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Re: Digest Number 782

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>

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>From: rheumaticegroups

>rheumaticegroups

>Subject: rheumatic Digest Number 782

>Date: Sun, Apr 16, 2000, 1:32 PM

>

> Hi group:

I don't know how significant herxes are as a sign of getting better or not

better. I had a major herx when I started Minocin and another when I added

Zithromax a few months later, yet I have seen no improvement.

I started the AP six WEEKS after my RA symptoms started, and I had a

negative rheumatoid factor and a normal SED rate, so I should have been a

perfect candidate. I think we all know the AP may work for most people, but

not all.

I stopped antibiotics about six weeks ago and started RA SPES and a hefty

dose of MSM. It's probably the SPES that's doing the trick. I am feeling

good enough to get on the treadmill for 30 minutes a day, and to start

lifting weights again. That would have been unthinkable just a few short

weeks ago.

So I say to each her own, and good health to all.

Rhonda

>>

>> I find it interesting that you never had a herx. I've been

> wondering

>

> Ive talked about this with Anita and Mark. Both of them didnt feel

> the

> AP was doing much for them altho they still are sticking with it.

> Neither of them ever had anything they would think of as a herx and

> also interestingly neither of them has the fevers or fatigue that

> most

> of us have. I sorta wonder if there arent other different viral

> things

> causing these diseases.

>

> As far as the computer hookup to you and the supplements, it sounds

> like a bunch of hooey to me. I would need definate proof that it

> worked to believe it.

>

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What are SPES and MSM please?

I am new to this list and am finding it fascinating reading all the

messages. No one else I know has come down with RA like I have: people

comment that they have arthritis and it is no big deal, and at times I

wonder if it's my head that's screwed up. But people on this list

describe my symptons exactly, which is very reassuring. So thank you

everyone.

I have had RA diagnosed since January 2000, though there was something

wrong for several months before that. I have been on the AP (I've worked

that one out) since the end of February. 200mg Minocycline 3x a week and

200 mg Cerebrex each day. I am also on a very strict diet. Over the last

few days I have experienced what may be a " herx " - an extremely painful

flareup of all my joints, pain where I imagine my kidneys are, chronic

fatigue - all lasting all day and most of the night. This happened 2

days after a few days of social activity where I gave away my diet and

just ate and drank what people gave me. Are herxes related to diet in

any one else's experience? I am not going to monkey about with the diet

again, just in case.

A further question: I was expecting that I could be completely cured

seeing my RA was caught fairly early. Do people actually get cured? Or

do we just get a lot better and have to stay on these drugs for the rest

of our lives?

Thanks

Gail

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Gail,

We don't call this therapy a cure. I hope to see that down the road.

While a few people (generally those with early disease that found the AP

quickly) have been able to get off the antibiotics, most people are on

them for life.

Having said that, I've been off antibiotics for over a year now, but I

am doing other things which are working for me. I need to have some

testing done before talking about them.

Ethel

Gail wrote:

>

> What are SPES and MSM please?

> I am new to this list and am finding it fascinating reading all the

> messages. No one else I know has come down with RA like I have: people

> comment that they have arthritis and it is no big deal, and at times I

> wonder if it's my head that's screwed up. But people on this list

> describe my symptons exactly, which is very reassuring. So thank you

> everyone.

>

> I have had RA diagnosed since January 2000, though there was something

> wrong for several months before that. I have been on the AP (I've worked

> that one out) since the end of February. 200mg Minocycline 3x a week and

> 200 mg Cerebrex each day. I am also on a very strict diet. Over the last

> few days I have experienced what may be a " herx " - an extremely painful

> flareup of all my joints, pain where I imagine my kidneys are, chronic

> fatigue - all lasting all day and most of the night. This happened 2

> days after a few days of social activity where I gave away my diet and

> just ate and drank what people gave me. Are herxes related to diet in

> any one else's experience? I am not going to monkey about with the diet

> again, just in case.

>

> A further question: I was expecting that I could be completely cured

> seeing my RA was caught fairly early. Do people actually get cured? Or

> do we just get a lot better and have to stay on these drugs for the rest

> of our lives?

>

> Thanks

> Gail

>

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How long were you on the antibiotics? Did you have an ASO titer run?

Are there any other infections in your body?

Root canals? Sinus or gut problems?

Ethel

Rhonda wrote:

>

> >

> >

> ----------

> >From: rheumaticegroups

> >rheumaticegroups

> >Subject: rheumatic Digest Number 782

> >Date: Sun, Apr 16, 2000, 1:32 PM

> >

>

> > Hi group:

> I don't know how significant herxes are as a sign of getting better or not

> better. I had a major herx when I started Minocin and another when I added

> Zithromax a few months later, yet I have seen no improvement.

> I started the AP six WEEKS after my RA symptoms started, and I had a

> negative rheumatoid factor and a normal SED rate, so I should have been a

> perfect candidate. I think we all know the AP may work for most people, but

> not all.

> I stopped antibiotics about six weeks ago and started RA SPES and a hefty

> dose of MSM. It's probably the SPES that's doing the trick. I am feeling

> good enough to get on the treadmill for 30 minutes a day, and to start

> lifting weights again. That would have been unthinkable just a few short

> weeks ago.

> So I say to each her own, and good health to all.

> Rhonda

>

> >>

> >> I find it interesting that you never had a herx. I've been

> > wondering

> >

> > Ive talked about this with Anita and Mark. Both of them didnt feel

> > the

> > AP was doing much for them altho they still are sticking with it.

> > Neither of them ever had anything they would think of as a herx and

> > also interestingly neither of them has the fevers or fatigue that

> > most

> > of us have. I sorta wonder if there arent other different viral

> > things

> > causing these diseases.

> >

> > As far as the computer hookup to you and the supplements, it sounds

> > like a bunch of hooey to me. I would need definate proof that it

> > worked to believe it.

> >

>

> ------------------------------------------------------------------------

> Get paid for the stuff you know!

> Get answers for the stuff you don’t. And get $10 to spend on the site!

> 1/2200/0/_/532797/_/956123109/

> ------------------------------------------------------------------------

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Gail,

I do think that diet is related. Both my doctor and naturopath are adamant

that the AP works best if you follow your diet. I have been on the diet for

a couple of months now (the same time as I've been on AP) and have only gone

off it once - and I did feel worse afterwards (eating pork). I am also

coming to agree with your theory that diet may have been a contributing

factor to the disease developing in the first place (feeding the mycoplasma

in the joints). Just my opinion!

Lara

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Thanks Ethel, Gloria & Lara for your comments and advice.

My diet was given by a Naturopath and confirmed, and added to, by Dr Chiu.

No gluten (wheat, rye, barley, oats), no dairy except a little yoghurt,

no red meat, no nightshades(potato, capsicum, tomato, chilli, aubergine),

no citrus, no caffeine(coffee & tea), no alcohol, no sugar. Only olive

oil.

Lots of fish, lots of green vegetables, some fruit, ground nuts and seeds.

I also take Omega 3

Evening Primrose Oil

Vitamin E

Antioxidants

Red Grape Seed extract

Kyolic Garlic

It's rather spartan. I don't mind the food because I feel satisfied with

the fish, but I really miss my cappacinos and wine!

Gail

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Thanks . This list is fantastic: finding people who experience the

same things so I don't have to flounder around taking ages to find things

out for myself.

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Hello

Red grape seed's an antioxidant. According to the blurb in the packet it

is an extrememly powerful one " grape seed flavonoids contain some of the

most powerful antioxidants... " .

The other antioxidant I take is a mixture of Vitamins A,C, E,

Betacarotene, Methionine, Manganese, Zinc and Selenium. NZ soil is

deficient in Selenium.

I basically have just taken what I've been told to by the Naturopath, who

has RA herself and has researched it extensively in her job with a health

food producer.

Gail

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Thank you , that is very encouraging. I dumped my first doctor too,

or my first rheumatologist. He basically said " It's too soon to tell, we

need to wait for more symptons " and prescribed very large doses of

Naprosyn. When I asked why that doseage he said " It's what we usually

do. " Fortunately the Naturopath I had been to put me on to Dr Chiu or I

would have been despairing. Had I not been able to help myself and had

researched some drugs my future would have been very grim. I feel sorry

for all those people who get this disease and don't know how to do

anything else except what 'the great specialist god' tells them to do.

Gail

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  • 8 months later...
  • 2 months later...
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In a message dated 3/22/01 9:55:05 AM Eastern Standard Time, bodyforlife writes:

I guess this is good, but any tips in relieving this tightness/pain any??

Flex your feet under your desk periodically, make sure you're getting in lots of fluid, and massage! I had a massage yesterday afternoon about 4 hours after my UBW (where I achieved a new personal best on Barbell Incline Chest), and I'm experiencing very little soreness, surprisingly. I'd also have to say to make sure that you really stretch well after your workout. In fact, I stretch between every set.

a

"She who laughs, lasts." - Poole

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In a message dated 3/22/01 9:55:05 AM Eastern Standard Time, bodyforlife writes:

I guess this is good, but any tips in relieving this tightness/pain any??

Flex your feet under your desk periodically, make sure you're getting in lots of fluid, and massage! I had a massage yesterday afternoon about 4 hours after my UBW (where I achieved a new personal best on Barbell Incline Chest), and I'm experiencing very little soreness, surprisingly. I'd also have to say to make sure that you really stretch well after your workout. In fact, I stretch between every set.

a

"She who laughs, lasts." - Poole

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  • 4 weeks later...
  • 6 months later...

In a message dated 11/8/01 1:33:24 PM, writes:

<< There is no diagnosis yet, but everyone is pretty glum. What is

expected is that the leukemia is back and that the outlook will be very

bad. We will probably have news late today or tomorrow, but no one is

expecting it to be good.

We just have to enjoy every day!

Rick >>

Rick,

I am so sorry to hear this. I will pray that what is expected is wrong,

and that it will be something easily treatable.

Hugs and prayers,

M.

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In a message dated 11/8/01 1:33:24 PM, writes:

<< There is no diagnosis yet, but everyone is pretty glum. What is

expected is that the leukemia is back and that the outlook will be very

bad. We will probably have news late today or tomorrow, but no one is

expecting it to be good.

We just have to enjoy every day!

Rick >>

Rick,

I am so sorry to hear this. I will pray that what is expected is wrong,

and that it will be something easily treatable.

Hugs and prayers,

M.

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  • 7 years later...

I have a question, what would happen if i just took the solution of water and MMS1 powder without citric acid? Would that have any healing qualities?

I got a small order of the MMS1 kit. Just reading the papers that went with it makes me afraid to touch them. This thing explodes? If i mix MMS powder and water and store in fridge, how longwould it keep?

Thanks.

From: < >Subject: [ ] Digest Number 782 Date: Sunday, October 18, 2009, 10:28 AM

Miracle Mineral Supplement

Messages In This Digest (9 Messages)

1.

Pharmacy Compounding Subject to FDA Approval? From: healinghope

2a.

.........go tell it on the mountain From: Willow Morningsky

2b.

Re: ........go tell it on the mountain From: healinghope

2c.

Re: ........go tell it on the mountain From:

3.1.

Compounded T3 ...was Re: Calcium Chlorite in Australia From: DianeS

4.1.

Re: MMS is an oxygenating therapy From: jim

5a.

Re: Acidity From:

5b.

Re: Acidity From: healinghope

6.1.

Re: Cancer vs MMS From:

View All Topics | Create New Topic

Messages

1.

Pharmacy Compounding Subject to FDA Approval?

Posted by: "healinghope" mfrreman@... mfrreman

Sat Oct 17, 2009 10:54 am (PDT)

Pharmacy Compounding Subject to FDA Approval? The Facts Just Don't Fithttp://www.compound ingfacts. org/info. cfm?News_ ID=84http://www.iacprx. org/site/ PageServer? pagename= P2C2Over the past 15 years, there has been a fundamental disagreement between the U.S. Food & Drug Administration (FDA) and the profession of pharmacy over the legality of compounding.The view espoused by the FDA is that compounding has been illegal ever since the Federal Food, Drug, and Cosmetic (FDC) Act was passed in 1938. The compounding profession disagrees, and the facts concur.Recently, a landmark ruling in Midland, Texas, reinforced the view of the pharmacy

profession that compounded medicines are not new, unapproved drugs and, subsequently, it is legal to prescribe and dispense them.The Midland decision stops the FDA's encroachment on the authority of state boards of pharmacy in its tracks and lifts the veil of uncertainty from pharmacy compounding, allowing pharmacists to serve their patients confidently.FDA's lengthy legal briefs against compounding can be boiled down to a very simple argument: that every compounded drug is a new, unapproved drug and, hence, subject to FDA oversight. FDA's argument primarily hinges on one statutory provision in the FDC Act. This provision defines a new drug as "any" drug that is not generally recognized as safe and effective by experts. FDA argues that the word "any" is clear, simple, and unambiguous, and precludes examining any historical facts.The problem with FDA's argument is that the courts have repeatedly rejected it – even before the

Midland decision. Recently, the U.S. Supreme Court reviewed a federal statute that imposed restrictions on individuals who had been convicted by "any" court. The government argued there, as the FDA argues here, that "any" means "every" and there are no exceptions. The Supreme Court rejected the government's argument in that case, ruling that a Japanese court was not "any" court for purposes of interpreting the law. In other words, the Court said that courts should not read the word "any" literally as meaning each and every, and should not ignore, as the government wanted, Congress' objectives and the historical context.This is not a new concept. The U.S. Supreme Court in this decision cited another Supreme Court decision involving the word "any." Thus, FDA's central argument about how statutes must be interpreted – that the phrase "any drug" means every single drug, without qualification – flies in the face of judicial precedent going back

two centuries.FDA has cited no facts to support its position. Instead, FDA relies completely on this statutory argument. However, the facts refute FDA's view.* Fact: In 1938, when Congress passed the FDC Act, hundreds of millions of medications were compounded annually. In fact, the health care system could not have functioned without compounded drugs. As the executive director of the Missouri Board of Pharmacy stated before Congress in 2003, "In fact, until after World War II when drug manufacturing became more prominent, compounding was one of the principal practices used to provide needed drugs to patients." FDA's interpretation of the law would have meant a complete breakdown in the delivery of health care in the United States in 1938, when Congress passed the law.* Fact: The legislative history of the FDC Act shows that Congress did not intend to interfere with the practice of medicine. Depriving physicians and patients of

access to compounded drugs at a time when there were no alternatives for most diseases would have caused an extraordinary disruption with medical practice, and would have been contrary to Congress' intent.* Fact: There is absolutely no indication from the legislative history that anyone in Congress expected or intended for the FDC Act to turn compounding pharmacists into criminals. FDA says that this silence shows that Congress did not intend to confer an exemption upon pharmacists. In fact, the contrary was true – no expressed exemption was needed because nobody ever contemplated that compounding would be deemed illegal. Compounding had been practiced since the early colonial days. Under FDA's theory, Congress fundamentally changed the health care delivery system without anyone in Congress saying, or even hinting, that they had just abolished compounding as a lawful activity.* Fact: As of 1938, every state permitted compounding.

Pharmacists were licensed and trained to compound in every state. These state laws did not change after passage of the FDC Act. Compounding remained a state-sanctioned, state-licensed activity. Under FDA's theory, every state was authorizing pharmacists to – and often even requiring pharmacists to – commit illegal acts.* Fact: In 1938, pharmacy schools trained pharmacists to compound. Under FDA's theory, these schools of pharmacy were teaching – and have continued to teach – illegal conduct.* Fact: The pharmacy groups were among the strongest supporters of the FDC Act. The President of the American Pharmacists Association (APhA) was persistent in supporting the bill, and praised Congress for passing the law. In fact, pharmacy groups wanted the law passed because they were already heavily regulated, and their competitors – drug manufacturers – were not. Under FDA's theory, the pharmacy groups were supporting legislation that

caused virtually every pharmacist in the United States to become criminals.* Fact: The United States Pharmacopeia (USP) contained monographs for compounded drugs in 1938. In fact, Congress gave the USP special status under the FDC Act. Under FDA's theory, the USP monographs for compounded drugs established criteria for illegal products. In fact, since 1938, the USP has added monographs for new compounded drugs, and more recently, standards for compounding. Under FDA's theory, each new monograph has represented another formula for another illegal product.* Fact: The United States government has long engaged in the act of compounding. Documents from the early 1940s give military pharmacists instructions on compounding. The Department of Defense has continued to support and utilize compounding. The U.S. Army offered formulas for pharmacists to compound drugs from bulk. Under FDA's theory, every military pharmacist who compounds is breaking

federal law. This would create a terrible dilemma for military pharmacists – filling an order to compound a drug would mean to follow an illegal order.* Fact: The federal government provides reimbursement coverage for compounded medications. Under FDA's theory, the U.S. Government is paying for an illegal product.* Fact: The FDA itself did not take the view in 1938 that compounding was illegal. There is no evidence whatsoever that FDA, in the wake of the passage of the law, told pharmacists that their behavior was illegal. In fact, in subsequent publications for pharmacists talking about the FDC Act, FDA described multiple provisions of the law, but did not tell pharmacists that one effect of the law was that compounding had become unlawful.* Fact: There is no contemporaneous evidence that anyone thought that compounded drugs would become illegal new drugs as a result of the 1938 FDC Act. No one in Congress, no one from FDA, no

pharmacist, and no witnesses before Congress ever said or suggested such a thing. Under FDA's theory, the U.S. health care system was being transformed, and nobody ever said a word about it. FDA has argued that Congress passed the law to give FDA the discretion to regulate compounding. In fact, there is no evidence at all that Congress or anyone else thought it was conferring upon FDA any authority over compounding. Nor is there any evidence that Congress intended for compounding to survive solely at the discretion of FDA.* Fact: In 1970, Congress passed a law regulating controlled substances. It gave an exemption for compounding pharmacists under certain circumstances. The U.S. Drug Enforcement Administration' s (DEA) implementing regulations also gave compounding pharmacists an exemption. Under FDA's theory, Congress outlawed compounding in 1938 and then in 1970 exempted this illegal behavior from certain provisions of the DEA laws. There is

no evidence that in 1970 Congress considered compounding to be anything other than a lawful, medically necessary practice.* Fact: Compounding remains ubiquitous, in the retail setting, in hospitals, and elsewhere. There is no disputing – even by FDA itself – that compounding remains medically essential. Under FDA's theory, compounding pharmacists who perform this essential, life-supporting service have been criminals since 1938, protected from prosecution only by FDA's willingness to exercise its enforcement discretion.* Fact: Until relatively recently, FDA did not take the position that all compounded drugs were unapproved new drugs, and therefore illegal. If, as FDA now argues, the plain language of the statute makes it crystal clear that every compounded drug is illegal, one would have expected FDA to have articulated this theory well before a half century elapsed.In fact, evidence discovered during the Midland case proves

that FDA acknowledged internally in 1989 that this novel theory was a break with tradition. In a memo dated August 2, 1989, the FDA's Office of the General Counsel wrote in a memo that its new legal theory on compounding, among other things:* "is a departure from the traditional approach we have taken;"* "would likely face a variety of practical problems, including jurisdictional issues;"* "would require the establishment of new legal precedents;" and* "leaves pharmacists in the objectional [sic] position of `living in sin.'"FDA has no facts to supports its position, as evidenced by its recent loss in Midland, Texas. When Congress passed the FDC Act in 1938, nobody – Congress, pharmacists, states legislatures, state Boards of Pharmacy, USP, the U.S. military, or FDA – thought that Congress had banned compounding. Nobody said a word about this dramatic shift in health policy. It was not until 50 years later

that FDA reinterpreted the law to say that a linchpin of the health care system was a criminal act.The courts have developed principles for interpreting this type of silence. In a less legalistic way, so did Sir Arthur Conan Doyle. In his famous story Silver Blaze, the following exchange took place:Colonel Ross: "Is there any other point to which you would wish to draw my attention?"Holmes: "'To the curious incident of the dog in the night-time."Colonel Ross: "The dog did nothing in the night-time."Holmes: "That was the curious incident."The utter silence regarding any intent to ban compounding, combined with massive accumulation of facts rebutting FDA's newly minted theory, shows that FDA's interpretation is simply wrong and would keep millions of patients from receiving essential treatment. For these patients with unique needs that are unmet by off-the-shelf pharmaceuticals, compounded

medications—prescrib ed or ordered by licensed physicians and mixed by trained, licensed compounding pharmacists—are the safest and most effective way to better health.

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2a.

.........go tell it on the mountain

Posted by: "Willow Morningsky" WillowMorningSky@... willowmorningsky

Sat Oct 17, 2009 11:53 am (PDT)

Our EPA has stopped the mountain top removal of coal in WV.......... ..http://www.dailykos .com/storyonly/ 2009/10/16/ 794233/-BREAKING :-EPA-Denies- Permit-for- Infamous- WV-Mountaintop- Removal-Mine

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2b.

Re: ........go tell it on the mountain

Posted by: "healinghope" mfrreman@... mfrreman

Sat Oct 17, 2009 2:23 pm (PDT)

It is wonderful what grass movements can do, they can move mountains.:) This was not accomplished without arrest, continue to support the stop of mountaintop removal. :) There was a showing in W. Va. no one figured on, watch the video.:)http://www.ilovemou ntains.org/ news> >> > Raw apple is fantastic for acid reflux.> > Gayla> > Bob and Gayla > > Always Enough Ranch> > Acampo, CA> > [miracle_mineral_ supplement] Re: Acidity> > > > > > have you ever tired mother vinegar for acid reflux? It cured me > > nothing worst than heart burn or

reflux.> >>

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6.1.

Re: Cancer vs MMS

Posted by: "" gaiacita@... gaiacita

Sun Oct 18, 2009 7:22 am (PDT)

There are posts here in the archive where a couple of ladies experiencedmuch face skin sagging and wrinkling due to over use of MMS (oxidant) which,when they stopped the MMS and started taking large doses of antioxidants (like vit. C) they were able to quickly reverse the sagging. They would not give up MMS though, but they did slack off on the amount theytook and the frequency, being sure to also take antioxidants to counter theeffects of the oxidant. Like anything else, some people are more sensitive than others. Just besure you pay attention to your body, how you feel and what reactions youhave when taking anything, MMS included. Samala, -------Original Message----- -- Hey if I can maintain feel good young and not ache, who cares if I wrinklesome not that I have found research to

support or not support this yet.

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Dear ,

Is the MMS we receive from the man in Canada just the powder in water? If so, I

have been doing just that for a few weeks. I have varied the dose to one drop

in a full glass of water up to a few or several drops. I notice that it works

pretty much the same as actived MMS1 only not so aggressive. One day I had some

lemon/ginger/honey drink I make when not feeling well and all hell broke loose

with the diahrea and nausea (no vomiting) So I figured it all got activated and

I had a major cleanse. I did not however get sick with the flu I was fighting

off. At least not seriously. I had cramps for days. So be careful with acidic

things.

One thing this experience has taught me is that I don't know if I agree with

this idea that MMS only lasts a few hours.

Best wishes,

Jill

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