Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Just a question for the group, it has been awhile since i have posted anything, want to say hello to everyone. I am 37, my pictures are in the group under Michele (before and after surgury). I have type 1 and the only one in my family with BPES. I have been having trouble with Fibromyalgia. I was diagnosed in my 20's and now that i am 37 it is so bad somedays i have trouble walking. Have any of you have fibro too? They know so little about BPES and it just has me curious because it is a genetic disorder that effects eye muscle development. Its just weird to me that i am having such trouble with the other mucsles in my body now. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.