A Huge Warm Welcome

[Guest guest]

Hello all, its Clare Teale from Hertfordshire, UK here.....

Welcome welcome welcome to all of the wonderful new fabulous people

who have joined our site.

When I read some of the messages in the mails my heart breaks, I

feel for each and every one of you, and your children. Thanks you

all for being so honest about emotions and difficulties having BPES

brings. Every single person in the whole world is different, every

single person in the whole world reacts to things in a different

way, and the more we share and talk and discuss the more we can find

out about what we have to live with every day.

I want to tell you about me and my story. (for those of you who

already know me - sorry)

I have BPES (II was the first one) and so does my daughter Emy (12),

my husband and 2 sons (9, 15) dont. I was taken home in 1968 by my

mother (who doesnt have BPES) she was told that I was blind and sent

home. Thats that. My mother being an amazing lady, realised

quickly I could see, and kept taking me to all sorts of people to

get me diagnosed with something (not knowing anything about BPES).

To cut a long story short, here I am age 38, with 3 beautiful

children, each with their own individual needs.

BPES has caused me trouble in the past, of course, I would be silly

to deny it, I have been bullied, picked on and had all the things

that all of you have been through. And the same with my daughter,

(actually it was worse with my daughter, because i felt so helpless,

I just had to stand by, with all of my feelings of insecurity coming

back to me. Because I have been through living with BPES I try and

bring all of my children up equally because they share the same

issues, and outside influences - with or without BPES.

All of my kids come home with kids chanting stuff at them, and I

deal with them all in the same way, whether they have BPES or not,

its the way we deal with the situation that makes the difference,

for our children and parents.

My recommendation to them everytime, is a big smile, stand tall and

proud, and a big deep breadth, if the subject is BPES then I have

taught my daughter to explain it at every opportunity. (its only

because people dont understand they look and say stupid things).

My daughter is confident, happy and proud, so are my 2 sons and all

3 have smiles to die for. I think it is far more important to give

this to them than the worries and doubts of having BPES. (I only

know this because I have BPES and can understand it from my point of

view)

This has always worked for me, I am a wife, a mother of 3, a

Personal Development trainer, a motivational speaker, I sing in a

band etc etc. I am not telling you this to show off, I am just

saying whatever our life is, our life is, and the sooner my family

except it and move on, with a big smile the better. Life is for

living lets go out and get it, BPES or not.

With my 3 children (the eldest is my step son) and the other 2 I

have been blessed with before going through POF. (I do consider this

part of my life to be blessed).

I am certainly not trying to underestimate how BPES has had effects

on anyones lives, this is just a snapshot of how I live my life.

Love to all, lets keep talking.

Clare Teale

Herts UK