Guest guest Posted July 11, 2007 Report Share Posted July 11, 2007 Hello all, it has been a while since I last posted, life, grad school and all have me VERY busy. To refresh, Miles, almost 3 was diagnosed with BPES only AFTER, my optha. casually mentioned he " looked " like he had it about 1 1/2 years ago and I did the research. We later had genetic counseling and he has it. However, he is sooooo bright and has a mild form. I've posted new pics of him. We are an African American family which also had made finding support difficult (NO ONE has heard of this! As always, I am grateful for this resource. Crystal Quote Link to comment Share on other sites More sharing options...
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