Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Hi, Although my daughter is only five, she has ADHD type issues and OCD. She also lost weight as her dose of prozac was increased. Kids with ADHD type issues often do better on SSRIs other than prozac, or drugs other than SSRIs. For example, my daughter did much better on zoloft, at a low dose--and many do well on paxil. Others will probably have very good advice on this. My daughter does well with a low dose of an SSRI and clonidine. Others do well with an SSRI in combination with risperdal. There are so many ways to go, unfortunately finding the combination that works is difficult, but worth striving for. Good luck. Stephany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Hi Dana. My 9 year old son has OCD, ADHD, depression, and mild TS. We have noticed similar effects from the Prozac (I think). His biggest problem was rages so we had him on Wellbutrin 300 mg and 5 mg of Prozac to combat irritability. The rages and meltdowns went away but so did his concentration at school. We dropped the Wellbutrin and added Adderall for the ADHD. His concentration greatly improved but his mood was pretty ugly. We upped the Prozac to 10 mg, and lost the concentration again and his mood got worse. Now we're in the process of dropping the Prozac completely. We are going to go with 100 mg of Wellbutrin and 10 mg of Adderall. I am a little concerned that he will have no front line meds for OCD, but am actively looking for a CBT therapist for him. He really loves his current therapist, but she does no E & RP. She has been supposed to buy and read the March protocol and Teaching the Tiger for about a month now. When I interviewed her, she assured me she was trained to do CBT. Unfortunately, her training didn't include E & RP. I feel like she misrepresented herself but I guess it was just a case of misunderstanding. I doubt her commitment to learning about E & RP so I'm looking for a new therapist. So far the only one I've heard of isn't on our insurance and since I have 3 OCD kids, therapy might be too expensive. As far as weight loss, I haven't noticed any. The only SSRI I noticed weight gain on was Paxil. I guess I haven't helped much but I do understand what you're going through. Advice anyone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Hi Dana: I have a 15 year old son that has the same problem with loosing weight on the prozac and he takes 30 mg per day. He has lost alot of weight but they say this happens until the body becomes used to the new dosage. Now I have noticed that he is very unhappy to so I phoned the doctor and he said that it could be seasonal depression. If you find out any new information PLEASE LET ME KNOW. Thanks Kathy - (Canada) At 02:46 AM 11/30/00 +0000, you wrote: >Hi everyone. My 10 year old daughter has OCD, ADHD, and depression. >She was diagnosed with ADHD when she was in lst grade and in August >of this year received the OCD & depression diagnosis. The doctor >started her on 20 mg of Prozac and also Trazadone to help with >sleeping.(She also takes Adderall for the ADHD). After a couple of >weeks, we noticed that she was in a better mood, more relaxed, and >seemed to be happier. After a month on 20mg, the doctor then said >that she needed to be increased to 30mg followed by 40mg for therapy >to be most effective. I started to notice that she seemed more >anxious and less happy on the higher dosage. After having a >difficult time getting answers from her teachers, it looks like she >is having difficulty with concentration and keeping on task. She is >also not as happy as she was. She has lost weight taking the >medication and I'm somewhat concerned about that. Has anyone had a >similar experience with Prozac? I don't know whether the dosage is >too high or if it's the wrong one. I do worry about weight gain on >the other medications and the effect this will have on my daughter's >self esteem. With her distractability, I don't know how much is the >ADHD & how much is the OCD. > >I spoke with her therapist today, and asked if she was doing CBT. >She said yes, she had tried 5 or 6 times, but my daughter would not >do it. She doesn't want to answer questions and continuously changes >the subject with the therapist. Even though she often changes the >subject, I know that my daughter feels comfortable with this >therapist, but I am concerned that she is not receiving CBT and ER & P >like she should to get better. She has never treated a child with >OCD, but has treated adults. Our insurance is changing, and it's >uncertain if we'll be able to continue with this therapist. Should I >be looking for someone else since it seems like they do more talking >than anything else? I don't know how my daughter would respond to >going to someone new. Any help or guidance you all could give would >be appreciated. > >Thanks! >Dana > > > >You may subscribe to the OCD-L by emailing listserv@... . In >the body of your message write: subscribe OCD-L your name. You may >subscribe to the Parents of Adults with OCD List at >parentsofadultswithOCD . You may access the >files, links, and archives for our list at > . Our list advisors are >Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators >are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy >, Roman, and Jackie Stout. Subscription issues, problems, >or suggestions may be addressed to Louis Harkins, list owner, at >harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 In a message dated 11/29/00 9:48:44 PM Eastern Standard Time, drmorris2000@... writes: << is having difficulty with concentration and keeping on task. She is also not as happy as she was. She has lost weight taking the medication and I'm somewhat concerned about that. Has anyone had a similar experience with Prozac >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 In a message dated 11/29/00 9:48:44 PM Eastern Standard Time, drmorris2000@... writes: << is having difficulty with concentration and keeping on task. She is also not as happy as she was. She has lost weight taking the medication and I'm somewhat concerned about that. Has anyone had a similar experience with Prozac >> Hi Dana, My son is taking prozac and he has gained a lot of weight. When I read your post, I thought about what Dr. Grayson had said at the OC Conference last year. He said that he found that if the person was prone to be thin, the medication would have the effect you are talking about, and if you were prone to gaining weight, then you would probably gain weight from the med. I was just curious if this holds true with your daughter. It does with my son. Has anyone else found this to be the case? Take care, Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Hi Dana, I don't know why your doctor increased her dose from 20mg, since that seemed to be working. I know that usually the higher doses are recommended for OCD but since everyone is different I think he should be open to just going with what works. When my 12 yr old was on Paxil she only took 10mg. When I was at the OCD Conference in Chicago I asked Dr. Jenike about this and he said for some people the lower doses work best, not for most people but for some. As far as the therapist goes, talk therapy isn't recommended for OCD. In fact, spending an hour worrying or complaining (my daughter would mostly be complaining) can just exacerbate OCD. My daughter doesn't want to do E & RP right now so she is seeing a therapist who is working with her on the basics of " self-talk " as a way to develop the idea that you can use inner resources to deal with stress rather than always relying on acting out or trying to control the situation. She will see this therapist 4 times and then they will do some E & RP, if Ava is willing. Since your daughter has a good relationship with this therapist maybe you could have the therapist help her transition to someone who is experienced with children and E & RP. Your daughter might be more agreeable if she sees it as a continuation of treatment guided by her therapist, rather than you changing things on her. Good Luck! Dana in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Hi Dana, you wrote: > The doctor > started her on 20 mg of Prozac and also Trazadone to help with > sleeping.(She also takes Adderall for the ADHD). After a couple of > weeks, we noticed that she was in a better mood, more relaxed, and > seemed to be happier. After a month on 20mg, the doctor then said > that she needed to be increased to 30mg followed by 40mg for therapy > to be most effective. I started to notice that she seemed more > anxious and less happy on the higher dosage. How long has your daughter been on the increased dose? Each time my child's meds were increased, things got worse for awhile before they got better. Others have told me this can be a sign that once the child has acclimated to the med, it will be effective. > After having a > difficult time getting answers from her teachers, it looks like she > is having difficulty with concentration and keeping on task. She is > also not as happy as she was. She has lost weight taking the > medication and I'm somewhat concerned about that. Has anyone had a > similar experience with Prozac? My daughter took Prozac for about three months, had very little appetite while taking it, and lost about five pounds. For my child, Prozac had a lot of side-effects on mood, behavior, sleep and so on, which is why we switched her after three months. > I spoke with her therapist today, and asked if she was doing CBT. > She said yes, she had tried 5 or 6 times, but my daughter would not > do it. She doesn't want to answer questions and continuously changes > the subject with the therapist. Even though she often changes the > subject, I know that my daughter feels comfortable with this > therapist, but I am concerned that she is not receiving CBT and ER & P > like she should to get better. She has never treated a child with > OCD, but has treated adults. I believe a good therapist would be able to work around your daughter's resistence. I think your instincts are right on, and a different therapist with experience doing CBT with E & RP with children may be in order. The current therapist may be trying to work too high on your daughter's heirarchy, for example, but not realize this. Your daughter feeling comfortable with this therapist could simply be due to the fact that they are not confronting the OCD! > Our insurance is changing, and it's > uncertain if we'll be able to continue with this therapist. Should I > be looking for someone else since it seems like they do more talking > than anything else? I don't know how my daughter would respond to > going to someone new. Since the current therapist has said she's unable to do E & RP with your daughter, also that she's inexperienced in working with children, she may be willing to work toward a transition to a new, more experienced therapist to smooth this process for your daughter. Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Hi Noelle, Dr. Grayson's comment confuses me. It makes sense when applied to adults, but all children are supposed to be growing and gaining weight. It brings us back to height/weight ratios and weight percentiles, gaining too much too quickly. Weight loss in any child should be cause for concern. In any case, my daughter lost weight rapidly on Prozac, regained the pounds she lost fairly quickly on her next SSRI, Luvox, then didn't gain anymore weight for several months, so I don't know how if at all SSRIs affected her weight. I've personally wondered if pre- or post-puberty factors in to whether a child gains, loses or has no weight change on an SSRI. Kathy R. in Indiana ----- Original Message ----- From: <larkspurmr@...> > My son is taking prozac and he has gained a lot of weight. When I read your > post, I thought about what Dr. Grayson had said at the OC Conference last > year. He said that he found that if the person was prone to be thin, the > medication would have the effect you are talking about, and if you were prone > to gaining weight, then you would probably gain weight from the med. I was > just curious if this holds true with your daughter. It does with my son. > Has anyone else found this to be the case? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 HI Kathy: Weight loss can also be a symptom of depression. If you are noticing a mood problem you might want to ask your son's psychiatrist to augment his OCD meds with another non-SSRI anti-depressant. Depression is very treatable and untreated it can interefere with doing E & RP which will help the OCD and probably indirectly help your son's depression. I have a son who is now 13 and he has major depressive disorder (MDD) along with his OCD. Thanks to E & RP for his OCD, which was quite severe, our major concern now is his MDD and keeping that under control. Puberty can be such a tough time anyway and to deal with NBDs on top is a real challenge for our beloved children. Good luck, take care, aloha, Kathy (H) (Hawai`i) kathyh@... At 08:44 PM 11/29/2000 -0800, you wrote: >Hi Dana: I have a 15 year old son that has the same problem with loosing >weight on the prozac and he takes 30 mg per day. He has lost alot of >weight but they say this happens until the body becomes used to the new >dosage. Now I have noticed that he is very unhappy to so I phoned the >doctor and he said that it could be seasonal depression. If you find out >any new information PLEASE LET ME KNOW. >Thanks >Kathy - (Canada) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 I think it's time to consider a different medication, such as anafranil, luvox, or celexa. Prozac can really get on some people's nerves. If she felt better, she would cooperate better with CBT. Judy Advice anyone? Hi everyone. My 10 year old daughter has OCD, ADHD, and depression. She was diagnosed with ADHD when she was in lst grade and in August of this year received the OCD & depression diagnosis. The doctor started her on 20 mg of Prozac and also Trazadone to help with sleeping.(She also takes Adderall for the ADHD). After a couple of weeks, we noticed that she was in a better mood, more relaxed, and seemed to be happier. After a month on 20mg, the doctor then said that she needed to be increased to 30mg followed by 40mg for therapy to be most effective. I started to notice that she seemed more anxious and less happy on the higher dosage. After having a difficult time getting answers from her teachers, it looks like she is having difficulty with concentration and keeping on task. She is also not as happy as she was. She has lost weight taking the medication and I'm somewhat concerned about that. Has anyone had a similar experience with Prozac? I don't know whether the dosage is too high or if it's the wrong one. I do worry about weight gain on the other medications and the effect this will have on my daughter's self esteem. With her distractability, I don't know how much is the ADHD & how much is the OCD.I spoke with her therapist today, and asked if she was doing CBT. She said yes, she had tried 5 or 6 times, but my daughter would not do it. She doesn't want to answer questions and continuously changes the subject with the therapist. Even though she often changes the subject, I know that my daughter feels comfortable with this therapist, but I am concerned that she is not receiving CBT and ER & P like she should to get better. She has never treated a child with OCD, but has treated adults. Our insurance is changing, and it's uncertain if we'll be able to continue with this therapist. Should I be looking for someone else since it seems like they do more talking than anything else? I don't know how my daughter would respond to going to someone new. Any help or guidance you all could give would be appreciated.Thanks!Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 wrote: " I am a little concerned that he will have no front line meds for OCD, but am actively looking for a CBT therapist for him. He really loves his current therapist, but she does no E & RP. She has been supposed to buy and read the March protocol and Teaching the Tiger for about a month now. When I interviewed her, she assured me she was trained to do CBT. Unfortunately, her training didn't include E & RP. I feel like she misrepresented herself but I guess it was just a case of misunderstanding. " There is an excellent article in the current oc foundation newsletter addressing the CBT issue. It explains that there are really two types of CBT -- one which involves cognitive restructuring which is used effectively with depression; and cognitive conceptualization and cognitive management to treat OCD. The conceptualization involves removing the shame and guilt from the ocders by providing a cognitive map of the hidden " rules " of ocd. CM is the ERP part. Thus, your therapist may very well have been trained in CBT, but not for its use in OCD. Does that make sense? And I would try an find one that is, BTW. Jule Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 : My 12 yo son has OCD, depression, ADHD, PDD-NOS, and some learning disabilities (mild -- mostly concerning expressive language and writing). He took 60 mg of Prozac for two years before it pooped out. He experienced no apparent side effects from this dose. He also was on Adderall which ended up causing an acute exacerbation of the OCD to the point he was hospitalized. As soon as the Adderall was removed, he was a different person -- still OCD, but able to function. At that point we added a small dose of Risperdal, and treated the ADHD with Ritalin only at school. The Risperdal has caused a great deal of weight gain, but he was a VERY skinny kid, and his weight has stabilized. Now that he's growing faster, he's beginning to slim down a bit. Last spring we switched from Prozac to Celexa, and a month or so ago added a low dose of Wellbutrin to treat the depression. This combination seems to work pretty well. Unfortunately, it can be difficult to ferret out what is ADHD behavior, and what is depression as the symptoms can be identical -- agitation, irritation, innattention, weight loss (or gain), etc. As others have said, there can be an increase in behavioral side effects (BSEs) when meds are increased or otherwise adjusted. SSRIs are the only meds that are effective in treating OCD. The others are used to boost their effect -- for example an SSRI and Wellbutrin. Risperdal is effective with kids who have trouble with rages or a lot of anxiety, or for kids on the autism spectrum. I have tried lowering Aiden's Risperdal dose, but can't get him down any lower than the 1 mg AM and PM. It is difficult for kids to work on their hierarchies when their anxiety and/or depression is not effectively treated. Like Kathy H, I am ever vigilant for the signs of depression in my son. Jule in Cleveland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 -Hi Kathy. You brought up some good points. She has been on 40 mg for about 6 weeks. Would this have been a long enough time for her body to adjust to this dosage? Her therapist after reading what her teachers had to say about her, agreed with me that the medication should be looked at. She is not happy with where my daughter is right now. She feels that she shouldn't be having so many problems this far into therapy and with the medication. Of course, with therapy going the way it is, I can see why she wouldn't have made much progress there. One concern I do have about her weight loss is her attitude toward it. When I told my daughter that she weighed 89 pounds (she's 5 feet tall), she was excited to be " light " . I told her that she didn't need to lose any more weight. On weekends, she might not eat until 1:30 in the afternoon and at night we have to remind her often to eat dinner. She's a very picky eater and usually doesn't eat what we eat, therefore, she often eats at a different time because she's not hungry, etc. I don't necessarily think her weight loss is because of an eating disorder, but I do worry that this is coming. I've read that anorexia often accompanies OCD. With her depression, I know that that can be a factor in weight loss too. We've also had to increase her dosage of Trazadone at night to help her sleep. She originally started out taking 25-50mg. We now have to give her 100 mg at night to help her sleep through the night. She mainly has trouble sleeping on school nights. She was getting up anywhere from 3am on. Now that she's taking 100mg, she's sleeping pretty much through the night. I don't know how much of the sleeplessness is due to the Prozac and how much of it is due to OCD. Has anyone else had sleeping problems on Prozac? I hate to have her on such a high dosage, but I'm told by the doctor and therapist, that it is one of the safest sleeping meds out there. All of you have been great at replying to my message. Any further comments or suggestions would be welcomed. Take care. Dana -- In egroups, " Kathy " <klr@s...> wrote: > Hi Dana, you wrote: > > The doctor > > started her on 20 mg of Prozac and also Trazadone to help with > > sleeping.(She also takes Adderall for the ADHD). After a couple of > > weeks, we noticed that she was in a better mood, more relaxed, and > > seemed to be happier. After a month on 20mg, the doctor then said > > that she needed to be increased to 30mg followed by 40mg for therapy > > to be most effective. I started to notice that she seemed more > > anxious and less happy on the higher dosage. > > How long has your daughter been on the increased dose? Each time my child's > meds were increased, things got worse for awhile before they got better. > Others have told me this can be a sign that once the child has acclimated to > the med, it will be effective. > > > After having a > > difficult time getting answers from her teachers, it looks like she > > is having difficulty with concentration and keeping on task. She is > > also not as happy as she was. She has lost weight taking the > > medication and I'm somewhat concerned about that. Has anyone had a > > similar experience with Prozac? > > My daughter took Prozac for about three months, had very little appetite > while taking it, and lost about five pounds. For my child, Prozac had a lot > of side-effects on mood, behavior, sleep and so on, which is why we switched > her after three months. > > > I spoke with her therapist today, and asked if she was doing CBT. > > She said yes, she had tried 5 or 6 times, but my daughter would not > > do it. She doesn't want to answer questions and continuously changes > > the subject with the therapist. Even though she often changes the > > subject, I know that my daughter feels comfortable with this > > therapist, but I am concerned that she is not receiving CBT and ER & P > > like she should to get better. She has never treated a child with > > OCD, but has treated adults. > > I believe a good therapist would be able to work around your daughter's > resistence. I think your instincts are right on, and a different therapist > with experience doing CBT with E & RP with children may be in order. The > current therapist may be trying to work too high on your daughter's > heirarchy, for example, but not realize this. Your daughter feeling > comfortable with this therapist could simply be due to the fact that they > are not confronting the OCD! > > > Our insurance is changing, and it's > > uncertain if we'll be able to continue with this therapist. Should I > > be looking for someone else since it seems like they do more talking > > than anything else? I don't know how my daughter would respond to > > going to someone new. > > Since the current therapist has said she's unable to do E & RP with your > daughter, also that she's inexperienced in working with children, she may be > willing to work toward a transition to a new, more experienced therapist to > smooth this process for your daughter. > > Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 HI : I am with you on the approach to violence. Even if an OCDer is sorely tried and not in control of the feelings and thoughts, they can work on controlling their behavior. This understanding is part of the C part of CBT and it well explained in Dr. Baer's excellent book " Getting Control " . With successes at E & RP this control becomes easier to manage. The only part that Avery can find helpful is that Ian is not in control and that she can understand this behavior is a result of OCD and other problems and not something personal against her. She should definitely not feel responsible in any way for Ian's behavior. If she has to walk on eggshells all the time waiting for him to blow, that is a tremendously unfair burden to a sibling. We found that we had to apply very consistent, prenegotiated but parent approved, consequences for violent behavior. Also discussing violence as a problem for our family during a calm time (oh yes just less agitated time!) really helped. Even more helpful was to reward those times when Steve managed to control himself when things might easily have moved to violence. Our beloved OCDers often feel very, very guilty about these violent outbursts and don't believe at first there is anything they can do about it. At least that was our experience. We found it necessary to train Steve by modelling anger management techniques and tips. It was almost as thought his brain was in such a state of confusion that he could not access his intelligence and creativity to figure out ways to control his anger without our guidance. Although it is hard, I am sure it will be more than worthwhile to your entire family to have Ian receive competent E & RP for his OCD. These techniques of facing our fears and understanding our emotions and responses are very helpful for anyone, and absolutely essential (IMO) for anyone dealing with OCD. Good luck, take care, aloha, Kathy (H) kathyh@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 HI Dana: It sounds like you need the services of a skilled pediatric psychopharmacologist. If you live near a large metropolitan area this should be relatively easy to accomplish. If you live further away it might be harder to accomplish. We take STeve on a 500 mile round trip flight to his psychiatrist who is very skilled at prescribing and also takes psychotropic meds himself, as does much of his family. It certainly has helped Steve's attitude to taking meds to have a doc who takes medication for one of their mutual diagnoses. Another thing you might consider looking into it getting a consult with a clinic that specializes in OCD comorbid with eating disorders and other alphabet soup. I understand there is one at Brown University in Rhode Island. Steve did initially have trouble with his first SSRI and sleeping. It really activated him and he had serious insomnia. Now when he has insomnia I know it is due to obsessing. A bit of cat cuddling and some music seem to help him and distract his mind from obsessing. OCD is sneaky and comes up when our beloved OCDers are at their most relaxed. If your daughter's therapist is skilled and experienced at E & RP and your daughter has not made progress after 5-6 sessions, you might want to ask the docs to reassess what comorbidities are interfering with success at E & RP. Steve tried three times before being successful at E & RP. Some of the problem was unskilled therapists, but probably a greater part was his serious depression. Other comorbid severe anxiety disorders can also interfere with success at E & RP. WHen Steve had trouble sleeping due to activation by medication he found taking some Benadryl very helpful. Hope this helps. take care, good luck, aloha, Kathy (H) kathyh@... At 02:19 AM 12/01/2000 -0000, you wrote: >-Hi Kathy. > >You brought up some good points. She has been on 40 mg for about 6 >weeks. Would this have been a long enough time for her body to >adjust to this dosage? Her therapist after reading what her teachers >had to say about her, agreed with me that the medication should be >looked at. She is not happy with where my daughter is right now. >She feels that she shouldn't be having so many problems this far into >therapy and with the medication. Of course, with therapy going the >way it is, I can see why she wouldn't have made much progress there. > >One concern I do have about her weight loss is her attitude toward >it. When I told my daughter that she weighed 89 pounds (she's 5 feet >tall), she was excited to be " light " . I told her that she didn't >need to lose any more weight. On weekends, she might not eat until >1:30 in the afternoon and at night we have to remind her often to eat >dinner. She's a very picky eater and usually doesn't eat what we >eat, therefore, she often eats at a different time because she's not >hungry, etc. I don't necessarily think her weight loss is because of >an eating disorder, but I do worry that this is coming. I've read >that anorexia often accompanies OCD. With her depression, I know >that that can be a factor in weight loss too. > >We've also had to increase her dosage of Trazadone at night to help >her sleep. She originally started out taking 25-50mg. We now have >to give her 100 mg at night to help her sleep through the night. She >mainly has trouble sleeping on school nights. She was getting up >anywhere from 3am on. Now that she's taking 100mg, she's sleeping >pretty much through the night. I don't know how much of the >sleeplessness is due to the Prozac and how much of it is due to OCD. >Has anyone else had sleeping problems on Prozac? I hate to have her >on such a high dosage, but I'm told by the doctor and therapist, that >it is one of the safest sleeping meds out there. > >All of you have been great at replying to my message. Any further >comments or suggestions would be welcomed. Take care. > >Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Hi Dana, yes I think 6 weeks would be enough time, or nearly so, for side effects to diminish. Prozac is available in liquid which makes it possible to make very small dose increases, this can reduce or avoid altogether med side effects. Maybe this approach would work for your daughter? One problem: liquid Prozac tastes nasty. Prozac wired my child, and from the first dose she was unable to fall asleep until midnight or later (usual bedtime pre-Prozac was around 8), then was wide awake around 4 or 5 a.m. and it was go, go, go all day. We did this for three months until this side-effect and others caused us to change Kel to Luvox, and her sleeping problems vanished. I'm concerned about weight and eating issues too, even though my child was only 4 at onset she suddenly had disgust for fat people, worries about being fat herself (she wasn't and isn't), plus a zillion little eating-related compulsions and obsessive thoughts. I remain amazed at the common themes OCD attaches itself to, even in a small child who had yet to be much affected by images on TV, culture's support of thinness, etc. I think a lot of OCD kids have " disordered " eating, not necessarily to a diagnosable degree. I don't have any experience with Trazadone but know that several kids represented on this list have taken it or take it currently. In our family (following our Prozac experience) we've decided solving sleep problems, whatever their cause, is a top priority because being chronically sleep-deprived works to OCD's advantage. Kathy R. in Indiana ----- Original Message ----- From: <drmorris2000@...> > You brought up some good points. She has been on 40 mg for about 6 > weeks. Would this have been a long enough time for her body to > adjust to this dosage? >>snip<< > One concern I do have about her weight loss is her attitude toward > it. When I told my daughter that she weighed 89 pounds (she's 5 feet > tall), she was excited to be " light " . I told her that she didn't > need to lose any more weight. On weekends, she might not eat until > 1:30 in the afternoon and at night we have to remind her often to eat > dinner. She's a very picky eater and usually doesn't eat what we > eat, therefore, she often eats at a different time because she's not > hungry, etc. I don't necessarily think her weight loss is because of > an eating disorder, but I do worry that this is coming. I've read > that anorexia often accompanies OCD. With her depression, I know > that that can be a factor in weight loss too. >>snip<< > I don't know how much of the > sleeplessness is due to the Prozac and how much of it is due to OCD. > Has anyone else had sleeping problems on Prozac? I hate to have her > on such a high dosage, but I'm told by the doctor and therapist, that > it is one of the safest sleeping meds out there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 We had just the opposite effect with Josh--With in a week of starting on Prozac he would get in bed & be asleep within a few minutes. Before that he would lay there for hours..or run around the house till 11-12 at night & then just drop where ever he was....now many nights I don't even have to say " GO TO BED " he just takes his meds & gets in bed..turns on the radio.. & goes out fast. Sleeps till 7:30 wake up every day. Good luck--Joy -- Joy- Mom to 13 (CP, Mosaic for s Syndrome, Bilateral Cataracts-left eye / IOL & Developmental delays ) & Josh 11 ( SID, OCD, ADHD) PATH Parent Resource Library- CT From: " Kathy " <klr@...> Reply-egroups Hi Dana, yes I think 6 weeks would be enough time, or nearly so, for side effects to diminish. Prozac is available in liquid which makes it possible to make very small dose increases, this can reduce or avoid altogether med side effects. Maybe this approach would work for your daughter? One problem: liquid Prozac tastes nasty. Prozac wired my child, and from the first dose she was unable to fall asleep until midnight or later (usual bedtime pre-Prozac was around 8), then was wide awake around 4 or 5 a.m. and it was go, go, go all day. We did this for three months until this side-effect and others caused us to change Kel to Luvox, and her sleeping problems vanished. I'm concerned about weight and eating issues too, even though my child was only 4 at onset she suddenly had disgust for fat people, worries about being fat herself (she wasn't and isn't), plus a zillion little eating-related compulsions and obsessive thoughts. I remain amazed at the common themes OCD attaches itself to, even in a small child who had yet to be much affected by images on TV, culture's support of thinness, etc. I think a lot of OCD kids have " disordered " eating, not necessarily to a diagnosable degree. I don't have any experience with Trazadone but know that several kids represented on this list have taken it or take it currently. In our family (following our Prozac experience) we've decided solving sleep problems, whatever their cause, is a top priority because being chronically sleep-deprived works to OCD's advantage. Kathy R. in Indiana ----- Original Message ----- From: <drmorris2000@...> > You brought up some good points. She has been on 40 mg for about 6 > weeks. Would this have been a long enough time for her body to > adjust to this dosage? >>snip<< >>snip<< > I don't know how much of the > sleeplessness is due to the Prozac and how much of it is due to OCD. > Has anyone else had sleeping problems on Prozac? I hate to have her > on such a high dosage, but I'm told by the doctor and therapist, that > it is one of the safest sleeping meds out there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Hi Dana, I won't repeat the advice the Kathys have given you, but just wanted to add two points based on our experience. Kathy H. mentioned comorbidities - is it possible that anxiety is interfering with your daughter's progress in therapy, as well as affecting her sleep? This is the case for my daughter, and adding Buspar to her Prozac dose has really helped. Also, I would give your daughter a little more time to adjust to her medication. Although Prozac is a terrific drug for andra, it was a good three months before we saw relief from side effects, and she had side effects reoccur at other times when her dose was raised. Kathy H's suggestion about a good pediatric psychopharmacologist is a good one. This type of specialist has been invaluable to us for andra. Take care, Lesli drmorris2000@... wrote: > > -Hi Kathy. > > You brought up some good points. She has been on 40 mg for about 6 > weeks. Would this have been a long enough time for her body to > adjust to this dosage? Her therapist after reading what her teachers > had to say about her, agreed with me that the medication should be > looked at. She is not happy with where my daughter is right now. > She feels that she shouldn't be having so many problems this far into > therapy and with the medication. Of course, with therapy going the > way it is, I can see why she wouldn't have made much progress there. > > One concern I do have about her weight loss is her attitude toward > it. When I told my daughter that she weighed 89 pounds (she's 5 feet > tall), she was excited to be " light " . I told her that she didn't > need to lose any more weight. On weekends, she might not eat until > 1:30 in the afternoon and at night we have to remind her often to eat > dinner. She's a very picky eater and usually doesn't eat what we > eat, therefore, she often eats at a different time because she's not > hungry, etc. I don't necessarily think her weight loss is because of > an eating disorder, but I do worry that this is coming. I've read > that anorexia often accompanies OCD. With her depression, I know > that that can be a factor in weight loss too. > > We've also had to increase her dosage of Trazadone at night to help > her sleep. She originally started out taking 25-50mg. We now have > to give her 100 mg at night to help her sleep through the night. She > mainly has trouble sleeping on school nights. She was getting up > anywhere from 3am on. Now that she's taking 100mg, she's sleeping > pretty much through the night. I don't know how much of the > sleeplessness is due to the Prozac and how much of it is due to OCD. > Has anyone else had sleeping problems on Prozac? I hate to have her > on such a high dosage, but I'm told by the doctor and therapist, that > it is one of the safest sleeping meds out there. > > All of you have been great at replying to my message. Any further > comments or suggestions would be welcomed. Take care. > > Dana > > -- In egroups, " Kathy " <klr@s...> wrote: > > Hi Dana, you wrote: > > > The doctor > > > started her on 20 mg of Prozac and also Trazadone to help with > > > sleeping.(She also takes Adderall for the ADHD). After a couple > of > > > weeks, we noticed that she was in a better mood, more relaxed, and > > > seemed to be happier. After a month on 20mg, the doctor then said > > > that she needed to be increased to 30mg followed by 40mg for > therapy > > > to be most effective. I started to notice that she seemed more > > > anxious and less happy on the higher dosage. > > > > How long has your daughter been on the increased dose? Each time > my child's > > meds were increased, things got worse for awhile before they got > better. > > Others have told me this can be a sign that once the child has > acclimated to > > the med, it will be effective. > > > > > After having a > > > difficult time getting answers from her teachers, it looks like > she > > > is having difficulty with concentration and keeping on task. She > is > > > also not as happy as she was. She has lost weight taking the > > > medication and I'm somewhat concerned about that. Has anyone had > a > > > similar experience with Prozac? > > > > My daughter took Prozac for about three months, had very little > appetite > > while taking it, and lost about five pounds. For my child, Prozac > had a lot > > of side-effects on mood, behavior, sleep and so on, which is why we > switched > > her after three months. > > > > > I spoke with her therapist today, and asked if she was doing CBT. > > > She said yes, she had tried 5 or 6 times, but my daughter would > not > > > do it. She doesn't want to answer questions and continuously > changes > > > the subject with the therapist. Even though she often changes the > > > subject, I know that my daughter feels comfortable with this > > > therapist, but I am concerned that she is not receiving CBT and > ER & P > > > like she should to get better. She has never treated a child with > > > OCD, but has treated adults. > > > > I believe a good therapist would be able to work around your > daughter's > > resistence. I think your instincts are right on, and a different > therapist > > with experience doing CBT with E & RP with children may be in order. > The > > current therapist may be trying to work too high on your daughter's > > heirarchy, for example, but not realize this. Your daughter feeling > > comfortable with this therapist could simply be due to the fact > that they > > are not confronting the OCD! > > > > > Our insurance is changing, and it's > > > uncertain if we'll be able to continue with this therapist. > Should I > > > be looking for someone else since it seems like they do more > talking > > > than anything else? I don't know how my daughter would respond to > > > going to someone new. > > > > Since the current therapist has said she's unable to do E & RP with > your > > daughter, also that she's inexperienced in working with children, > she may be > > willing to work toward a transition to a new, more experienced > therapist to > > smooth this process for your daughter. > > > > Kathy R. in Indiana > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 In a message dated 11/30/00 11:56:42 AM Eastern Standard Time, klr@... writes: << Hi Noelle, Dr. Grayson's comment confuses me. It makes sense when applied to adults, but all children are supposed to be growing and gaining weight. It brings us back to height/weight ratios and weight percentiles, gaining too much too quickly. Weight loss in any child should be cause for conce >> Hi, I agree with you and I think Dr. Grayson was speaking on a broad scale about this but just thought I'd ask if anyone else has found this to be true either with their children or with themselves if they were on an SSRI. Take care, Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 -Hi Kathy! You had mentioned finding a pediatric psychopharmacologist. This may be a silly question, but how do you go about finding one? Thanks! Dana -- In egroups, Kathy Hammes <kathyh@i...> wrote: > HI Dana: > > It sounds like you need the services of a skilled pediatric > psychopharmacologist. If you live near a large metropolitan area this > should be relatively easy to accomplish. If you live further away it might > be harder to accomplish. We take STeve on a 500 mile round trip flight to > his psychiatrist who is very skilled at prescribing and also takes > psychotropic meds himself, as does much of his family. It certainly has > helped Steve's attitude to taking meds to have a doc who takes medication > for one of their mutual diagnoses. > > Another thing you might consider looking into it getting a consult with a > clinic that specializes in OCD comorbid with eating disorders and other > alphabet soup. I understand there is one at Brown University in Rhode > Island. > > Steve did initially have trouble with his first SSRI and sleeping. It > really activated him and he had serious insomnia. Now when he has insomnia > I know it is due to obsessing. A bit of cat cuddling and some music seem > to help him and distract his mind from obsessing. OCD is sneaky and comes > up when our beloved OCDers are at their most relaxed. > > If your daughter's therapist is skilled and experienced at E & RP and your > daughter has not made progress after 5-6 sessions, you might want to ask > the docs to reassess what comorbidities are interfering with success at > E & RP. Steve tried three times before being successful at E & RP. Some of > the problem was unskilled therapists, but probably a greater part was his > serious depression. Other comorbid severe anxiety disorders can also > interfere with success at E & RP. > > WHen Steve had trouble sleeping due to activation by medication he found > taking some Benadryl very helpful. Hope this helps. take care, good luck, > aloha, Kathy (H) > kathyh@i... > > At 02:19 AM 12/01/2000 -0000, you wrote: > >-Hi Kathy. > > > >You brought up some good points. She has been on 40 mg for about 6 > >weeks. Would this have been a long enough time for her body to > >adjust to this dosage? Her therapist after reading what her teachers > >had to say about her, agreed with me that the medication should be > >looked at. She is not happy with where my daughter is right now. > >She feels that she shouldn't be having so many problems this far into > >therapy and with the medication. Of course, with therapy going the > >way it is, I can see why she wouldn't have made much progress there. > > > >One concern I do have about her weight loss is her attitude toward > >it. When I told my daughter that she weighed 89 pounds (she's 5 feet > >tall), she was excited to be " light " . I told her that she didn't > >need to lose any more weight. On weekends, she might not eat until > >1:30 in the afternoon and at night we have to remind her often to eat > >dinner. She's a very picky eater and usually doesn't eat what we > >eat, therefore, she often eats at a different time because she's not > >hungry, etc. I don't necessarily think her weight loss is because of > >an eating disorder, but I do worry that this is coming. I've read > >that anorexia often accompanies OCD. With her depression, I know > >that that can be a factor in weight loss too. > > > >We've also had to increase her dosage of Trazadone at night to help > >her sleep. She originally started out taking 25-50mg. We now have > >to give her 100 mg at night to help her sleep through the night. She > >mainly has trouble sleeping on school nights. She was getting up > >anywhere from 3am on. Now that she's taking 100mg, she's sleeping > >pretty much through the night. I don't know how much of the > >sleeplessness is due to the Prozac and how much of it is due to OCD. > >Has anyone else had sleeping problems on Prozac? I hate to have her > >on such a high dosage, but I'm told by the doctor and therapist, that > >it is one of the safest sleeping meds out there. > > > >All of you have been great at replying to my message. Any further > >comments or suggestions would be welcomed. Take care. > > > >Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 HI Dana: The best way I have found of locating good docs is to get recommendations from other parents of kids with OCD in my state. This I have done through networking with other moms with kids with different NBDs. Another way would be to get consumer recommendations from your nearest OCD support group (check out the OCF web site to find listings by state of OCD support groups with contact phone numbers, etc.). If you have a psychologist whom you trust you might ask them for a recommendation of who they find good to work with. This is how I found Steve's current psychiatrist who manages his meds. He works closely with Steve's psychologist and agreed to work with Steve at the request of his psychologist. I have learned to be very careful of medical referrals as we have frequently experienced referrals based on professional courtesy rather than true knowledge of the psychiatrist's skill and knowledge in working with OCD. Another good idea is to interview the doc before you take your child to them. Money spent this way is a wise investment, a look before your leap approach. Hope this helps, good luck finding a suitable doc. Take care, aloha, Kathy (H) kathyh@... At 03:57 PM 12/04/2000 +0000, you wrote: >-Hi Kathy! You had mentioned finding a pediatric >psychopharmacologist. This may be a silly question, but how do you >go about finding one? > >Thanks! >Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Hi Suzy, I am big into books about going to the hospital for wee ones, Curious , lin, etc. Not to over do it just to acknowledge all they may be going through or go through. (Aedan)See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Hi all, My name is Suzy and I have a beautiful 4 year old daughter, Liliana. She was diagnosed with Blepharophimosis as an infant but has not had any surgeries as of yet. She's done great so far and we were told by all of her doctors (we have met with ophthalmologists, a plastic surgeon, and an ophthalmologic surgeon) that she had until she was 5 to have her first surgery. This would have placed her first surgery late next spring. A couple of weeks ago we met with both her ophthalmologist and found that her vision in her right eye was weakening b/c her pupil is now being covered by her eyelid. Her left eye has in turn compensated and is getting stronger while her right eye is getting weaker (her vision and her eyelid both). So the Dr. recommended that she proceed with her surgery now since her vision is now being affected. We of course agree that it seems in her best interest to proceed with the surgeries now due to her vision being affected. The will be using a material called gortex (similar to ptose-up) - is anyone familiar with this? It seems that I have seen that many people still use the muscle from a cadaver or their own leg. Also, does anyone have any tips for post surgery or even pre- surgery? I am struggling with what to tell Lili. The surgery is scheduled for July 11. She's old enough to question things but not to wrap her mind around this and I think it will just scare her. I am thinking we'll just give a simple explanation the day before that we're going to see the Dr. b/c he's going to help her see better. Also, all of the doctors we've seen have decided to only fix the ptosis now and leave the transnasal wiring until she is at least 10- 15 years of age. Is this normal and recommended? We decided to go through the surgeon that is an ophthalmologic surgeon and is associated with Lili's ophthalmologist rather than the plastic surgeon since the surgeon we're going through seems more familiar with bleph as well as up on cutting edge practices. Does anyone have any words of advice? This has all come about much sooner than we anticipated. Also, what is the recovery time for this kind of surgery? A few days? Weeks? I'm sorry for the long length of this posting - I just have so many questions! I appreciate your help. Thanks a bunch! -Suzy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2007 Report Share Posted July 3, 2007 Hi Suzy Just to let you know that our daughter Holly,then aged 18 months, had her first temporary eye lift surgery at Moorfields Eye Hospital last September because her pupils were covered by her lids at the time. I was dreading it but honestly I could not believe how brave Holly was and she was running around after the surgery the next day as if nothing had happened. I must admit she was a bit groggy after surgery because of the anaesthetic, but who isn't!, but after a drink and some food she was fine. There were no bandages either just three marks above each eyebrow! Holly is due another eye lift aged about 4 to 5 depending on whether there is enough muscle in her leg to use for the operation. She is quite small so who knows!! All the very best of luck, I think you will be surprised on how resiliant Liliana will be. Good luck Lucy xx (Hampshire, UK)mysuzy_q <mysuzy_q@...> wrote: Hi all,My name is Suzy and I have a beautiful 4 year old daughter, Liliana. She was diagnosed with Blepharophimosis as an infant but has not had any surgeries as of yet. She's done great so far and we were told by all of her doctors (we have met with ophthalmologists, a plastic surgeon, and an ophthalmologic surgeon) that she had until she was 5 to have her first surgery. This would have placed her first surgery late next spring. A couple of weeks ago we met with both her ophthalmologist and found that her vision in her right eye was weakening b/c her pupil is now being covered by her eyelid. Her left eye has in turn compensated and is getting stronger while her right eye is getting weaker (her vision and her eyelid both). So the Dr. recommended that she proceed with her surgery now since her vision is now being affected. We of course agree that it seems in her best interest to proceed with the surgeries now due to her vision being affected. The will be using a material called gortex (similar to ptose-up) - is anyone familiar with this? It seems that I have seen that many people still use the muscle from a cadaver or their own leg. Also, does anyone have any tips for post surgery or even pre-surgery? I am struggling with what to tell Lili. The surgery is scheduled for July 11. She's old enough to question things but not to wrap her mind around this and I think it will just scare her. I am thinking we'll just give a simple explanation the day before that we're going to see the Dr. b/c he's going to help her see better. Also, all of the doctors we've seen have decided to only fix the ptosis now and leave the transnasal wiring until she is at least 10-15 years of age. Is this normal and recommended? We decided to go through the surgeon that is an ophthalmologic surgeon and is associated with Lili's ophthalmologist rather than the plastic surgeon since the surgeon we're going through seems more familiar with bleph as well as up on cutting edge practices. Does anyone have any words of advice? This has all come about much sooner than we anticipated. Also, what is the recovery time for this kind of surgery? A few days? Weeks? I'm sorry for the long length of this posting - I just have so many questions! I appreciate your help. Thanks a bunch! -Suzy is the world's favourite email. Don't settle for less, sign up for your free account today. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.