Guest guest Posted April 17, 2000 Report Share Posted April 17, 2000 LOL Seems my spell check doesn't read minds The line " I want to say thanks for hate cards and well wishes. " Should be thanks for THE cards and well wishes!!!!! It gave me a good laugh!! B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2000 Report Share Posted April 17, 2000 Gave me one too Beverly LOL! I hope you feel better soon. It was a rough hospitalization for you, and it may take a few weeks to get back to normal (whatever normal is). Enjoy that steak! I'm glad you're keeping it down now. Keep getting lots of rest, it is the best medicine right now. a ----- Original Message ----- From: " Beka " <Beka@...> < egroups> Sent: Monday, April 17, 2000 4:55 PM Subject: Re: [ ] Hi there > LOL Seems my spell check doesn't read minds The line " I want to say > thanks for hate cards and well wishes. " Should be thanks for THE cards > and well wishes!!!!! It gave me a good laugh!! > > B > > > ------------------------------------------------------------------------ > Avoid the lines and visit avis.com for quick and easy online > reservations. Enjoy a compact car nationwide for only $29 a day! > Click here for more details. > 1/3011/4/_/478567/_/956003883/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 I'm glad you felt well enough to post, Beverly. We've all been very concerned about you. Thanks for the update. Hope you can get stronger and feel better than sh** very soon. Luckily, I didn't send you a " hate " card. Spell checkers say that darndest things! I'm laughing, too!! Get into a nice eat steak and sleep cycle and check in with us when you can. > I want to say thanks for hate cards and well wishes. I am still anemic, > and really tired all the time. I was taken off Imuran because of the > pneumonia so I am flaring too. Basically, I feel like sh**, sleep alot > and try to come here at least once a day to keep up. I still need the > bone marrow aspiration, which I am try to get this week. > > The surgery was I thought a piece of cake till I lost 2 pints of blood > and they found my liver lacerated with a small hematoma. Then I got > congestive heart failure and double pneumonia, and you know why my 48 hr > stay ended up 15 days in HELL!! The great news is I lost 15 lbs!!!! With > all the steak I am eating for the anemia, I will gain it back but I look > pretty good now LOL. > > Again, I can not thank you all enough for your caring and prayers. I > felt so alone without a computer!! I am glad that I could get the > message to you all that I was ok. I nap alot, and even have a job lined > up when I feel up to it. I lost the other one because of being out so > long. I will try to participate soon > > Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 , (agreed with the GREAT NAME!!) Thanks a million for letting me know that I am not alone. Where are you, locally that is? I wish that I could find a really good md in my area that is gung ho on the band idea and that would give me the confidence I need to put to rest the idea about surgery. I don't want Josh to have to have it, but I am scared that there is more to his problems then just the head shape. Just that gut feeling. & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 In a message dated 12/28/00 7:56:19 PM Pacific Standard Time, Cruzmja@... writes: ? I wish that I could find a really good md in my area that is gung ho on the band idea and that would give me the confidence I need to put to rest the idea about surgery. I don't want Josh to have to have it, but I am scared that there is more to his problems then just the head shape. Just that gut feeling. & - Check out this web site. This is for the cranio. Tammy & 12/8/99 Craniosynostosis and Parents Support Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Dear (great name ) I am fairly new here as well. I know you will find many people here who share your experiences with the medical field. Right now, my son Sam does not even have a plagio diagnosis yet. (we see the neuro Jan 3) My ped is not willing to accept that he could have plagio. (You can read about it in the files section under parent letters...Sam's Story) I understand your frustration. You may want to check out the Cranio web sight as well if they have told you your babies sutures are closing (I just blanked on the actual web sight) Someone else will list it I'm sure. Craniocephalyegroups Maybe:( ANYWAY... I am far from an expert but have you looked into torticullis (spelling). I am sure others will answer your post, but I was on-line and I wanted you to know someone read your post and to remind you that YOU ARE NOT ALONE ANYMORE.. MEDICALLY OR SPIRITUALLY. I'll let those who know more tell you about some of your questions because we are yet to be put in a band. Hang in there. (now you know why I liked your name:) ) Sam's mom 4/11/00 -- In Plagiocephalyegroups, Cruzmja@a... wrote: > Becky, > > Thanks for writing back...I am new at this egroups stuff and am anxious to > communicate with someone who is expericenced with this plagiocephaly thing. > > I am mormon, and am glad that there are good christian women out there that > believe in praying. > > (6/26/00, banded 12/22/00) is my little guy. Basic dx was at 4 months > with asymetry in the face by the ped. went to a nuerosurgeon 4 weeks later > and then had the 3 D CT scan done and the results were that his sutures and > soft spots were/are closing early but not completely closed. Therefore no > surgery but were referred to Cranial Techn. I still want to get a second > opnion just to be 100% sure about everything. I would never want to have any > problems in the future with the sutures closing etc... but we are just > beginners with the band. Today was 1 week and I can see some progress. > > So is almost done!! I am sure you are thrilled. Is your surgeon very > supportive of the band? And is he the one that will decide about the second > band? How have your results been? Do you see a big change ect....tell me > about your experience with dx and everything. > > I feel very frustrated and alone, medically. My surgeon and ped are not so > supportive and feel that everything is just fine and that CT tells everyone > they need a band.... but our clincian says that Josh is on the severe end of > things (head tilt, ears not alligned, and one higher than the other, facial > asymetry, head misshapen). > > Eager to hear someone else's story.. > > & (6/26/00, banded 12/22/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 We live in St. , MO outside of St. Louis Missouri Our neuro is at St. Louis Children's Hosp. and when I looked him up on Washington University Web sight, it says that they have their own ortho and they use helmets to correct plagio so I am hopeful. I just wonder what constitutes a mild or moderate case. I think if it were Sam I would take my ct scan and get another neruo surgens opinion. Especially one that works with peds. > , (agreed with the GREAT NAME!!) > > Thanks a million for letting me know that I am not alone. Where are you, > locally that is? I wish that I could find a really good md in my area that > is gung ho on the band idea and that would give me the confidence I need to > put to rest the idea about surgery. I don't want Josh to have to have it, > but I am scared that there is more to his problems then just the head shape. > Just that gut feeling. > > & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 JUlie...I agree with the second opinion. That's my #1 for next week. Have a happy new year. and 6/26/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Hello everyone, I am new to the list and haven't had a chance to read the archives yet....has the subject of diet been discussed recently? I am 39 got diagnosed with RA last year....I have only early symptoms and occassionally it remits....but I *always* notice an improvement when I cut out starches.....anybody else do this?? thanks anna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 I just wondered if it was me, I thought the pain had to be in the same joint at the same time on both hands or if it could shift from one hand to the other. , Mom to Jonah Michol born 11/2/01 died 11/14/01, due to left congenital diaphragmatic hernia and brain anomalies. Leanne 11yrs old, my beautiful dancer and expressive young woman, who I hope will achieve all of her dreams. 10yrs old, warburg syndrome (Lissencephaley), Septo-optic dysplasia (optic nerve hypoplasia) hypopituitarism, Tracheotomy, developmental delayed, hearing impaired, seizure disorder and the most handsome and happy boy there is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 In a message dated 1/2/2003 9:39:55 AM Pacific Standard Time, dnrmt@... writes: I just wondered if it was me, I thought the pain had to be in the same joint at the same time on both hands or if it could shift from one hand to the other. I don't get even and balanced pain. anna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Even before RA, I always noticed that I felt way better when I cut out carbs -- at least the junky carbs. Something about eating mostly veggies, fruits, whole grains and some protein that my body thrives on! There is a group just for dieting. I think it's arthritis-dieters If you can't get into it through (it's a moderated group and you have to be approved before you can join), you can find it at www.arthritisinsight.com I'm giving this diet thing another go.....have thrown away all the chocolates and cookies and I'm getting ready to head for the gym! Happy New Year, -------Original Message------- From: Rheumatoid Arthritis Date: Thursday, January 02, 2003 05:06:13 AM Rheumatoid Arthritis Subject: Re: hi there Hello everyone, I am new to the list and haven't had a chance to read the archives yet....has the subject of diet been discussed recently?I am 39 got diagnosed with RA last year....I have only early symptoms and occassionally it remits....but I *always* notice an improvement when I cut out starches.....anybody else do this??thanksanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Mine has always started in one joint, stayed there, burned out and then gone to the opposite one. It's very rare that I've had both affected at the same time. It's done that with my hands, knees, ankles, and toes. My hips both have some degree of pain, but only noticeable at night, really. ----- Original Message ----- From: dnrmt@... Rheumatoid Arthritis Sent: Thursday, January 02, 2003 12:37 PM Subject: Re: hi there I just wondered if it was me, I thought the pain had to be in the same joint at the same time on both hands or if it could shift from one hand to the other., Mom to Jonah Michol born 11/2/01 died 11/14/01, due to left congenital diaphragmatic hernia and brain anomalies. Leanne 11yrs old, my beautiful dancer and expressive young woman, who I hope will achieve all of her dreams. 10yrs old, warburg syndrome (Lissencephaley), Septo-optic dysplasia (optic nerve hypoplasia) hypopituitarism, Tracheotomy, developmental delayed, hearing impaired, seizure disorder and the most handsome and happy boy there is. Quote Link to comment Share on other sites More sharing options...
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