RE: research study on support groups - shall we take part?

[Guest guest]

Yes I will participate too. Thank you very much.

Pam O'Brien

Gwyneth's MommyGet a sneak peek of the all-new AOL.com.

[Guest guest]

Not sure if I'm replying to the right place or not - But i'll put my hand up for this one. More info floating around about BPES can't be a bad thing, right? KyShireen Mohandes <shireen@...> wrote: Hi all I have been contacted by some researchers at a university in The Netherlands. They’d like us to participate in

a study, along with other members of other health related groups. I would like to ask if a few members could review my correspondence with them, take a look at the sample questions, and help us to decide if we want to help them. Their ultimate goal is to produce findings to help groups, like ours, function in better ways. If you are interested in helping me please reply to this email via the bulletin board. I think that if three people volunteered – that would be good. I reckon it will take about 1 hour of your time, at most, to read thru the material. Thank you Shireen Mohandes London, England

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[Guest guest]

Shireen,

I would be happy to participate.

Nicki Venable

From:

blepharophimosis [mailto:blepharophimosis ] On Behalf Of Shireen Mohandes

Sent: Tuesday, August 28, 2007

6:13 AM

To:

blepharophimosis

Subject: blepharophimosis

research study on support groups - shall we take part?

Hi all

I have been contacted by some researchers at a university in The

Netherlands. They’d like us to participate in a study, along with other members

of other health related groups.

I would like to ask if a few members could review my

correspondence with them, take a look at the sample questions, and help us to

decide if we want to help them.

Their ultimate goal is to produce findings to help groups, like

ours, function in better ways.

If you are interested in helping me please reply to this email

via the bulletin board. I think that if three people volunteered – that would

be good.

I reckon it will take about 1 hour of your time, at most, to

read thru the material.

Thank you

Shireen Mohandes

London, England

[Guest guest]

I Would like to see the questionaire and possibly be a part of the

study.

Stacey

>

> Hi all

>

> I have been contacted by some researchers at a university in The

Netherlands. They’d like us to participate in a study, along with

other members of other health related groups.

>

> I would like to ask if a few members could review my correspondence

with them, take a look at the sample questions, and help us to decide

if we want to help them.

>

> Their ultimate goal is to produce findings to help groups, like

ours, function in better ways.

>

> If you are interested in helping me please reply to this email via

the bulletin board. I think that if three people volunteered †" that

would be good.

>

> I reckon it will take about 1 hour of your time, at most, to read

thru the material.

>

> Thank you

>

> Shireen Mohandes

>

> London, England

>

[Guest guest]

Dear all that have replied so far

I will forward the correspondence I have to date to you. Perhaps

you can let me know your thoughts. I think that in the first instance they want

a group of us to review the questions …. And then send the revised list to a

larger number of people.

I will be in touch with you directly …no need to clutter the board.

Thanks for getting back to me.

I am sure that there will be more info soon … will update you

all.

Shireen

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of Shireen Mohandes

Sent: 28 August 2007 11:13

blepharophimosis

Subject: blepharophimosis research study on support groups - shall we

take part?

Hi all

I have been contacted by some

researchers at a university in The Netherlands. They’d like us to participate

in a study, along with other members of other health related groups.

I would like to ask if a few members

could review my correspondence with them, take a look at the sample questions,

and help us to decide if we want to help them.

Their ultimate goal is to produce

findings to help groups, like ours, function in better ways.

If you are interested in helping me

please reply to this email via the bulletin board. I think that if three people

volunteered – that would be good.

I reckon it will take about 1 hour of

your time, at most, to read thru the material.

Thank you

Shireen Mohandes

London, England

[Guest guest]

send over the info....we are interested here tooOn 28-Aug-07, at 4:13 AM, Shireen Mohandes wrote:Hi allI have been contacted by some researchers at a university in The Netherlands. They’d like us to participate in a study, along with other members of other health related groups.I would like to ask if a few members could review my correspondence with them, take a look at the sample questions, and help us to decide if we want to help them.Their ultimate goal is to produce findings to help groups, like ours, function in better ways.If you are interested in helping me please reply to this email via the bulletin board. I think that if three people volunteered – that would be good.I reckon it will take about 1 hour of your time, at most, to read thru the material.Thank youShireen MohandesLondon, England Tonikka & Chrischeck out our blogwww.nottynurse.blogspot.com

[Guest guest]

Count me in too please!

('s Mum)

Kildare, Ireland

Re: blepharophimosis research study on support groups - shall we take part?send over the info....we are interested here too

On 28-Aug-07, at 4:13 AM, Shireen Mohandes wrote:

Hi all

I have been contacted by some researchers at a university in The Netherlands. They’d like us to participate in a study, along with other members of other health related groups.

I would like to ask if a few members could review my correspondence with them, take a look at the sample questions, and help us to decide if we want to help them.

Their ultimate goal is to produce findings to help groups, like ours, function in better ways.

If you are interested in helping me please reply to this email via the bulletin board. I think that if three people volunteered – that would be good.

I reckon it will take about 1 hour of your time, at most, to read thru the material.

Thank you

Shireen Mohandes

London, England

Tonikka & Chris

check out our blog

www.nottynurse.blogspot.com

Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Hi Shireen,

Please send the info over here too. I'd love to participate in the study

that is being done.

Thanks,

Sheryl

>From: " Shireen Mohandes " <shireen@...>

>Reply-blepharophimosis

><blepharophimosis >

>Subject: blepharophimosis research study on support groups - shall we

>take part?

>Date: Tue, 28 Aug 2007 11:13:09 +0100

>

>Hi all

>

>I have been contacted by some researchers at a university in The

>Netherlands. They’d like us to participate in a study, along with other

>members of other health related groups.

>

>I would like to ask if a few members could review my correspondence with

>them, take a look at the sample questions, and help us to decide if we want

>to help them.

>

>Their ultimate goal is to produce findings to help groups, like ours,

>function in better ways.

>

>If you are interested in helping me please reply to this email via the

>bulletin board. I think that if three people volunteered – that would be

>good.

>

>I reckon it will take about 1 hour of your time, at most, to read thru the

>material.

>

>Thank you

>

>Shireen Mohandes

>

>London, England

>

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