Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 I am sorry to hear your little guy had problems. Maybe the challenge without the honey, since you know the honey may be a problem. Lynn in MD has some posts about her challenges and is having some success now. It is good to hear he did well with enzymes for the past month. . > Björn has been on enzymes for one month now. Successfully. Still on a > strict GFCF diet. I decided today to take the plunge and gave him > first one pep and one zyme plus regular corn flakes with malt (coated > with peanuts and honey as well). He tolerates peanut very well. I > don't know about honey. He has never had some because the elisa test > showed allergy to honey. I observed him very carefully in the > following hours and saw a lot of toe walking (he has not walked on his > toes for nearly one year: we started the diet in june 2000), and > bad diarrhea just like when he was on gluten. So, I just wonder: was > it the gluten from the malt or was it just an allergic reaction to > honey? Shall I try the same challenge with regular corn flakes without > honey coating? Hard to say. Just wanted to share this experience. > Fatima Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Please keep in mind that if you decide to challenge the diet, you may have to give extra enzyme capsules to insure that all casein/gluten is disposed of. This may mean giving 2 - 4 capsules just to be on the safe side. Also, it's a good idea to have the child drink a lot of fluid with the enzymes and meal, the enzymes must get into solution to be effective, and the quicker the enzymes are in solution, the better the result should be. > > Björn has been on enzymes for one month now. Successfully. Still on > a > > strict GFCF diet. I decided today to take the plunge and gave him > > first one pep and one zyme plus regular corn flakes with malt > (coated > > with peanuts and honey as well). He tolerates peanut very well. I > > don't know about honey. He has never had some because the elisa > test > > showed allergy to honey. I observed him very carefully in the > > following hours and saw a lot of toe walking (he has not walked on > his > > toes for nearly one year: we started the diet in june 2000), and > > bad diarrhea just like when he was on gluten. So, I just wonder: > was > > it the gluten from the malt or was it just an allergic reaction to > > honey? Shall I try the same challenge with regular corn flakes > without > > honey coating? Hard to say. Just wanted to share this experience. > > Fatima Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Devin: If deciding to challenge the GFCF diet and a possible need to give additional enzymes, would you advise 2 of each Pep and Prime Zyme? I'm not ready to take that plunge yet, but would like to be prepared just in case. Also, does it matter what kind of fluid they drink - the fastest way to get my older son to drink anything is to offer soda or juice. I have noticed my son is a little less spacey for taking the Prime Zyme (now that I'm giving it at the right time), but he is also a little more hyper afterwards. I wasn't sure if his hyper behavior was a result of the enzymes or foods that I know to be problematic (a certain favorite cereal and watermelon!). I was thinking of uping the doses of enzymes for those foods from one capsule to two. After hearing so much about hyper behavior with some kids, maybe I just need to wait this out. Thanking you in advance. ( & Malachi's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 It will not hurt to find out if larger doses can do the job with questionable foods. In fact, it might be better to give 3 or so capsules just to find out if the enzymes make the food tolerable, then worry about finding the exact dose needed later. Watermelon has phenols, which can make some of these kids spacey. The zp seems to help with the phenol issue, so possibly upping zp dosage to 2 or more might help. Again, a lot of this will be guess work on my part. Sodas won't effect the enzymes, but I wonder if they are caffeinated will it make the child hyper? > Devin: > If deciding to challenge the GFCF diet and a possible need to give > additional enzymes, would you advise 2 of each Pep and Prime Zyme? I'm > not ready to take that plunge yet, but would like to be prepared just in > case. Also, does it matter what kind of fluid they drink - the fastest > way to get my older son to drink anything is to offer soda or juice. I > have noticed my son is a little less spacey for taking the Prime Zyme > (now that I'm giving it at the right time), but he is also a little more > hyper afterwards. I wasn't sure if his hyper behavior was a result of > the enzymes or foods that I know to be problematic (a certain favorite > cereal and watermelon!). I was thinking of uping the doses of enzymes > for those foods from one capsule to two. After hearing so much about > hyper behavior with some kids, maybe I just need to wait this out. > Thanking you in advance. > > ( & Malachi's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 I will join you Gloria.I am going to start off with avoiding non simple sugars and then more complex carbs like pasta & potatoes. I suppose if i am going to give up caffeine that includes tea. Anyone any suggestions for a palatable alternative? caz ----- Original Message ----- From: gloriarex@... Rheumatoid Arthritis Sent: Sunday, January 05, 2003 5:03 PM Subject: Diet Challenge Hello fellow RAites:I have been following with interest the thread on diet and what people think does and does not help their condition. Seeing as how it is a brand new year and we are all interested in bettering our health, I would like to suggest a diet challenge to those of you who are interested. It would be our own little study on this site, comprising of however many people are interested with no real scientific basis. But I think this is the perfect place to try new things that might help ourselves and also receive some support while trying to change our lifestyle to improve our health.So far I think I have heard that sugar, carbohydrates, and caffeine have all been implicated in the possible worsening of symptoms. What I propose is a gradual step by step elimination of these products from our diet. Nothing too drastic to begin with (I don't think I could give up coffee right now!!), but rather a slow, methodical approach where we give up one thing at a time. It doesn't to be the same item for each of us, and perhaps could be as simple as giving up a certain kind of sugar first. It's up to each person to decide. We do this for a week, report back in, and then maybe go on to eliminate something else. I guess this is basically the "Elimination Diet" that Dr. Weil suggests. The good part is that after a few weeks, you can actually put stuff back in. That way, if you flare, you can make a real connection between what goes in your mouth and your symptoms. ly, I've never been able to stay off anything for long enough to make that connection. What I'm really looking for here is some support and other people to try this with. ly, I'm tired of not being able to walk without a cane in the morning and while I'm willing to try about anything to get my mobility back, I need help from people who suffer from the same disease that I do.Any takers?gloria Quote Link to comment Share on other sites More sharing options...
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