no support and

it looks like other parents in similar situations are unwilling to assist or

offer advice.

------------ --------- --------- ------

[Guest guest]

*OR* other parents here could very well be extremely busy and unable to

get to your emails for a response.

Not to make light of your situation, but EVERYONE HERE has a child with

severe issues communicating, and that is why we are all here.

I cannot speak for everyone, but only myself--- and personally speaking, I

don't only have ONE special needs child going through issues, but I have T

HREE special needs children with whom I deal with.

Add to that fact, I have 8 children altogether, I home school (year

round) and have therapy schedules for 3 kids that would make a grown man weak in

the knees to think about-- etc

you get the picture, I am sure.

I am saying this in a gentle tone-- and wishing that I was able to get here

more often to help you, because I hear your frustration and I UNDERSTAND

your frustration. All of us have been there at one time or another.

Please give us all a little grace, because we TRULY DO WANT TO HELP, but

sometimes are unable to give a list the attention that we need to give

our own situations at home. I've been here a while now and everyone really

does want to help.

My suggestion is to RE-post your question and we'll try our best to answer

what we can

Becky

In a message dated 8/4/2009 8:27:16 P.M. Eastern Daylight Time,

khaoskat@... writes:

I have posted twice on this group asking for assistance or advice and no

one has bothered to respond.

I am a frustrated parent with a child who has severe issues with

communicating and has started agressive behavior to defend himself. But I have

no

support and it looks like other parents in similar situations are unwilling

to assist or offer advice.

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd

=JulystepsfooterNO115)

[Guest guest]

Don't leave. I'm not sure why you've slipped through the cracks, but this forum

has provided me & others countless advice & ideas on how to proceed with your

child's treatment.

Tell us your story.

From:

[mailto: ] On Behalf Of khaoskat

Sent: Sunday, August 02, 2009 12:06 PM

Subject: [ ] Goodbye

I have posted twice on this group asking for assistance or advice and no one has

bothered to respond.

I am a frustrated parent with a child who has severe issues with communicating

and has started agressive behavior to defend himself. But I have no support and

it looks like other parents in similar situations are unwilling to assist or

offer advice.

-----------------------------------------

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If you received this transmission in error, please immediately

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[Guest guest]

Yes, blood serotonin level or plasma serotonin level. The serotonin made in

the brain is made separately from the blood serotonin, but both depend on

the body getting and transporting enough tryptophan (which crosses the blood

brain barrier correctly). Blood serotonin level can be a good indication of

whether the brain has enough serotonin, plus a level too low or too high is

indicative of a problem on its own, such as malabsorption and maldigestion.

I didn't know much about body chemistry when I asked that the test be done

for my daughter. I may have gotten lucky, but autistics' serotonin levels

are often too high or too low. Another highly informative test is an

extended blood amino acid test. A pediatrician can order these, even if

she/he has no experience with autism. A urinary check for exorphin peptides

helps. A simple home indication could be whether or not a child's stool

floats. If it does, fats are probably not getting fully digested: there may

be a GI problem.

Ah, the cost. I paid out of pocket. The blood tests (plus one for heavy

metals) came to $300+. If I can get an MD to state that my daughter falls

within the ASD range, I can get a tax deduction for the expenses.

On Tue, Aug 11, 2009 at 12:28 PM, <jennyjudy@...> wrote:

>

>

> Do they have a blood test for serotonin?

>

>

> In a message dated 8/11/2009 10:08:53 A.M. Central Daylight Time,

> tzebstearns@... <tzebstearns%40gmail.com> writes:

>

> Have you looked into DAN! suggestions, the book Autism: Effective

> Biomedical

> Treatments? The /Agin article in the Jul/Aug '09 Alternative

> Therapies

> in Health and Medicine?

>

> I had my speech-delayed daughter's blood tested for serotonin and amino

> acid

> levels; the test results completely changed the doctors' previous hearing

> diagnoses. She has a malabsorption/diagnoses. She has a mala

>

> On Sun, Aug 2, 2009 at 12:06 PM, khaoskat

<_khaoskat@...<_khaoskat%40hotmail.kha>_

>

> (mailto:khaoskat@... <khaoskat%40hotmail.com>) > wrote:

>

> >

> >

> > I have posted twice on this group asking for assistance or advice and no

> > one has bothered to respond.

> >

> > I am a frustrated parent with a child who has severe issues with

> > communicating and has started agressive behavior to defend himself. But I

> > have no support and it looks like other parents in similar situations are

> > unwilling to assist or offer advice.

> >

> >

> >

>

>