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In a message dated 11/6/2001 9:31:44 PM Central Standard Time,

galofgop@... writes:

> Not interfering I've been debating it for a while. He says its over now and

>

> that I should move out ASAP, so I guess I knew it wasn't just me that felt

> this way.

>

a

I haven't expressed how sorry I am to hear that you and are going

through such a tough time. I know that is putting it mildly. I don't know

where all of my time is going but I'm not finding very much to spare lately

but I needed to just say that I sincerely wish you the best of luck in

pursuing your dreams. Sometimes happiness simply isn't possible if there's

always that one thing that's missing. Settling definitely is not a good

thing if you are certain that's what you're doing. I will keep you in my

thoughts and hope that things work out for the best, no matter what you

decide. Hang in there, girl.

Jenni

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In a message dated 11/6/01 10:31:39 PM Eastern Standard Time,

galofgop@... writes:

> Not interfering I've been debating it for a while. He says its over now and

>

> that I should move out ASAP, so I guess I knew it wasn't just me that felt

> this way.

> a

Ugh, I am sorry to hear that! I am sure he is just hurt and angry right now.

Hopefully he will calm down and you two can work together to find a place for

you to live. Let me know if you need anything!

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In a message dated 11/6/01 10:31:39 PM Eastern Standard Time,

galofgop@... writes:

> Not interfering I've been debating it for a while. He says its over now and

>

> that I should move out ASAP, so I guess I knew it wasn't just me that felt

> this way.

> a

Ugh, I am sorry to hear that! I am sure he is just hurt and angry right now.

Hopefully he will calm down and you two can work together to find a place for

you to live. Let me know if you need anything!

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In a message dated 11/6/01 10:31:39 PM Eastern Standard Time,

galofgop@... writes:

> Not interfering I've been debating it for a while. He says its over now and

>

> that I should move out ASAP, so I guess I knew it wasn't just me that felt

> this way.

> a

Ugh, I am sorry to hear that! I am sure he is just hurt and angry right now.

Hopefully he will calm down and you two can work together to find a place for

you to live. Let me know if you need anything!

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----Original Message-----

From: Agaw12577@...

Sent: Wednesday, November 07, 2001 11:44 AM

To: tae-bo_on

Subject: Re: Re: Hello all

Ugh, I am sorry to hear that! I am sure he is just hurt and angry right

now.

Hopefully he will calm down and you two can work together to find a place

for

you to live. Let me know if you need anything!

a,

He probably is just hurt and angry right now and acting out. I have

letter after letter from my ex begging me stay, offering me a place to live,

I could come back whenever, etc. but when he finally realized I was

leaving, he got angry, very angry. And usually it gets a little worse

before it gets better. My best friend went through the same thing with her

husband when she got divorced. In fact she begged me not to tell my ex I was

leaving until I had my place, but I thought " honesty is always the best

policy " . Well to be honest, I'm not so sure I would do it all the same way

if I had it to do over again. But when you get overwhelmed just take a big

deep breath and remember why you are doing it and that you are a good person

no matter what transpires! Try not to let it get you too down, but it can

be very very very stressful.

Colleen

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----Original Message-----

From: Agaw12577@...

Sent: Wednesday, November 07, 2001 11:44 AM

To: tae-bo_on

Subject: Re: Re: Hello all

Ugh, I am sorry to hear that! I am sure he is just hurt and angry right

now.

Hopefully he will calm down and you two can work together to find a place

for

you to live. Let me know if you need anything!

a,

He probably is just hurt and angry right now and acting out. I have

letter after letter from my ex begging me stay, offering me a place to live,

I could come back whenever, etc. but when he finally realized I was

leaving, he got angry, very angry. And usually it gets a little worse

before it gets better. My best friend went through the same thing with her

husband when she got divorced. In fact she begged me not to tell my ex I was

leaving until I had my place, but I thought " honesty is always the best

policy " . Well to be honest, I'm not so sure I would do it all the same way

if I had it to do over again. But when you get overwhelmed just take a big

deep breath and remember why you are doing it and that you are a good person

no matter what transpires! Try not to let it get you too down, but it can

be very very very stressful.

Colleen

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----Original Message-----

From: Agaw12577@...

Sent: Wednesday, November 07, 2001 11:44 AM

To: tae-bo_on

Subject: Re: Re: Hello all

Ugh, I am sorry to hear that! I am sure he is just hurt and angry right

now.

Hopefully he will calm down and you two can work together to find a place

for

you to live. Let me know if you need anything!

a,

He probably is just hurt and angry right now and acting out. I have

letter after letter from my ex begging me stay, offering me a place to live,

I could come back whenever, etc. but when he finally realized I was

leaving, he got angry, very angry. And usually it gets a little worse

before it gets better. My best friend went through the same thing with her

husband when she got divorced. In fact she begged me not to tell my ex I was

leaving until I had my place, but I thought " honesty is always the best

policy " . Well to be honest, I'm not so sure I would do it all the same way

if I had it to do over again. But when you get overwhelmed just take a big

deep breath and remember why you are doing it and that you are a good person

no matter what transpires! Try not to let it get you too down, but it can

be very very very stressful.

Colleen

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  • 2 months later...

HI everyone,

It has been a while since I posted an update. Things have been extremely

hecitc here and I do not know where to begin. Mark had been terribly ill

with constant vomitting and diarrhea for 6 days last week. We took him to

the hospital and GI said that he had an injury to the esophagus (which, was

already injured from his severe GERD) from all the vomitting. They placed

him on steroids, Carafate and G-tube pediatlyte for several days...happy to

say, that it did the trick. Mark's weight is really down now and that is

NOT a good thing. Over the past month they have been running numerous tests

due to his severe FTT. A recent bone age revealed that Mark is 4 years

delayed in growth. The GI told us that without G-tube feedings Mark would

not grow or gain at all. So, that has continued to be a big part of our

life. Mark basically gets feeds anywhere from 12-18 hours a day, and still

his weight gain stinks. They have ruled out an endocrine problem and proven

that his FTT is from the inflammatory process of the leukocytoclastic

vasculitis. On an immunology note, Mark's IgA is very low for the first

time since 1995. I spoke with Dr. Rundles over the summer at the conference

and she mentioned that this might happen and it has. His IgM has also

dropped quite a bit. This is the first time that this has been seen in a

Cd5-Cd19 PID patient. Our local immunologist is not suprised at all, he

said that he anticipated that it would happen with Mark's particular PID.

Fortunately, we can still do the IVIG without a reaction problem as long as

we continue to pretreat.

On another note, we found out last week that perhaps a reason for 's

relentless sinus infections (which are still in full force and not

responding to antibiotics and is causing terrible asthma flares) is that

there is now proof that people with Alpha 1 antitrypsin deficiency

(hereitary emphysema, which myself, Mark and all have) can cause

horrible asthma, allergies and constant SINUS infections. This coupled with

the Samter, is what is probably making 's sinuses so bad. 's

physician is going to contact the medical director of the Alpha 1

foundation, who happens to be from National Jewish and is going to talk

about treatment options for . This could also explain why 's lung

function is so poor. SO, it has been quite a week to say the least. Then

on top of it all, my cousin who has CF, had a life-threatening infection

again in her port and almost lost her life. My aunt (her mom) and I are

going to a stress reduction group today.....we could sure use it. We will

get through this, we always do. BTW, winter has finally arrived in MI, we

are supposed to get 4-10 inches of snow with freezing rain and

ice...YIPES!!!!

Welcome to all the newcomers!!!!

Be well everyone,

Autumn (Mom to Mark Cd5-Cd19 PID and )

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