Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Hello, I am a new member. I have just learned that my 3 month old daughter has BPES. That is about all I know. The specialist really did not say much except I need to get a genetic panel done. There is no one on either side of our family with this condition and I am in shock. Any help, info, or advice would be greatly appreciated. I have an appointment in Boston for a second opinion and an opportunity to actually ask questions. Quote Link to comment Share on other sites More sharing options...
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