newbie w/ 4 year old girl w/ blp

[Guest guest]

Hi! I am new to posting. I just found this website and it has been very

informative to me. We have a very sweet girl named Gwendolyn and she

has BLP. She is our 3rd child and we had never even heard of BLP and

could not figure out why she did not open her eyes. She sees a surgeon

in Philadelphia PA and has had surgery at 3months and then again at 6

months and will have another in about a year to use the tendon from her

leg. Gwendolyn just loves Drs. and well she just loves everybody.

Extremely affectionate child. Did anybody have a personality trait

that goes with BLP? Silly ? I know. Also, she did have alot of colds

when she was small. Now, I wonder if there was a link--did the colds

enter thru her eyes? the colds always ended up in her eyes which I

would use ointment for. It will be so nice to have someone to ask ?'s

to thanks for being ther. My husband and I would pick to have

Gwendolyn all over again she is such a delight.

[Guest guest]

>

> Hi! I am new to posting. I just found this website and it has been

very

> informative to me. We have a very sweet girl named Gwendolyn and

she

> has BLP. She is our 3rd child and we had never even heard of BLP

and

> could not figure out why she did not open her eyes. She sees a

surgeon

> in Philadelphia PA and has had surgery at 3months and then again at

6

> months and will have another in about a year to use the tendon from

her

> leg. Gwendolyn just loves Drs. and well she just loves everybody.

> Extremely affectionate child. Did anybody have a personality trait

> that goes with BLP? Silly ? I know. Also, she did have alot of

colds

> when she was small. Now, I wonder if there was a link--did the

colds

> enter thru her eyes? the colds always ended up in her eyes which I

> would use ointment for. It will be so nice to have someone to

ask ?'s

> to thanks for being ther. My husband and I would pick to have

> Gwendolyn all over again she is such a delight.

> We are from USA in PA Jane MArtin Gwendolyns mother

[Guest guest]

> >

> > Hi! I am new to posting. I just found this website and it has

been

> very

> > informative to me. We have a very sweet girl named Gwendolyn

and

> she

> > has BLP. She is our 3rd child and we had never even heard of

BLP

> and

> > could not figure out why she did not open her eyes. She sees a

> surgeon

> > in Philadelphia PA and has had surgery at 3months and then again

at

> 6

> > months and will have another in about a year to use the tendon

from

> her

> > leg. Gwendolyn just loves Drs. and well she just loves

everybody.

> > Extremely affectionate child. Did anybody have a personality

trait

> > that goes with BLP? Silly ? I know. Also, she did have alot of

> colds

> > when she was small. Now, I wonder if there was a link--did the

> colds

> > enter thru her eyes? the colds always ended up in her eyes

which I

> > would use ointment for. It will be so nice to have someone to

> ask ?'s

> > to thanks for being ther. My husband and I would pick to have

> > Gwendolyn all over again she is such a delight.

> > We are from USA in PA Jane MArtin Gwendolyns mother

>

What kind of personality traits? I am in Iraq but my wife is at

home with our 6 month old son who has this. He is a very happy baby

and full of life. He loves everyone and giggles and brings so much

joy to my wife and I. I can't wait to hold him when I get home. I

hope that answered your question. God Bless.

[Guest guest]

Hi Jane, My name is Jill my daughter is 3 and a half. Her name is

Ruth she is my 4th child and first on either side of our families to

have BPES. She has an awesome personality. Pewople remember her

everywhere we go. She seems to capture everyones heart. She didn't

have alot of colds but did seem to run very high fevers alot with no

other symptoms. We live in Mass. USA. Welcome to the sight.

Jill Ricard Mass. USA

> >

> > Hi! I am new to posting. I just found this website and it has

been

> very

> > informative to me. We have a very sweet girl named Gwendolyn and

> she

> > has BLP. She is our 3rd child and we had never even heard of BLP

> and

> > could not figure out why she did not open her eyes. She sees a

> surgeon

> > in Philadelphia PA and has had surgery at 3months and then again

at

> 6

> > months and will have another in about a year to use the tendon

from

> her

> > leg. Gwendolyn just loves Drs. and well she just loves everybody.

> > Extremely affectionate child. Did anybody have a personality

trait

> > that goes with BLP? Silly ? I know. Also, she did have alot of

> colds

> > when she was small. Now, I wonder if there was a link--did the

> colds

> > enter thru her eyes? the colds always ended up in her eyes which

I

> > would use ointment for. It will be so nice to have someone to

> ask ?'s

> > to thanks for being ther. My husband and I would pick to have

> > Gwendolyn all over again she is such a delight.

> > We are from USA in PA Jane MArtin Gwendolyns mother

>

>

>

>

>

>

>

>

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