Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 I am new to this group and I am thankful for all the information provided here. I am looking at adopting a young girl who has this syndrome. I am here to see what she will need for support throughout her life. She has already had 4 surgeries and is scheduled for another one in Aug. I am hoping to have more information in a few weeks. Thanks again for website information. Quote Link to comment Share on other sites More sharing options...
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