Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Just wondering if anyone is on Humira. My doctor just prescribed it for me. I have done three months on Enbrel with some improvement, but not enough for either of us. I'd be interested to hear anyone's experience with this new drug. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 > Just wondering if anyone is on Humira. My doctor just prescribed it for me. I > have done three months on Enbrel with some improvement, but not enough for > either of us. I'd be interested to hear anyone's experience with this new > drug. > > gloria Gloria, I am on Humira, too. I repost my previous post where I was asking news, myself, about the new drug. ------ I have had the first shot 2 days ago, and would like to know more about the treatment, its side effects and its efficacy. I live in Italy and seems I am the very first person to be treated with Humira (it is still experimental, here, and for many months, possibly 2 years, will be that way. I mean that the Abbot inc. sends my doses directly to the hospital and I must go there to recieve it. It is not on sale in apotecaries or pharmacies. Something of my RA story: I was diagnosed 4 years ago. Put under cortisone and metothrexate. Since the RA was very severe I was given many monthly infusions of cortisone, as well. In 2001 I was shifted to Remicade (it was experimental and our Health system allowed it only for 7 times, as a test). Remicade was very effective, but when off, I began again having heavy attacks (still taking cortisone and methotrexate). Eventaully, last Fall, Remicade was approved and I started for a new treatment (supposed to be everlasting and letting me stop the cortisone, in a due time). But after a week I had the first Remicade IV infusion, the next dose of methotrexate caused me a HUGE allergic reaction. So I was compelled to stop both (Remicade and meth.) After some months of nightmare, the doctors have proposed me the Humira. At this time I am willing to take EVERYTHING because the arthritis is so strong and I cannot live my daily life. But I would like to know more about that new drug. --------------- Sice then, I have had 3 shots. But not a true improvement, at the moment. Do you take also methotrextae? Please, let me know more Cecilia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hi Cecilia: I have just taken one shot of Humira - my next dose is tomorrow. It's hard to say how much improvement is happening. I think I feel better overall. I am also on methotrexate (7.5 mg) and prednisone (5 mg). My doctor is trying to wean me off of the prednisone, hopefully within the next few months. Let's keep in touch and see how it goes for both of us. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hi, I am about to start Humira as well. I was on Kineret then Enbrel. Neither one worked as well as we wanted them to work. I am trying to reduce my prednisone level from 30 mg/day and never seem to get lower than 25 mg/day before I start having problems. I am also on Methotrexate and Arava. I would be interested in keeping up with you on Humira since it is so new. Jocelyn Legergloriarex@... wrote: Hi Cecilia:I have just taken one shot of Humira - my next dose is tomorrow. It's hard to say how much improvement is happening. I think I feel better overall. I am also on methotrexate (7.5 mg) and prednisone (5 mg). My doctor is trying to wean me off of the prednisone, hopefully within the next few months. Let's keep in touch and see how it goes for both of us.gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi Lois: I've been on Humira since April. Things have definitely improved, although I still have my problem spots. I haven't noticed anything specific in terms of side effects from the drugs. But you mention some brain fog - I thought that was from being a working mother! I lost my ability to clearly articulate around the time my son was born. Luckily it will come back to me in important moments like crucial meetings, etc. It's just the day to day "will someone get me that thing from that place back there?" sort of stuff. BTW, I just read in the LA Times today that they are developing yet another biologic similar to Enbrel, Humira and Remicade. It's still in trials, but they think they might be able to give it orally. Wouldn't that be great not to have to stick yourself? gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Dear Tony- I hope you could explore other RD options. Its hard for us as patients when we have a doctor that doesnt get it, or is helpful. A good PCP is worth his weight in gold though. My RD treats me as though he were consulting with a fellow collegue. Respect. Also a great deal of compassion. He is working with me doing everything he can to help me, and just that alone helps. He is always on time, and always makes time for me. A stellar human being, and so on the cutting edge of everything. I with everyone could have a RD like mine. He is a GEM. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
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