Re: A Huge Warm Welcome

[Guest guest]

clare , thanks for those words , i was also born in 1968 and know how you feel , i was 16 when i had the big op and yes like so many had the names thrown at me , but i feel stronger because of that and i like to feel i have turned out ok . I was in my 20s when i found this site and i cried because i thought i was the only one in the world to have this, so thanks for the words , talk soon ok , scott Clare Teale <clareteale@...> wrote: Hello all, its Clare Teale from Hertfordshire, UK here.....Welcome welcome

welcome to all of the wonderful new fabulous people who have joined our site.When I read some of the messages in the mails my heart breaks, I feel for each and every one of you, and your children. Thanks you all for being so honest about emotions and difficulties having BPES brings. Every single person in the whole world is different, every single person in the whole world reacts to things in a different way, and the more we share and talk and discuss the more we can find out about what we have to live with every day.I want to tell you about me and my story. (for those of you who already know me - sorry)I have BPES (II was the first one) and so does my daughter Emy (12), my husband and 2 sons (9, 15) dont. I was taken home in 1968 by my mother (who doesnt have BPES) she was told that I was blind and sent home. Thats that. My mother being an amazing lady, realised quickly I could see, and kept taking me

to all sorts of people to get me diagnosed with something (not knowing anything about BPES). To cut a long story short, here I am age 38, with 3 beautiful children, each with their own individual needs.BPES has caused me trouble in the past, of course, I would be silly to deny it, I have been bullied, picked on and had all the things that all of you have been through. And the same with my daughter, (actually it was worse with my daughter, because i felt so helpless, I just had to stand by, with all of my feelings of insecurity coming back to me. Because I have been through living with BPES I try and bring all of my children up equally because they share the same issues, and outside influences - with or without BPES.All of my kids come home with kids chanting stuff at them, and I deal with them all in the same way, whether they have BPES or not, its the way we deal with the situation that makes the difference,

for our children and parents. My recommendation to them everytime, is a big smile, stand tall and proud, and a big deep breadth, if the subject is BPES then I have taught my daughter to explain it at every opportunity. (its only because people dont understand they look and say stupid things).My daughter is confident, happy and proud, so are my 2 sons and all 3 have smiles to die for. I think it is far more important to give this to them than the worries and doubts of having BPES. (I only know this because I have BPES and can understand it from my point of view)This has always worked for me, I am a wife, a mother of 3, a Personal Development trainer, a motivational speaker, I sing in a band etc etc. I am not telling you this to show off, I am just saying whatever our life is, our life is, and the sooner my family except it and move on, with a big smile the better. Life is for living lets go out and get

it, BPES or not.With my 3 children (the eldest is my step son) and the other 2 I have been blessed with before going through POF. (I do consider this part of my life to be blessed).I am certainly not trying to underestimate how BPES has had effects on anyones lives, this is just a snapshot of how I live my life.Love to all, lets keep talking.Clare TealeHerts UKThank you ,

[Guest guest]

ClareI totally agree with what you said. That is exactly how my Mum brought us up and I see how my sister and I have turned out. I am doing the same with my 3 and I thought the same as you. I still cant believe others have BPS too. SCOTT FILBEY <scottfilbey@...> wrote: clare , thanks for those words , i was also born in 1968 and know how you feel , i was 16 when i had the big op and yes like so many had the names thrown at me , but i feel stronger because of that and i like to

feel i have turned out ok . I was in my 20s when i found this site and i cried because i thought i was the only one in the world to have this, so thanks for the words , talk soon ok , scott Clare Teale <clareteale > wrote: Hello all, its Clare Teale from Hertfordshire, UK here.....Welcome welcome welcome to all of the wonderful new fabulous people who have joined our site.When I read some of the messages in the mails my heart breaks, I feel for each and every one of you, and your children. Thanks you all for being so honest about emotions and difficulties having BPES brings. Every single person in the whole world is different, every single person in the whole world reacts to things in a different way, and the more we share and talk and discuss the more we

can find out about what we have to live with every day.I want to tell you about me and my story. (for those of you who already know me - sorry)I have BPES (II was the first one) and so does my daughter Emy (12), my husband and 2 sons (9, 15) dont. I was taken home in 1968 by my mother (who doesnt have BPES) she was told that I was blind and sent home. Thats that. My mother being an amazing lady, realised quickly I could see, and kept taking me to all sorts of people to get me diagnosed with something (not knowing anything about BPES). To cut a long story short, here I am age 38, with 3 beautiful children, each with their own individual needs.BPES has caused me trouble in the past, of course, I would be silly to deny it, I have been bullied, picked on and had all the things that all of you have been through. And the same with my daughter, (actually it was worse with my daughter, because i felt so

helpless, I just had to stand by, with all of my feelings of insecurity coming back to me. Because I have been through living with BPES I try and bring all of my children up equally because they share the same issues, and outside influences - with or without BPES.All of my kids come home with kids chanting stuff at them, and I deal with them all in the same way, whether they have BPES or not, its the way we deal with the situation that makes the difference, for our children and parents. My recommendation to them everytime, is a big smile, stand tall and proud, and a big deep breadth, if the subject is BPES then I have taught my daughter to explain it at every opportunity. (its only because people dont understand they look and say stupid things).My daughter is confident, happy and proud, so are my 2 sons and all 3 have smiles to die for. I think it is far more important to give this to them than the

worries and doubts of having BPES. (I only know this because I have BPES and can understand it from my point of view)This has always worked for me, I am a wife, a mother of 3, a Personal Development trainer, a motivational speaker, I sing in a band etc etc. I am not telling you this to show off, I am just saying whatever our life is, our life is, and the sooner my family except it and move on, with a big smile the better. Life is for living lets go out and get it, BPES or not.With my 3 children (the eldest is my step son) and the other 2 I have been blessed with before going through POF. (I do consider this part of my life to be blessed).I am certainly not trying to underestimate how BPES has had effects on anyones lives, this is just a snapshot of how I live my life.Love to all, lets keep talking.Clare TealeHerts UKThank you ,

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