Any Advice?

[Guest guest]

Hi Jenn,

Good Luck this week! It sounds like you will be busy. I'm glad to

hear that you were able to schedule the CT Scan - just for peace of

mind if nothing else. Like everyone has said, it is normal to be

scared right now. You'll do fine. If you would like to hear

another " good experience " story - I've got one. I was up and about

the very next day - no dizzyness, no problems at all once I was able

to remove that wrap from my head. I took it easy for the first week

and was back at work the next Monday. Just take it easy and take

advantage of your husband being there to help. Don't try to do too

much too soon.

You asked about questions you should ask your doctor?? You probably

already have these questions on your list ... but, I would ask about

keeping the ear dry, lifting your baby (has anyone mentioned that you

can't lift anything heavy for a while??) And ask about smoking. This

may be a good time to quit. I quit a couple of years ago and I used

the " pretend cigarette " that was talking about. It worked

great for me. I had to laugh when I read her description of the

inhaler - it was perfect! :-) I smoked for so long - well, about 20

years, stopping only when I was pregnant. I never thought I would be

able to quit. I used the inhaler for about 10 days and occasionally

craved cigarettes for a couple weeks after that. But I don't any

more. It was amazing. I honestly thought that I would think about

cigarettes every day for the rest of my life but the urge is totally

gone!

Good luck this week! Let us know how it goes tomorrow and what you

find out from your ENT. (I don't remember - do you know if he has

done many of this type of surgery?) Be brave - this surgery is easier

than having babies! haha!

> HI EVERYONE- AS YOU KNOW MY SURGERY IS ON THURSDAY, AND TOMORROW

I'M

> GETTING MY CAT-SCAN. TOMORROW I ALSO MEET WITH MY ENT- WHO IS DOING

> THE SURGERY, AND I GET TO ASK HIM ANY QUESTIONS I MAY HAVE. I HAVE

A

> FEW THAT I WANT TO ASK HIM, I WAS WONDERING IF ANYONE KNOWS OF SOME

> IMPORTANT QUEST. THAT I MAY HAVE MISSED- LET ME KNOW. THANKS.

[Guest guest]

Hi Rose,

First, I want to encourage you to read the " histories " on rheumatic.org.

Each of these histories from people with rheumatic disease, getting well

from using the AP, gave me hope and confidence that the antibiotic

approach would work for me.

I had been using only Naproxen, (Aleve) it's effectiveness was wearing

off. The head of rheumatology, at the teaching hospital here wanted me

on methotrexate, the chemotherapy drug. I refused it, and went on to

research treatments on my own. The rheumatic website struck a chord with

me, I returned to the rheum, doc, and he told me this treatment, the AP,

was useless. I stood my ground, and talked him into prescribing

doxycycline.

After a year on the AP, I felt I needed some support from a doctor who

believed in the AP. So I started seeing Dr. Whitman, in New Jersey.

After one year on Doxy, I started Minocycline in the morning and Doxy at

a night. I learned to expect some difficult months while on the therapy,

and indeed the first 16 months were hard. Last September, my blood work

began to show real improvement. Now a full 19 months into the AP and I

believe I am on the periphery of remission. I have about 5 minutes of

stiffness in the morning when I get up. The discomfort I have during the

day is a fraction of the pain from before. I have re-started my step

aerobics, I don't EVER need a nap mid-day. (I used to collapse by 3pm

every afternoon.)

The labs numbers have gotten the attention of the that rheun doc at the

University. he gave me his e-mail and asked me to keep him up to date.

I started my second round of clindamycin IV yesterday. My first was last

month and I feel that these have really propelled a recovery that was

progressing nicely - but, I am impatient!

I was interested in the recent post from someone who said she had gone

to her dermatologist,(or was it her GP?) and asked for minocycline for

an acne flare, and he gave it. I like that. Sometimes we have to take

things into our own hands.

It is conclusive that all the drugs used today for treatment of RA,

etc., like methotrexate, and enbrel and the other biologics, will not

heal rheumatic disease. Often, these drugs will mitigate the progression

(joint degeneration) of the disease. That is why they are called DMARDS,

" disease modifying " . It is only temporary. I did not not want to take

drugs " modify " the disease. No thanks...I'll take the cure.

King

princesa_346 wrote:

> Hi,

> My name is Rose. I have psoriatic arthritis. I went to my doctor this

> week and asked him about the antibiotic treatment. He told me it

> doesn't help anyone and he then acted like I was crazy for suggesting

> it. He wants me to take Enbrel and I don't want to. Any advice on

> what I should do? Why would he act this way?

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hi Rose! Geoff here.

You wrote:

> My name is Rose. I have psoriatic arthritis. I went to my doctor this

> week and asked him about the antibiotic treatment. He told me it

> doesn't help anyone and he then acted like I was crazy for suggesting

> it. He wants me to take Enbrel and I don't want to. Any advice on

> what I should do? Why would he act this way?

Sorry to make your acquaintance this way but very glad you've joined us.

Your Doctor's reaction is commonplace, typical. Medical practices are

rarely cutting edge, or even trailing edge for that matter. The

practitioner is usually stuck in the rut they learned in school, combined

with their life experiences and a few odd courses they may or may not have

paid attention to for their continuing education credits to remain licensed.

The comeuppance of all this is that when something new comes along it is

usually met with dismissal, then disregard, then if it gets to be

bothersome, i.e., something that may actually force a fundamental change in

their approach, utter disdain. The usually form of change in medicine

doesn't occur because of seminars, but because of effective marketing... see

an attractive ad, receive an attractive offer and voilá, a new path is open

and a blockbuster drug hits the shelves.

This is the norm. It is also the norm for human behavior outside medicine,

so one can't just blame Doctors for it. It goes along with that old saying,

" We've always done it this way. "

There are, however, in any field of endeavor people willing to look past

what has " always been done " to what might be. We like to call them

pioneers, but the word is not always well placed. Regardless, people who

are willing to think " outside the box, " those that are ready to consider

informed alternatives, are far less commonplace than those who simply do it

this way because they have always done it this way -- in any field, from

ditch digging to surgery to space exploration.

Interestingly, Dr. Brown, the fellow viewed as the progenitor of this

treatment, was not following a " new " idea but an old one when he used

antibiotics in the treatment of rheumatic diseases. He was swimming against

the tide of advertising, attractive offers and pharmaceutical grants in

pursuing a protocol that he actually saw heal the vast majority of his

patients.

If you are determined to stay with your physician ask him this: " How many

people do you treat for this disease and out of those how many have you

actually healed? " The answer may be profound. It is likely his response

will be along the line that this is a chronic, incurable disease but he has

enabled many people to improve their " quality of life, " to live a more

pain-free life while managing their disease.

The protocol discussed on this list, and the one about which you are

inquiring, is not about " managing " your disease. It is about killing the

disease and curing you. These diseases are not something with which you

want to have an ongoing " relationship " in which you become their " manager. "

Like any workman, be they professional or blue collar, you have the ultimate

say in whether or not you want to retain their services. If this doctor's

approach, background and beliefs will not allow him to be fully supportive

of your endeavor to be totally cured, thank him kindly for his time and find

another physician more supportive of your needs.

One final note: Whatever happens, do not under any circumstances allow your

decisions for your health care to be influenced in even the slightest way by

any sort of insurance nor insurer. The insurer is not ill, you are. They

do not feel the pain, you do. They do not suffer with you, your family

does. To allow them any measure of control whatsoever is utter folly; in

the end they will make decisions based on what is best for, and required of,

them... not you.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

[Guest guest]

Hi, Kim. Has your child had a thorough evaluation through the school system?

If not, be sure to have a full speech/language evaluation, as well as

occupational therapy (OT eval) for any fine or gross motor delays, sensory

integration issues, hypotonia (low tone), etc. These conditions are often

present in apraxic kids so it makes sense to check for all of these.

good luck!

Sandy, Illinois

[Guest guest]

Hi Sandy,

Thanks for your advice. Will a school system do an eval. prior to 3yrs? I

did not think they had any services available until then. does have

mild hypotonia and sensory issues. I am planning to ask for an O.T. eval

and perhaps to have the P.T. to take a look. My big concern is the summer.

I don't know if they will provide services but I feel that he definately

needs them. ' Birthday is at such a tricly time of year 6/5 that I am

fearful that the early intervention program will stop when he turns three and

then he will not receive anything more until September. That's three months.

Thanks again. Kim

[Guest guest]

Hi, Kim. My guess is that you will have that 3-month gap where EI will end

and the school won't offer services. There is something called ESY (extended

school year) which must be considered as part of a child's IEP (it's

basically summer services). But it can be hard to qualify - different

districts/states use different criteria - one main one is

regression/recoupment (showing the child will regress over the summer without

services - as opposed to simply showing that the child won't progress). You

certainly can ask about summer services but with no history to demonstrate

the need (such as previous regressions over school breaks, etc.) it might be

hard to prove your case. Still, if you really think it's necessary (not just

" best, " which the school doesn't have to give you), then get your ducks in a

row by getting objective evidence (such as reports from providers, doctors,

etc. stating the need).

In my case, I've always gone ahead and gotten (or increased) private services

for the summer. My apraxic kid should have qualified for ESY back then (but

I didn't know to ask!), but my daughter (just diagnosed mild phonological

delay) won't qualify so I'm looking for private speech help for the summer.

As for the 3 year re-evaluation, this is a requirement under IDEA, but a

re-evaluation can take place before then too if the parent requests. At

least that's my understanding.

Hope this helps.

Sandy, Illinois

[Guest guest]

Mark, sure you can post what I wrote. I will join right now.

Thanks,

[Guest guest]

Debbie,

Thanks for your response. My son is 9 and certainly doesn't have the

resources to pull off another Columbine either. He just totally freaks out

when

someone hurts him no matter how serious it is and the Vice Principal said that

he was upset because she didn't say she was sorry.

That is interesting that you said your child talks to himself. Preston

constantly talks to himself. I have tried to tell him he shouldn't do it

around

other people because it gives them a reason to pick on him because they think

it is weird. He still does it anyway. He also will run in a large circle

in the house kind of skipping and talking to himself. I guess that would be

considered stimming?

About limiting programs that he watches on t.v., about the only thing he

watches is Pokemon and a couple other cartoons. We don't allow our children to

watch violent programs but I think he may have seen it on the news. I am

going back to work as a television Reporter/Producer and so I have been

studying

the station lately. That may have allowed him the opportunity to hear the

story.

Thanks so much for your advice.

[Guest guest]

I think most AS kids react to being bumped or hit by accident the

same way because of sensory issues. They also have an " eye for an

eye " philosophy where they need to retaliate in order to achieve

justice, even if the person says sorry. My son is 6 and I have

similar stories. When he was 5 we had him in a regular classroom

with an aide and he made quite a few similar " shocking " comments.

Kids with AS don't have a vast amount of emotions to draw on when

expressing themselves, its black or white. That's why either

everything is OK or they want to kill themselves (or somebody

else). We moved my son to a small social communications class for

high functioning kids in our school district at their recommendation

and all behaviors (he was talking to himself and stimming) and

shocking comments stopped. My son was just too stressed to learn in

an environment where there was 22 kids and so every little thing was

pushing him over the edge. The tendency to those cemments is still

there, but I think the key is keeping their stress levels down.

I don't know how old your son is but obviously my 5 year old didn't

have the resources to " blow up the school " . Suspending your son is

ridiculuous. It is part of his disability to express himself that

way. They should help him with coping skills, sensory

desensitization, social skills groups, or whatever, not punishment.

He doesn't mean what he is saying and just needs to be able to go

throw balls at a wall or something. He has to have a technique in

place in his head to go to when he is feeling explosive that is more

acceptable. Try to get the school to work with you on that and keep

talking to him. I think the guns and violent shows should be kept

to a minimum also.

Good luck to you,

Debbie Melamed

, " baileysmokeylee "

<Theweaverfive@...> wrote:

>

> Well, we had a pretty hard week at school. My son was kicked by a

> little girl while he was sitting on the floor. She says it was an

> accident, but who knows. Well he of course got very upset like he

> always does when he gets hurt (he over reacts to someone stepping

on

> his toe, he'll scream like he's being tortured). Well he got up

and

> told the girl he was going to bring his gun (b.b. gun) to school

and

> shoot her. Well, he was of course suspended and I was told if he

> ever makes any threatening comment again he will be sent to the

> alternative school. I talked to him about it and he said he just

> wanted her off his back. He clearly did not understand what it

meant

> to make a comment like that. I have thrown away his b.b. gun that

I

> did not approve of in the first place and something he has only

used

> twice in about a year and a half. I am just soooo stressed out.

I

> talked to his psychiatrist about it and she said after talking to

him

> she feels confident he didn't mean it. I am so scared that he just

> doesn't get the fact that you can't just say things like what he

> said. I know it was on his mind from the school shooting the

other

> day in Colorado. He is soooo sensitive to animals and others that

I

> just about passed out when I heard that he had said that. I don't

> know what I would do if he was sent to the alternative school

which

> is basically a school jail. He tells me sometimes he wants to

kill

> himself because no one likes him and he has no friends. I asked

him

> if he feels like that all the time and he said " no " just every

once

> in a while. Well, do you give a child medication for that? Most

of

> the time he says it when he doesn't get a pokemon card he wants or

> whatever he is into at the time. Is it for attention or does he

need

> medication? How do I get it through his head that he can't make

> comments like he did at school the other day. Sometimes when I

talk

> to him it doesn't seem like it gets past the surface. He is the

> kindest, most compassionate person I have ever met in my life so I

do

> feel confident that he is telling me the truth that he would never

> hurt someone but ughhhh I don't know what to do. Any advise?

>

>

>

[Guest guest]

Hi ,

You need to make sure your school district knows about Autism and

his clinical diagnosis of Asperger - IQ above 75 with Autism. You

need to talk to your Educational Service Center, Region 12, Bell

County Autism expert. Here is the link:

http://www.esc12.net/autism/default.html

, you really need to join Texas Autism Advocacy now......there

are some really smart MOMs who are NOT going to let your son and

family get pushed around. I can name at least three or four

incredible woman in this Group that will help you in your

school district and in your specific situation even now. There is

Tonya Hettzler (Lubbock and West Texas area), Singleton (one

of the best in Texas/Houston area), nna Bond (Tarrant County

Autism President for many years), attorney Jeff Sell, and so many

others........

I can post/copy what you have here if you will allow me to on the

Texas Autism Advocacy board until your name gets approved by

Guppy. She is a leading advocate in the State of Texas. I

can then send you information off-link as to solutions they

recommend.

I am concerned that your concerns for your son ARE NOT being

addressed correctly by the school district.

Mark

>

> Well, we had a pretty hard week at school. My son was kicked by a

> little girl while he was sitting on the floor. She says it was an

> accident, but who knows. Well he of course got very upset like he

> always does when he gets hurt (he over reacts to someone stepping

on

> his toe, he'll scream like he's being tortured). Well he got up

and

> told the girl he was going to bring his gun (b.b. gun) to school

and

> shoot her. Well, he was of course suspended and I was told if he

> ever makes any threatening comment again he will be sent to the

> alternative school. I talked to him about it and he said he just

> wanted her off his back. He clearly did not understand what it

meant

> to make a comment like that. I have thrown away his b.b. gun that

I

> did not approve of in the first place and something he has only

used

> twice in about a year and a half. I am just soooo stressed out.

I

> talked to his psychiatrist about it and she said after talking to

him

> she feels confident he didn't mean it. I am so scared that he just

> doesn't get the fact that you can't just say things like what he

> said. I know it was on his mind from the school shooting the

other

> day in Colorado. He is soooo sensitive to animals and others that

I

> just about passed out when I heard that he had said that. I don't

> know what I would do if he was sent to the alternative school

which

> is basically a school jail. He tells me sometimes he wants to

kill

> himself because no one likes him and he has no friends. I asked

him

> if he feels like that all the time and he said " no " just every

once

> in a while. Well, do you give a child medication for that? Most

of

> the time he says it when he doesn't get a pokemon card he wants or

> whatever he is into at the time. Is it for attention or does he

need

> medication? How do I get it through his head that he can't make

> comments like he did at school the other day. Sometimes when I

talk

> to him it doesn't seem like it gets past the surface. He is the

> kindest, most compassionate person I have ever met in my life so I

do

> feel confident that he is telling me the truth that he would never

> hurt someone but ughhhh I don't know what to do. Any advise?

>

>

>

[Guest guest]

My son's therapist in San Diego taught him meditation, and it seems

to help him quite a bit. He used to decompensate big time each and

every time the computer crashed unexpectedly or some other problem

arose with the computer or PlayStation. Now he can calmly debug it,

and tell his father, " I tried A and I tried B, and neither one has

worked. That must mean the problem is in C. " He just debugged his

PlayStation in this way, and figured out that one of his controllers

was bad. All without a fit. It took a long time, too.

Liz

On Oct 1, 2006, at 1:24 PM, debramelamed wrote:

> I think most AS kids react to being bumped or hit by accident the

> same way because of sensory issues. They also have an " eye for an

> eye " philosophy where they need to retaliate in order to achieve

> justice, even if the person says sorry. My son is 6 and I have

> similar stories. When he was 5 we had him in a regular classroom

> with an aide and he made quite a few similar " shocking " comments.

> Kids with AS don't have a vast amount of emotions to draw on when

> expressing themselves, its black or white. That's why either

> everything is OK or they want to kill themselves (or somebody

> else). We moved my son to a small social communications class for

> high functioning kids in our school district at their recommendation

> and all behaviors (he was talking to himself and stimming) and

> shocking comments stopped. My son was just too stressed to learn in

> an environment where there was 22 kids and so every little thing was

> pushing him over the edge. The tendency to those cemments is still

> there, but I think the key is keeping their stress levels down.

> I don't know how old your son is but obviously my 5 year old didn't

> have the resources to " blow up the school " . Suspending your son is

> ridiculuous. It is part of his disability to express himself that

> way. They should help him with coping skills, sensory

> desensitization, social skills groups, or whatever, not punishment.

> He doesn't mean what he is saying and just needs to be able to go

> throw balls at a wall or something. He has to have a technique in

> place in his head to go to when he is feeling explosive that is more

> acceptable. Try to get the school to work with you on that and keep

> talking to him. I think the guns and violent shows should be kept

> to a minimum also.

>

> Good luck to you,

>

> Debbie Melamed

> , " baileysmokeylee "

> <Theweaverfive@...> wrote:

> >

> > Well, we had a pretty hard week at school. My son was kicked by a

> > little girl while he was sitting on the floor. She says it was an

> > accident, but who knows. Well he of course got very upset like he

> > always does when he gets hurt (he over reacts to someone stepping

> on

> > his toe, he'll scream like he's being tortured). Well he got up

> and

> > told the girl he was going to bring his gun (b.b. gun) to school

> and

> > shoot her. Well, he was of course suspended and I was told if he

> > ever makes any threatening comment again he will be sent to the

> > alternative school. I talked to him about it and he said he just

> > wanted her off his back. He clearly did not understand what it

> meant

> > to make a comment like that. I have thrown away his b.b. gun that

> I

> > did not approve of in the first place and something he has only

> used

> > twice in about a year and a half. I am just soooo stressed out.

> I

> > talked to his psychiatrist about it and she said after talking to

> him

> > she feels confident he didn't mean it. I am so scared that he just

> > doesn't get the fact that you can't just say things like what he

> > said. I know it was on his mind from the school shooting the

> other

> > day in Colorado. He is soooo sensitive to animals and others that

> I

> > just about passed out when I heard that he had said that. I don't

> > know what I would do if he was sent to the alternative school

> which

> > is basically a school jail. He tells me sometimes he wants to

> kill

> > himself because no one likes him and he has no friends. I asked

> him

> > if he feels like that all the time and he said " no " just every

> once

> > in a while. Well, do you give a child medication for that? Most

> of

> > the time he says it when he doesn't get a pokemon card he wants or

> > whatever he is into at the time. Is it for attention or does he

> need

> > medication? How do I get it through his head that he can't make

> > comments like he did at school the other day. Sometimes when I

> talk

> > to him it doesn't seem like it gets past the surface. He is the

> > kindest, most compassionate person I have ever met in my life so I

> do

> > feel confident that he is telling me the truth that he would never

> > hurt someone but ughhhh I don't know what to do. Any advise?

> >

> >

> >

>

>

>

[Guest guest]

,

My son paces back and forth, or in circles. He calls it

" daydreaming. " My NT daughter did it too. I don't worry too much

about it. I figure it's a creative outlet for them. (My daughter has

2 novels in progress now; she's 23.)

used to be very volatile when someone bumped him ( " they did it

on purpose " ) or hit him ( " I'm never gonna forgive himmm " ) etc. But

somehow, he's outgrown this.

Liz

On Oct 1, 2006, at 4:48 PM, Theweaverfive@... wrote:

> Debbie,

>

> Thanks for your response. My son is 9 and certainly doesn't have the

> resources to pull off another Columbine either. He just totally

> freaks out when

> someone hurts him no matter how serious it is and the Vice

> Principal said that

> he was upset because she didn't say she was sorry.

>

> That is interesting that you said your child talks to himself. Preston

> constantly talks to himself. I have tried to tell him he shouldn't

> do it around

> other people because it gives them a reason to pick on him because

> they think

> it is weird. He still does it anyway. He also will run in a large

> circle

> in the house kind of skipping and talking to himself. I guess that

> would be

> considered stimming?

>

> About limiting programs that he watches on t.v., about the only

> thing he

> watches is Pokemon and a couple other cartoons. We don't allow our

> children to

> watch violent programs but I think he may have seen it on the news.

> I am

> going back to work as a television Reporter/Producer and so I have

> been studying

> the station lately. That may have allowed him the opportunity to

> hear the

> story.

>

> Thanks so much for your advice.

>

>

>

>

[Guest guest]

My aspie's do this when on the phone. They seem to need to to be

able to keep their thoughts. Maybe this is his way of " thinking

things through " ...?Just a thought.

Mom of two asperger's syndrome children

>

> > Debbie,

> >

> > Thanks for your response. My son is 9 and certainly doesn't have

the

> > resources to pull off another Columbine either. He just totally

> > freaks out when

> > someone hurts him no matter how serious it is and the Vice

> > Principal said that

> > he was upset because she didn't say she was sorry.

> >

> > That is interesting that you said your child talks to himself.

Preston

> > constantly talks to himself. I have tried to tell him he

shouldn't

> > do it around

> > other people because it gives them a reason to pick on him

because

> > they think

> > it is weird. He still does it anyway. He also will run in a

large

> > circle

> > in the house kind of skipping and talking to himself. I guess

that

> > would be

> > considered stimming?

> >

> > About limiting programs that he watches on t.v., about the only

> > thing he

> > watches is Pokemon and a couple other cartoons. We don't allow

our

> > children to

> > watch violent programs but I think he may have seen it on the

news.

> > I am

> > going back to work as a television Reporter/Producer and so I

have

> > been studying

> > the station lately. That may have allowed him the opportunity

to

> > hear the

> > story.

> >

> > Thanks so much for your advice.

> >

> >

> >

> >

[Guest guest]

Becky,

I tell you although I feel so bad about how hard it is for you, it sure is

nice to know that I am not the only one going through this. Preston just

learned how to tie his shoelaces last year. Before that his sisters did it or

he

would just wear the ones without laces. The only reason he learned (which

he did in one day) was because he wanted to buy a new pair of shoes for field

day.

Preston also totally loses it when he doesn't win a game or when he doesn't

get his way. Sometimes it totally wears me out. I am still learning what to

do when these situations occur.

Good luck at the wedding. Let us know how it goes and if he behaves. I

have to tell you a quick story that was pretty humorous. I went to Sak's Fifth

Avenue with my mom and 4 children including Preston and when we walked in

there was this mannequin at the entry way. Well, I was looking all over for

Preston and I looked toward the mannequin and there he was standing on the

platform that she was on, looking in her shirt. I was so embarrassed but I did

have to laugh.

[Guest guest]

Hi, We live in a little seaside town called Blackpool in England.

Your experience sounds so much like my (only) son, who's 8.

He totally goes over the top e.g. I took him on holiday abroad on my own & the

kids were all in the swimming pool playing with their water pistols. Another

kid squirted water at Nat & he hit the other kid really hard over the head with

his water pistol. The other kid's irate father came up to me shouting that my

son was a danger to other children.

When I told Nat off he tried to justify what he'd done saying " well, he

squirted water at me " . When I said he should've just squirted him back & it's

meant to be fun, he didn't understand.

There's been literally hundreds of situations like this. constantly

compains of bullying but it usually been an accident e.g. kids rushing to class

& bumping into him etc. The other day he headbutted a tiny 5yr old just because

he shouted " & made him deaf " . I'm afraid he'll get excluded from school.

I need to have eyes in the back of my head as he takes off across the road &

has no sense of danger. He hits me, cries if he doesn't win at a game &

headbuts & kicks his stepdad.

Unfortunately Nat has epilepsy too, so the poor thing doesn't have it easy.

He too is very compassionate about animals, he'll cry if he sees a dead bird -

BUT he can't empathise with other humans. It's really strange.

In other ways he's extremely clever - he can name every actor/car in every

single Bond film. He can construct lego that's meant for age 14 by

himself, but can't do his shoelaces or use a knife & fork!!

My other 1/2 & I are getting married next year. 's going to be a

pageboy/ring bearer but I wouldn't put it past him to lift up my wedding dress &

flash my bridal lingerie at the whole congregation!

It's tough & I know exactly what you're going through!

Take care,

Becky

baileysmokeylee <Theweaverfive@...> wrote:

Well, we had a pretty hard week at school. My son was kicked by a

little girl while he was sitting on the floor. She says it was an

accident, but who knows. Well he of course got very upset like he

always does when he gets hurt (he over reacts to someone stepping on

his toe, he'll scream like he's being tortured). Well he got up and

told the girl he was going to bring his gun (b.b. gun) to school and

shoot her. Well, he was of course suspended and I was told if he

ever makes any threatening comment again he will be sent to the

alternative school. I talked to him about it and he said he just

wanted her off his back. He clearly did not understand what it meant

to make a comment like that. I have thrown away his b.b. gun that I

did not approve of in the first place and something he has only used

twice in about a year and a half. I am just soooo stressed out. I

talked to his psychiatrist about it and she said after talking to him

she feels confident he didn't mean it. I am so scared that he just

doesn't get the fact that you can't just say things like what he

said. I know it was on his mind from the school shooting the other

day in Colorado. He is soooo sensitive to animals and others that I

just about passed out when I heard that he had said that. I don't

know what I would do if he was sent to the alternative school which

is basically a school jail. He tells me sometimes he wants to kill

himself because no one likes him and he has no friends. I asked him

if he feels like that all the time and he said " no " just every once

in a while. Well, do you give a child medication for that? Most of

the time he says it when he doesn't get a pokemon card he wants or

whatever he is into at the time. Is it for attention or does he need

medication? How do I get it through his head that he can't make

comments like he did at school the other day. Sometimes when I talk

to him it doesn't seem like it gets past the surface. He is the

kindest, most compassionate person I have ever met in my life so I do

feel confident that he is telling me the truth that he would never

hurt someone but ughhhh I don't know what to do. Any advise?

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[Guest guest]

Oh I joined this group at a good time! This is something I know too much

about too.. My son is 13 recently diagnosed with Aspergers (in the process

of actually) he was diagnosed with adhd odd a/c dissorder bipolar ....blah

blah years ago.

If someone barely nudges Kris he flies off the handle!!!! He has also done

the dreaded " Im going to bring my bb gun to school... Line, and been kicked

out of school so many times.!

He has injured other people during his " tantrums " . ( He threw my babysitter

around like a rag doll, hence therefor I am off of work now.)

Kristofer is overly sensative when it comes to any animals being in need , I

guess that explains the small zoo I have in my house right now, but he has

no concerns for other people. If anyone has any suggestions in this area I

am ALL ears!

BTW Nice to meet all of you!

Kerry

(in Illinois)

-- Re: ( ) any advice?

[Guest guest]

Hello, I was wondering if anyone could help me? I wake up every morning and eat a medium bowl of cereal that makes me feel full. When do I take the MMS? I'm afraid I diminish the power of the MMS when I take it immediately after a meal. I think the MMS will absorb into the food more than the body. Any advice? -Sam

[Guest guest]

, please look at www.dragonfly75.com/eng/CZ.html for the best candida killer there is.

[Guest guest]

,

Not that you do, but if you do, I would first and foremost NOT eat sushi. Eating

raw fish, raw meat, raw poultry is inviting parasites.

>

> Hello my name is and I'm new to this group,

>

> I have been battling candida for as long as I remember and I finally just got

back my second stool profile that was negative for it. I however still suffer

from severe symptoms and the only thing that showed up on my test was 'parasites

present; taxonomy unknown'. With every candida program I have been on over the

years there has been an anti parasite program attached which have been

unsuccessful so whatever is down there is obviously well dug in.

>

> Which brings me to this group. I have been looking at and contemplating buying

something from Sota Instruments. Could anybody share with me any testimonials

from their instruments? Has anybody used their devices for the eradication of

parasites and been successful? Or does anybody have any advice on other devices

that are available? I will be using it along with a program of 'natural' anti

parasitic supplements.

>

> Any advice at all is greatly appreciated.

>

> Regards,

>

> in Japan

>

[Guest guest]

Thanks for the reply..If I knew what I know now in the past, well my gut might be in a better state. I have since stopped eating sashimi. Thanks for the info..From: genekmartin <genekmartin@...> Sent: Wed, June 9, 2010 2:58:25 AMSubject: Re: any advice?

,

Not that you do, but if you do, I would first and foremost NOT eat sushi. Eating raw fish, raw meat, raw poultry is inviting parasites.

>

> Hello my name is and I'm new to this group,

>

> I have been battling candida for as long as I remember and I finally just got back my second stool profile that was negative for it. I however still suffer from severe symptoms and the only thing that showed up on my test was 'parasites present; taxonomy unknown'. With every candida program I have been on over the years there has been an anti parasite program attached which have been unsuccessful so whatever is down there is obviously well dug in.

>

> Which brings me to this group. I have been looking at and contemplating buying something from Sota Instruments. Could anybody share with me any testimonials from their instruments? Has anybody used their devices for the eradication of parasites and been successful? Or does anybody have any advice on other devices that are available? I will be using it along with a program of 'natural' anti parasitic supplements.

>

> Any advice at all is greatly appreciated.

>

> Regards,

>

> in Japan

>

[Guest guest]

Thanks ,I'm aware of your candida zapper from the candida group. I don't believe I have a candida problem anymore but rather parasites and flukes in particular. Any advice?Regards,From: Forrest <a57ngel@...> Sent: Wed, June 9, 2010 1:17:58 AMSubject: Re: any advice?

, please look at www.dragonfly75. com/eng/CZ. html for the best candida killer there is.