Re: New Zealanders with Blepharophimosis

[Guest guest]

Hi there...

We are in CHCH....Our beautiful son Ethan is 5 in January, he has had no surgery but has glasses for an astigmatism....He has adapted well and doesn't tilt his head to see, just raises his eyebrows a little:) He is the FIRST in either side of our family to have this so a little bit of a surprise:) You can view his pics under Ethan and his album pic has a baby photo of him wearing a pumpkin costume:) thanks...

leanne and family

CHCH, NZ

-- blepharophimosis New Zealanders with Blepharophimosis

Hi there, My 2yr old grandson has Blepharophimosis and we were wondering if there is anyone else in New Zealand with this syndrome?

[Guest guest]

Hi

Welcome to the group. For a list of the New Zealand members visit the

site and click on " Database " . There is a link to a database of

about 150 people who have chosen to put where they live and a bit about

themseleves and their family. If you click on " Country " and scroll down

you will see a list of all the people in New Zealand. I hope that

helps you to find some people nearby.

By the way, this group has about 650 members ... so as a rule of thumb

you can assume that there are maybe 2 or 3 times more people in each of

the countries listed. Choosing to put your name and details in this

list is entirely optional. You can put as little or as much information

as you like.

Take care

Shireen Mohandes

London, England

>

> Hi there, My 2yr old grandson has Blepharophimosis and we were

> wondering if there is anyone else in New Zealand with this syndrome?

>