Guest guest Posted April 1, 2002 Report Share Posted April 1, 2002 , Perhaps Tammy replied before she read all the messages. Please give her a break and let her catch up. Celeste Nunnally wrote: > I THOUGHT WE HAD MOVED ON FROM THIS TOPIC, I'M TIRED > OF LOOKING AT EMAILS ABOUT THIS. DIDN'T SHE APOLOGIZE > ALREADY? CAN WE PLEASE MOVE ON AND TALK ABOUT HOW TO > FEAL BETTER BECAUSE THIS IS DEFINITELY NOT HELPING. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 You have so many symptoms and, yes, they are consistent with Lyme. Plus, you have a positive test. Of course, you have Lyme. Does it make sense that all these symptoms would be unrelated, separate disease processes? Or would it make more sense that there was a unifying, " systemic " cause? Most docs have been fed a line about the number of false positive tests by the Steere camp. A Western blot is a very specific test identifying very specific bands for a specific disease. It is unlikely that you would have enough bands to qualify as a CDC positive without having Lyme. In my opinion, almost impossible. I had chronic iritis in both eyes 14 years ago. I assume that you have been tested for lupus over and over again because chronic iritis in both eyes is commonly associated with lupus. To this day, when I see an opthalmologist, they think that I have lupus and are most puzzled when I say that I do not. Of all the docs that I have seen or talked to, the opthalmologists seem most likely to believe a Lyme diagnosis when they hear I have had iritis without lupus. They figure there is some reason for having iritis and, if not, lupus then it must be something. I think that the only reason I do not have a lupus diagnosis after all these years is that I was treated with antibiotics. I will also say that I have not had a recurrence of the iritis. But I do have some damage to my eyes (cornea) which they think may have come from either the iritis or the steroids used. You need further treatment. The amount of treatment you have had has really not been all that long though it may seem like a lot. And I think that you may not have been on any one thing long enough to tell if it can help. Sometimes it takes a while to get to the point that you feel better. This illness is difficult to treat and requires lengthy courses of antibiotics. By lengthy I mean months if not years. Don't give up. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Thank you . I am so inspired by your kind and knowlefgable response. I too am fatigued. I just didn't put it down. I also have the shakes. Almost like muscle tremors. I hope that we can beat this together. Thanks so much and God Bless. Laynie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Newcomer, I myself have 17 of your 22 symptoms listed plus a few more of my own fun lymey symptoms, like hair loss, soar throat, irregular menstrual cycles, leg jerks, and fatigue hahaha more like total and utter exhaustion! I tested positive on the n indeterminate on the WB....if you've been sick for any length of time 4 wks of Rocephin will generally not get you well. It made me feel good for 2 days in mid treatment,then i started to crash (herx) at the 4th wk when my doc pulled me off, said I'm cured n any other symptom i experienced was all in my head. Funny thing is...it IS in my head. Neuroborrellius! Dang buggers! Hence the brain fog, eye probs, etc...I don't know where you live, but you need a LLMD if you want to get well! Some are on antibiotics for umpteen months, and even years..You need to find the right med for you. I noticed a poll on www.lymenet.org ,good site btw, the poll was on which meds worked best....over 300 responded, when i took that info and graphed it out, i found that almost unanimously doxy, or rocephin alone for 4 weeks was worthless, and the most success came from combination of meds(maybe due to co-infections) like zithromax w/ flagyl , or flagyl w/ amoxicillen, or Zithromax w/ Amoxicillen...also Rocephen did produce good results in some who took it for several months, but many say rocephin drives it into cyst form n should be followed by orals. Another good tip, exercise when ever you can bear it...the bugs hate warmer body temps. and oxygen! Don't over do it though and get good rest after. Also water, dink your 8 to 10 glasses a day! You had a positive wester blot, and you have the classic symptoms we all with Lyme have, So if a pregnancy test was positive n you exhibited the classic symptoms nausea, belly growin yadda yadda wouldn't you hedge a bet that your pregnant? Well i think its safe to hedge a bet your a lymey like the rest of us. Yes! There is hope. Yes! You can get better. Do every thing YOU can to get your body healthy and find a good LLMD for the meds, and if you are of faith trust God for the rest. Keep us posted and any time you feel like your breakin down or just need a friend we are here for you! eric schulman <eric_s11050@...> wrote: no!!!!! --- Layniem@... wrote: > Dear Lyme group: > > I am new to this so any help will be greatly > appreciated. I am getting so > discouraged.I have probably had Lyme for many years. > My symptoms began with > chronic iritis in 1997. In 1998 I had numerous blood > tests including Lyme which > were all negative. I also had an MRI of my brain > which was fine. In 2000, after > many more bouts with Iritis, I had a CDC positve > western blot test for lyme. > However, the Dr. decided for some unknown reason > that the test was a false > positive. How anyone builds false antibodies is > unknown to me. I didn't begin Lyme > treatment until a clinical diagnosis in May of 2003 > when I started to tingle > and burn from head to toe. It almost feels like hot > lava is being poured into > my body! Since then I have been on 2 months of Doxy, > 2 months of Zithromax, one > month Tetrcyclene and IV. Rocephin for 4 weeks. I am > still not well. I also > tested positive right before the Rocephin through > Iginex Western Blot. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 I see you have Chronic Iritis.........I too have had that through out lyme.......in fact it was one of the indicators that something was going on in my body. Mine was called Uveitis....but I believe many times the words are used interchangeably. It has only been in the last six months that I have had no sign of inflammation in my eye. I now have the starting of a cataract because of all the steroid drops.........it is very important to keep the eye quiet, because the damage can not be reversed.......so the choice to do steroid drops was necessary. It's better to remove a cataract, then to damage the eye from constant inflammation. I will have another check up in November to make sure the eye is still doing well. .Make sure you continue to treat your eyes. It sure sounds like Lyme to me.........stay with a good LLMD, and continue on abx.......you will feel horrible at first, but hopefully the right treatment plan will get you feeling yourself again..........this can be a long process, so hang in there....and judge your improvement on a monthly basis......not day to day. Good Luck, Connieknwnj When body and mind are out of sync........we suffer greatly! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 I saw www.lyment.org mentioned and recommended it this mail by , but I can't access that page. What's the correct URL ? TIA,Werner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 > www.lyment.org www.lymenet.org there is an extra 'e' sorry, think that was my bad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 >> _www.lyment.org_ (http://www.lyment.org) >_www.lymenet.org_ (http://www.lymenet.org) sorry, I meant lymenet, that was a typo. I tried both yesterday, none worked (I'm sure). But when I just tried it again today, it worked. Nevermind. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Thank you very much. Laynie/newcomer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 hi my name is eve. I had the shakes, i was even on nuerontin, but I had a bad reaction to it and I wouldn't recomend that to anyone, the thing I would recomend is hypericum, it is homeopathic, I take it and I no longer have shakes or much nerve pain. It is also the same as St johns...eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Dear , Welcome to our wonderful group. I'm glad you found us too. My goodness you've certainly had a rough time of it over the years. You wouldn't need the nystatin yet and I believe natural antifungals are much better. When you take too many enemas they can slow the natural movement of the bowels. Since you are just starting on my program, I recommend you start with a liquid and pureed foods diet. There is a 9-day program, but I think you should stay on pureed foods longer than it recommends and also you shouldn't do the enemas. Here's the 9-day program: http://www.healingnaturallybybee.com/articles/dig6.php ==>You might need to stay on pureed foods, soup, broth, and Bee's Raw Egg Drink for longer than 9-days, depending upon when your bowel start to move better. Here's the Egg Drink: http://www.healingnaturallybybee.com/recipes/recipe167.php But start with small amounts of coconut oil and butter in the Raw Egg Drink because they are antifungal and can create too many die-off symptoms; start with 1-2 teaspoons each, or less, depending upon your die-off symptoms, and gradually increase them. Make sure you start on the diet slowly - see " Curing Candida, How to Get Started " : http://www.healingnaturallybybee.com/articles/menu2_8.php ==>If you change over to this diet too quickly it can cause constipation. Carbs must be gradually lowered - carbs are any foods not classified as protein or fat. ==>Recently I learned that " good " ocean sea salt can help the bowels move, so I suggest you start having the Electrolyte Drink right away and have six 6 ounce glasses per day while on the liquid/pureed food diet; http://www.healingnaturallybybee.com/recipes/recipe170.php I believe Celtic sea salt is best (called Nature's Cargo in Canada), available at the health store. I do personal consultations, so if you wish to have one see: http://www.healingnaturallybybee.com/consult.php The best in health, Bee > > Hi Bee and everyone. > > I'm so glad I made it here. I am doing my best to implement > all necessary changes but I am uncertain about whether I am > doing the right thing in taking nystatin. > > Just yesterday I took my first nystatin enema out of desperation > as I was in so much abdominal pain and the results have been > dramatic with an ease in pain and gas. > > At the time I took the enema I had not yet discovered Bee's > protocols or the group and my enquiries have led me here. I > was flying blind but then googled nystatin enemas and here I am. > ( the nystatin enema was actually a 2 pint 2 capsule implant > because it never came out.) > > I have not been able to have a natural bowel movement since early > september when I had total bowel shutdown and severe fecal impaction. > This took 6 days and a box and a half of Movicol ( polyethylene Glycol ) > to soften but still would not shift without enemas. > > Since then I have had a series of enemas every 2 - 3 days to achieve > any emptying and the bowels efforts to empty the water have gotten > worse to the point where it just drains out. It's as though the bowel > is paralised. > > From the 1st of feb to the 16th I stuck to a total water fast out of > desperation which I now see was a big mistake and the experience was > horrendous after the first few days. I am still very shaky but improving. > > I am down to 59 kilos or 130 pds which may be a little light for a > 5 ' 10 '' 50 year old male. I now know that I have had candida for > nearly 40 years since I got 's disease at 10 yo and started > cortisone replacement therapy. <snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Maile, I've been on Enbrel for five years (can't believe it's been that long). It works very well for me, and I have had no adverse side effects from it. Sue On Wednesday, May 7, 2008, at 09:39 PM, Maile wrote: > I'm not quite sure how this all works yet! This is my first post > within a group. I am 34 years old and have had RA for nearly 2 years. > I'm currently taking Enbrel and have some questions for others in > regards to what they know of it or have experienced from it. Thanks > Maile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Greetings all! My name is Kameron. I have been using MMS on and off for a little over a month now. As a new user I have a few questions. I apologize if any have already been covered, however the high number of messages contained within the board is a bit intimidating. First, I have read that MMS can be used to cure warts. It just so happens that I have one on my right elbow. Attempting to resist the literally bloody temptation of carving it off, what drop strength solution should I use to treat it and how should I go about doing so? Next, I have a few cavities which I am beginning to treat by brushing then rinsing with a 7 drop solution. As I have come for advice, I would like to know if there is any more I need to do to fix these small issues? Finally, I had contracted a small irritation--possibly poison ivy or oak--on my hands a couple weeks back from yardwork. Save for few remaining pink areas on the back of my hands, the irritation is gone. Washing my hands with MMS solution removed the histamine irritation for about 4-6 hours every application. However, washing with 15 drop solutions seem to have resulted in temporary removal of hair from my hands--not complaining. I am just curious if any one else has had this occur? I thank you for your time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi Kameron, I used MMS to cure some persistent warts. The only thing is to apply it daily, maybe even twice daily. As for teeth, I recommend a dentist. Don't let cavities get bad. It can be dangerous. Best to you, Jill Quote Link to comment Share on other sites More sharing options...
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