Chronic Fatigue Syndrome

[Guest guest]

In a message dated 3/29/02 10:10:36 AM Eastern Standard Time,

caloson@... writes:

> Hi, I have Chronic Fatigue Syndrome, and I was

> wondering if adding charcoal to my diet,if that would

> help to absorb the toxins in my body, I've posted here

> before and never got a reply, if charcoal would help,

> could i be told what type to get and how much, thank

> you Caloson@...

>

All I know about charcoal is that it is good for absorbing, but I don't know

WHAT it absorbs or how much to take. I'm sure you'll get responses from

others who are more knowledgeable about charcoal, but I just wanted to ask

how long you've been dealing with the CFS and what else you've done in regard

to dietary habits or supplements or things of that nature to deal with it?

in health,

rachel~

" Whether you think you can or think you can't, you're right " - Henry Ford

[Guest guest]

where can I find that CFS research list please?

[Guest guest]

> I am working diligently on holistically healing my 8 yr

> old daughter whom I feel if left as is would be a candidate for

> something like this, but was just wondering if there is anything out

> there.

Hi Kari;

That question might be better answered on the cfs_research list. Some

of the people there are very advanced. Interestingly, one fellow just

posted 75 glutathione references for cfs treatment in the last few

days.

regards,

Duncan Crow

[Guest guest]

> where can I find that CFS research list please?

>

>

cfs_research

[Guest guest]

I have been taking LDN 4.5 nightly for almost 5 years with excellent results for CFS. My symptom improvement is much less fatigue, (up all day long, sleep very well at night), much better memory, a lot less sickness.

Hope this helps you.

Aloha,

Sunny Sedlock 7117 Park Terrace Drive andria, VA 22307 703-998-0272 - Home Office 703-888-9412 - Cell 2002Eldo@...- E-Mail EJS11715@... - E-Mail

low dose naltrexone From: toni@...Date: Thu, 20 Mar 2008 09:05:19 -0700Subject: [low dose naltrexone] Chronic Fatigue Syndrome

Hello everyone. I just joined this group because I'm trying to find out if anyone who has been diagnosed with Chronic Fatigue Syndrome has benefited from taking LDN. I was given the antiviral Valcyte because I have high titers for EBV and HHV-6. I fit the profile of those for whom the drug is working, but it did not work for me even though I stayed on it for a whole year, so I'm looking for other possible treatments.I am housebound and mostly bedbound with CFS. I have no pain, just devastating fatigue that requires me to take naps every 3-4 hours. I can only be up out of bed for about 45 minutes at a time.I look forward to any information that any of you might have to offer.Thanks so much.Toni

[Guest guest]

Hi Toni,

I have CFS, and started LDN three years ago. It gave me a "lift" in energy. I continue to take it, as a measure of good health, as I feel it is protecting my immune system.

Question, and you might want to email me personally, so we can dialogue in depth---------who put you on the antibiotics for that long? Were you worse or better when you started? Reason I'm asking, is that I have been on several antibiotics for four months, and spiraled downward, and am at a "crossroads". My personal email, mwilliams6@.... I would appreciate hearing from you.

Sara Mom/Grammie to eight

"Trying to live by my priorities rather then my pressures".

[Guest guest]

Dear Toni -

I also have CFS and have just joined this group.

I’ve had CFS for 6 years, and both of my sons have it also. I’ve been on LDN for about two months now (plus three months last fall), and it is the first thing that has made a significant difference in six years!

I have more energy and often feel like my “old” self now. I’ve even been able to begin exercising again – taking walks most days and starting some very limited weight training. LDN is definitely not a cure – I still have CFS, still need a nap every afternoon, still have to be somewhat careful not to overdo, still can’t have any dairy products or alcohol, etc. BUT, I feel much better than I have in years, my stamina is greatly improved, and my quality of life is improved overall.

I have done very well on 3 mg, taken at bedtime. I recently switched to 4.5 mg and felt much worse (than on 3 mg). Last night, I switched back to 3 mg and woke up this morning feeling good again. The positive effect is immediate.

Anyone else out there do well at a lower dose and worse at 4.5 mg?

Sue

www.livewithcfs.blogspot.com

[Guest guest]

I was diagnosed at the age of 19 (36 now). It was still a skeptical syndrome at

that point and had just been renamed from " the yuppie flu " . Mine isn't really

treated. I take vitamins, exercise. My Fibromyalgia then became my main health

issue, and now my main issue is the inflammatory arthritis/connective tissue

disease. Although I still get extremely fatigued I'm more limited due to high

levels of pain that I never had when it was just the CFS.

getcoffee@... wrote: I am curious to know how

those of you who have been diagnosed with chronic

fatigue syndrome were diagnosed. What was the process?

Were you prescribed provigil and did the insurance actually cover it?

(considering Provigil is not FDA approved for CFS?)

Thanks,

Abby

In a message dated 4/15/2008 1:00:48 P.M. Pacific Daylight Time,

stephieann2@... writes:

so hope that they prescribe it for you too! I've read a few posts from those

that have CFS and it seems to be helping them! I know fatigue is so

frustrating. There are days I lay around all day literally, and other days, I

can

get small surges of energy. Keep me updated! And good luck!!

**************It's Tax Time! Get tips, forms and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850)

[Guest guest]

Abby,

I haven't been diagnosed w/ CFS...but I do suffer from chronic

fatigue from RA/fibromyalgia. I am trying to get prescribed

provigil. I had to get a sleep study done to r/o sleep apnea. Sleep

apnea symptoms can become worse on a medication like provigil (that

is what I was told anyways). I will let you know my process since I

am in the middle of it right now. I do have other health problems

besides RA/fibro. Since provigil is a new medication, some insurance

companies won't cover it if you don't have nacrolepsy. I don't know

if insurances will cover ADHD medication (stimulants) for CFS.

I am curious to

know how those of you who have been diagnosed with chronic

> fatigue syndrome were diagnosed. What was the process?

>

> Were you prescribed provigil and did the insurance actually cover

it?

> (considering Provigil is not FDA approved for CFS?)

>

> Thanks,

> Abby

>

>

> In a message dated 4/15/2008 1:00:48 P.M. Pacific Daylight Time,

> stephieann2@... writes:

>

> so hope that they prescribe it for you too! I've read a few posts

from those

> that have CFS and it seems to be helping them! I know fatigue is

so

> frustrating. There are days I lay around all day literally, and

other days, I can

> get small surges of energy. Keep me updated! And good luck!!

>

> **************It's Tax Time! Get tips, forms and advice on AOL

Money &

> Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850)

>

>

[Guest guest]

I would like to respond to the CFS messages; I had CFS for 7 years...nothing

worked to make get better until I finally went to a doctor who put me on a diet

for Candida...basically it's like the South Beach diet. I had no sugars of any

kind and finally worked up to an apple...but ate all the veggies and meat that I

wanted....I started with nistatin to kill of the yeast and that about killed

me...but after 2 months I was back to normal. To this day I hardly drink juices

with sugar and I'm careful about certain fruits.......

Barb G.

getcoffee@... wrote:

I am curious to know how those of you who have been diagnosed with

chronic

fatigue syndrome were diagnosed. What was the process?

Were you prescribed provigil and did the insurance actually cover it?

(considering Provigil is not FDA approved for CFS?)

Thanks,

Abby

In a message dated 4/15/2008 1:00:48 P.M. Pacific Daylight Time,

stephieann2@... writes:

so hope that they prescribe it for you too! I've read a few posts from those

that have CFS and it seems to be helping them! I know fatigue is so

frustrating. There are days I lay around all day literally, and other days, I

can

get small surges of energy. Keep me updated! And good luck!!

**************It's Tax Time! Get tips, forms and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850)

[Guest guest]

your probible deficeint in sulfur it may give you a really bad flare to take

it start with a low dose and doctors okay

stephanie <stephieann2@...> wrote:

I was diagnosed at the age of 19 (36 now). It was still a skeptical

syndrome at that point and had just been renamed from " the yuppie flu " . Mine

isn't really treated. I take vitamins, exercise. My Fibromyalgia then became my

main health issue, and now my main issue is the inflammatory

arthritis/connective tissue disease. Although I still get extremely fatigued I'm

more limited due to high levels of pain that I never had when it was just the

CFS.

getcoffee@... wrote: I am curious to know how those of you who have been

diagnosed with chronic

fatigue syndrome were diagnosed. What was the process?

Were you prescribed provigil and did the insurance actually cover it?

(considering Provigil is not FDA approved for CFS?)

Thanks,

Abby

In a message dated 4/15/2008 1:00:48 P.M. Pacific Daylight Time,

stephieann2@... writes:

so hope that they prescribe it for you too! I've read a few posts from those

that have CFS and it seems to be helping them! I know fatigue is so

frustrating. There are days I lay around all day literally, and other days, I

can

get small surges of energy. Keep me updated! And good luck!!

**************It's Tax Time! Get tips, forms and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850)

[Guest guest]

I see Dr. G for this--I just started the protocol this week. The things

you describe are pretty close to my experience. I stay at home with my kids but

hoped to go back to work when my youngest started Kindergarten this year. I have

terrific headaches that usually end up as migraines. The fatigue is relentless

and ever present, even in the morning when I've just gotten up. Exercise does

help, though, so I really try to stay on a schedule.

 

Has your husband had his titers for HHV 6 and Epstein Barr checked? I'm awaiting

results on HHV 6, but my titers for EBV are over 1,000 and my we finally got my

ASO titers down to just below 1,000. My recommendation would be to go to some of

the sites for CFIDS and see if they have a physician referral section.

 

I did find this support group in your area. They probably have a list of doctors

in the Bay Area that treat CFS.

 

http://www.prohealth.com/supportgroups/supportgroup.cfm/id/1625/type/CFS/dbo/CFI\

DS_FM

 

Good luck,

 

Robyn

From: Caroline <carrieps@...>

Subject: Chronic Fatigue Syndrome

Date: Friday, November 7, 2008, 1:40 PM

Our daughter is being seen by Dr. Goldberg and we are starting to wonder

whether my husband may be experiencing symptoms that are associated with

CFS. His symptoms have included joint pain, headaches, fatigue to the

point where he needs to go to his car to take a nap in the afternoons,

brain fog where nothing he does helps in to focus or work on a task. He

went to his internist who did some testing and there was no clear

answer. He wants to figure out what is going on but does not see a

point in going back to his internist.

I know there are people on this list who have CFS and I would love

information on what we should do to get a diagnosis and treatment if

this indeed what he is dealing with. We are in San Francisco. I am

guessing we could find somebody around here who knows something about

CFS, we just don't even know what to look for.

[Guest guest]

Very similar symptoms - I have CFS or fibromyalgia as well.  Doxycycline is very

very helpful and may be an option for him to get him going.  On the 3rd day of

it, I tend to notice the fog lift and the energy perk up.  I'm on it long term

now and can't function without it.  It would be easy enough to convince an

internist to try while you look further.  Gotta cut out the carbs and sugar,

though, since he won't get antifungals to go along with it, which will make him

yeasty and mess up his gut, but if he watches his diet it may not get so bad.

HTH-

________________________________

From: Caroline <carrieps@...>

Sent: Friday, November 7, 2008 3:40:35 PM

Subject: Chronic Fatigue Syndrome

Our daughter is being seen by Dr. Goldberg and we are starting to wonder

whether my husband may be experiencing symptoms that are associated with

CFS. His symptoms have included joint pain, headaches, fatigue to the

point where he needs to go to his car to take a nap in the afternoons,

brain fog where nothing he does helps in to focus or work on a task. He

went to his internist who did some testing and there was no clear

answer. He wants to figure out what is going on but does not see a

point in going back to his internist.

I know there are people on this list who have CFS and I would love

information on what we should do to get a diagnosis and treatment if

this indeed what he is dealing with. We are in San Francisco. I am

guessing we could find somebody around here who knows something about

CFS, we just don't even know what to look for.

[Guest guest]

What is Dr. G's protocol?  I am seeing a Fatigue Doc and I also have a autistic

son and I tested postitive for HHV6, Mycoplasma and CMV.  Does anyone else have

any of these?

 

I am going to be on Valtrex and Doxycline.....      I son tested for HHV6 but he

was never tested for the others so I will be doing that for him next.

 

Thanks

From: Caroline <carriepspobox (DOT) com>

Subject: Chronic Fatigue Syndrome

groups (DOT) com

Date: Friday, November 7, 2008, 1:40 PM

Our daughter is being seen by Dr. Goldberg and we are starting to wonder

whether my husband may be experiencing symptoms that are associated with

CFS. His symptoms have included joint pain, headaches, fatigue to the

point where he needs to go to his car to take a nap in the afternoons,

brain fog where nothing he does helps in to focus or work on a task. He

went to his internist who did some testing and there was no clear

answer. He wants to figure out what is going on but does not see a

point in going back to his internist.

I know there are people on this list who have CFS and I would love

information on what we should do to get a diagnosis and treatment if

this indeed what he is dealing with. We are in San Francisco. I am

guessing we could find somebody around here who knows something about

CFS, we just don't even know what to look for.

[Guest guest]

I have fibromyalgia and possible CFS as well. Right now I'm being treated for

EBV and HHV 6. I also have really high strep titers that we have difficulty

keeping below 1,000. What exactly does the Doxycycline do for you? What aspect

of your disease is it treating?

TIA,

Robyn

> From: <thecolemans4@...>

> Subject: Re: Chronic Fatigue Syndrome

>

> Date: Friday, November 7, 2008, 5:50 PM

> Very similar symptoms - I have CFS or fibromyalgia as

> well.  Doxycycline is very very helpful and may be an

> option for him to get him going.  On the 3rd day of it, I

> tend to notice the fog lift and the energy perk up. 

> I'm on it long term now and can't function without

> it.  It would be easy enough to convince an internist to

> try while you look further.  Gotta cut out the carbs and

> sugar, though, since he won't get antifungals to go

> along with it, which will make him yeasty and mess up his

> gut, but if he watches his diet it may not get so bad.

> HTH-

>

>

>

>

>

> ________________________________

> From: Caroline <carrieps@...>

>

> Sent: Friday, November 7, 2008 3:40:35 PM

> Subject: Chronic Fatigue Syndrome

>

>

> Our daughter is being seen by Dr. Goldberg and we are

> starting to wonder

> whether my husband may be experiencing symptoms that are

> associated with

> CFS. His symptoms have included joint pain, headaches,

> fatigue to the

> point where he needs to go to his car to take a nap in the

> afternoons,

> brain fog where nothing he does helps in to focus or work

> on a task. He

> went to his internist who did some testing and there was no

> clear

> answer. He wants to figure out what is going on but does

> not see a

> point in going back to his internist.

>

> I know there are people on this list who have CFS and I

> would love

> information on what we should do to get a diagnosis and

> treatment if

> this indeed what he is dealing with. We are in San

> Francisco. I am

> guessing we could find somebody around here who knows

> something about

> CFS, we just don't even know what to look for.

>

>

>

>

>

>

>

>

[Guest guest]

I also found this place in Reno. Looks very promising!

http://www.wpinstitute.org/index.html

Robyn

>

> From: Caroline <carrieps@...>

> Subject: Chronic Fatigue Syndrome

>

> Date: Friday, November 7, 2008, 1:40 PM

>

>

>

>

>

>

> Our daughter is being seen by Dr. Goldberg and we are

> starting to wonder

> whether my husband may be experiencing symptoms that are

> associated with

> CFS. His symptoms have included joint pain, headaches,

> fatigue to the

> point where he needs to go to his car to take a nap in the

> afternoons,

> brain fog where nothing he does helps in to focus or work

> on a task. He

> went to his internist who did some testing and there was no

> clear

> answer. He wants to figure out what is going on but does

> not see a

> point in going back to his internist.

>

> I know there are people on this list who have CFS and I

> would love

> information on what we should do to get a diagnosis and

> treatment if

> this indeed what he is dealing with. We are in San

> Francisco. I am

> guessing we could find somebody around here who knows

> something about

> CFS, we just don't even know what to look for.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hey Robyn-

My ASO goes up to 1100 ish when not on doxy, a few months on it took it down to

600 at some point (and symptoms were definitely down @ that level), but not

being able to sustain the therapy without sufficient antifungals, I had to stop,

and ASO went back up to 1100 area again.

The first year, I believe I had actual chronic strep, and maybe the second

year.  I've also had chronic mycoplasma for years I believe - have had a few

positive tests but my 'asthma' resolved when treated as if mycoplasma (again,

doxycycline - my wonder drug).

Anyway, now that I'm pretty sure I don't have any strep whatsoever, my titers

still rise.  Doxycycline has immune modulating effects that I believe are what

benefits me - and fortunately it's relatively safe to treat with long term.  It

is also being used by some for immune modulating for people with rheumatoid

arthritis and a lot of other meds.  The downside - it's rough if you don't have

antifungals.

I have recently started the protocol too - the antifungals, a sufficient dose of

diflucan, and my first allergy med I've ever been able to stick to - Allegra -

didn't think I needed an allergy med myself but it is helping my chronic

gastritis (if that's what is is since it hasn't been verified by scope but sure

acts like it) a great deal.  I can't say I've experienced a great deal of

improvement yet although there are times I think I have more energy than I would

otherwise have, but I've had some acute stress that whacks out my brain as well

(I actually had an acute OCD attack where I couldn't stop washing my hands, and

it was triggered by a stressful event - not something I was happy to accept

since I don't want to consider this all 'psych' - and realistically I know for

sure it isn't but it sure does bring to light the impact stress has on this

illness).  I'm hoping antivirals will help with my natural killer cells (low 2%)

and that in return, maybe

they will indirectly help with my ASO - if they downregulate that response.  I

am not sure if that is a correct hypothesis and I'm sure it leaves a lot off.

HTH-

 

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Saturday, November 8, 2008 1:43:46 PM

Subject: Re: Chronic Fatigue Syndrome

I have fibromyalgia and possible CFS as well. Right now I'm being treated for

EBV and HHV 6. I also have really high strep titers that we have difficulty

keeping below 1,000. What exactly does the Doxycycline do for you? What aspect

of your disease is it treating?

TIA,

Robyn

> From: <thecolemans4>

> Subject: Re: Chronic Fatigue Syndrome

> groups (DOT) com

> Date: Friday, November 7, 2008, 5:50 PM

> Very similar symptoms - I have CFS or fibromyalgia as

> well.  Doxycycline is very very helpful and may be an

> option for him to get him going.  On the 3rd day of it, I

> tend to notice the fog lift and the energy perk up. 

> I'm on it long term now and can't function without

> it.  It would be easy enough to convince an internist to

> try while you look further.  Gotta cut out the carbs and

> sugar, though, since he won't get antifungals to go

> along with it, which will make him yeasty and mess up his

> gut, but if he watches his diet it may not get so bad.

> HTH-

>

>

>

>

>

> ____________ _________ _________ __

> From: Caroline <carriepspobox (DOT) com>

> groups (DOT) com

> Sent: Friday, November 7, 2008 3:40:35 PM

> Subject: Chronic Fatigue Syndrome

>

>

> Our daughter is being seen by Dr. Goldberg and we are

> starting to wonder

> whether my husband may be experiencing symptoms that are

> associated with

> CFS. His symptoms have included joint pain, headaches,

> fatigue to the

> point where he needs to go to his car to take a nap in the

> afternoons,

> brain fog where nothing he does helps in to focus or work

> on a task. He

> went to his internist who did some testing and there was no

> clear

> answer. He wants to figure out what is going on but does

> not see a

> point in going back to his internist.

>

> I know there are people on this list who have CFS and I

> would love

> information on what we should do to get a diagnosis and

> treatment if

> this indeed what he is dealing with. We are in San

> Francisco. I am

> guessing we could find somebody around here who knows

> something about

> CFS, we just don't even know what to look for.

>

>

>

>

>

>

>

>

[Guest guest]

Thanks, . This is all so confusing! Dr. G did tell me that some of my OCD

type behaviors may be attributed to the high strep titers. It's nice to have

some labs back this stuff up. For so long, I thought it was all in my head and

that I was not that good at coping with stress. It also helps me understand how

my kids feel on a daily basis. It was certainly eye opening!

Thanks for the information.

All the best,

Robyn

>

> > From: <thecolemans4>

> > Subject: Re: Chronic Fatigue Syndrome

> > groups (DOT) com

> > Date: Friday, November 7, 2008, 5:50 PM

> > Very similar symptoms - I have CFS or fibromyalgia as

> > well.  Doxycycline is very very helpful and may be an

> > option for him to get him going.  On the 3rd day of

> it, I

> > tend to notice the fog lift and the energy perk up. 

> > I'm on it long term now and can't function

> without

> > it.  It would be easy enough to convince an internist

> to

> > try while you look further.  Gotta cut out the carbs

> and

> > sugar, though, since he won't get antifungals to

> go

> > along with it, which will make him yeasty and mess up

> his

> > gut, but if he watches his diet it may not get so bad.

> > HTH-

> >

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Caroline <carriepspobox (DOT) com>

> > groups (DOT) com

> > Sent: Friday, November 7, 2008 3:40:35 PM

> > Subject: Chronic Fatigue Syndrome

> >

> >

> > Our daughter is being seen by Dr. Goldberg and we are

> > starting to wonder

> > whether my husband may be experiencing symptoms that

> are

> > associated with

> > CFS. His symptoms have included joint pain, headaches,

> > fatigue to the

> > point where he needs to go to his car to take a nap in

> the

> > afternoons,

> > brain fog where nothing he does helps in to focus or

> work

> > on a task. He

> > went to his internist who did some testing and there

> was no

> > clear

> > answer. He wants to figure out what is going on but

> does

> > not see a

> > point in going back to his internist.

> >

> > I know there are people on this list who have CFS and

> I

> > would love

> > information on what we should do to get a diagnosis

> and

> > treatment if

> > this indeed what he is dealing with. We are in San

> > Francisco. I am

> > guessing we could find somebody around here who knows

> > something about

> > CFS, we just don't even know what to look for.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Can anyone direct me if I am on the right path, please!!!!!!!

From: Caroline <carriepspobox (DOT) com>

Subject: Chronic Fatigue Syndrome

groups (DOT) com

Date: Friday, November 7, 2008, 1:40 PM

Our daughter is being seen by Dr. Goldberg and we are starting to wonder

whether my husband may be experiencing symptoms that are associated with

CFS. His symptoms have included joint pain, headaches, fatigue to the

point where he needs to go to his car to take a nap in the afternoons,

brain fog where nothing he does helps in to focus or work on a task. He

went to his internist who did some testing and there was no clear

answer. He wants to figure out what is going on but does not see a

point in going back to his internist.

I know there are people on this list who have CFS and I would love

information on what we should do to get a diagnosis and treatment if

this indeed what he is dealing with. We are in San Francisco. I am

guessing we could find somebody around here who knows something about

CFS, we just don't even know what to look for.

[Guest guest]

Hi, .

It sounds as if you're on the right path. I have EBV and HHV 6 in addition to

high strep titers. He's treating me with 500mg Famvir three times per day. We're

waiting on test results before we treat for strep. I've been on the Famvir for a

week now and am seeing some positives already.

All the best,

Robyn

>

> From: Caroline <carriepspobox (DOT) com>

> Subject: Chronic Fatigue Syndrome

> groups (DOT) com

> Date: Friday, November 7, 2008, 1:40 PM

>

> Our daughter is being seen by Dr. Goldberg and we are

> starting to wonder

> whether my husband may be experiencing symptoms that are

> associated with

> CFS. His symptoms have included joint pain, headaches,

> fatigue to the

> point where he needs to go to his car to take a nap in the

> afternoons,

> brain fog where nothing he does helps in to focus or work

> on a task. He

> went to his internist who did some testing and there was no

> clear

> answer. He wants to figure out what is going on but does

> not see a

> point in going back to his internist.

>

> I know there are people on this list who have CFS and I

> would love

> information on what we should do to get a diagnosis and

> treatment if

> this indeed what he is dealing with. We are in San

> Francisco. I am

> guessing we could find somebody around here who knows

> something about

> CFS, we just don't even know what to look for.

>

>

>

>

[Guest guest]

Could MMS cure this ?

Smitty

~~~~~~~~~~~~~~~~~~~~~~~~~

Dr. Gabe Mirkin's Fitness and Health E-Zine

October 25, 2009

A New Explanation for Chronic Fatigue Syndrome

Sixty-seven percent of 101 patients diagnosed with

Chronic Fatigue Syndrome (CFS) were found to be infected with a

retrovirus called XMRV (Science, published online October 8,

2009). One hundred percent of those with CFS who subsequently

developed lymphomas or leukemias were infected with the XMRV virus.

If further studies confirm this finding, doctors will soon have

a test to diagnose this horrible condition and possibly a vaccine

to prevent it.

More than a million Americans are seriously ill with

Chronic Fatigue Syndrome, also known as Myalgic encephalomyelitis.

CFS symptoms include severe weakness, exhaustion after any

activity, loss of memory, and chronic recurrent infections.

Patients rarely recover.

The retrovirus XMRV was first found in humans in 2006, in

prostate cancer cells. It has been shown to cause nerve damage,

immune deficiency, lymphoma and leukemia in animals.

Retroviruses do not have their own DNA; they use the DNA

of the host cells they invade. Retroviruses include HIV that causes

AIDS, and Human Lymphotropic Viruses that cause leukemia and

lymphoma. Just as some people infected with HIV do not develop

AIDS, not everyone infected with XMRV will develop CFS. XMRV has

been found in 3.7 percent of healthy Americans tested, adding up

to an estimated 10 million Americans carrying this virus.

Although not proven yet, there is every reason to believe

that XMRV is spread by exposure to body fluids (saliva, blood,

semen). Having an infection with one of these retroviruses

impairs your immunity so that you are more likely to become

infected when exposured to any other germ.

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** L Form Bacteria has an effect on human health, chronic inflammatory and autoimmune diseases including sarcoidosis, Chronic Fatigue Syndrome**

If the above statement is correct, has anyone had any experience using MMS for Chronic Fatigue Syndrome. If so, what dosage & regimen did you use & was it successful?

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