Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Hi Everyone, I've just found your site today. I've belong to a group for spondylarthropy and paid little attention to the fact I had RA for the past three years, as I thought the spondylarthropy was more devastating. From reading some of the posts here, I think the RA is probably causing more of my life changing problems than anything else. For five years, I was told I had fybromyalgia. Then three years ago, I was diagnosed with Rheumatoid Arthristis, osteoprosis and undifferentiated spondylarthropy. Now, as of last week, the diagnosis has changed to Rheumatoid Arthritis, Osteoprosis, Degenerative Disc Disease, Sacroilitis and " possible " spondylarthropy. My pain has always been throughout my body, but the worst of it is in my spine, hands and legs (from pinched nerves in my spine I think). I have no tissue left between the joints in my hands and ankles and my spine is rapidly losing the support between the vertebrae. I have a large lump in my neck where my neck is starting to hump over from the degeneration. Now, my hips have also become involved where I have a hard time sitting or standing or walking or pretty much doing anything. What didn't fit with most people with spondylarthropy was all the other immune system problems that I face. I catch every virus in the country, have a hard time recovering from infections, and have strange reactions to most drugs. The Rheumatologist has tried methotrax and plaquenil and I just suffered miserably while on them - like a non-stop flu bug. I've suffered from three occurances of a rare form of cancer and the oncologist believes it's due to my immune system being defective. Does this sound like most people with RA? Or should my doctor be looking for another immune disorder as the cause of all my difficulties? P.S. It's nice to find you all here. Thank you to whoever started the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 Thank you Lianne for another powerful video. I can certainly relate to the words and helped me to feel less angry about letting go of the past. To feel unconditional love is so much better and rewarding that to feel sadness and hatred. Light and Love Isabel > > Hello everyone! > How are you all doing? I pray that everything is ok and we all are having the best days we can wish for. > I came to let you all know that I just uploaded a new Video for the group, It is called: > Forgiveness and the Freedom of Letting go: > As is in right now, It did not uploaded yet on Youtube, I guess from some technical reason, but it is on Google and and also on VEOH. > here is the Link: > http://video.google.com/videoplay?docid=- 183571803040298406 & q=forgiveness > Much Love and respect to all > Liane > > > > > > Prayer isn't a time to give orders > but to report for duty! > > > --------------------------------- > Need a vacation? Get great deals to amazing places on Travel. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 Thanks 4 sharing , it was so beautiful I shared it with a few friends out side the love circle in here. I hope you do not mind, but it touched my heart and I had to share. Debbie H. > >> > hello to everyone, have a wonderful weekend angels> > just wanted to share this i recieved in mail> > love,light and many bleesings> > namaste> > kate> >> >> > WHEN WE SHARE> >> >> > When we share laughter,> >> > There's twice the fun;> >> > When we share success,> >> > We surpass what we've done.> >> >> >> >> >> >> > When we share problems,> >> > There's half the pain;> >> > When we share tears,> >> > A rainbow follows rain.> >> >> >> >> >> >> > When we share dreams,> >> > They become more real;> >> > When we share secrets,> >> > It's our hearts we reveal.> >> >> >> >> > If we share a smile,> >> > Then our love shows;> >> > If we share a hug,> >> > Then our love grows.> >> >> >> > If we share with someone> >> > On whom we depend,> >> > That person becomes> >> > Family or friend.> >> >> >> >> >> > And what draws us closer> >> > And makes us all care,> >> > Is not what we have,> >> > But the things that we share.> >> Quote Link to comment Share on other sites More sharing options...
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