Oops

[Guest guest]

A thousand pardons.

This is the first time I have been in a net " group " . A

bunch of emails come in. I haven't a clue to whom I am

writing, it seems. I thought if I replied to the note,

the correct person would get it.

Did Sylvia receive this? I am very confused but, lol,

my nick is Sandy, not Hon.

Keep well.

--- " Johanna (Hep C - MO) " <johanna@...> wrote:

> Hon,

>

> I think you've got me confused with another poster

> on the board. If you

> scroll down, you'll see you're responding to someone

> else's post - not

> mine.

>

> Johanna Koskinen, Outreach Coordinator

> Hepatitic C Multicultural Outreach(HepC-Missouri)

> http://www.hepcmo.org Email: johanna@...

>

> Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> Phone#: 1.816.763.4766(Business)

>

> On Sun, September 4, 2005 1:17 am, sandy katt said:

> > Look, if positive attitude is all I need than

> I don't

> > need conventional treatment, do I?

> >

> > I don't know all of your terms.

> >

> > Post transplant - there is a company, in Israel,

> which

> > has a 100% post transplant clearance. For me, I

> am not

> > post transplant and feel lucky about that.

> >

> > What is 'co-infected'? HIV also?

> >

> > What is decompensating?

> >

> > You have, it seems, missed my question. I do

> > understand that 50% respond to treatment,

> initially.

> > My qustion is how many stay cleared after

> treatment?

> > For how long?

> >

> > You say you have many patients. You say you have

> > worked with these many for 6 years. After the 6

> years,

> > how many (by percentage) have remained clear with

> only

> > one course of this treatment and who, initially,

> had

> > genotype #1?

> >

> > I think my attitude is very positive. I am a

> pleasant

> > person. Only falsehood and misleading of the

> desperate

> > upset me.

> >

> > I am, for the nonce, quite positive in that my

> > attitude is good and realistic and my decision to

> > aceept or reject an interfron treatment is based

> on

> > recearch and fact, as I see it, rather than

> ignorance

> > and a Pollyanna dependency on others.

> >

> > I am not disparaging you or your work. Why do you

> seek

> > to disparage me? Based on personal research, I

> have

> > not come up with such optimistic results as you

> claim.

> >

> > Others are free to make their own decisions. I

> have

> > made mine and it has nothing to do with your

> quick and

> > judgemental opinion of someone you don't know at

> all.

> > I am, to this point in time, entirely entitled to

> > accept or reject your medical opinion on

> treatment.

> >

> > >

> >

> > Are you a psychiatrist too? You have a bit of

> mean

> > about you, johanna. Are you offering faith based

> > medicine? You don't even know if treatment was

> > recommended for me, do you now?

> >

> >

> > --- Bhprice425@... wrote:

> >

> > > I'm sorry....What group do you mean?

> > >

> > > I'm a nurse and Hepatitis C Speaker/Consultant

> > > ....I have worked with

> > > hepatitis C patients for 6 years now and have

> had

> > > many many patients who remain

> > > clear. As a matter of fact very few relapse.

> > >

> > > From the last group of ten that I'm helping

> > > online....all genotype

> > > 1....including 1 post transplant, 1 co-infected

> and

> > > 1 decompensating....so far 4

> > > obtained SVR, 2 have 3 more months to go. 2

> are at

> > > week 24 and 1 is on Infergen at

> > > 16 weeks of treatment. Only one had to stop

> > > treatment because of a

> > > hypersensitivity reaction.....and she had

> cleared at

> > > week 12.

> > >

> > > But you definetly need to have a positive

> > > attitude....which you seem to be

> > > lacking.

> > > Silvia

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >