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the database ... is the information you put in still correct?

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Hi people

As many of you know, we have a " database " link on the group,

just a little below " Photos " . Some 140 or so people have chosen to

put information about themselves and their families here.

If you have put some information and your details have changed,

perhaps you could take a moment to update it. Perhaps somebody has

had recent treatment or tests, and you'd like that to be reflected in

the database.

It is a really useful way for people to find others near their home,

or to find others with similar circumstances or under the care of the

same team of medical professionals.

Just to remind you that you can put as little or as much information

as you like. If you prefer, simply don't put anything in.

If you have any questions, please get in touch with me and I will try

and answer them.

Many thanks

Shireen Mohandes

London, England

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