Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 Hi Everyone! Thank you all for being a part of our Blepharophimosis support group. I hope you received my previous message introducing CarePlace and have had an opportunity to visit what I hope will be our new home. A bunch of your fellow members are over at http://www.careplace.com/Blepharophimosis/dhsn trying out our new community. CarePlace is an online support community where you can find new friends and chat in real-time with one another. You can also create your own webpage, online journal, or group (for something specific like " Moms living with Blepharophimosis " ), and so much more! We can all still post messages and email each other like we have been. Our group isn't going anywhere, don't worry! I'd love for everyone to join CarePlace, look around, and think about the amazing new home we could build together. Please reply to this message to let everyone know your thoughts. The CarePlace team is excited to start working on stuff that we think would help us! A month ago I asked for Live Chat and it's already there. And they are working on lots of other stuff right now that I thought everyone would like! To visit our CarePlace community, go to: http://www.careplace.com/Blepharophimosis/dhsn My nickname at CarePlace is " D " -- please look me up. I look forward to seeing you there! Warm regards, P.S. If you don't know me, I started this group so that people coping with Blepharophimosis could support and share with one another. I started my first group several years ago when we discovered that our two boys were born with a rare genetic disorder called ATR-X. I was desperate for support and information and realized that millions of others living with rare disorders must be looking for the same thing. Since then, I've started over 600 groups that now serve over 50,000 members. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 I like the because I can review the recent posts when I read my email. I don't really have the time or inclination to log on to another site. Sorry and good luck with your endeavor. --- <dhhughes@...> wrote: > Hi Everyone! > > Thank you all for being a part of our > Blepharophimosis support group. > I hope you received my previous message introducing > CarePlace and > have had an opportunity to visit what I hope will be > our new home. A > bunch of your fellow members are over at > http://www.careplace.com/Blepharophimosis/dhsn > trying out our new > community. > > CarePlace is an online support community where you > can find new > friends and chat in real-time with one another. You > can also create > your own webpage, online journal, or group (for > something specific > like " Moms living with Blepharophimosis " ), and so > much more! We can > all still post messages and email each other like we > have been. > > Our group isn't going anywhere, don't worry! > I'd love for > everyone to join CarePlace, look around, and think > about the amazing > new home we could build together. Please reply to > this message to let > everyone know your thoughts. The CarePlace team is > excited to start > working on stuff that we think would help us! A > month ago I asked for > Live Chat and it's already there. And they are > working on lots of > other stuff right now that I thought everyone would > like! > > To visit our CarePlace community, go to: > > http://www.careplace.com/Blepharophimosis/dhsn > > My nickname at CarePlace is " D " -- please look > me up. I look > forward to seeing you there! > > Warm regards, > > > > P.S. If you don't know me, I started this > group so that people > coping with Blepharophimosis could support and share > with one another. > I started my first group several years ago when we > discovered that > our two boys were born with a rare genetic disorder > called ATR-X. I > was desperate for support and information and > realized that millions > of others living with rare disorders must be looking > for the same > thing. Since then, I've started over 600 groups > that now serve over > 50,000 members. > > > Quote Link to comment Share on other sites More sharing options...
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