Jump to content
RemedySpot.com

Question!!!!

Rate this topic


Guest guest

Recommended Posts

Misty..the link posted has good instructions however...up your fragrance oil

to 2-3 oz per lb. Since these animals are only going to be giving off a cold

scent throw they need some extra 'punch' to them.

Shana

Link to comment
Share on other sites

  • 3 years later...
Guest guest

Hi I am Jill. I am Ruthies mom. I havent been on in awhile as life is

pretty busy with 4 children. We went to see Ruthies eye doctor at the

Childrens Hospital a few weeks ago. She would like us to think about

having the trans nasal wiring surgery done on Ruthie. She has her eyes

checked every 6 months. The doctor is concerned about Ruthies

peripheral vision being effected because if she turns her head to look

to the side at something the opposite eye closes. Does anyone have a

child who also does this? Has anyones child had the trans nasal surgery

at this young of an age? Were they happy with the results? They are

also tinking of redoing the sling surgery using tendon from her leg.

Anyone of hear of this? Help so many questions. Thanks, Jill

Link to comment
Share on other sites

Guest guest

Hi,

i'm 23, i had the tendon taken from the leg for my first surgery when i

was way young. Now its a 5 inch scar on my leg, i'd stick to the other

type of sling, works just as well. My brother and i both have

blepharophimosis, he had the surgery(trans nasal wiring) i didn't. If

it is impeding her vision go for the surgery, if its not required i

wouldn't even let them touch her. Another reason they like to do the

trans nasal wiring is it gives you your epicanthis fold so you don't

look asian basically.

Best Reguards

Jimmy

--- In blepharophimosis , " jricard5 " <jricard5@...>

wrote:

>

> Hi I am Jill. I am Ruthies mom. I havent been on in awhile as life is

> pretty busy with 4 children. We went to see Ruthies eye doctor at the

> Childrens Hospital a few weeks ago. She would like us to think about

> having the trans nasal wiring surgery done on Ruthie. She has her

eyes

> checked every 6 months. The doctor is concerned about Ruthies

> peripheral vision being effected because if she turns her head to

look

> to the side at something the opposite eye closes. Does anyone have a

> child who also does this? Has anyones child had the trans nasal

surgery

> at this young of an age? Were they happy with the results? They are

> also tinking of redoing the sling surgery using tendon from her leg.

> Anyone of hear of this? Help so many questions. Thanks, Jill

>

Link to comment
Share on other sites

Guest guest

Hi Jill

I don’t know if you saw the post I sent in Oct 2006, which was a

repeat of something I forwarded in March 2006. But here it is again.

I hope it helps you.

Regards

Shireen

London, England

Hardy is a doctor who used to work at Moorfields Eye

Hospital in London, England.

>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>From: Hardy, Sent: 12 March 2006 11:36

>Dear Shireen,

>Thankyou for the email.

>

>Regarding trans-nasal wiring: This procedure is done when the space between

>the inner angles of the eyes (which is widened in BPES, and is called

>telecanthus) is too large to be corrected by operating on the soft tissues

>in this area alone, especially the tendon which connects the inner angles

>of the eyes to the bone on the side of the nose. The wire is passed through

/

>around said tendons and then passed through the nasal cavity to the other

>side, where it is connected to the opposite tendon in a similar fashion.

>The wire is tightened and effectively brings the inner angles of the eye on

>each side closer together. The outcome can be a little unpredictable in

some

>cases.

>

>Not that many people have had it done as it doesn't need to be done too

>often, as the distance between the inner angles of the eyes is usually not

>so great, but it certainly is done and has been done on BPES patients

>treated at Moorfields (and elsewhere, of course!). I'm afraid I can't

>easily find an image of the procedure to send you, mainly because of

>copyright rules, but you could find it in a text book of oculoplastic

>surgery if necessary.

>

>You are absolutely right not to try to give medical advice - it can be a

>complicated area, so others are best referred to their own doctor +/- an

>oculoplastic or plastic surgeon.

>

> Hardy

>

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of jricard5

Sent: 13 July 2007 15:55

blepharophimosis

Subject: blepharophimosis Question!!!!

Hi I am Jill. I am Ruthies mom. I havent been

on in awhile as life is

pretty busy with 4 children. We went to see Ruthies eye doctor at the

Childrens Hospital a few weeks ago. She would like us to think about

having the trans nasal wiring surgery done on Ruthie. She has her eyes

checked every 6 months. The doctor is concerned about Ruthies

peripheral vision being effected because if she turns her head to look

to the side at something the opposite eye closes. Does anyone have a

child who also does this? Has anyones child had the trans nasal surgery

at this young of an age? Were they happy with the results? They are

also tinking of redoing the sling surgery using tendon from her leg.

Anyone of hear of this? Help so many questions. Thanks, Jill

Link to comment
Share on other sites

Guest guest

Hello, Jill... My name is Terry. I haven't written in ages, but I wanted to respond to your questions. My daughter, (age 22 next month), has BPES. As a little girl, when she would look to one side, her one eye would close. It was quite a concern. She was compensating and that action helped her to see things, peripherally, better. Her vision was being affected because of the BPES. She was beginning to not use her right eye. She had to wear a patch during her time in Kindergarten. had the trans nasal wiring done when she was 5 years old. It was amazing how it pulled her eyes together

(there was quite a space between them because of the BPES) and widened them horizontally. Our doctor said that doing this procedure first would benefit her and help to make the sling surgery more effective/successful. She recovered very quickly and had minimal to no scarring. Today there is no scarring that you can see. Six months later, at age 6, she had fascia removed from her leg to make the slings that would hold up her eyelids. This was a more involved surgery. She was very brave, though, and surprised all of us at how fast she recovered. The leg incision was more of a concern, actually, because it got infected and took longer to heal. The scar is about the size of a quarter, maybe a bit smaller and indented, too. Her scars above her eyebrows healed really nicely. Most of the time you never see them. Our doctor told us that she would not be able to close her eyes after this surgery.

I didn't know if I wanted her to go through with it after I was told that. But after weighing the odds, we decided it was worth doing. To this day, can't keep her eyes closed while sleeping. She has adapted by sleeping on her stomach or placing her forearm over her brows to hold down the eyelids until she is asleep. It did alarm us at times to see her eyes wide open when she was asleep, but you get used to it and sleep comes even when the lids are open. She has never used eye drops or ointment for sleeping or any other time. She doesn't have dry eyes. I'm very glad about that. wears glasses for near-sightedness. I wish you all the best with your daughter, Ruthie. From, Terry Helgestad ('s mom) Edgerton, Wisconsin USA jricard5 <jricard5@...> wrote: Hi I am Jill. I am Ruthies mom. I havent been on in awhile as life is pretty busy with 4 children. We went to see Ruthies eye doctor at the Childrens Hospital a few weeks ago. She would like us to think about having the trans nasal wiring surgery done on Ruthie. She has her eyes checked every 6 months. The doctor is concerned about Ruthies peripheral vision being effected because if she turns her head to look to the side at something the

opposite eye closes. Does anyone have a child who also does this? Has anyones child had the trans nasal surgery at this young of an age? Were they happy with the results? They are also tinking of redoing the sling surgery using tendon from her leg. Anyone of hear of this? Help so many questions. Thanks, Jill

Building a website is a piece of cake. Small Business gives you all the tools to get online.

Link to comment
Share on other sites

Guest guest

Hi, this is Dannah. I mainly want to comment on the open eyes while

sleeping problem. I'm 51 and when I had my surgeries (10) back in the

late 50's and early to mid 60's BPES was not really known about. I

lost the use of my left eye due to the eyelid covering it too much

while it was trying to develop vision. Then when the surgeons took

muscle from my thigh and put it into my lid to raise it, it could no

longer close. Just so you know, I was advised to use ointment every

night before I went to bed because my eye would not be able to

produce enough tears. My eyes always watered and I had no problem

with dry eyes so I didn't follow the doctors orders. Little did I

know that my eyes were excessively watery because they were too dry!

Hard to explain. Anyway, now my eye (because of not using ointment)

is totally covered with scar tissue due to the fact that it could

never close and it wasn't properly lubricated. Luckily I don't use

this eye anyway so it doesn't impede my vision, but with your child

who has sight in her both of her eyes at this time, I would highly

recommend that you talk to your doctor about the possibility of scar

tissue build-up and the affect it will have in the future on your

daughter's eyesight should she not use lubricant. My other eye didn't

have a problem with closing and although I am severely nearsighted

(actually, legally blind without glasses) I can see clearly without

any scar tissue impeding my vision. I didn't use lubricant in it

either. I hope this helps you. My pics are posted under Dannah. Good

luck and God bless.

Hi I am Jill. I am Ruthies

mom. I havent been on in awhile as life is

> pretty busy with 4 children. We went to see Ruthies eye doctor at

the

> Childrens Hospital a few weeks ago. She would like us to think

about

> having the trans nasal wiring surgery done on Ruthie. She has her

eyes

> checked every 6 months. The doctor is concerned about Ruthies

> peripheral vision being effected because if she turns her head to

look

> to the side at something the opposite eye closes. Does anyone have

a

> child who also does this? Has anyones child had the trans nasal

surgery

> at this young of an age? Were they happy with the results? They are

> also tinking of redoing the sling surgery using tendon from her

leg.

> Anyone of hear of this? Help so many questions. Thanks, Jill

>

>

>

>

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

>

Link to comment
Share on other sites

Guest guest

It has been awhile since I have gotten on to the website and I almost

forgot how helpful and supportive you all can be. Thank you all for

your advice and for sharing your own stories. I always feel better

talking with people who know where we are coming from. I think we are

leaning towards having the surgery done. I will keep you all posted

when we know when. THANKS AGAIN, Jill Billerica, MA

USA Hi I am Jill. I am Ruthies

mom. I havent been on in awhile as life is

> pretty busy with 4 children. We went to see Ruthies eye doctor at

the

> Childrens Hospital a few weeks ago. She would like us to think

about

> having the trans nasal wiring surgery done on Ruthie. She has her

eyes

> checked every 6 months. The doctor is concerned about Ruthies

> peripheral vision being effected because if she turns her head to

look

> to the side at something the opposite eye closes. Does anyone have

a

> child who also does this? Has anyones child had the trans nasal

surgery

> at this young of an age? Were they happy with the results? They are

> also tinking of redoing the sling surgery using tendon from her

leg.

> Anyone of hear of this? Help so many questions. Thanks, Jill

>

>

>

>

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...