Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Well, Judi, the fun never stops for you. Sorry. Thanks for passing on an important message. A thorough examination by an excellent dermatologist can be life-saving. And if your GP or rheumatologist has identified a skin disorder, a second opinion on the diagnosis and treatment from a good dermatologist can't hurt. [ ] cea > , a, and all the group: > > I saw a dermatologist yesterday who is going to go to bat for me in > the search for answers on Dercum's. She did a pretty thorough exam > of my whole hide, and when I asked her about my rosacea, she > said " what rosacea? Who diagnosed that? " Well, it was my former > PCP, the one who probably has his head " where the sun don't shine " > and who had me using a very expensive, strong medication (Metrogel.) > She found that I had quite a few areas that she called " precancerous " - > - and which she used liquid nitrogen to treat yesterday--on my face, > hands, and arms. She gave me some samples of moisturizing sunscreen > to be used EVERY day regardless of how long I am in the sun. She > said that rosacea is being overdiagnosed (like fibromyalgia?) and > improperly diagnosed by people who see redness on a face and assume > that is what it is, and that it is being advertised in the media > simply to sell pharmaceutical products. I go back to her for another > check in 8 weeks, and she is going to do a special test in her > regular office (she comes to Connersville once a week) which will > show any other suspicious areas. People like me with fair skin are > particularly at risk. > > It really frightened me to think that I may have allowed something to > go unchecked due to an incorrect diagnosis. My mother had melanoma > on her face, but it was treated early. > > I'll pass on her message to all of you--it is important to see a > licensed DERMATOLOGIST if there is any question about a skin problem, > and especially if you are fair-skinned or spend a lot of time > outside. > > peace to all, > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Thanks for the very important warning Judi. Sorry you were misdiagnosed with the cea and hope they got all the precancerous spots. My mom just had them removed from her face. Being from England, she is very fair skinned. I used to have very fair skin like my mom, but being in the sun as much as I am, my skin has changed. If I see any suspicious spots, I'll RUN to the dermatologist. a > , a, and all the group: > > I saw a dermatologist yesterday who is going to go to bat for me in > the search for answers on Dercum's. She did a pretty thorough exam > of my whole hide, and when I asked her about my rosacea, she > said " what rosacea? Who diagnosed that? " Well, it was my former > PCP, the one who probably has his head " where the sun don't shine " > and who had me using a very expensive, strong medication (Metrogel.) > She found that I had quite a few areas that she called " precancerous " - > - and which she used liquid nitrogen to treat yesterday--on my face, > hands, and arms. She gave me some samples of moisturizing sunscreen > to be used EVERY day regardless of how long I am in the sun. She > said that rosacea is being overdiagnosed (like fibromyalgia?) and > improperly diagnosed by people who see redness on a face and assume > that is what it is, and that it is being advertised in the media > simply to sell pharmaceutical products. I go back to her for another > check in 8 weeks, and she is going to do a special test in her > regular office (she comes to Connersville once a week) which will > show any other suspicious areas. People like me with fair skin are > particularly at risk. > > It really frightened me to think that I may have allowed something to > go unchecked due to an incorrect diagnosis. My mother had melanoma > on her face, but it was treated early. > > I'll pass on her message to all of you--it is important to see a > licensed DERMATOLOGIST if there is any question about a skin problem, > and especially if you are fair-skinned or spend a lot of time > outside. > > peace to all, > Judi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Hmmm, I was diagnosed with cea last year by a dermatologist but I really do not think I have it. I use Metrogel and can tell no difference. He also put me on tetracycline for the first month, made me really sick to my stomach. I think I have a lupus rash but he says I don't. My rheumatologist doesn't think it's a lupus rash and he suggested cea. I'm wondering if the dermatologist just went along with him on that? When I get hot my face gets really red. I have a light olive complexion (Italian and Hungarian) and used to have beautiful skin. Now I have to wear liquid makeup all the time to look decent. I think I need to find a new dermatologist soon. Becky Re: [ ] cea Thanks for the very important warning Judi. Sorry you were misdiagnosed with the cea and hope they got all the precancerous spots. My mom just had them removed from her face. Being from England, she is very fair skinned. I used to have very fair skin like my mom, but being in the sun as much as I am, my skin has changed. If I see any suspicious spots, I'll RUN to the dermatologist. a > , a, and all the group: > > I saw a dermatologist yesterday who is going to go to bat for me in > the search for answers on Dercum's. She did a pretty thorough exam > of my whole hide, and when I asked her about my rosacea, she > said " what rosacea? Who diagnosed that? " Well, it was my former > PCP, the one who probably has his head " where the sun don't shine " > and who had me using a very expensive, strong medication (Metrogel.) > She found that I had quite a few areas that she called " precancerous " - > - and which she used liquid nitrogen to treat yesterday--on my face, > hands, and arms. She gave me some samples of moisturizing sunscreen > to be used EVERY day regardless of how long I am in the sun. She > said that rosacea is being overdiagnosed (like fibromyalgia?) and > improperly diagnosed by people who see redness on a face and assume > that is what it is, and that it is being advertised in the media > simply to sell pharmaceutical products. I go back to her for another > check in 8 weeks, and she is going to do a special test in her > regular office (she comes to Connersville once a week) which will > show any other suspicious areas. People like me with fair skin are > particularly at risk. > > It really frightened me to think that I may have allowed something to > go unchecked due to an incorrect diagnosis. My mother had melanoma > on her face, but it was treated early. > > I'll pass on her message to all of you--it is important to see a > licensed DERMATOLOGIST if there is any question about a skin problem, > and especially if you are fair-skinned or spend a lot of time > outside. > > peace to all, > Judi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Pam, Where exactly is that butterfly rash that you have. I don't want to scare you but a butterfly rash across the bridge of the nose and on the face is one of the signs of lupus. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 In a message dated 7/16/2004 10:39:37 PM Eastern Standard Time, fam24@... writes: Hi Pam, Where exactly is that butterfly rash that you have. I don't want to scare you but a butterfly rash across the bridge of the nose and on the face is one of the signs of lupus. Janet Hi Pam...I get a similar rash...my dermatologist always tells me it is because of the PA...I too have been tested over and over for lupus and it always comes back negative too...for that reason, my rheumy won't try any of the biologics...in some people, they can cause lupus like symptoms, and since I have the rash, she is concerned that I am at risk...just something to keep in mind if someone recommends the biologics... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Janet, I know the butterfly shaped rash on the face is a sign of lupus. I have been tested repeatedly for lupus but the results are always negative. The doctors all tell me that the redness on my face is Rosecea but I find it strange that my Rosecea responds so well to MTX. Within a couple of hours after taking the MTX the Rosecea will subside and be almost unnoticeable. Then about 2 days before my next dose of MTX it will come back bright read and very hot. Pam > Hi Pam, > Where exactly is that butterfly rash that you have. I don't want to scare > you but a butterfly rash across the bridge of the nose and on the face is one > of the signs of lupus. > Janet > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 --- Pamela <pamstewart7079@...> wrote: > I know the butterfly shaped rash on the face is a sign of lupus. I > have been tested repeatedly for lupus but the results are always > negative. The doctors all tell me that the redness on my face is > Rosecea but I find it strange that my Rosecea responds so well to > MTX. I too have the butterfly-shaped rash, but the doctor has always diagnosed it as rosacea. I don't see a derm, however, just a rheumy and a general practitioner. The GP prescribes a steroidal cream that works very well. No one has even connected my facial rash w/ lupus, but I have been tested for it at least once, and I think twice -- never tested positive. From what I understand of lupus it isw not a gentle disease, and you'll know if you have it! , North Jersey Lowlands (Yeah, I moved!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 , Thank you for the infomation. Only one problem, I am still not sure which meds are biologics? Could you are someone give me a list so I know them when I hear the name? Thanks again Pam [Editor's Note: The most common are Enbrel, Remicade and Humira. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 In a message dated 7/17/2004 7:34:13 AM Eastern Standard Time, pamstewart7079@... writes: Within a couple of hours after taking the MTX the Rosecea will subside and be almost unnoticeable. Then about 2 days before my next dose of MTX it will come back bright read and very hot. My husband had rosecea and went to a derm who gave him laser treatments and it went away. Maybe you can look into that. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 In a message dated 7/17/2004 11:09:14 AM Eastern Standard Time, raharris@... writes: , North Jersey Lowlands (Yeah, I moved!) How ya doin??? Haven't heard from you here for a while. Hope all is well. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 > It's been a topic in the past and just wanted to give a Thumbs Up to Bare > Minerals, a powder-based make-up. I've been using it for a year. Prior to > that, I've spent most of my life battling rosacea, being a fair-skinned > Swede. Nothing worked - not even being on a great diet. I started noticing > a reduction in my rosacea after only 3 months of using Bare Minerals. I Sharon, There are many mineral make-ups on the market, and Bare Minerals actually has some fillers in it and is comparitively expensive. I use http://www.jlynnecosmetics.com/ and am quite happy with them. A quick google search will easily pull up at least 10 companies that sell it with different formulations and colors available, and many of those companies offer samples for $1-3 a container so you can try it out. KerryAnn www.cookingNT.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 I use http://www.jlynnecosmetics.com/ and am quite happy with them. A quick google search will easily pull up at least 10 companies that sell it with different formulations and colors available, and many of those companies offer samples for $1-3 a container so you can try it out. KerryAnn www.cookingNT.com Thanks KerryAnn! I've never heard of that one before!! Your timing is perfect. I'm running low and would LOVE to save some money! Do you have rosacea and have you noticed that line of cosmetics helping? I'm a little afraid to switch not knowing what the " magic " is in this formula. Thanks!!!! Sharon > > __. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 On 12/19/06, Sharon son <skericson@...> wrote: > I've never heard of that one before!! Your timing is perfect. I'm running > low and would LOVE to save some money! Do you have rosacea and have you > noticed that line of cosmetics helping? I'm a little afraid to switch not > knowing what the " magic " is in this formula. Thanks!!!! Sharon, No, I don't have rosacea, and I don't wear make-up enough to know whether or not it would effect skin problems. I haven't left the house in 5.5 months anyway to go anywhere where I could wear make-up. I discovered mineral make-up as a way to avoid wheat and gluten containing products in personal care items. Most make-ups and personal care items on the market have gluten in them, and I have celiac on my skin around my eyes, too. It's called dermatitis herpaformis or something like that. Anyway, in comparing the products on the market, I saw that they all had similar to identical ingredient lists, although some do have fillers and chemicals in them. The good ones are just basically crushed rocks and naturally-occuring pigments. They don't have any preservatives in them, and they don't need it unless you get them wet. My assumption is that the mineral content combined with regular application is what has the beneficial effect. You could try the J. Lynne. Their sample run as cheap was $1 apiece. I was able to get enough to last me months for less than $20. If it didn't work out for you, you wouldn't have lost much, and can go back to the Bare Minerals. But if it does work out, it could save you a lot of money. KerryAnn www.cookingNT.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 KerryAnn, Thanks. I'm going to give it a try. Won't hurt to do a little experiment. How are you doing? Making any headway controlling the health issues? Sharon On 12/21/06, Kerry <krankedyann@...> wrote: > > > You could try the J. Lynne. Their sample run as cheap was $1 apiece. > I was able to get enough to last me months for less than $20. If it > didn't work out for you, you wouldn't have lost much, and can go back > to the Bare Minerals. But if it does work out, it could save you a > lot of money. > > KerryAnn > www.cookingNT.com > > -- Deut 11:14 He will put grass in the fields for your cattle, and you will have plenty to eat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 > Thanks. I'm going to give it a try. Won't hurt to do a little experiment. > How are you doing? Making any headway controlling the health issues? Sharon, Generally, it's a long, slow climb out of a pit. I'm finally at the point that I'm hoping to be able to make Christmas Eve services at my church tomorrow- I've only left the house a handfull of times since July 4. The whole name of the game is avoiding exposure, but it's daunting at best. My daughter and I got exposed to casein last Saturday, and the recovery was shorter than it had been in the past, and this time it was more than a trace exposure. So that's a good sign that I'm healing. I haven't been exposed to gluten in a while, so we'll see how I do once my next exposure to that rolls around. Still, I'm quite happy that we discovered why I was eating a 95%+ WAPF diet and still sick as a dog. The good news is that I can save my kids from the same pain and misery. KerryAnn www.cookingNT.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Hi, Emma.... Thanks for pinning down which ingredient it may be. My dh suffers from IBS and I was just reading that h. pylori may be involved. I'm thinking of testing my make-up on him - dusting it on his inner arms in the morning. Would make for an interesting experiment.... I do have reactions to glutamates and sulphites which remain, but the cea's in remission.....would have been so nice if the bismuth had cleared up all the problems. Sharon On 12/27/06, Emma Davies <vitaminkgirl@...> wrote: > > > * Titanium Dioxide > * Zinc Oxide > * Mica > * Iron Oxide > * Bismuth Oxychloride > > > http://www.bareminerals.com/on/demandware.store/Sites-BareMinerals-Site/default/\ Link-Page?id=FREQUENTLY_ASKED_QUESTIONS > > cea can be associated with a couple of things - one is sensitivity > to vasoactive food chemicals (some additives, salicylates, amines, > glutamates), and/or also h. pylori infection. Bismuth is a remedy used > to kill h. pylori - which is also the culprit behind stomach ulcers, > that's partly why bismuth is found in some stomach ache formulas. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 Is it safe to say that cea is a fungul (like candida) infection, vs a bacterial/viral pathogen? I'm trying to help a friend who has this condition and has been drugged beyond belief yet her conditioni keeps getting worse. Diane What is her dental health like? Cavitations, root canals, amalgams? My symptoms of rosacea disappeared after the dental cleanup and oral chelation (Andy Cutler style). I wonder what metal feeds the parasite that causes it? She must not take ALA (alpha lipoic acid) in a once of dose. No one should. It is the only flaw I have EVER found in Dr 's work. Andy Cutler fills that chelation gap. When you chelate do it in rounds taking the chelator every 3 hours (ALA) and 4 hours (DMSA) starting in low doses and buidling up over time http://www.livingnetwork.co.za/healingnetwork/oral_chelation1.html Get that poison (mercury) out your mouth and body. Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 I have a friend who has been taking the MMS baths on a regular basis with excellent results. She has suffered from rosacea for many years. On a hunch, she decided to see if the baths would help with rosacea so has been putting her face right down into the water for as long as possible. Today she reported the rosacea is almost a thing of the past. She’s convinced it’s caused by some sort of organism. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 I usually save this for the University of Florida football team but now it's: GO VINCENT, not GO GATORS. I'm eagerly awaiting your return and remember, a lot of us are keeping you in our thoughts. Joe and Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 I'm not one of the persons who asked, but since you've brought this up, I was given topical azelaic acid and metronidazole gel for rosacea. Would these work ? I've read that diflucan pills are hard on the liver and mine isn't too happy with me right now. I don't mind the rosacea on my cheeks (fools folks into thinking I'm healthy), but it has severly affected my eyes so I guess I need to find something that works. ~Amber > Two list members mentioned rosacea. As far as I know there is only > one medicine that actually works, and that is 1% Diflucan in > DMSO. Use a Q-Tip and paint your whole face. Sometimes a single > application will cure it. I am going to be unavailable for about a > month, but if either of you can't obtain/make it call my office when I return. > > > 858-523-9144 > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Metronidazole works a little but it is not great. Azelaic acid has many medical uses (including cancer) but it is mediocre for rosacea. It would be impossible to hurt your liverr with a single painting of the face with a dilute solution of diflucan At 12:52 PM 11/16/2009, you wrote: > > >I'm not one of the persons who asked, but since you've brought this up, >I was given topical azelaic >acid and metronidazole gel for rosacea. Would these work ? I've >read that diflucan pills are >hard on the liver and mine isn't too happy with me right now. I don't >mind the rosacea on my cheeks >(fools folks into thinking I'm healthy), but it has severly affected my >eyes so I guess I need to find >something that works. > >~Amber > > > Two list members mentioned rosacea. As far as I know there is only > > one medicine that actually works, and that is 1% Diflucan in > > DMSO. Use a Q-Tip and paint your whole face. Sometimes a single > > application will cure it. I am going to be unavailable for about a > > month, but if either of you can't obtain/make > it call my office when I return. > > > > > > 858-523-9144 > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Thank you for the info on these 2 drugs . Does Diflucan come in a cream or is it just pills? The doc also gave me a scrip for Oracea (40mg doxycycline). I know that doxy is good for cancer so I guess I'll keep taking these. ~Amber > Metronidazole works a little but it is not > great. Azelaic acid has many medical uses > (including cancer) but it is mediocre for > rosacea. It would be impossible to hurt your > liverr with a single painting of the face with a dilute solution of diflucan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Stargazer writes: > I don't mind the rosacea on my cheeks (fools folks into thinking I'm healthy), but it has severly affected my eyes so I guess I need to find > something that works. > I was once diagnosed with rosacea and it turned out that my liver was very overloaded with ammonia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Oh my! However did your liver get overloaded with ammonia? That sounds quite nasty. ~Amber > > I was once diagnosed with rosacea and it turned out that my liver was very overloaded with ammonia. > > > Quote Link to comment Share on other sites More sharing options...
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