RE: [SPAM] Re: is there any aussies out there??

[Guest guest]

Hi

There are just over 600 people in the group. About a quarter

have chosen to put information about themselves in the database section. I

have made a list of people from Australia.

There are probably about 35 to 50 people from Australia who are

members of this group.

Hope this helps.

Take care

Shireen

(London, England)

Name

Email

Address & City

State

People in my family with BPES

Year of birth / Gender

Surgery information

Would like to meet others in area

My ID for Messenger

Antonia Collin

nicoleacollin@...

Sydney

NSW

Antonia

2005

yes

Ky

kylie@...

Sydney

NSW

Just me.

1986/female

10 and counting

Sure

ally

kaldi@...

Gold coast

Queensland

Myself+2 of my sons.

1967 Female

8 opps from the age of 2 to 16.

yes

allygirl

Bridget Armitage

pcarmitage@...

Canberra

ACT

None

2006,Female

Yes

pc_armitage

Robyn Fortune

drtfortune@...

Perth

Western Australia

Son, Tyler

2006, Male

First surgery planned for mid 2007.

Yes, definitely.

drtfortune

Bree Hills

breehills@...

Brisbane

Queensland

My 2nd daughter, Hannah Mei

2005 / Female

ophthalmologist says we start talking

around 3rd birthday

Yes

Jessie H. (mum machaela)

machaela@...

Ballarat

only Jessie

2005 F

planned for Dec.'07

definately

macster74@...

Rob

r.watson@...

Sydney

NSW

Father, aunty, me, son

1961 / Male

Slings, canthoplasties, squints, tear ducts

Yes

kerry bennett

mnmom1325@...

Sale

Daughter,husband,father inlaw the list goes

on

Daughter 2002 husband 1969

husband had surgury when he was a child

didn't work daughter having her first surgery later this year.

yes please

a and Charlie Schneider

mepas@...

Melbourne

Just charlie

2002/male

none yet

yes

charlie

Karolin Demircian

karolin_demircian@...

2 Close Endeavour Hill, Melbourne

3802

Myself, daughter 5 yrs son 10mths

1975 Female

Surgery x 3

Yes

Home phone = 613- 9700 7321; work = 0413

936188

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of Rob

Sent: 25 May 2007 15:06

blepharophimosis

Subject: [sPAM] Re: blepharophimosis is there any aussies out there??

Howdy Machaela,

Shireen posted a list of Australistanis from the forum's database in

about mid February (12th or 13th-ish). From time to time someone appears

here and asks " Any Aussies out there? " and then, after I reply (why

does

nobody else reply apart from me?), no more is heard from them (I can

take a hint).

There's a goodly number of us, but unfortunately not too many in one

place, and Oz is unfortunately a much more non-trivial place to travel

around in (for get-togethering purposes, for example) than the sunny UK.

You're in Melbourne, apparently. If you're ever in sinful Sydney, drop

me a line and I'll see who I can scrape together. And vice versa.

Rob W

Syd-er-ney

macster74 wrote:

> Well hello there! Its Machaela here and I havent posted anything for

> ages...Our little Jessie is doing well, still waiting to have her

> first surgery in December. It is really great to read all your

> messages and see so many new members, but I am wondering if there are

> any aussies out there..? as we would dearly love to meet up with

> someone..anyone!!! with BPES. I notice that there was the UK get

> together and I was so wishing I could jump on a plane and be there!!!

> but anyway...if there are any aussies out there we would really love

> to hear from you....Take care everyone xoxoxo

>

>