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Hello Everyone! I am so glad to find this forum. I am adult with

BPES and was born in 1963. Back then there were not many treatments.

I want new parents with BPES children to know that there is hope. I

grew up normal, happy and now am married, have my education(I am a

social worker) and we are getting ready to adopt a child. I know my

mom worried that I would not grow up like the rest of the children in

our neighborhood but I did and I think that by having BPES I became

stronger, more independent and better at championing the rights of

individuals who need my voice. I am interested in hearing from others

with BPES and families that need encouragement. My email is

Twistwoodranch@... or Twistwoodranch@... feel free to

use either. Thanks,

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