List of people in the database from the USA

[Guest guest]

Here is a list – there are 69 people/families from the

USA who have chosen to put information about themselves in the database.

Name

Email

Address & City

State

People in my family with BPES

Kim Beaver

kbeaver@...

Tuscumbia

AL

Husband\, Daughter\, and husband's two children from previous marriage

Ginny Harper

gharper05@...

Heber Springs

AR

1 daughter

k9_cyclone@...

Peoria

AZ

3

Rylee Nimtz

aimeenimtz@...

4575 Revillo Way \, San Diego

CA

Myself

Lorri

lcampagna3@...

Alturas

CA

2

Crystal Berwick

cjberwick@...

Clearlake

CA

Son\, Husband\, Father-law

Kent W. Small\, M.D.

small@...

Los Angeles

CA

none but currrently doing research on genetics of BPES\, please

contact me if you want to participate

How

reneehow@...

Palo Alto

CA

Husband (Dana)\, Son (Cameron)

Kerry

fishingmom2@... or mamajoex2@...

Riverside

CA

My Daughter (considered new mutation) -- AnaLia

(he's my nephew)

rrippee77@...

San Diego

CA

just him

Noonnaanay@...

CA

My daughter only

Mieritz\, Malenah's Mom

Mieritz@...

2377 S. Summit Cir. Glen\, Escondido

CA 92026

Daughter

Tawnya Carvalho

CO

One

Eisele Family - Jon\, April\, Mira\, Micah\, Misha

aprileisele@...

CO

Micah

Scopp

minsco72@...

Milford

CT

my 4 yr old daughter

Tony Borrego

t_borrego@...

Washington

DC

Daughter

Ball

maryberryprinces@...

ft lauderdale

Fl

myself and my son Charlie

Donna

daiadarola@...

North Lauderdale

FL

son - now 6 1/2

Darryl

Ytsefan@...

Orlando

FL

1-just me

Robin

nascar9118@...

byron

GA

only 1 my son devin

Arlene Varela

arlenevarela@...

Canton

GA

Only Me

Debbie

westonfrom@...

Cleveland

GA

Daughter-Hannah Sage

Brock McNatt

mcnatt@...

Ellijay

GA

1 son

Loverde

Suwanee

GA

none

Cheryl Vahl

cheryl-vahl@...

Iowa City

IA

\, daughter

Snellback

snellshein@...

Wilmette

IL

only

Nicki Venable

nicki.venable@...

Fort Wayne

IN

Daughter Avery

Cheryl Vahl (23 yr old daughter with BPES)

cheryl-vahl@...

56 Arbury Dr\, Iowa City

IO

(23 yr old daughter with BPES)

Hannah Rae

angie_huffman@...

Shepherdsville

KY

Father-Jon

Huffman

angie_huffman@...

Shepherdsville

KY 40165

Ruth

jricard5@...

Billerica

MA

Ruth is the first

April

@...

odenton

MD

myself

McManus

juliecheese99@...

Midland

MI

just me

boydgi@...

MI

2\, myself and my father\, which I have never met. Possibly

more

Charlotte Nordstrom

nordstrom@...

Minneapolis

MN

son\, daughter\, sister\, father\, grandfather\, great-grandmother

Kathy (for )

ka5than@...

St.

MO

daughter\, her father\,two aunts\, two uncles\, three girl

cousins\, two boy cousins\, two great aunts\, two great uncles\,

grandfather\, great grandfather\,

Conner

goozle71@...

St. Louis

MO

just me

Melisa Harp

MyHonebee@aol

1377 Montague Road\, Highlandville

MO 65669

24 year old son and his father

Harvey

happyappykd@...

Charlotte

NC

Myself and my daughter Paige

deb_barfoot@...

Raleigh

NC

just

Lily

lily_bogle@...

NC

Father\, 2 sisters (one with POF)\, 1 nephew

DAWN

KORBINTAI2LUV@...

LAS VEGAS

NEVADA

MY DAUGTHER

Sharon Ancilleri

Besilly12000@...

Holtsville

New York

Granfather\,Sister\, Father\, 2 Sons\, 1 Dauther

Holmes

kimholmes2005@...

upstate

New York

1 my daughter McKenzie - no others confirmed

on

c.jameson@...

NH

My daugther Hannah she is 12

Dalia

daliaben@...

Great Neck

NY

Me [my 2 brothers\, dad\, 2 aunts\, grandfather and his sister\,

and great grandfather who was the first to exhibit this gene.)

Sharon

Besilly12000@...

Holtsville\,

NY

Grandpa\, Husband\, 2 sons\, 1 daughter

Pam O'Brien

obriengroup@...

9537 Cobblestone Drive\, Clarence

NY 14031

Aedan Schoen - (Mom = )

Rainamint@...

New York

NY 10011

Aedan is our one and only

Amberik

tlynnk69@...

Cleveland

OH

Dad\, Brother\, Sister\, and Myself

Michele

shellv@...

Dayton

OH

only myself

L. Logan

llogan2@...

Delta

OH

2 Myself and son Dylan (2001)

mfeichtner@...

OH

8+

Rae Ann

moesgirl35@...

3612 Allview Circle\, Cincinnati

OH 45238

Son\,

hbarga@...

Dayton

Ohio

My husband and Daughter

Leindecker

Rozrabbit@...

Lenhartsville

PA

1-Daughter

Amy Hinchman

mamahinch@...

West Mifflin

PA

My daughter

Nina asadoorian

nma420@...

PA

1 daughter

Donna

donnahaskins@...

Rhode Island

daughter

Lynette Fong

wdw43@...

SC

several male relatives and sister

Amy Bradshaw

amybrms@...

Newport

TN

My daughter \, she is the first

dhhughes@...

3604 Hendrick Dr\, Plano

TX

Rob Hall

rnhall180@...

Round Rock

TX

myself\, mom\, grand mother + 3 of her 4 sisters\, great grand

father

Beth Gordon

bethgordon03@...

Purcellville

VA

my infant daughter\, my father\, my grandfather and me

Harry

dawn@...

Maple Valley

WA

is the first

Loretta son

annaloretta17692@...

WA

3

Mulvaney

chatthisway

Rochester

Washington

Kennth Mulvaney

Mason

bnbbrethouwer@...

Madison

WI

only one

Terry A. Helgestad

terryahelge@...

726 W. Ladd Lane\, Edgerton

WI 53534